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DDN November 2017

‘It’s unsurprising that staff are feeling demotivated’

DDN Magazine November 2017

A commissioner said to me this week, ‘We need to know what the evidence is, see good practice, do things like the service user conference. And we need to get the right information out there – like in your magazine – so people can say “oh that’s an interesting, exciting idea”.

I had been focusing on a crisis in the sector, as we all do when faced with the unpalatable truth of worsening DRD statistics and fewer resources. But it made me think that there’s a lot of mileage in partnership working – a phrase so well used that we’re apt to ignore it.

Our cover story (page 6) shows that the glue that holds together successful partnerships is missing in many areas. The pressure of having to do much more with much less can have a damning effect on the imagination and it’s unsurprising that staff are driven into feeling defensive and demotivated. Providers obviously play a central role in turning this around – but is this possible if they’re focused on survival? If the support networks – and the hours in the day – are not there to help them work constructively with commissioners, how is this achievable?

Caroline Cole suggests responding to the challenges by borrowing from the corporate world (page 16), while Robert Mee draws on his personal experience to share how he created his support network for the LGBT+ community on page 12.

And finally, on page 10 we share resources to put this year’s Alcohol Awareness Week campaign into action.

Claire Brown, editor

Click here to view the virtual magazine or the PDF version

Trump declares opioid crisis ‘a public health emergency’

President Trump: ‘I am directing all executive agencies to fight the opioid crisis.’

US president Donald Trump has declared the country’s opioid crisis a ‘nationwide public health emergency’ and said that he is ‘mobilising his entire administration’ to address the situation, the White House has announced.

Last year more than 2m Americans had an addiction to illicit or prescription opioids, with drug overdoses now the leading cause of ‘injury death’ in the US, outnumbering both traffic and gun fatalities. There were more than 52,000 drug overdose deaths in 2015, with the White House expecting 2016’s total to exceed 64,000 – a rate of 175 deaths per day.

In 2016 more than 11.5m Americans reported misuse of prescription opioids and 950,000 reported heroin use, the administration says, with the rising death rate in part the result of ‘the proliferation of illegally made fentanyl’. An interim report from the President’s Commission on Combating Drug Addiction and the Opioid Crisis urged him to declare a national emergency earlier this year (DDN, September, page 5).

The emergency declaration will allow expanded access to substance misuse treatment and medication, including for people in HIV/Aids programmes, as well as the recruitment of more treatment professionals and provision of grants for people who have been ‘displaced from the workforce’ as a result of addiction.

‘Ending the epidemic will require mobilisation of government, local communities, and private organisations,’ said Trump. ‘It will require the resolve of our entire country. I am directing all executive agencies to use every appropriate emergency authority to fight the opioid crisis. This marks a critical step in confronting the extraordinary challenge that we face.’

DPA director Maria McFarland Sánchez-Moreno: President Trump is ‘ignoring reality’.

The US-based Drug Policy Alliance, however, accused the president of ‘ignoring reality’ and ‘sticking his head in the sand’. ‘While a couple of his proposals might help mitigate overdose, his speech revealed a profound and reckless disregard for the realities about drugs and drug use in the United States,’ said alliance director Maria McFarland Sánchez-Moreno.

‘Trump seemed to be saying that prevention boils down to ads encouraging young people to “just say no” to drugs, ignoring the utter failure of that strategy when the Reagan administration started it in the 1980s,’ she continued. ‘And he continued talking about criminal justice answers to a public health problem, even though the war on drugs is itself a major factor contributing to the overdose crisis. Trump had a chance to do something meaningful to help stem the tide of overdose deaths in the country – instead, he is condemning even more people to death, imprisonment, and deportation in the name of his war on drugs.’

A position paper from the Global Commission on Drug Policy has also urged that supplies of prescription opioids in the US and Canada should not be cut without ‘first putting supporting measures in place’. Harm reduction options need to be improved and expanded, alongside ‘de facto decriminalisation’ of possession and personal use, says The opioid crisis in North America. The extent of the public health crisis ‘cannot be overstated’, it warns.

Position paper at www.globalcommissionondrugs.org

Losing the legacy

Mark Reid’s alcohol problems started with his dad and became the focus of his life. He describes how Nacoa gave him the insight and the tools to take control.

I am an adult child of an alcoholic. I am also an alcoholic. I stopped drinking seven years ago. A key part of my current thinking about my alcoholism is to look at the formative role played by my dad’s drinking. To do this, I have turned to the aspects of the issue covered by the National Association for Children of Alcoholics (Nacoa) and also Adult Children of Alcoholics (ACA).

Seeing what they do is a revelation and has brought me a new, extra, peace of mind. It involved a pit stop from the full daily circuit of my Alcoholics Anonymous programme, though that remains central to my recovery. Its emphasis on personal responsibility is now nuanced by what Nacoa informs.

I have spoken to my dad about his drinking days. He doesn’t really bother with it now. I was brought up in a culture in which a lot of men went to the pub every night – or more specifically in dad’s case, the working men’s club, partly because the club offered the justification that there was more reason to go than just alcohol; they needed committee members who had to attend, to make important decisions and do the books.

My dad would go after tea and early evening telly. A daily dose of two hours’ drinking time. We’d always hear his key rattle ominously back in the front door at eleven twenty precisely – except on Sundays when last orders was earlier. After the strong Yorkshire ale, the steady and reliable father-of-five who came home to the family from the office every day was gone. He was replaced by a drinker, on edge and up for a verbal clash.

My mum, quieter and more anxious as closing time got nearer, would disappear to bed before he came back. As we became teenagers, we might still be up, listening to music. Sometimes we would stand our ground. It was a hollow show of bravado from me. I remember with crystal clarity the night I cried myself to sleep and vowed to myself to work as hard as I could at school so I could go to university and leave home. Looking back now, I know it was not a hopeful feeling, it was heavy and lonely. That is a word to sum up how people who’ve grown up with alcoholics say they feel when they talk to Nacoa.

The Nacoa ‘checklist’ (see below), which I first read in their powerful literature, outlines common themes and is a menu of all the anxieties I had as I grew up. The reasons for rejection when my dad had been drinking were never set out. It came late at night when I was tired and so was all the more disconcerting. Family relations were almost always good by day. The ups and downs left me confused about how people were meant to relate to each other. Were adult men all out drinking and feeling better by coming back and shouting the odds?

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‘You are not alone’: the Nacoa checklist
One in five children in the UK live with a parent who drinks hazardously,
says Nacoa, with millions of adults still affected by their parents’
drinking. These are issues that callers often talk about on their helpline:
– feeling different from other people
– having difficulty with relationships
– fearing rejection and abandonment, yet rejecting others
– being loyal even when loyalty is undeserved
– finding it difficult to have fun
– judging themselves without mercy
– fearing failure, but sabotaging success
– over-reacting to changes over which they have no control
– lying when it would be just as easy to tell the truth
– guessing at what ‘normal’ is
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I concluded that adults you trusted will disappear and come back different. Why wait for that to happen when you could do it to them first? At other times it made sense to do the opposite and stay loyal to people in the hope they might then be consistent – except this approach just enables others to treat you how they like. Being loyal, where loyalty is undeserved, becomes a way of resigning yourself to low self-esteem.

My inability to deal with all these questions at the time fed into other insecurities. To ease them I drank more or less excessively for 30 years before reaching the park bench. Alcohol engulfed everything I built up along the way – my marriage and contact with my children, my career and liberty.

Having seen how another person’s drinking destabilised me, it would seem madness to follow him to the pubs and clubs. Yet learned behaviour is often all we have. It doesn’t matter what your role model does; you’ll do it too. Nacoa has shown me that the impact of uncomfortable thoughts from living with an alcoholic parent leaves an emotional and psychological deficit. Nacoa identifies and clearly explains what I term the ‘comfort deficit’ in children of alcoholics. We begin by self-medicating and some of us turn to the only coping mechanism we see in use around us: alcohol. More of the same. And it is one that the drinking parent is hardly likely to deny the green light to.

What Nacoa does so effectively is fully explain the nature of the deficit which can be created and passed on by alcoholic parents. These explanations are a source of significant reassurance to me. In recovery, awareness is all. As with any unhelpful thinking style, once the child-of-alcoholic deficits are made clear, a new perspective can quickly follow. It allows me to see that my alcoholism is not (all) my own doing, fault or problem.

Equally revelatory to me is the fact that the Nacoa checklist of how children of alcoholics might think, feel and behave is also the matrix for the symptoms of the untreated alcoholic. These many forms of frustration are what I found myself grappling with as I tried to turn abstinence into the equanimity of true sobriety.

Nacoa has helped me triangulate my recovery and see it from a further point of view. Previously I had approached my alcoholism in two main ways. One is the standpoint of cognitive therapy and addressing it as the result of maladaptive responses to life events. Another has been the 12-step approach and accepting that I have my very own set of character defects like self-pity and selfish motives.

However, it can be unsatisfying to see the issue as soluble only by either handing it over to a higher power on the one hand or by being entirely rational on the other. Human nature can completely mis-fuel both these theories. I will still use a composite of both these approaches on a daily basis. Nacoa brings back in my own personal and family experience. Without that we can never fully understand ourselves.

And my dad? He’s been a central part of my recovery – emotionally and financially. He was the one who waited patiently outside as the AA meeting went on, or dropped me off at my latest counsellor in early recovery. My parents bore the brunt of my disappearance into addiction – mine was the only empty chair at their 50th wedding anniversary. Each new part of the explanation for our alcoholism we now share. What we also share is the hope that we can help prevent alcoholism seeping into the next generation. And for that, my children also have Nacoa.

The Nacoa helpline is 0800 358 3456, helpline@nacoa.org.uk, nacoa.org.uk

Mark Reid is participation and recovery worker at Path 2 Recovery (P2R), East London NHS Foundation Trust

Even moderate drinking can have ‘negative impact’ on children

Nearly a fifth of children have experienced embarrassment as a result of their parents’ drinking, according to a report from the Institute of Alcohol Studies (IAS). Parents ‘do not have to regularly drink large amounts of alcohol for their children to notice changes in their behaviour and experience negative impacts’, says the study, which is based on a survey of almost 1,000 parents and children, along with focus groups and practitioner interviews.

While there have been a number of reports on the impact of alcohol dependence and problem drinking on parenting, this is the first to look at lower-level consumption, with the majority of those surveyed reporting drinking levels within the recommended 14 units per week.

Having seen a parent ‘tipsy or drunk’ was associated with children feeling worried, ‘less comforted than usual’, or experiencing more arguments, unpredictable behaviour or disrupted bedtime routines, says the report. Nearly 30 per cent of parents reported having been drunk in front of their children, and more than half ‘tipsy’. While more than 10 per cent of children said they’d felt worried or that their parents had given them less attention as a result of drinking, 29 per cent of parents thought it was ‘OK to get drunk’ in front of their child as long as it was not a regular occurrence.

Children who had seen their parents drunk were also less likely to consider their drinking ‘as providing a positive role model’, the report adds, regardless of how much the parents usually drank. Fifteen per cent of the children surveyed had asked their parents to drink less, while 16 per cent of parents reported feeling ‘guilty or ashamed of their parenting’ as a result of their drinking.

‘We too quickly dismiss parental drinking as harmless fun and relaxation, but this report shows that parents do not need to be regularly drinking large amounts for their children to see a change in their behaviour and experience problems,’ said Caroline Flint MP at the document’s launch. ‘I’d like to see a more open conversation about this among parents and professionals.’

‘All parents strive to do what’s best for their children, so it’s important to share this research about the effects drinking can have on parenting, and what steps parents can take to protect their children,’ said IAS chief executive Katherine Brown. ‘Children are exposed to a barrage of marketing messages that glamourise drinking with strong links to sport and pop music. Parents have a tough job on their hands teaching children about the negative side of alcohol. Hopefully this study will help inform guidance that enables parents to make fully informed choices about their own drinking in front of their children.’

‘Like sugar for adults’: the effect of non-dependent parental drinking on children and families, at www.ias.org.uk

Fifteen years of DDN!

DDN Magazine will be 15 years old in November!

To mark this anniversary we are having a redesign. We will still be bringing you all the latest news, views, jobs and features free of charge in print and online – but in a modern fresh format.

The updated publication will be a slightly different size to the current magazine. If you are an ongoing advertiser please click here to view the new dimensions for setting adverts. Don’t worry if you are unsure, our design team is always on hand to help resize adverts and provide free design and layout support.

If you do not currently advertise, why not take this opportunity to join us!

We are a free magazine self-funded by advertising, providing comprehensive coverage of the substance misuse sector, wider healthcare professionals, and individuals looking for help.

If you were thinking about advertising your service, events, or latest vacancies there couldn’t be a better issue to start in!

Get in touch today to hear our special birthday rates!

Contact ian@cjwellings.com to find out more.

 

Welsh Government moves to introduce minimum pricing

Rebecca Evans Public Health Minister Wales
‘longstanding and specific concerns’ around excess drinking.

A new Welsh Government bill aims to establish a minimum unit price for alcohol, and make it an offence for alcohol to be supplied below that price. The Public Health (Minimum Price for Alcohol) (Wales) Bill, which has been introduced before the National Assembly for Wales by public health minister Rebecca Evans, will address ‘longstanding and specific concerns’ around excess drinking, the government says.

The annual number of alcohol-related hospital admissions in Wales is estimated at 50,000, at a cost to the NHS of £120m. If a 50p minimum price were to be introduced, reductions in alcohol-related ill health, crime and lost productivity would be worth £882m to the Welsh economy over the next 20 years, the government claims, and there would be 1,400 fewer annual hospital admissions.

The bill proposes a formula for calculating a minimum price based on percentage strength and volume, as well as powers for ministers to create ‘subordinate legislation’ to specify the minimum unit cost. It would also set up a local authority-led enforcement regime with powers of entry and prosecution, and the ability to issue fixed penalty notices.

Plans by the Scottish Government to introduce minimum pricing have been mired in legal difficulties since the start of the decade, however. Although the Alcohol Minimum Pricing Bill was passed 18 months after a previous alcohol bill had its provisions for minimum pricing removed (DDN, June 2012, page 4), still-unresolved legal challenges from drinks industry bodies mean the legislation is yet to be implemented (DDN, December 2016, page 4). David Cameron’s coalition government, meanwhile, shelved its plans to introduce minimum pricing on the grounds that there was insufficient evidence that it would reduce harm without penalising moderate drinkers (DDN, August 2013, page 4).

The impact on moderate drinkers in Wales would be small, the country’s chief medical officer, Dr Frank Atherton, has stated, with the most impact falling on ‘harmful and hazardous’ drinkers.

‘Alcohol-related harm is a significant public health problem in Wales,’ said Rebecca Evans. ‘The 463 alcohol-attributable deaths in 2015 were all avoidable, and each of these deaths would have had a devastating effect on the person’s family and friends. Alcohol-related harm also has a big impact on public services such as the NHS. There is a very clear and direct link between levels of excessive drinking and the availability of cheap alcohol. So we need to take decisive action now to address the affordability of alcohol, as part of wider efforts to tackle alcohol-related harm.’

The bill would address excessive drinking by making it an offence for retailers to sell strong alcohol at low prices, she stated. ‘It will make an important contribution to improving health outcomes, by putting prevention and early intervention at the heart of our efforts to reduce alcohol-related harm. This will undoubtedly help save lives.’

Release mounts powerful anniversary exhibition

Release is marking its 50th anniversary with a pop-up exhibition showing the impact of drug policies on communities worldwide. The Museum of Drug Policy comes to London in November after exhibiting in New York and Montreal.

The free exhibition, which is supported by the Open Society Foundations, features more than 60 artworks from eight countries, including a powerful installation about overdose deaths in the UK. It will also feature interactive discussions on public health, criminal justice and human rights, as well as a live performance of the Sex Workers Opera, a multimedia production written and performed by sex workers and their friends.

An opportunity to elevate the drug policy debate

‘This is a particularly poignant time in the UK to be showcasing the impact of current drug policies,” said Release executive director Niamh Eastwood. ‘ 

Drug-related deaths in this country have reached the highest rate on record, and thousands of people who use drugs have been criminalised instead of getting the help they need. The museum is an excellent opportunity to elevate the drug policy debate, using art to highlight the relationship between drug policy and issues of social control – especially in relation to class and race – in ways our government refuses to address.’

‘These artistic expressions remind us that people affected by drug policies are our friends, sisters, colleagues and that they exist as members of families and communities,’ added Open Society Global Drug Policy Program director Kasia Malinowska. ‘The museum’s powerful photographs, sculptures, installations, and performances highlight the human cost of drug policies and contribute to conversations about reform.’

The Museum of Drug Policy will be at 47-49 Tanner Street, London SE1, from 3-5 November. More information at www.release.org.uk

Duterte removes police from drug war

Controversial Philippine president Rodrigo Duterte has removed the country’s police force from its lead role in his violent crackdown on drugs, the Philippine government has announced.

The lead agency in the ‘campaign against drugs’ will now be the Philippine Drug Enforcement Agency (PDEA), Duterte stated in a memorandum, with the police, armed forces and ‘ad hoc anti-drug task forces’ instructed to leave the PDEA as the sole agency in all anti-drug operations. The move has been seen by some as an attempt to soften the country’s stance in the wake of widespread condemnation.

Duterte was elected president in May 2016 after promising to ‘fatten the fishes’ in Manila Bay on the bodies of dead criminals. By September that year more than 3,000 suspected drug users and dealers were estimated to have been killed by either police or vigilante groups (DDN, October 2016, page 8), with UN secretary-general Ban Ki-moon issuing a statement condemning the president’s ‘apparent endorsement’ of extrajudicial killing. The number of dead was estimated to have risen to 7,000 by the beginning of this year.

Hopes of a change in direction are feared to be premature.

Duterte previously suspended his violent crackdown in order to address problems of police corruption after a Korean businessman was allegedly murdered on police premises (DDN, February, page 5), and there were widespread protests this summer, as well as condemnation by the country’s powerful Catholic Church, after an unarmed 17-year old student was shot dead by police.

Hopes that the Philippines is taking a completely new direction in its drug war are perhaps premature, however. This month its supreme court voted to uphold the detention of former justice secretary Leila de Lima, an outspoken critic of Duterte’s war on drugs whose arrest earlier this year was condemned as ‘politically motivated’ by Human Rights Watch (DDN, March, page 5), and Duterte has also issued a threat to expel all UN and EU diplomats from the country.

 

Hep C: An end in sight?

Despite its prevalence, hepatitis C has long been under-prioritised by health services. But could new drugs and a new commitment from the NHS mean we may finally see this killer condition eradicated?

Last month Public Health England (PHE) published the updated version of its ‘liver disease atlas’, which unsurprisingly made for grim reading. Not only does liver disease account for 12 per cent of total deaths among men in their 40s, but people in the most deprived communities who die from the condition will do so a decade earlier than those in more prosperous areas (see news, page 5).

While many of the deaths on the PHE map are alcohol-related, many more will be a result of hepatitis C, and PHE has renewed its call for people to get tested as a ‘substantial proportion’ of those living with the virus are unlikely to be aware that they are infected (DDN, September, page 4).

Rachel Halford: ‘Stigma will always be an issue, but if we can raise awareness around the new treatments then it all becomes more common.’

Despite hep C’s prevalence and its reputation as the ‘silent killer’ the condition has been, says the Hepatitis C Trust, ‘grossly under-prioritised’ by health services (DDN, November 2013, page 4). That, however, seems to be changing, with a recent commitment from NHS chief Simon Stevens to invest in ‘revolutionary’ new treatments and continue to work closely with the pharmaceutical industry to bring prices down.

The comments were ‘really welcome’, Hepatitis C Trust deputy chief executive Rachel Halford tells DDN , as ‘he’s out there in public now – there’s a commitment that there perhaps wasn’t two years ago’. The trust however has stressed the need for the government to take ‘bold action’ in partnership with the industry to make availability of the new treatments universal.

‘I think there’s been a great improvement,’ says Halford. ‘I think the biggest problem we have now is finding all the undiagnosed. If things continue as they are, the concern is that the ODNs [Operational Delivery Networks for treatment] run out of patients so the emphasis has to be on finding the undiagnosed and supporting people into treatment. We’ve got Simon Stevens’ comments, the price of the drugs has dropped dramatically and we know that there are more coming on line, so essentially what we need is to ensure that we have the people in place to access the treatment.’

While stigma inevitably remains a significant barrier it’s also important to ‘change the actual message’, she stresses. ‘You have people who perhaps were diagnosed some time ago and have dropped off the radar, and one of the things we hear from drug services we work with is that people still think they’ll be getting interferon. We need to change the message so that it’s about oral treatments with no – or limited, short-term – side effects. Stigma will always be an issue, but if we can we raise awareness around the new treatments then it all becomes more common. So hopefully you’ll just go to your GP, get your prescription and off you go, as with something like antibiotics. That ease of access in itself would de-stigmatise it.’

A new report from the London Joint Working Group on Substance Use and Hepatitis C (see column, facing page) sets out a number of recommendations for improving access, including that testing be offered in all drug treatment services and needle exchanges, and GP practices be commissioned to offer testing to former drug users and those not in contact with services. The report also wants to see integrated HCV treatment commissioned within drug treatment where possible, a call the trust backs.

‘Part of the remit of the ODNs is to have outreach, and drug services are the obvious places to do it – there are some that already do,’ says Halford. ‘There’s no reason why nurses can’t be out there doing everything and going into drug services. We’ve got a pilot in Birmingham where a nurse runs a clinic inside a drug service, which we’re running with the support of peers to see if we can reduce DNAs [Did Not Attends].’ Another opportunity is prisons, she states, with estimates of the proportion of the prison population with hepatitis C ranging from 10 to 24 per cent. ‘The prevalence, if you average it out, is probably around 15 per cent – that’s a big prevalence, and a captive audience.’

From the 2nd Atlas of variation in risk factors and healthcare for liver disease in England.

The trust has said before that with the right action there’s no reason why hep C couldn’t be eliminated within the next decade. Does the new NHS position make that aim more realistic? ‘I think it does,’ she says. ‘And also the work happening in Scotland and Wales – they’re the ones leading the way with their commitment and action towards elimination, so what we need to see from our government is some kind of framework or action plan. While it’s fantastic that Simon Stevens has stood up and said what’s he’s said, we still don’t have a strategy, a plan, a framework.

‘The framework we worked on with NHS England was abandoned last year, and they were going to be putting together some kind of operational delivery framework but that hasn’t come to fruition either. So I think what we need is something substantial in writing that lays out the pathways and maps out exactly how we’re going to achieve this, because we will see that in Scotland and Wales. They can calculate the numbers they’re treating, how many will be left in 2020, and so on. What we need to see is our government and the NHS doing that as well.’

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WITHIN OUR GRASP

We can win the war against hepatitis C but we need to seize the opportunity, says Dee Cunniffe

We have seen great strides in the development of treatment for hepatitis C in recent years. Revolutionary new drugs for this life-threatening disease, which can result in cirrhosis, liver failure or liver cancer, can save people’s lives and make a real difference. But the battle has not yet been won.

Despite the introduction in 2014 of new direct-acting antiviral drugs, which can cure hepatitis C in more than nine out of ten cases, there remain huge barriers to those attempting to access treatment. Through our new report, the London Joint Working Group on Substance Use and Hepatitis C (LJWG) reveals that increasing the number of people treated with these medicines offers the potential to halve disease burden in ten to 20 years.

This is an exciting and important opportunity in our efforts to reduce the number of people dying from the disease by 65 per cent before 2030. However, significant action and progress is needed to enable access to these life-saving drugs – especially for the vulnerable, socially excluded sections of the population who inject drugs.

Furthermore, this isn’t just about increasing access to the treatments themselves. With 40 per cent of people living with hepatitis C in London estimated to be undiagnosed, access is only half the battle. To successfully eliminate the disease, we need to ensure this ‘silent killer’, which often remains undetected for many years without symptoms, is diagnosed effectively. This will require services to shift their approach across the patient pathway, from improving testing regimes to enabling better access to drugs.

Current service provision across the country, and particularly in London, is often patchy, disjointed and unable to support the needs of vulnerable, socially excluded populations such as people who inject drugs.

So, what can we do to improve services?

Firstly, we need to ensure there is more ‘joined-up’ thinking across services in all London boroughs. Improved coordination will enable patients to receive the testing and treatment they need, where and when they access it. Joint commissioning arrangements should also be developed between clinical commissioning groups (CCGs) and public health to ensure robust and deliverable pathways are established.

Secondly, all boroughs should create and implement a strategy specifically targeted at addressing liver disease and hepatitis C. An important area to be tackled here is reaching people who inject drugs. This remains the major risk factor for becoming infected.

Our third key call is for hepatitis C antibody testing to be offered in more places across the capital. Testing should be accessible at all drug treatment services and other venues, such as needle and syringe exchange programmes, as well as in pharmacies.

While significant challenges remain to successfully eliminating hepatitis C, our findings offer hope that we can significantly reduce the number of lives lost to the virus. Joining up services and improving access to these revolutionary life-saving drugs can enable us to halve the disease burden in ten to 20 years, helping us on our way to achieving our targets. This might seem ambitious, but with the right structural changes, it’s firmly within our reach.

Dee Cunniffe is a policy lead on the London Joint Working Group on Substance Use and Hepatitis C (LJWG)

Being human

Russell Brand says recovery is about finding connection in an alienating culture. DDN meets the man bold enough to rewrite the 12 steps for modern life.

photo by Matt Crockett

We’re all on the scale of addiction, says Russell Brand. ‘Most of us are able to find ways of operating within the culture successfully, to a degree – whereas with “addicts” [he draws the quotation marks in the air] it’s more observable. They are canaries in the cage of a condition that is pervasive.’ The addiction might be to drugs or alcohol, or it could relate to any other area of life – consumerism, materialism, the way you relate to romantic partnerships – ‘those subtle forms of addiction, whereby your identity and wellbeing are attached to external phenomena’.

Brand is on a non-stop merry-go-round of book launching, and is drinking tea and waving his arms around in the upstairs room of a smart restaurant near Piccadilly Circus. His book is called Recovery and is about ‘how the model that exists to understand addiction can be used as a template to move you from forms of attachment’.

Put simply, he wants us to get to grips with the thorny problem of ‘being human’ in an environment that fosters disconnection, alienation and despair. He ‘fucked [his] life up so royally’ that he ‘had no option but to seek and accept help’. There are still traces of the nest-haired apologist of My Booky Wook, but his journey through 12-step treatment has produced a narrative that wants to change things. The engaging anecdotes are still there, but this time they are entwined with a manual – and an earnest entreaty that anyone can change their health, circumstances and outlook, if they have the right mindset.

At the heart of it all is connection, or lack of it, and while he finds the traditions of the original 12 steps interesting, he holds them up to modern life and finds them unyielding – ‘the Christianity, the patriarchy, the way God is presenting, that type of language’.

His response is to translate the steps for modern life. So step four, pledging to make ‘a searching and fearless moral inventory of ourselves’ becomes ‘Write down all the things that are fucking you up or have ever fucked you up and don’t lie, or leave anything out’.

He sought help and went through the steps out of desperation, he says. ‘It’s not like heroin tastes nice. These things are self-administered placebos – ways of dealing with the fact that we can’t connect.’ And it wasn’t easy, he warns in the book, as he leads on to step one: ‘It’s bloody difficult. It is the hardest thing I’ve ever done,’ adding ‘Actually no, the hardest thing I’ve ever done is toil under the misapprehension that I could wring pleasure out of the material world, be it through fame, money, drugs or sex, always arriving back at the same glum stoop of weary dissatisfaction.’

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So why did he feel the need to write a self-help book? He grapples with the term and rejects it. ‘What I’m trying to do is present the idea of self-help differently, and I can only do my personal version of that.’ He feels qualified to write about addiction because he’s experienced it ‘so vividly and continually’.

He has, he says, tried to make the book humorous and accessible so you don’t feel that it’s a manual. ‘I don’t sometimes like the tone of a self-help book. Sometimes I find gurus dauntingly perfect – it’s like talking to someone who has transcended. But this is a self-help book for people who are actually fucked, by somebody who is fucked. It’s a miracle that I’m not on heroin, it’s unbelievable that I’m not doing something weird now, and it’s only because of this.’

‘I think that conversation is the first point,’ he adds. ‘We can set a template by just talking’ – something that Brand seems never to have a problem with. ‘Addiction is amorphous and you may not know you have it,’ he says, gazing into the middle distance. ‘To use a science fiction analogy, you may not know you’re in the Matrix. If consumerism and materialism and individualism are such all-encompassing philosophies, you can’t even envisage a culture that’s not about mass production… all of our systems, all of our tools are broken.’

Through his book he wants us to ask ourselves what we can do about it; what we can change. ‘You don’t have to be unhappy, you’re not supposed to be unhappy,’ he says. ‘If you’re unhappy, that’s a signal – respond to it.’

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A few years ago Brand was the face of recovery, speaking at conferences including the Recovery Festival, visiting Recovery Central in Birmingham and talking about the need for ‘addicts’ to get ‘clean’.

In his book he tells the anecdote of trying to help a homeless man to clean up and dress suppurating leg ulcers. In the course of fetching supplies to attempt this horrible task, he buys the man a few cans of booze. ‘I’ve never been one to impose abstinence where drink and drugs are clearly needed,’ he writes. ‘It’s not for me to judge what a street-sleeper does to cope with their inexcusable suffering. I think that compassion and understanding even in this dubious form provide more comfort and hope and are even more likely to inspire change than impotent piety and unresearched judgement.’

Does this mean he has developed a more inclusive view of recovery – that it could now apply to people who are not abstinent, but stabilising in treatment? A step further, is he inviting people who are not drug free – and might not intend to be – to join the conversation? Can we bring our own versions of being human to the table?

He replies as if dressing down his former self: ‘I’ve never met anybody on a script that I would regard as fucking clean. They’re fucked. And 80-90 per cent of the time they’re using on top of it – as you know, don’t you?’

So is he not concerned about people being booted out of services because they’re not abstinent? What about the homeless guy – what is he supposed to do? Brand looks thoughtful and resists his publicist’s attempts to wind up the conversation to leave for the next appointment – he wants to explain himself. The book predicates the need for kindness and he is not about to let his comment be misinterpreted.

‘I’m a puritan oddly, curiously, given my buccaneer, cavalier background,’ he responds. ‘I am a bit orthodox. If you are a drug addict you cannot take drugs. But I recognise now because of being with people in much harsher circumstances than I, thank God, have never experienced, that they need to be able to engage a whatever level they’re at. But the intention should always be abstinence. Not believing that it’s possible for everyone – I don’t like that kind of cynicism. I do believe it’s possible for everyone for be drug free.’

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In Brand’s final chapter of Recovery, he takes us on his journey with his wife Laura to the hospital and the birthing room for the birth of their daughter. It is a funny, sincere and neurotic account that steps away from his ‘how to’ guide and speaks with raw emotion about the ‘newly acquired altitude’. His journey has been ‘a total excavation of who I am and what it means for me to be a human in the world’.

Leading into the practical exercises to start the programme – the section where the reader picks up a pen and begins their soul-searching inventory – he says ‘I am like a former fat man, stood in his gigantic old trousers, two thumbs up and lithe, unable to believe the change.’ There is no doubting his sincerity in wanting to take you to the other side of your misery.

Recovery: Freedom from our Addictions by Russell Brand is published by Bluebird, ISBN 978-1-5098-4494-4

One Love

The best way to tackle the stigma of gender stereotyping is with an open heart. DDN talks to Beck Gee-Cohen.

‘I was pretty functional when I was using. It was easy because I hid my gender and sexuality, so it was easy for me to hide my addiction as well.’ Beck Gee-Cohen, clinician, trainer, consultant, and trans person in recovery is reflecting on why members of the LGBTQ+ community are more likely to misuse drugs and alcohol.

‘When we have to hide our authentic self, when who we are is not what society says we should be, we turn to drugs and alcohol for relief,’ he says. ‘We might do things we wouldn’t normally do – and a lot of that is about finding acceptance and relieving the pain of being not wanted and not seen.’

Gee-Cohen became addicted while working as a bartender. ‘My friends would go out to the pub and we would all drink, but I would be the one who would go home and continue to use, and continue to drink late into the night by myself,’ he says. ‘I’d surround myself with people who drank the same as I did, so people who didn’t use or didn’t drink were no longer a part of my life.’

Later, in recovery, he went back to college to study sociology looking at gender and sexuality, and then on to do addiction counselling. He thought back to his nights at the bar, ‘seeing a lot of people dying who were part of the LGBT community because they weren’t getting the best services they could get’ and knew his vocation. Then as a clinician he realised he wanted to make a bigger impact and ‘help to shift the culture around LGBTQ people in treatment’.

‘Addiction treatment can get set in its ways – “this is how we’ve always done it”,’ he says. ‘That’s like a red flag for me. Addiction is crafty – drugs have changed, alcohol has changed, the community and society have changed around it. So we need to change around it too.’

So how can we find and reach out to people who may be struggling? ‘It’s about noticing, recognising and not being afraid to say something,’ he says. ‘I think many of us are afraid to say something – we don’t want to cause any conflict or make a wrong judgement. But asking “is everything ok?” is the number one thing we can do.’

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Asking the right questions is the first lesson for treatment centres, and Gee-Cohen emphasises that the process should be formalised into policies and procedures, starting with the intake form.

‘I work with plenty of facilities and institutions that say “we don’t have LGBT people here” and I say “how do you know if you’re not asking the question?”’ He tries not to feel frustrated, but it underlines the need for a systems overhaul. ‘They’ll also say “we’ve never had a trans person” and I’ll say “well statistically, you probably have”.

Getting the paperwork in order is an essential part of becoming more responsive, but he also likes to get to work with the staff team – not just the clinicians ‘who are more likely to get continued education’ but the auxiliary and admissions staff, ‘the ones answering the phone or spending the most time with the client’. It’s important to create change from that very first phone call, or the advert that you do, he says. ‘You have to think about the whole picture.’ It’s also vital to link with mental health services in a meaningful way, making sure all the staff along the therapeutic chain are knowledgeable about the community and ready to be accepting and affirming.

The ‘whole culture’ change needed involves working on awareness – thinking about ‘meeting the community where they’re at’. He’s mindful of the fact that this works both ways and talks about the ‘disconnect in any huge society’. We get into a bubble, he says. There are topics that are ‘hot’ and important in the community, but when he’s talking about LGBTQ issues, he’s ‘learned to slow down and realise that not everyone has the experience and knowledge that I have, and that this could be new information’.

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It takes patience to dismantle stigma and stereotypes, but Gee-Cohen uses his experience – and his engaging personality – to open the conversation. ‘Sometimes I’m the first transgender person people have met – just like sometimes I’m the first person in recovery someone has met,’ he says. ‘So I use that as a way of lessening anxiety and use a little bit of humour to make it human and draw people in. Once that anxiety is lessened we can get to talking – I’m able to effect change in that way.’

When people first come into treatment they are at their most vulnerable state, he points out. ‘They’re not super-happy, they’re very scared and can come off as angry, entitled – all of the things that we like to place on people.’ If a trans person comes into a facility they are likely to be angry because they are coming off drugs, and ‘there’s so much more going on besides them being trans’. But we tend to focus on that and place people in a box – ‘all trans people are angry, all gay men are entitled and bitchy, or whatever. We like to lump people into all these identities and that does a disservice’.

So he tries to come in as being a person in recovery, as being trans, and as being a clinician. ‘I don’t speak for the community – I try not to – but I want people to have a good first impression. And when I talk to families, especially of young people, the fear of their kid being trans or whatever can lessen a little bit when they see one that has had success, has been to college, who’s married and who’s in recovery.’

And taking away the fear – of the unknown, of messing up, of getting even the acronyms wrong (‘Is it LGBTQ? Do I put the “i” in? Do I put the plus? I’ve changed my own website five times!’) – is a great big part of the message.

‘We need to make this a place that is safe and open so people can express themselves in a genuine way,’ he says. ‘When we talk about recovery, we talk about honesty. And if we can’t get honest in this setting, then we are of course at risk of relapse.’

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At his forthcoming workshop with Adela Campbell, a psycho-drama therapist, he’s relishing the thought of involving his London audience in exploring language, relationships and plenty of experiential work. He talks of ‘diving deeper’ into each subset community – gay, lesbian, bisexual, trans and intersex – and exploring the issues that arise.

‘I really like to challenge people’s comfort levels – make them a little uncomfortable, but also walk with them through that discomfort so they know they’re not alone,’ he says. ‘When they leave they’ll be more comfortable in working with this community and have some resources.’

If it’s anything like the experience of chatting to Gee-Cohen, it promises to be an enlightening day and a real opportunity to embrace a more open-hearted approach to treatment.

‘Healing trauma in the LGBTQ+ community’, presented by Beck Gee-Cohen and Adela Campbell is on 25 November in London. Book at www.icaadevents.com

FDAP moves apprenticeships a step closer

The next step has been taken towards developing a Drug and Alcohol Worker Apprenticeship to ensure greater competency and consistency across the sector.

Kate Halliday: ‘We need to meet the learning needs of the workforce.’

The Federation of Drug and Alcohol Professionals (FDAP) is submitting the proposal to develop a Drug and Alcohol Worker Standard – the basis for an apprenticeship – to the Institute for Apprenticeships. The move is in line with the Drugs, Alcohol and Justice Cross-Party Parliamentary Group’s recent Charter for Change, which calls for an apprenticeship-based qualification for the drug and alcohol workforce.

‘We aim to set a standard that meets the learning needs of the workforce to engage effectively with the full range of often complex issues that people using alcohol and drugs present with, across the variety of service settings including the community, secure environments and residential,’ said Kate Halliday, FDAP/SMMGP interim executive director.

The next stage in the process is to gather information from a ‘trailblazer group’ via a brief online questionnaire, which FDAP would like you complete by Friday 13 October.

FDAP is also keen to welcome new organisations to the group, particularly those with less than 50 employees. Email fdap@smmgp.org.uk for more details.

CGL Impact Report

 

Change, grow, live (CGL) has launched its 2016-17 impact report, summarising the organisation’s achievements and celebrating the difference CGL staff have made to service users’ lives.

The report features several inspirational stories from service users, profiles the fantastic work of CGL services, and uses statistics to show the extent of CGL’s reach and positive impact.

Highlights include the use of digital technology to improve accessibility, identifying risk of overdose using data, and a pilot of the world’s first portable fingerprint-based drug screening system.

Click here to read the report

Recovery thrives

As Recovery Month continues to go from strength to strength with fundraisers, festivals and fun, DDN hears three inspiring accounts of this year’s activities.

A TIME FOR GRATITUDE
Timmy Ryan reflects on the moment he believed recovery was possible.

It’d been with me a long time. A childhood surrounded by violence and spending time in and out of care had led me to drink. I guess I was about 14 years old when I started drinking. I was a complete mess, carrying around a head full of physical and mental abuse. It was like torture and I used anything I could to ease the madness of it all.

For most of my life I managed to be a functioning alcoholic. I held down a construction job and drinking was a big part of that world anyway. It was a rollercoaster. I could be in control for a couple of weeks, but then it’d take the slightest thing and alcohol was back in charge. Gradually, it ground me down and alcohol become my master. Over time it took everything – my marriage, friends and family. It’s a terrible disease that took complete control of me.

Everyone used to say I was so distant. I couldn’t look people in the eye – didn’t think I had the right. I couldn’t share with anyone as it destroyed me inside.

At 47, I’d already had two heart attacks and the doctor said the third would be goodnight forever. I had an irregular heartbeat and wasn’t looking after myself. I wasn’t taking my medication, had lost loads of weight and was literally drinking constantly. I was slowly drinking myself to death and was aware of it, but I couldn’t help it – I was drinking to stop the shakes and heaving. The good times had long gone and I was a shell of the man I once was. I was powerless over my addiction and my life had become a complete nightmare full of regret, self-pity and consequences.

My daughter, who was 14 at the time, was walking down the road holding my hand and I said: ‘I don’t want you to die’. It took until that point to realise what I was doing to everyone around me as well as myself. I thought to myself ‘you selfish bastard’. Then I saw myself in the reflection of a pub window and I was looking at a tramp. It was time to get a grip.

‘When I finally opened the door the staff
were so supportive. They saved my life.’

I had managed to get to the front door of Addaction about ten times before, but had stopped with my fingers on the handle and then walked away again. I’d been so frightened about what was going to be behind that door. I had burnt all my bridges elsewhere and thought they would be negative towards me too and send me somewhere else. When I finally opened the door, it was the complete opposite. The staff were so supportive and non-judgmental. They saved my life.

That was the start of the journey. When I had those first one-to-ones it was like a storm came out of me, sharing everything – I’d never spoken about it to anyone before. It was amazing having finally said the words. They held so much less power over me. When I arrived at Chy, the staff were equally fantastic. I spent three months in the main house and three months in the move-on flats in the same grounds.

For years I had a head full of negative thoughts that I used as excuses for all sort of things. Treatment took all those excuses away and there was nobody to blame but myself. I took responsibility in a way I never had before.

You think nobody cares about you – but until you start caring about yourself, nobody will. You have to believe in yourself and admit to yourself that you are worth it. But you can’t do it on your own; you need people like the staff at Chy to put that belief back into you.

After treatment, I relocated to Cornwall and started volunteering with Chy, doing painting, DIY, that kind of thing. At the same time I did courses in maths and English, which was another milestone in my life. I completed a mental health awareness course and a level two counselling course. I also volunteered for the homeless service. I love being in the house telling my story. I tell new residents how it is and don’t sugar-coat it at all. They love the honesty.

‘I life for the future.’

After about ten months’ volunteering, a job came up. I was so proud of myself just going for the interview – to actually get the job absolutely blew me away. I broke down crying, realising how far I had come. It’s been so much hard work, but I owe Addaction my life. I wish I had found recovery 20 years ago and it’s a privilege to help others on that road.

I’m now 50. I live in Falmouth and wake up every day and see the bay outside my window. It’s like a dream. I’ll always be an alcoholic, but I don’t feel the need to tell people now. I live for the future and not the past.

MY FIRST RECOVERY WALK
Zara Walsh and family joined the crowds in Blackpool.

Even though my husband had been in recovery for nearly three years, this was my first recovery walk. I totally underestimated just how big the recovery family is.

I didn’t realise how successful the walk would be. My husband and sons have been to the two previous walks and when they came home they would be excited and talk about the walk for days – but this was a whole new level. I felt so proud to have my husband and children walk alongside me. As we flew our flag right through the town centre, all the way to the Winter Gardens, people stood and stared in pure amazement.

Our five children were so proud to tell people that we are a recovery family as we walked with the thousands of people who did not judge you for your past, and stood with you united as one big family who had been through the rough times similar to us. Our kids had so much fun and even made new friends. I now know that I will be at every walk from now on!

A SENSE OF PURPOSE
Joining in recovery month gave the community at HMP Kirkham the chance to embrace hope and change.

The ability to promote any possibility of sustain­able recovery to our nation’s incarcerated is no easy task for prison recovery services. The chall­enges are multifaceted and complex. Our client group have entrenched and complicated issues that have often taken a criminal and intoxicating career to embed.

But we like a challenge at HMP Kirkham! Changing the culture of rehabilitation and recovery is very much a passion for the staff and community within this open establishment. Recovery is evident and palpable and our success is infectious.

Recovery month is the perfect opportunity for us to showcase that success and fly our proud purple flag across the country, promoting the possibility of hope, change and accomplishment. Our first recovery month milestone took us back to the Doncaster Recovery Games, where we travelled with hope in our hearts and victorious memories of being the first prison recovery team to win the 2016 challenge.

Our proud team included members of our recovery community, who have worked hard on their journey of discovery, and value the opportunity for resettlement. The day was a true reminder of the importance of connection and positive engagement. Team Kirkham came away with a little less winning silver but as much passion and dedication.

Throughout the course of the month our dedicated staff and client group have worked hard to promote the value of visible recovery, raising awareness and sharing inspirational stories, baking cakes, washing cars and making amends for their destructive past. These memories and experiences are the blueprint to a future of purposeful citizenship.

Freedom from addiction and crime requires the vision of alternative, inspirational and asset-based thinking. This cannot be achieved in isolation and what better way to explore that than to join the thousands of people marching along the blustery Blackpool front on the UK Recovery Walk. That day represented everything that categorises the spirit of recovery and reminded us that together we can make a difference.

I am proud to be part of a thriving, innovative movement within the prison walls and challenge anyone to deny the power of recovery!

Amanda Wrenn is recovery service lead at HMP Kirkham

 

‘You think nobody cares about you – but until you start caring about yourself, nobody will. You have to believe in yourself and admit to yourself that you are worth it. But you can’t do it on your own; you need people.’

Making it real

How do you bring a recovery conference to life? Jamie Gratton shares his experience.

We have just enjoyed our first Aquarius recovery conference, celebrating how we all approach recovery in our own unique way. The idea came about as a result of discussions with peer mentors and people using Aquarius services about how they could celebrate recovery on a local level, and we worked with partners from the Derby Substance Misuse Services and Derby University Law School to bring it to life.

With a small budget for the event, we set up monthly planning meetings with staff, peers and volunteers to put together a list of what would be needed to move the conference forward.

Our first challenge was to find a venue – not easy, as most of the conference centres in the area wanted £2,000 to £3,000 for the day. Aquarius had been doing some work supporting the Derby University Law School around social justice issues and vulnerable groups, so we discussed our conference proposal with the university. Two days later, we had a venue free of charge, complete with refreshments.

Next came the agenda, and the local recovery community agreed that the main focus for the event should be around sharing life stories and highlighting the power of recovery. We felt it was vital to have a mixture of speakers on the day, offering different perspectives, including those of family members affected by addiction.

With a clear theme in mind, we invited guest speaker Tracy Carr from Public Health England (PHE) to speak about the importance of building recovery capital, and Tony Mercer from PHE to give insight into the social justice issues faced by individuals and families.

Over the coming weeks the team worked hard to bring the different elements of the conference together, and it came with a lot of stress. I had never done anything like this before and was extremely anxious about whether anyone would even turn up! Luckily, I was able to rely on the different coping mechanisms I had learnt while going through my own recovery, and my team leader was able to rein me in when I was panicking and help me to look at things more logically.

When the big day arrived, the conference opened with an introductory speech about the power of recovery and the vital role it plays within communities. This was followed by an ice breaker, run by Steve Gill, and a series of mini games to make people feel relaxed. Soon the conference hall was full of laughter and people were feeling more confident about sharing their stories.

First was Angela. She was open and honest about how a family member’s addiction had impacted on her life and the rest of the family, and how the support she had received had helped her get through the hardest times.

Then came one of the Derby Recovery Service peers. Maria had battled with alcoholism for 11 years and had been sober for two years. She spoke about how becoming a peer had strengthened her recovery and her relationship with her children, and how the community had helped her to find somewhere she belonged.

The life stories came one after the other. Kate talked about her journey from teaching at schools around the world to ending up with an alcohol problem, and how joining an art group had given her confidence and made her feel useful again.

Claire, performing at the conference as part of Recovery Rocks, talked about how music had helped her move forward from addiction. She learned to play the guitar because of the support and encouragement given to her by peers within the recovery community.

The final story was from Paul, who explained how 12-step mutual aid has helped him to move forward. Each story moved the audience, some making them laugh, some making them cry, but each one celebrating the fact that discovering recovery meant discovering life.

Four workshops also formed an important part of the event and focused on the different elements of recovery, from building and maintaining a recovery community to ways of encouraging participation and creativity. An exhibition displayed different recovery options open to people living in the area.

photos by Kate Hemming

A variety of different performances closed the day, including local poet Jamie Thrasivoulou, who is in recovery himself and used his gritty poetry to strike a chord with guests.

This was followed by Hazel, performing a song that she had written herself before taking up her position as sound engineer for Recovery Rocks – the group that we run at Aquarius every Tuesday night with the idea of using music to strengthen recovery.

This was the moment – as they performed in public for the first time ever – that I felt really proud of what we had achieved at the conference. It was the perfect ending to an amazing day. Throughout the day we had laughter, tears, shared experiences and fun.

I had spent the whole of the day saying I was not going to do another one, but about an hour before the end I leaned over to two of my colleagues and whispered, ‘I have a great idea for next year!’

Jamie Gratton is recovery network coordinator at Aquarius

The bigger picture

Recovery should be about freedom. So why aren’t we embracing diversity, asks Mark Prest.

Picture an addict, what do you see? Someone white, probably work­ing class and straight – a stereotype straight out of Trainspotting.

As a gay man in recovery, my own treatment experiences clearly demonstrated that the ‘one shoe fits all’ approach doesn’t work. It was a small place, an intimate affair and to my knowledge I was the only out gay in the rehab. It’s since felt to me that my sexuality and its relationship to my alcoholism were simply ignored by my counsellors. I exited rehab with much of the hurt and harm from my failed relationship hangovers still firmly in place. Post-rehab I’ve come to think of this as feeling like a pile of broken biscuits instead of a full packet of Rich Tea or Hobnobs. My gay and recovery identities were at odds and even now, nine years on, I’m still feeling conflicted.

Twelve step and other recovery values such as an abstinence-based lifestyle, self-honesty, personal responsibility and the need for healthy loving relationships don’t rub along well with the hollow quick-fix ‘Grindr fuck’ and the substance-orientated, hedonistic LGBT+, objectified world and lifestyle norm.

 

I agree that with recovery there comes a need for a moral self-realignment and to see the world with eyes wide open. If we do as we’ve always done then it will always be the same. This is needed whether you’re queer, black, straight, male, a woman or person living with a disability.

It’s harder to achieve though when like me, you’re from the recovery community’s wider margins. And it feels like there are no places or access to the experientially informed people, services, or other agencies that can advise and help interpret this culturally specific and conflicted internal process. There’s a sense of homelessness – where do I belong?

Above and below: Performance artist David Hoyle at ‘UNSEEN, Simultaneous Realities’, Manchester.

I left treatment feeling full of fear and trepidation. I disconnected, rejected who I was, isolated myself from my queer folk. It felt like there were no socially enabling, more inclusive, non-judgemental, dry alternatives where I might safely meet or connect with like-minded people within the LGBT+ community.

I’m not alone in feeling this: there are others who I know and have met through Manchester’s two LGBT+ friendly fellowship meetings. As it stands, LGBT+ recovery services and those tailored to meet the needs of other minority or marginalised groups are a rare and exceptional thing.

It doesn’t help when the 2017 governmental drug strategy – released by the Home Office instead of the Department of Health, thus framing addiction as a criminality and not a health issue – fragments and minimises the situation by focusing on chemsex rather than the issues facing the community as a whole. BAME community needs are not even mentioned.

The statistics are alarming. In a 2016 Guardian opinion piece headlined ‘Gay men are battling a demon more powerful than HIV – and it’s hidden’, journalist and activist Owen Jones says:

‘According to Stonewall research in 2014, 52 per cent of young LGBT people report they have, at some point, self-harmed; a staggering 44 per cent have considered suicide; and 42 per cent have sought medical help for mental distress. Alcohol and drug abuse are often damaging forms of self-medication to deal with this underlying distress. A recent study by the LGBT Foundation found that drug use among LGB people is seven times higher than the general population, binge drinking is twice as common among gay and bisexual men, and substance dependency is significantly higher.’

Recovery for me is about freedom. But where is the freedom when services are not representative and fail to meet the needs of not just queer but other culturally diverse people? Tailored, more inclusive approaches to recovery are critical and a civil and human right. These are all very timely considerations as we’re in the midst of celebrating 50 years since the partial decriminalisation of homosexuality. Yet it would appear that for some of us in, or working towards, recovery we’re still the victims of systematic homophobia or other discriminatory forms. I’ve personally experienced and witnessed this from in and outside of the rehab and ‘rooms’.

Nearly a decade since rehab I’m finally seeking integration of these two polarised and opposing identities towards a more liveable identity fit. I founded Portraits of Recovery (PORe), a visual arts charity, in 2011 in response to my professional background in the arts and my own addiction recovery experiences. PORe’s work looks at bringing about new ways of knowing addiction and recovery by working with contemporary art and artists. The publically exhibited work, commissioned from a range of artists, supports the emancipatory reframing of addiction and recovery identities. In other words, it aims to blow away the myths and legends in favour of social change by presenting more authentic and diverse forms of self-representation.

Art has become my central strategy for recovery.

I conceive, make, experience, produce and collect it. Art helps me feel good about myself, gives me a reason to get out of bed in the morning and a purpose for living. If it works for me then why not for others, as previous PORe projects have demonstrated? Working with an individual’s existing cultural capital as a transferable asset from the old life to the new, can through additional cultural investment make sense of the past. This approach also helps to support a sense of cultural citizenship as a device for social justice, inclusion and change.

PORe’s latest offering, UNSEEN: Simultaneous Realities, is an umbrella arts project, under which sits a series of new commissions that explore the viability and desire for Greater Manchester’s South Asian, LGBT+ and disability recovery communities to be visible and understood. At its heart is a project that draws attention to and visually celebrates the diversity of our recovery communities. It also speaks to the urgent need for culturally diverse and tailored approaches to recovery, which are few and far between. The project has been developed in collaboration with Professor Amanda Ravetz from Manchester Metropolitan University (MMU).

UNSEEN is a reactive stance against the white heteronormative bias of treatment and recovery services, seeking to change this imbalance through activist-related artistic and cultural advocacy. Its public-facing exhibition, performance and events programmes engage the public in dialogue for the emancipatory reframing of addiction and recovery identities.

Artwork by Sutapa Biswas at Rochdale bus station interchange, created as part of UNSEEN: Simultaneous Realities.

Stereotyping does nobody any good – not people looking towards recovery, their family and friends, nor health services or wider society. Holding or promoting such one-dimensional views is discriminatory and inaccurate. UNSEEN frames addiction in diverse communities as a health concern – not a choice.

PORe’s work is couched within Recoverism, developed in response to a cost-cutting and politically hijacked recovery agenda. This new social movement, borne out of Manchester and the North West, supports a more inclusive, interdisciplinary Recoverist discourse as allied to the arts. Led by Clive Parkinson, of Arts for Health at MMU in partnership with PORe, it was an outcome of a European arts project called I AM. We’re all recovering from something, so why not invite others to join in the conversation? More about this can be learned from the online Recoverist Manifesto.

I’ll finish with a quote taken from the publication’s introduction by author Will Self, as this sums up what recovery and Recoverism is about for me:

‘One thing that the vicissitudes of addictive illness teaches us, it’s that in the last analysis what matters is not our circumstances or our experiences – let alone our thoughts – but our feelings: we need to feel and be felt by other feeling people.’

Mark Prest is the founding director of Portraits of Recovery, a curator, a man in recovery and a recovery activist. Full details of UNSEEN: Simultaneous Realities at www.portraitsofrecovery.org.uk

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UNSEEN EVENTS
Artist’s talk: Sutapa Biswas discusses the work she created as part of UNSEEN. With Dr Anandi Ramamurthy, reader in Post-Colonial Cultures, Sheffield Hallam University and Sunny Dhadley, founding director of the Recovery Foundation. Saturday 7 October 2017, 1-3pm Touchstones Rochdale. Free, but booking required on 01706 924 928

Installations: Out of place and at the margins: one hundred songs for Kneeze and Vijay, Sutapa Biswas’s installations created as part of UNSEEN: Simultaneous Realities. Until 16 December 2017, Rochdale bus station interchange and Touchstones Rochdale. Free

Film: Launch of Fruit Bowl, directed by Professor Amanda Ravetz and Huw Wahl. A portrait of performance artist David Hoyle. Thursday 16 December 6-9pm, Whitworth Art Gallery. Free

CQC: Focus on fairness

The CQC has set new equality objectives, as Jenny Wilde explains.

Under the Equality Act 2010, the CQC is legally required to set equality objectives at least every four years. In March 2017 the regulator revealed four new objectives that will have a direct impact on services.

The first is around person-centred care and equality. Noting that leadership is required to make person-centred care a reality, the CQC found that some groups – including disabled people, people from black and minority ethnic groups, lesbian, gay and bisexual people, younger people and those aged over 75 – were less likely to say that they were involved in their care across a range of sectors. It also found that black and minority ethnic (BME) people and lesbian, gay and bisexual people reported poorer mental health than other groups.

To combat this, the CQC has taken a series of steps, including adding a specific question to Provider Information Request forms (PIR) in relation to equality, and helping inspectors to ask the right questions and gather evidence.

Providers must be sure that their service and the leaders carrying out regulated activities ensure that all service users are included in the planning and execution of their care.

The second is accessible information and communication. With 11m people in the UK with hearing loss and almost 2m people living with sight loss, all publicly funded providers must now meet the Accessible Information Standard. This aims to improve the lives of people who need information to be communicated in a specific way. Although the standard doesn’t apply to private providers, it should still be seriously considered as good practice.

The third objective is around equality and the well-led provider. The equality aspects are now better developed in the key lines of enquiry (KLOEs), prompts and ratings characteristics in CQC’s new assessment frameworks for both health and social care services. Inspectors are now prompted to look for evidence that providers take account of equality characteristics for people using their services.

Finally, there should be equal access to pathways of care. The CQC has noted that people using health and social care services often need to use more than one service, known as a ‘pathway of care’. However, people in some groups may have difficulty accessing particular care pathways, such as GP servic­es, which could lead to poorer outcomes for them. The CQC found that there can be barriers to accessing GP services for migrants, asylum seekers, gypsies and travellers, and pathways could be improved at a provider and local system level. This should be a consideration of any substance misuse service.

Providers of substance misuse services must be aware of the importance of delivering care in line with these objectives, particu­lar­ly as the CQC are, quite rightly, prioritising how people from minority backgrounds experience services. Person-centred care is key to achieving these objectives and compliance with CQC regulations.

Jenny Wilde is senior associate solicitor at Ridouts Solicitors

Risks of pregabalin and gabapentin

Death rates have risen dramatically for prescription drugs pregabalin and gabapentin. Let’s be aware of the risks, says Clare Kingsbury-Bell.

Claire Kingsbury-Bell - AddactionDrug-related deaths linked to pregabalin and gabapentin have risen 2,675 per cent and 637 per cent respectively in just six years. Addaction believes the risk of addiction and overdose related to these two prescription drugs hasn’t been made clear enough, particularly where they are prescribed to people with a history of substance misuse. Death rates have risen even more rapidly than those related to new psychoactive substances (NPS), which in the same time period show an increase of 123 per cent.

The ACMD advised government that pregabalin and gabapentin prescribing in the UK has increased by 350 per cent and 150 per cent respectively in five years, and an increasing number are also being bought and sold on the streets. The government has just confirmed that they will become class C drugs, subject to consultation.

The medicines can depress the central nervous system causing sedation and reduced breathing. So if someone is already taking substances that depress the central nervous system, including alcohol, opioids like heroin, or benzodiazepines like diazepam, they will be more prone to overdose.

Prescribers need more guidance

Addaction pharmacists and doctors are asking for more guidance to be given to prescribers, including GPs, about how the drugs can be prescribed more safely, particularly for people with a history of substance misuse.

The drugs were first prescribed for the treatment of epilepsy. Their use was then extended to include general anxiety disorders and soon they were recognised as useful in the treatment of chronic and neuropathic pain.

Prescribing pregabalin and gabapentin‘That’s when they took off in terms of prescriptions because a chronic pain with a neuropathic element is difficult to manage with medication,’ says Addaction pharmacist, Rachel Britton. ‘They were marketed as drugs that could reduce the need for strong opiates. GPs were encouraged to use pregabalin and gabapentin in guidance about how to manage chronic pain, where we were seeing the use of long-term, high-dose opiates.

‘It was then, four or five years ago, that we started hearing that, particularly in prisons, these drugs had a street value and people were using them illicitly. Drug users recognised them as another way of altering their state of mind and started using them in a similar way to benzodiazepines.’

She advises that prescribing of pregabalin and gabapentin needs to be done with the same caution as for benzodiazepines. This should include careful medication review to ensure that patients are getting benefit in terms of their chronic pain, and ensuring that the medication is not being overused. ‘I would strongly caution against the use of these drugs in patients with a history of substance misuse,’ she adds.

Some clients have issues with addiction

Ben Sessa, consultant psychiatrist at Addaction, draws strong comparisons between pregabalin and gabapentin and benzos, including the addictive qualities.

‘I’ve had clients who say their GP started them
on a prescribed dose… and now can’t stop
without getting severe physical symptoms.’

‘The original suggestion that they don’t have abuse potential is not correct,’ he says. ‘Similar to benzos they have a very clear dependence risk with formal symptoms if you stop taking them including anxiety, agitation and physical symptoms including tremors, sweating and insomnia.

‘I’ve had clients who say their GP started them on a prescribed dose, they then started buying them on the street and now can’t stop without getting severe physical symptoms. A medical detox of these drugs is incredibly slow and can take up to nine months if the dose is high. Talking with colleagues, we’re all seeing the same thing.’

Those taking pregabalin or gabapentin in line with professional medical advice are cautioned not to make any changes without first speaking to a healthcare professional.

If you have any queries, please use our free web chat facility or get in touch with your nearest service via www.addaction.org.uk

Clare Kingsbury-Bell is interim head of communications at Addaction

Naloxone news

Martindale Pharma is notifying people in receipt of Prenoxad Injection kits, as well as those involved in their supply, of a temporary change in the labelling to address an historical error. Martindale is keen to reassure people that there is no change to the product’s strength or dosing schedule, and that its effectiveness and method of use also remain unaffected.

Prenoxad Injection is a pre-filled syringe containing naloxone hydrochloride solution, and was the world’s first naloxone product to be licensed for use by non-healthcare professionals in a community setting. While the labelling now shows the strength as 0.91mg/mL rather than 1mg/mL, letters are being sent to users, healthcare professionals and non-medical practitioners stressing that there is no difference to the amount of active ingredient and no additional safety concerns.

Anyone needing more information should visit the electronic Medicines Compendium eMC) at www.medicines.org.uk/emc/medicine/27616 and www.medicines.org.uk/emc/medicine/34154

Sowing recovery at ESH Works

ESH Works was built from a dream of peer-based recovery. Paul Urmston shares their story.

I used drink to cope. I didn’t really fit in the corporate world but I did it for fame, glory and money – all to make me look good in the eyes of other people. After coming out of detox and rehab for the second time I decided that enough was enough and that life was actually about being the person you really are and not what you thought everyone else wanted. So the acting stopped and I started a new life.

That was more than 17 years ago. While I was volunteering in recovery a decade ago, I was involved in a project looking at the quality of service provision for addicts and alcoholics in Coventry and Warwickshire. The conclusion of my mini-report back to the drug and alcohol action teams was that there was a lot of support available for people in addiction – but if it’d been a relay race, there were a lot of dropped batons (clients) when they were passed between organisations. There was also a major shortfall in the support for family members, with nowhere to turn to for help and advice.

This motivated three of us in recovery to form ESH Works – which stands for Experience, Strength and Hope – a peer-led mutual support and user involvement organisation to support family members and help guide people through the complexities of recovery and the different services provided. There was also a bit of a dream there that one day we could run a totally peer-led residential rehab facility – not for profit, but just because it was the right thing to do.

We started our not-for-profit social enterprise in the depression years and our mantra was ‘If we can make it work now then we’re going to be ok’ – and we did make it work. We’ve moved on to the point of opening Warwickshire’s first residential rehab fully staffed by people in recovery.

Back in 2009 drug and alcohol commissioners in Warwickshire were ahead of their time when they funded a couple of thousand pounds to instigate a family support network. Things progressed from there and we delivered our family support all around Warwickshire, hiring local community centres and halls most nights of the week.

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We started in a small office in a local council ‘start-up’ enterprise hub, where we co-ordinated everything. When we first advertised the groups in some locations there would be no one there for the first month or more, until people started noticing the posters and leaflets that we’d dropped off at pharmacies and doctors surgeries.

I remember sitting in an empty room in at a community centre in Nuneaton one wet night, when two people came in. We’d been going to this room on the same night each week for nearly two months without anyone attending. We gave the couple a cuppa, talked through our experiences and the problems they were having with their son, and they went away saying we’d helped. As they continued to come back to our group we found out later that the husband was about to commit suicide the night they first came in, but had seen our leaflet that night in the doctor’s surgery and diverted to our group. That changed his life and ours! They’ve continued to attend and have volunteered with us for many years.

 

As this family support developed we had a moment of clarity and decided we should include a volunteer in long term recovery in each of our family groups. This was a revelation for our family members – they had a ‘tame addict’ to fire questions at, who didn’t pull the steel shutters down when asked about addiction. This approach is now recognised around the country as good practice, providing the volunteer is supported well in their own recovery so they’re not put at risk of discussions opening old wounds.

We applied for grants everywhere and where we were successful the grant providers wanted to see how we made a difference. It was usually down to numbers, so we just made sure we counted people – new clients or family members that were referred to us, or that came as self referrals (as most did).

As a service user involvement organisation we also assisted in writing the service specification for Warwickshire’s new ‘integrated’ drug and alcohol services – and we stressed that the service had to be integrated to stop the ‘baton dropping’. We also suggested quite strongly that any service user involvement and peer led support should be outside the mainstream to give it independence, credibility and a separate voice. Winning a service user involvement contract gave us a little more stability in terms of regular income, and we took on staff to manage groups in four locations around the county.

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Four years ago we were approached by the Hepatitis C Trust who were running a project locally, to see if we wanted to be involved with a pilot support scheme assisting clients through hepatitis C treatment. We had the local volunteer base to provide peer support and we jumped at the opportunity.

As our peer support activity continued to grow, we had to demon­strate that we were more than just a group of addicts helping each other. We needed to show that we kept our volunteers safe, that we educated them and we looked after them. We looked around and decided to set up a formal peer mentor­ing programme based on the structured Mentoring and Befriending Foundation’s approved provider scheme (APS). It took about six months of hard work to pass the assessment, but we’ve been an approved provider for a few years now.

PHE provided a glimmer of hope in 2013 for our ‘bit of a dream’ of opening a residential rehab facility when we won a capital grant to assist with the purchase a ‘clean house’. We took out a commercial loan with the bank and funded half ourselves, and we established the house alongside running our peer support activities in Warwickshire. The way we operate in the community is with structured day programmes in different locations around Warwickshire, including the family support. The following year our user involvement contract was extended and we were secure for another couple of years.

 

In 2015 things started to move even faster when we applied for another PHE grant targeting residential peer-led rehab projects – an absolute hand in glove situation for us. When we were advised we’d been successful, our dream of opening a rehab wholly supported and managed by people in recovery started to look real.

We’re now more than a year on from winning the grant and I’d like to say it’s been a smooth and peaceful experience, but it hasn’t! But we’re now in the final stages of preparation before opening our doors.

It’s been a mammoth task for the managers, staff, volun­teers and mentors to establish the facility, right from finding a suitable location in very expensive Warwickshire. Instead of an off-the-shelf ex hotel or care home we went for a property with potential that we could develop in the future.

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What’s been key to the whole project is that we’ve engaged with all the key stakeholders – local drug and alcohol commissioners, chief constable, police and crime commissioner, head of public health in Warwickshire, all the CCGs, and MPs. By selling the benefits to everyone we’ve had brilliant support from the great and good of Warwickshire.

Some of the obstacles were planning permission, the change of use for the premises, and identifying that a new sewage treatment system was required. We had the inevitable builder problems during renovation and extending the property, giving us one or two sleepless nights. But all of these issues have been overcome with the perseverance and dedication of staff volunteers and mentors.

There’s also been some brilliant support from external organisations who are nothing to do with drug and alcohol support. As part of the funding drive, we sent dozens of letters out to CEOs of major manufacturers and suppliers, with mixed responses – but if you don’t ask you don’t get. We’ve had fantastic contributions from Tesco, Carpetright, Bensons for Beds, and Renault (for the minibus), all supporting the project with donations in kind or massive discounts.

Our staff, volunteers and mentors are now in the last stages of painting and decorating, digging pathways, laying paving, fixing new gates, and setting up the allotment. It’s been a hive of activity ready for the opening. We’re grateful to all those who have played a part in our story, including the volunteers who’ve moved on to other roles.

Our local MP Chris White was among those to support our organisation from the start. Watching the dream come to life he commended ‘the passion, commitment and hard work of the team’ and said ‘the wider definition of value is a reality in the provision of their peer-led approach to recovery for addicts and their families’.

Our structured programme now incorporates 12-step awareness, physical activities, yoga, meditation, mindfulness, anger management and professional counselling sessions. We have also developed a rolling family education and awareness programme, which includes Adfam’s step approach.

Recovery is all about change for the person in addiction, and by assisting the families to understand and deal with the client’s changing approach to life, we will actually be supporting their sustained recovery. We’ve gone from starting as a small peer-led support organisation to opening an 11-bed fully staffed and supported residential rehab – all achieved with people in recovery.

Paul Urmston is CEO of ESH Works

Help at hand

The new UKAN website at www.ukan.network lets you tap into expertise when you need it. Pardeep Grewal explains.

Sometimes we want to ask a question, share an experience, get help with a tricky situation or just let off some steam. For this we really need a network of like-minded people. You might be one of the lucky ones working in a stable team that never changes, or where expert advice and supervision is readily available. Unfortunately, the rest of us are left wanting.

Recovery workers, if they ever come up for air, struggle to connect with peers or ask questions. There is a good argument that volunteers, psychologists, dual diagnosis specialists, administrators, pharmacist and others working in addictions need access to a supportive online community, where they can meet peers, open up, share knowledge and be curious.

UK Addiction Network (UKAN) is aimed squarely at these groups. It is free to join and works a little like the groups you find on Facebook and LinkedIn. The big difference is that UKAN is designed specifically for people working in addictions and offers the wider range of discussion topics, forums, polls and blogs. Content is sensibly moderated by the UKAN team, all of whom work in the field and seem to know their stuff. And there is strength in numbers; if you have a thorny problem at work there is good chance there is a UKAN member out there who can help.

The person behind the idea is Georges Petitjean. Trained in Belgium and London, he has an interest in how groups can function better. He recently found himself working in a busy residential detoxification unit. The pace was frenetic, with little time for networking or peer support. The small but dedicated team of doctors, nurses, recovery workers and volunteers were all left to get on with things. They muddled along but inevitably came up against situations with no easy answer.

UKAN founder Georges Petitjean: ‘I was assessing a new patient… I wasn’t sure what to do. My line manager had left work already and I didn’t know who to turn to.’

Georges remembers a typical situation. ‘It was Friday evening and I was assessing a new patient who had been admitted for a benzodiazepine detox. He said he was allergic to diazepam. I wasn’t sure what to do. My line manager had left work already and I didn’t know who to turn to.’ Then it occurred to him that there might be another way of accessing support: ‘Wouldn’t it be great if we could post a question online to all the people working in detox units in the UK?’

The idea chimed with his colleagues, especially those working in small teams and where access to a peer support was limited. His hunch was right; people naturally connected online with new peers and colleagues, sharing knowledge and making friends on the way. ‘We searched the web,’ Georges explained, ‘but it was mostly full of adverts or commercial providers. There was nothing for people like us. So the decision to start UKAN was pretty straightforward. The site just needed to be accessible, useful, fun and free.’ He has extended the concept to allow members to upload a few photos of themselves. In fact, a photo is now required to register and helps ensure transparency.

The site is certainly straightforward and accessible. You are greeted by a simple newsfeed on a distinctive crimson border and the site is absent of clutter and advertising. The intention is to keep it as free access, funded by money from training, workshops and learning. What UKAN does not do is dictate official guidelines and standards as FDAP, RCGP and others are available for that. But for those interested in learning, there is plenty on offer.

The site has an e-learning foundation programme, with all the necessary elements for good practice, such as assessment, harm reduction, treatment and care planning. There are even role-specific modules to enhance skills for prescribers, recovery workers and volunteers. All the content is developed by experienced workers and includes knowledge progress tests, and a certificate of completion. For those wanting more there are specific workshops and webinars you can attend, all delivered with a healthy amount of networking and socialising.

If the purpose of UKAN is to connect people it will probably succeed. How much face-to-face contact it will promote has yet to be seen, and this is largely up to those who use it. It has an obvious place in a world increasingly connected online and where good quality information is hard to come by. Georges has plans to add an events page so people can attend formal supervision sessions, organise peer group meetings and social events. I’m looking forward to getting some online discussions started on just this topic.

Pardeep Grewal is a psychiatrist

 

Join the UKAN community at www.ukan.network

Valuable viewing

George Allan finds FEAD to be a website worth saving.

The recent demise of Lifeline calls into question the continued existence of the Film Exchange on Alcohol and Drugs (FEAD). This website (www.fead.org.uk) was set up in 2008 by Lifeline as a platform for sharing the experience and knowledge of central figures in the field. The site has never received significant publicity, which is a shame as it contains a wealth of material which can both educate and challenge.

The site contains two types of video. Firstly, there are clips of individual ‘talking heads’ presenting their views on aspects of theory, policy or service provision. These usually last less than five minutes, ensuring that presenters concentrate on the core of their arguments. Secondly, the site includes full presentations from conferences run by organisations such as UK SMART Recovery, the New Directions in the Study of Alcohol Group and Scotland’s Futures Forum.

 

 

The richness, depth and variety of the ground covered is impressive. Here you will find such diverse inputs as Nick Heather on the confusion between moderating alcohol consumption and controlled drinking, Joy Barlow on early work with drug-using mothers and John Davies on how ‘addiction’ is socially constructed and the implications of this for treatment and policy.

The opinions expressed cannot fail to enlighten, inspire or provoke. The viewer may be surprised. If you think you can guess what Neil McKeganey’s attitudes towards supervised injecting facilities might be, or David Best’s views of risk reduction approaches, then you may have to reconsider. The site was established around the time when ‘recovery’ was emerging as a contentious issue and this has ensured that the topic is given a good airing. While a neat definition continues to elude us, the views of such luminaries as William White, Griffith Edwards and Annette Dale-Perera help to shed light on a slippery concept.

Fifteen minutes on the site is guaranteed to encourage viewers to step back from immediate pressures and immerse themselves in aspects of the bigger picture. As teaching aids the short videos are invaluable. The material is also an important historical record: for this reason alone, it is essential that the site continues and it is hoped that another organisation will take it over and maintain and develop it.

George Allan is chair of Scottish Drugs Forum. He is the author of Working with Substance Users: A Guide to Effective Interventions (2014; Palgrave).

Family Insight

A CQC inspection has given a family support service in Haringey a firmer platform for their life-changing interventions.

Insight Platform started as a substance misuse service for young people in Haringey, but increasingly their work has focused on the whole family. The introduction of hidden harm work means that they now support families through the process of recovery and beyond to support the child’s safety, emotional wellbeing and to try and prevent intergenerational drug use. The team delivered 479 hidden harm sessions with children from April 2016 to March this year.

‘The work on hidden harm is so important because it safeguards children and ensures they aren’t missed out of the recovery process,’ says Chantelle Green, Hidden Harm Worker at Insight. ‘We work with parents so they can understand the effects of their drug and alcohol use, and run age-appropriate activities with children – we aren’t here to judge, but believe in everyone’s capacity to change.’

‘Students have always engaged really well with the Insight Platform
satellite service. The practitioners calm and confident manner allows
students to feel at ease, giving them the opportunity to talk about
themselves without fear of being judged, while also encouraging
them to making better life choices.’ Learning mentor, Highgate Wood

The social worker at Insight Platform works directly with high complexity and high-risk families where substance misuse is a factor, ensuring the clinical integrity of the service and keeping service users safe. As they employ a social worker, they fit into the scope of CQC registration.

CQC do not currently rate substance misuse services but when assessing services they focus on five key areas, ascertaining if it is safe, effective, caring, responsive and well-led. In their recent CQC inspection the service was praised for many areas of good practice, includ­ing clearly defined recovery goals, effective safeguarding, and skilled and knowledgeable staff providing a high quality service.

‘We were apprehensive when we found out we had to be inspected by the CQC but the whole process has actually been really useful and we are really pleased with the result,’ said Sandra Duhaney, Insight Platform Manager. ‘We are a very inclusive, welcoming service and we try to work in collaboration with the borough and our partners to meet the diverse needs of the community and ensure better life outcomes. Critically we want to keep the community safe through education at community events, training professionals and outreach in schools and colleges. We also work very closely with the Youth Offending service and Probation to give support to those at a crossroads in their lives.’

‘When I was referred to Insight Platform I initially didn’t think it would make a
difference to my life, however my key worker was absolutely amazing which
allowed me to let my guard down and realise the roots of my issues. From
the first session I was convinced that I could make some positive changes and
progress to getting on the right track. I still have some low days like most
people but I now know how to control my triggers and can live a normal life.’
Lucy*, aged 19

For Haringey Council Commissioner, Sarah Hart, the report was confirmation of the service’s achievements in ‘listening to their clients and working with them to turn their family’s lives around with strength based interventions’.

‘It is always good to get a positive report from CQC, but it’s especially important that this is a service which works with such vulnerable children, young people and parents,’ she said. ‘The report praises every aspect of the service, giving assurances to partner agencies that in referring clients to Insight Platform you are delivering them into a “safe pair of hands”.’

Jo*, one of the parents attending Insight, commented that before she came to the service she thought things would be difficult forever. ‘The family groups and support I have received at Insight Platform has been so positive,’ she said. ‘It has helped me to relate to my children better and create firmer boundaries with them which was difficult work to begin with, but has paid off. The family events have also helped me to build a stronger bond with my children… simple changes have made such a difference for my whole family.’

*Names have been changed to protect identities.

Be the best!

Take one simple step to make sure your CQC inspection is as good as it can be, says Nicole Ridgwell.

It is very encouraging to hear of Insight Platform’s positive CQC experience and impressive outcome (page 16). As would be expected, clients rarely come to those in my profession with their good news stories! What really shines out in the article is how staff are so enthusiastic about the service. This will no doubt have translated into a frontline commitment to make the service the best that it can be.

While all providers will undoubtedly begin their services with this same goal, the daily grind can weaken resolve and standards may imperceptibly slip. It is therefore vital that providers give their service regular health checks, to ensure that every aspect of the service is reaching the expected high standards.

This need to check each and every part of a service arguably has a specific importance for substance misuse services. As in the Insight Platform article, CQC does not currently rate providers in the substance misuse sector.

‘It’s preferable to be proactive and
ensure that the service that CQC
visits is the best that it can be.’

Where they do rate, CQC reports confirm whether a service is ‘outstanding’, ‘good’, ‘requires improvement’ or ‘inadequate’ as an overall rating, and as individual ratings under the headings of safe, effective, caring, responsive and well-led. In services they do not rate, CQC will summarise their assessment of a substance misuse service with the stark conclusion that the service in question is or is not safe/ effective/ caring/ responsive/ well-led.

This presents a challenge for services because it deprives them of the nuanced approach of the four ratings. Being told that your service is ‘not safe’ is a blunt and concerning outcome for any provider. Providers have expressed concern that a conclusion of ‘not safe’ leads potential service users to simply stop reading and choose another service; whereas a service with ‘requires improvement’ may encourage a potential service user to read on, find out what exactly requires improvement and weigh up the information themselves.

Those in the substance misuse sector, therefore, cannot afford to lose points on inspections in any category. We have previously discussed the importance of providers challenging draft reports where they believe any of the contents to be factually inaccurate. To do otherwise is to let damaging and incorrect information into the public domain, with all the reputational and commercial implications that entails.

It is of course far preferable to be proactive and ensure that the service that CQC visits is the best that it can be. A health check is the best way to test this. Using an external consultant or via internal audits, we recommend regular mock inspections. To ensure that your health check aligns with the reality of inspection, use the CQC Provider handbook for specialist substance misuse services, July 2015; the appendices of which provide the key lines of enquiry, the characteristics and the principles upon which the assessments are grounded.

With this one simple step, providers will know that they have done everything within their power to obtain an excellent CQC report – leading to more providers having the same positive CQC experience as Insight Platform.

Nicole Ridgwell is solicitor at Ridouts LLP 

Helping addicted parents

More than 2.6m people have seen Addicted Parents, the two-part BBC documentary on Phoenix Futures’ specialist family service. James Armstrong explains the back­ground to this powerful programme.

Based in Sheffield, Phoenix’s National Specialist Family Service was the first, and remains the only, service providing a residential rehab programme for mums and dads with their children. Filmed over a 12-month period the documentary highlights the challenges of achieving and sustaining recovery.

The first film in the two-part documentary tells the story of four mothers who have experienced long-term addiction. It shows how they manage the demands of a treatment programme and focus on developing their parenting skills under the close supervision and guidance of a multi-disciplinary team. The second film tells the story of one young couple facing an uphill battle to overcome their addiction to heroin so they can care for their two-year-old son.

Leanne Smullen: ‘We spent a long time ensuring that the TV production company shared our values.’

The documentary follows the parents through detox and an intensive therapeutic programme. As they learn to live without drugs, they struggle to come to terms with the past and the issues that led to their addiction. They also start to get greater insight into the impact their addiction has had on their families and their children.

Leanne Smullen, Phoenix’s family service manager talks about the planning that took place before filming began. ‘This was a difficult decision to make as our primary concern throughout has been the welfare of the parents and children in our care,’ she said. ‘We spent a long time ensuring that the TV production company shared our values and were genuine in showing the reality of what we do in a way that respects our staff and service users. It was a process we entered into with great care and we think that the final programme achieves our shared aims.’

Lambent Production’s managing director Emma Wakefield commented that ‘We have been very privileged to tell the story of this unique rehab for BBC2. Filming for a year we’ve followed families from the moment they step through the doors to the moment they leave – and into a new life beyond, discovering the work of the amazing team dedicated to giving these parents and their children a second chance.’

Phoenix hope the documentary will enable the public to see beyond the stigma and labels that limit access to support and treatment of any kind, whether formal or informal in the community or residential setting.

Phoenix were keen that the story told was one of hope for anyone affected by addiction. Karen Biggs, Phoenix chief executive explained why Phoenix made the film. ‘We know that enabling people in addiction and recovery to tell their story helps reduce stigma,’ she said.

‘Stigma that limits access to treatment and limits people’s success in recovery. The documentary gives an honest insight into the experiences of people who are striving for better lives for themselves and their families. We are immensely proud of the very brave families that have allowed their stories to be told. Their honesty and openness is challenging and emotional. We hope viewers will watch without prejudice or judgement. Most of all we hope the films give hope, comfort and encouragement to people affected by addiction.’

The two parts of the documentary had combined viewing figures of more than 2.4m, plus almost another 800,000 (so far) on iPlayer. This has helped give people with limited knowledge of the sector a deep and realistic insight into the issues and challenges that many people experiencing addiction face.

The documentary was the subject of articles written in The Sun, Mirror, and Evening Standard and broadcast on BBC Radio 5 Live further raising awareness of drug and alcohol misuse and the challenges of rebuilding a life and a future.

The general response from the public was encouraging and Phoenix received supportive messages from viewers across the country, such as: ‘Watching #AddictedParents; I think Phoenix Futures does fab work to help parents change their lives and overcome drug addiction’ and ‘#AddictedParents staff are amazing, calm and empathetic, but tough and take no messing, kudos to all. Not sure I could do such an emotionally challenging job.’

James Armstrong is director of marketing and innovation at Phoenix Futures

Clinical eye: Learning curve

Discovering that we can’t impose our own timetable on clients is a vital lesson, says our nursing columnist Ishbel Straker.

The feelings I have about the first client who broke my ‘nursing heart’ will never leave me. I was given this lady as the first on my student caseload and I believed –with an authority that can only come from naivety – that I was going to be the catalyst of change in her life.

I was going to instigate the promise of hope for the future and be the indication of how the best was yet to come in her life. I met her for our first of six sessions, pen and paper shaking in hand, mentally prepared to keywork the addiction right out of her. I was ready to listen and set those achievable goals that would enable her to move just that little bit further forward, and we would look back at the end of the six weeks with astonishment at how far she had come.

None of you reading this will be surprised to hear the story didn’t end in this way, and after the third session I received a phone call from this client who was not only intoxicated but highly abusive. She blamed me for her lack of success, her inability to sustain her sobriety and for all the wrongs she had ever suffered.

I remember the devastation I felt, the absolute disappointment that my foolproof plan had not worked and the confusion that this sweet lady I sat with each week, to whom life had been so cruel, could become so personal. I sat with my mentor who talked to me about their experience and we reflected on these emotions and how he used them to improve his practice for his clients. At the time I did not believe him – I was overwhelmed and uncertain that I would ever have belief in my skills as a practitioner but also a blind trust that all are capable of change.

Of course he was right and each similar occurrence gave me a deeper understanding and enabled me to be a more skilled nurse. It taught me to truly reflect on my practice and consider the effect my clients had on me, but most importantly it taught me that there is nothing that I could ever do, or say, for anyone who is not ready to change, and that clients must do it for themselves and nobody else. Especially not me.

Ishbel Straker is clinical director for a substance misuse organisation, a registered mental health nurse, independent nurse prescriber (INP), and a board member of IntANSA.

A different way

Stopping the rise of drug-related deaths needs an innovative approach – such as paying drug users to stop using, says Neil McKeganey.

The recent report of record number of deaths amongst drug users in Scotland (see news, page 4) is likely to lead to a fundamental review of how we are tackling Scotland’s drugs problem. At the present time Scotland spends well in excess of £100m a year tackling a drugs problem that has been estimated to cost the country £3.5bn a year. The fact that Scotland has seen a persistent rise in drug deaths over the last ten years shows however that in services are failing to meet the needs of drug users, especially with regard to identifying those at greatest risk of dying.

The growing proportion of deaths linked to methadone presents an additional serious concern. While a proportion of deaths involve individuals who have purchased their methadone illegally, in other instances the death has occurred in an individual prescribed the medication by their doctor. These deaths give rise to questions about why prescribing services had been unable to identify the individuals as being at heightened risk and whether services were aware of the other drugs the individual had been using at the time they were being prescribed methadone.

Within the context of the steadily rising number of drug-related deaths it is inevitable that these questions will be asked and attention will be given as to whether in Scotland we have the right services working in the right way or whether we need a fundamental reconfiguration of services. One initiative that should be given attention is that of encouraging drug users to cease or reduce their drug use by providing a financial incentive for them to do so.

The practice of rewarding individuals for positive changes in their health-related behaviour is by no means new. Termed ‘contingency management’, this practice has been positively evaluated by the UK National Institute for Health and Clinical Excellence (NICE). One example of contingency management is that of providing a financial incentive to pregnant women as a way of encouraging them to stop smoking.

The opportunities for using contingency management, however, go far beyond the use of financial inducement by existing services. For example, we could substantially expand contingency management initiatives by redirecting around half of our current drug treatment budget towards the provision of such financial incentives to drug users themselves. Any such scheme would need to be coupled with a programme of drug testing to ensure that participants were indeed ceasing their drug use.

The immediate response to such a suggestion might be that it simply would not work because the individ­uals involved are ‘addicted’. In fact, however, research undertaken by Professor Carl Hart in the US showed that individuals who were dependent upon a variety of drugs were more inclined to accept the offer of a small financial sum than the provision of the drug they had become addicted to. Hart’s research demonstrated that individuals who are addicted can still exercise some choice if they are offered attractive alternatives to the drugs they have become dependent upon.

‘The practice of rewarding individuals
for positive changes in their health-
related behaviour is nothing new.’

Redirecting a large part of the current drug treatment budget in this way would be controversial. Many of those who are currently running drug treatment services might object that this would substantially reduce their budgets and the effectiveness of their services. However, we do not actually know whether the effectiveness of services would reduce in this way if contingency management approaches were applied on a much larger scale. Indeed it may well be that drug users who are offered a financial incentive would be willing to initiate much greater changes in their drug using behaviours than is occurring at present.

While not all drug users might be interested in participating in such a scheme, there may be enough who would volunteer for such a programme to enable services to start to work in a different way with their clients. Instead of directing effort and energy to encouraging drug users to reduce their drug consumption, services could direct much more effort towards rehabilitative support – enabling drug users to learn skills that might increase their likelihood of securing employment once they have moved on from engaging with drug treatment services. Equally, by reducing actual levels of concurrent drug use, the wider effectiveness of treatment services might be enhanced.

Paying drug users money to remain drug free may be rejected on the basis that it involves coercing individuals who are hugely vulnerable. If such an approach were seen to work (as it has in other areas of health-related behaviour change) then it may be that the ends justify the means.

What is certainly the case however is that faced with the rising number of drug deaths in Scotland and England we should be prepared to try alternatives in both the way services are working and in the types of services we are providing. Simply carrying on doing what we have been doing for years may keep many drug workers in employment but it may not actually meet the needs of their clients.

Prof Neil McKeganey is director of the Centre for Substance Use Research, Glasgow

DDN October 2017

‘Learn what you can. Try to get vulnerable.’

We talk so readily about the science of addiction – dopamine receptors, the way our brains are wired. But do we think enough about matters of the heart – the direct connection between one human being and another? The need for belonging runs throughout this month’s articles.

Russell Brand (interview, page 10) divides opinion and his latest book will be no exception. Will his rewrite of the 12 steps make the philosophy more accessible, translating it for a modern age where just about everything is framed as addiction? Can you get past his uncompromising semantics to tune into his argument for ‘looking at life a little less selfishly’?

Beck Gee-Cohen (page 14) urges us to tackle the stigma of gender stereotyping with an open heart and there is plenty in his advice to make us scrutinise outdated systems. Avoiding the issue is not good enough – ‘learn what you can, try to get vulnerable – and be ok when you mess up. Learn to apologise,’ he said during the interview, adding ‘if this is too hard for you, maybe you shouldn’t be in this field.’

Mark Prest (page 6) has experienced the ‘level of invisibility’ in treatment. He left rehab feeling full of fear and with ‘a sense of homelessness’. Why is addiction framed as a criminality and not a health issue, he wants to know – a scenario that takes care even further away from the appropriate support systems and makes us even less inclined to overturn stereotypes. We have to create the safe space to make equality second nature.

And in this issue we relaunch our residential treatment directory, which we hope will make the best treatment easier to find.

Claire Brown, editor

Read October’s issue here as a pdf and here as a ‘virtual’ magazine.

Keep in touch on Facebook and Twitter @DDNmagazine
We welcome your letters and feedback – click here to send your email.

At breaking point

Chronic lack of investment is gambling with lives, agreed members of the Drugs, Alcohol and Justice Cross-Party Parliamentary Group. Read their Charter for Change.

‘The current culture of disinvestment is affecting all aspects of social policy and is creating a negative cycle that does not support recovery in any way, shape or form,’ Kevin Jaffray told a recent meeting of the Drugs, Alcohol and Justice Cross-Party Parliamentary Group.

Kevin Jaffray: ‘The culture of disinvestment does not support recovery in any way, shape or form.’

‘The continued financial restrictions cannot produce any of the desired outcomes, but are instead having a negative impact on penetration and retention, which results in the continued rise in demand for substances, which then escalates the criminal involvement in supply, and together they increase the cost to the wider community,’ he said.

Furthermore: ‘When there is inconsistency in care, due to the constant fear of future security and stability, it makes it impossible to maintain the standard of care that the UK was once held in international high esteem for… we are now beyond breaking point and paying with our lives.’

Read the charter for change here

Jaffray, a peer educator and trainer, made the case for urgent reinvestment in the sector and called for an end to the increasingly competitive market that compromised standards of care. Genuine service user involvement should be integral to running local services and keeping risks and preventable harms in check.

‘Enough is enough,’ he concluded. ‘We demand action – no more deaths, lest you are prepared to live with our blood on your hands.’

The group opened discussion on Jaffray’s points through reviewing their recent Charter for Change (See also DDN, May, page 7).

Yasmin Batliwala: ‘We once had services that led the way.’

‘We once had services that led the way,’ said Yasmin Batliwala, chair of Westminster Drug Project. ‘We now need to do a lot to catch up with countries in the developing world that are doing a lot more for their service users. The sign of a civilised society is how it cares for its most vulnerable.’

John Jolly, chief executive of Blenheim, highlighted the prominence of an evidence-based alcohol strategy in the charter, aimed at tackling deaths from liver disease, many cancers, high blood pressure, cirrhosis and depression. The crisis in hospitals was exacerbated by beds being blocked because of alcohol-related issues, he said, adding ‘it’s been an uphill battle to get an alcohol strategy’.

John Jolly: Lack of investment has left us unable to respond to ‘huge health issues’ coming our way.

Chronic health conditions – including hepatitis C, which had 90 per cent of cases relating to drug use – far outnumbered deaths from drug-related poisoning, he pointed out.

‘We’re failing by the rationing of treatment for a stigmatised group of people,’ he said, because ‘there is no mandate for local authorities to produce drug and alcohol treatment’. The loss of ring-fence around funding combined with the cost pressures on local authorities made their decisions impossible: ‘If you’re choosing between drug treatment and social care for the elderly, which do you choose?’

‘Huge pressures on the system and lack of invest­ment in the sector’ left an ‘inability to respond to the huge health issues that are coming our way’, he warned.

‘We know the impact on employment chances among other things,’ added Sophie Paley of Addaction. ‘We’ve got the evidence – we need the government to act on it.’

The parliamentary group is calling on the government to focus on ten key issues through a Charter for Change. Read it here

North Wales PCC calls for introduction of consumption rooms

Arfon Jones: ‘UK drug policy is killing people.’

The police and crime commissioner for North Wales, Arfon Jones, has used his annual report to call for the establishment of a pilot drug consumption room in the region. ‘I am very keen in piloting what is commonly known as a “safe injecting facility” in areas of problematic drug use,’ he writes in Looking to the future: my policing objectives. A site has recently been identified for what could become the UK’s first such facility, in Glasgow (DDN, July/August, page 4), while Ireland’s new drug strategy also includes provision for a facility in Dublin (DDN, September, page 5).

The Welsh Government’s advisory panel on substance misuse is currently carrying out research into the value of a safe injection facility, the results of which will presented to public health minister Rebecca Evans soon, while the PCC report also advocates decriminalisation of drugs – for the benefit not only of ‘the user but for the wider community’. Ninety per cent of drug use ‘is recreational and causes no harm, and the criminal justice system should not be used to prosecute people’, it states. ‘Drug addiction is a disease and not a crime.’

A safe injecting facility could contribute to ‘saving lives immediately’.

Earlier this year Jones visited consumption rooms in Switzerland on a fact-finding mission, after which he issued a statement saying that UK drug policy was ‘killing people’ and that a more ‘tolerant and compassionate approach would start saving lives immediately’.

Meanwhile, a report from the Cross Party Parliamentary Group on Drugs, Alcohol and Justice sets out ten key demands on the UK government, including prioritising ‘coordinated harm reduction strategies’ to reduce drug and alcohol-related deaths, and identifying a single government minister responsible for drug and alcohol policy. Charter for change also urges the government to ‘follow the guidance’ of the ACMD, and joins the ACMD, National Aids Trust and other bodies in calling for provision of drug and alcohol services by local authorities to be mandated, with adequate resources available for effective treatment.

 

Lasting impressions

Early trauma can have a devastating effect on children, leaving them more likely to misuse drugs and alcohol. We need to be ready to help at this formative stage, say Addaction and YoungMinds.

Children who experience trauma are more likely to misuse drugs and alcohol – a situation that needs to be tackled urgently by local commissioners, say Addaction and YoungMinds. The two charities have joined forces to publish Childhood Adversity, Substance Misuse and Young People’s Mental Health, a briefing paper and action plan that aims to help young people avoid high risk substance misuse and further trauma from being criminalised.

The paper has been sent to all clinical commissioning groups across the country and urges local commissioners and providers to do more to tackle the issue, including making drug and alcohol education universal across all schools.

Among key issues, it highlights that children who have experienced four or more adverse childhood experiences – like abuse, neglect, domestic violence, taking on adult responsibilities or living in households where people misuse substances – are twice as likely to binge drink and 11 times more likely to use crack cocaine or heroin.

If children regularly use substances from an early age, it can substantially impact their neurobiological and cognitive develop­ment, as well as affecting their ability to learn skills to self-soothe or self-regulate when faced with further emotional stress. Ultimately, this has a negative impact on their physical and mental health.

More than 200,000 children in England now live with at least one adult who is alcohol dependent, which can have a significant impact on their parenting abilities and make it more likely they’ll expose their child to adversity and trauma – often leading to an intergenerational cycle.

As their substance misuse escalates, young people can find themselves face to face with the police or youth justice system, where neither their mental health, nor the trauma they have faced is adequately addressed.

‘Young people get a rough ride in the media with sensationalist headlines about drug or alcohol use,’ says Addaction’s chief executive Mike Dixon. ‘It’s vital we stand up and highlight that for some young people, use of drugs or alcohol is their attempt to numb or cope with trauma or emotional distress. We can better support young people if commissioned services are trauma-informed and if professionals understand why and how young people use substances.’

Rick Bradley is operations manager of Addaction’s Mind and Body programme, aimed at young people at risk of self-harming. ‘We must ensure young people can talk openly about mental health and substance use without fear of being judged and stigmatised,’ he says. ‘Talking to peers has helped the young people on the Mind and Body programme realise it is okay not to be okay all of the time, with three in four reporting an improvement in wellbeing. We hope we can inspire and empower other young people to follow their lead.’

‘We know that children who have had a difficult start in life are far more likely to develop long-term mental health problems, and drugs and alcohol misuse may often play a role in this – that’s why it’s crucial that commissioners invest in early intervention to ensure that the children most at risk get the right support quickly,’ says Dr Marc Bush, chief policy adviser at YoungMinds.

‘It’s also vital that professionals working in A&E departments or in specialist drug and alcohol services have the skills they need to explore whether young people are self-medicating as a way of managing painful feelings and memories. We need to dig beneath the surface and make sure we address the cause of dangerous behaviour in young people, and not just the symptoms.’

To read the full briefing click here

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National Young Person’s Conference success

Young people from all over the UK came together for Addaction’s recent National Young Person’s Conference at The Oval cricket ground.

The event was a chance for young people to speak frankly about their experiences growing up, how they find accessing the support on offer at Addaction and more generally within mental health and substance misuse services.

While drug and alcohol issues among young people have been broadly in decline since 2001, self harm is increasingly common. The conference gave young people the chance to talk to staff and professionals about why that might be, and what life’s like for a teenager right now.

A panel of young people offered their thoughts including:

• ‘When people say it’s “just my hormones” I think: but maybe it’s not. Listen, maybe I actually am going through something.’

• ‘As a teenager I feel I have to be strong and confident… if I were to break down in tears randomly, I think I’d get judged.’

• ‘I think it’s difficult having to balance out your school life, social life, and getting enough sleep. Especially if you have a weekend job. They say you’re supposed to have eight hours sleep. But that can actually be hard.’

• ‘Family wants you to do well, so the pressure they put on you can make you feel really stressed. And like you’re also putting pressure on yourself. I feel like the stress is real but you need to find that balance between working hard and having fun – believing in yourself that you can do well.’

• ‘At primary school, you can rely on the adults and older children to look up to. When you’re in secondary school, suddenly it’s you – you are that older child people need to look up to. And expectations come from teachers, parents and ourselves.’

• ‘I feel like there’s two kinds of stereotype, where you’re either really stressed and working hard to do well all the time, or you’re not doing any work at all and you’re lazy… and it’s more complicated than that.’

The event also marked the release of the expert briefing, Childhood adversity, substance misuse and young people’s mental health. Sarah Brennan, chief executive of YoungMinds, outlined the premise of the report, emphasising that while we are seeing the stigma around mental health shift, ‘for young people it’s still tough’.

In a talk on ‘health, social function and wellbeing’, Professor Harry Sumnall of the Centre for Public Health commented that ‘the role of good policy is to provide positive, supportive healthy environments – young people waiting 19 weeks to be seen by CAMHS is a political issue’. Shirley Cramer of the Royal Society for Public Health then shared #StatusofMind, a recent report from the RSPH and the Young Health movement, examining the positive and negative effects of social media on young people’s mental health.

The biggest cheer of the event was for a short film Step Out of the Crowd, put together by Addaction’s Mind and Body staff and service users. In it, young adolescent men talk about self-harm, the importance of talking about their feelings, and their hopes for the future.

Visit Addaction’s YouTube channel to see the film or the Facebook page to watch the talks.

******************************

Addaction and YoungMinds are calling for local commissioners to ensure that local services provide support for children and families by:

Making sure all young people at primary and secondary school receive universal-level, age-appropriate drug and alcohol education and psychoeducation, looking at risks, relationships and how to build resilience for decision-making. This should be delivered by those with a good knowledge of child adversity, trauma responses, mental ill health and substance use.

Introducing route enquiries about childhood adversity at A&E, urgent care, and specialist drug and alcohol services.

Investing in early intervention models. Research is clear that the age a young person starts using substances is a strong predictor of the severity of their use later on in life. Early intervention should initially be targeted at children with a known risk factor or in a vulnerable group, eg looked-after children or young offenders.

Building targeted support for parents and the whole family to promote recovery from addiction, alongside addressing adversity the children have been exposed to.

Establishing inter-agency collaboration to make sure all a young person’s needs are met, while recog­nising any trauma and adversity they’ve experienced.

Liver disease stats map out stark inequalities

People in Blackpool are almost eight times more likely to die prematurely from liver disease than those in South Norfolk, according to new figures from Public Health England (PHE).

PHE’s ‘liver disease atlas’ shows a marked difference between areas.

The agency’s updated ‘liver disease atlas’ is designed to help health professionals allocate resources more effectively and reveals a wide variation of premature mortality rates across the country, with less than four people per 100,000 population in the South Norfolk clinical commissioning group area dying before the age of 75, compared to more than 30 in Blackpool.

Liver disease now accounts for nearly 12 per cent of total deaths among men in their 40s, with alcohol, obesity and hepatitis B and C responsible for 90 per cent of cases. Hospital admissions for liver cirrhosis have doubled over the last decade, says PHE, although there are significant variations across the regions and most of the higher rates are ‘clustered’ in the more deprived areas.

‘People in the most deprived population fifth who die from liver disease typically do so almost one decade earlier than those who die from liver disease in the most affluent population fifth,’ the document adds. Alcohol-related hospital admissions for under-18s, however, have fallen, although PHE stresses the importance of developing a strategy to ‘tackle the rising burden of liver disease, especially in younger adults’.

‘Chronic liver disease is a silent killer of young adults, creeping up and showing itself when it’s often too late,’ said PHE’s head of clinical epidemiology, Professor Julia Verne. ‘However, around 90 per cent of liver disease is preventable. We hope local health professionals will make the most of this rich data source to inform how they reduce the burden of liver disease in their areas.’

The British Liver Trust said the figures showed the UK was facing a liver disease crisis. ‘People are dying of liver damage younger and younger, with the average age of death now being mid-fifties,’ said its director of communications and policy, Vanessa Hebditch. ‘It is also becoming more and more common for liver units to have much younger individuals waiting for a liver transplant or dying on the wards.’ People ‘need to be diagnosed much earlier to obtain effective care, treatment and support as soon as possible,’ she stressed.

Atlas of variation in risk factors and healthcare for liver disease: September 2017 at fingertips.phe.org.uk

iCAAD: ‘Let’s push things forward!’

The iCAAD team are creating a vibrant and dynamic knowledge exchange – and they want you to be involved. Read on to find out how to be featured in our new column celebrating innovative ideas and practice…

Coming to the end of a successful year, the hard working team at iCAAD are ready to announce the line up for their 2017/18 events. iCAAD stands for International Conferences on Addiction and Associated Disorders – an ongoing series of global events to open dialogue on addiction and other behavioural health issues. Their international platform is dedicated to expanding knowledge, exchanging ideas, and advancing the prevention and treatment of behavioural, mental, and emotional health issues.

iCAAD events focus on the knowledge and skills that can be applied in day-to-day practice – including workshops to support practitioners with the ever-increasing demands on small businesses.

Presenters include renowned medics, therapists and counsellors as well as spokespeople and exhibitors from the world’s top recovery facilities and organisations. An integral part of iCAAD’s mission is to connect the government, public and statutory sector to professionals in these fields, through dialogue, conversation and mutual skills exchange.

It is now more important than ever that a global dialogue takes place on increasingly common conditions affecting individuals in every country. Through the iCAAD network, specialists are able to share their expertise to help treat patients rapidly and more effectively.

iCAAD 2016/17 was an amazing year, with events in Brussels, Paris, and Rome. In February, iCAAD Brussels featured presentations on addiction, mental health and trauma and included Dr Gribomont, a world-renowned psychiatrist based in Brussels, Christophe Sauerwein, an international expert in process addiction and co-dependency, Christophe De Pauw from Action Addiction in Brussels and David Delapalme an expert psychotherapist from Paris.

The following month, iCAAD Paris hosted expert speakers on multidisciplinary approaches to treatment and addressed the progressively devastating effects of addiction and mental health disorders. The host of renowned experts included Prof Michel Reynaud, Dr Mario Blaise and Micheline Claudine.

In April, speakers took the stage at the Centro Congressi, Roma Eventi-Fontana di Trevi for iCAAD Rome. Among them were experts from The United Nations, The Ministry of Health, The Italian Society of Addiction Diseases, The Community of Pope San Giovanni XXIII, and homelessness charity Project Rome. The event was filled by a diverse range of national and international delegates, including professionals in the field and representatives from treatment centres such as The Kusnacht Practice (Switzerland), San Patrignano, Narcanon and Italy’s state-funded addiction and detox programme SERT.

The iCAAD London conference, held in May, was an outstanding success. More than 1,000 delegates, sponsors and exhibitors enjoyed presentations and panels from at least 60 expert presenters on emotional, behavioural and mental health issues, including addiction – three wonderful days of sharing and learning that brought professionals including therapists, GPs and decision makers from 25 countries together into one space. The venue, the Royal Garden Hotel, Kensington, London, has already been rebooked by the team for next May’s event, and the team welcomes presenter applications and abstracts as well as delegate registrations.

Registration is also open for another innovative and forward-thinking event that iCAAD will be hosting this November. Healing And Trauma in the LGBTQ+ Community is an event supported by Resort 12. For the first time ever, London will see Beck Gee-Cohen delivering a workshop alongside the passionate and influential Adela Campbell. These two inspirational people will demonstrate their deep insight and expertise on both experiential models and specialist resources in trauma therapy when working with gender-complex clients. This is an essential, not-to-be missed conversation, so make sure you register now to secure your place.

iCAAD have a whole host of exciting presentations, spotlight events and pop-ups organised for the coming year. Before Christmas they will be returning to Brussels and they also find themselves, for the first time ever, in Iceland. Next year will see them in Stockholm, Paris, Rome, Istanbul and of course, London.

Although each specific event is unique and autonomous in the way they deal with subject matter and local issues, each will work collaboratively towards iCAAD’s global goal of communication and dialogue to share best practice and solutions. And as the therapeutic field moves towards long-term recovery goals, they will be exploring the benefits of cognitive and holistic treatment methods, from healing childhood trauma to nourishing the whole self. As we all know, behavioural, mental and emotional health issues are saturating news headlines today, the world is speaking out and loud – and iCAAD is carrying the momentum forward with each one of their unique and innovative events.

Get in touch with iCAAD for registration, speaker applications and special rates to any of their domestic and international conferences. www.icaadevents.com

Be featured in our new column!
iCAAD want you to share the momentum of their expanding knowledge and ideas exchange, so we’re delighted to announce the launch of a new regular feature in DDN, supported by the iCAAD team. The iCAAD knowledge hub will showcase innovative ideas and practice each month – so if you’re involved in something new or different in your area, or a creative approach to an old or difficult issue, please get in touch and we’ll feature you in this column. Email your suggestion to the DDN editor, with the subject header iCAAD column.

Alcohol industry ‘misrepresenting’ cancer evidence

The drinks industry is misrepresenting the evidence about alcohol-related cancer risks, according to research by the London School of Hygiene & Tropical Medicine and the Karolinska Institutet in Sweden.

While drinking is a ‘well-established’ risk factor for a number of cancers, including liver, breast, colorectal and oral cavity – and accounts for around 4 per cent of new UK cases each year – the drinks industry is misleading the public through ‘activities that have parallels with those of the tobacco industry’, says the review.

The research team analysed cancer-related information on the websites and publications of nearly 30 industry-funded organisations worldwide over a two-month period, and found that most showed ‘some sort of distortion or misrepresentation’ of evidence, particularly around breast and colorectal cancers The most common approach was in ‘presenting the relationship between alcohol and cancer as highly complex’, say the researchers – with the implication that there was no evidence of a ‘consistent or independent’ link – while others included ‘selective omission’, ‘misrepresenting or obfuscating the nature or size’ of the risk and ‘claiming inaccurately that there is no risk for light or “moderate” drinking’.

‘The weight of scientific evidence is clear – drinking alcohol increases the risk of some of the most common forms of cancer,’ said professor of public health at the London School of Hygiene & Tropical Medicine, Mark Petticrew. ‘Public awareness of this risk is low, and it has been argued that greater public awareness, particularly of the risk of breast cancer, poses a significant threat to the alcohol industry. Our analysis suggests that the major global alcohol producers may attempt to mitigate this by disseminating misleading information about cancer through their “responsible drinking” bodies.’

There were ‘obvious parallels’ with the tobacco industry’s ‘decades-long campaign to mislead the public about the risk of cancer, which also used front organisations and corporate social activities’, he added.

A spokesperson for Drinkaware responded by saying that, although funded by

Industry-funded bodies are accused of ‘distortion’.

donations from ‘alcohol producers, supermarkets and others’, it was not an industry organisation and that all of its health information was approved by a medical advisory panel of ‘senior and independent’ experts. The panel ‘regularly reviews peer-reviewed medical evidence and how Drinkaware presents this information to the public, to ensure that it is doing so in an accurate and reliable manner’, the spokesperson stated.

However, chair of the Alcohol Health Alliance, Professor Sir Ian Gilmore, said that the report ‘clearly shows the alcohol industry misleading the public about the risks associated with alcohol’ and that it was ‘not just heavy drinkers’ who were at risk. ‘With only one in ten people aware of the link between alcohol and cancer people have both a need and a right to clear information about the health risks of drinking alcohol.’

How alcohol industry organisations mislead the public about alcohol and cancer, in the journal Drug and Alcohol Review, at onlinelibrary.wiley.com

DDN Conference Exhibitor Information

 

 

 

Thank you for supporting the DDN service user involvement conference. Please find information for your stand and the delegate bag inserts.

The venue has ample free parking and is around 10 minutes in a cab from Birmingham New Street Station.
If you are looking for overnight accommodation before the event, the DDN team are staying here:
I can confirm that exhibitors will have access between 4-6pm the day before (the venue will close promptly at 6pm) and from 8.30 am the morning of the event. All exhibitors will be on the ground floor main suite of the venue and you will be allocated your space on arrival.
All stands are 6×3 clothed tables and two chairs. If you have any special requirements eg power, or extra width to accommodate pop out stands, please let me know in advance and I will make sure you are in a suitable position. The venue has free wifi and the login will be available on the day.
Delegate registration is from 9am and the event starts at 10am. You can find more information on the programme and the day itself here:
As part of your package you are welcome to place inserts in the delegate bags. If you would like to take this up please email me and let me know, and please post 500 copies to:
DDN Conference
C/o Tobias Gould
Changes UK
Recovery Central
Please give couriers 0121 796 -1000 as a contact number.
Please be sure to mark boxes ‘DDN conference’ and the name of your organisation. Deliveries must arrive no later than midday Wednesday 14 February.
We are collating exhibitor name badges so please use this form to submit the names of the people attending from your organisation by Wednesday 14 February. I have also copied our accounts person, if you have any query regarding invoicing.
If there is anything else you need to know, or if you would like to discuss anything regarding the conference or DDN magazine, please don’t hesitate to contact me.
We look forward very much to seeing you!
Ian
07711 950 300

Ketamine use: advice from the experts on harm reduction

The growing popularity of ketamine use is not matched by knowledge within treatment services. Sara Woods went to harm reductionists Mat Southwell and Amy Massey for some clear and informed advice.

Ketamine is popular in a few regional pockets in England. It is particularly prevalent at squat parties in the big cities and the more rural free parties in the west and east of the country – events usually held in a field or barn, where a generator pumps electronic music. The larger parties can go on for three days as long as the police don’t come.

Partygoers often use cocaine, MDMA, LSD or ketamine, with the combination of cocaine and ketamine (CK) becoming increasingly popular. The ketamine is snorted in quantities that vary from person to person, but this can mean taking up to 10g at one party.

The authorities have prohibited ketamine, but do little to inform about it, and support services for this user group are scarce. Users are often unaware of the substantial medical risks they are taking and the measures they can take to decrease such risks. Besides, many users do not seek help for serious complaints, because they feel misunderstood by medics and other support services.

This all gave plenty of reasons for K-users Amy Massey and Mat Southwell to take action. Together with other K-users, these harm reduction activists aim to improve information exchange and access to healthcare and other services.

Harm reductionists Mat Southwell and Amy Massey

Mat has been an active harm reductionist since the 1990s. As a representative of the Dance Drugs Alliance, he was committed to the interests and health of clubbers, and has also been involved in the development of a professional response to crack use. They developed a simple checklist for GPs, which breaks down predominant crack-user issues into primary health problems and makes it easier for GPs and drug users to talk to each other.

‘They often have a mutual fear of each other, but such a list gives practical handholds in consultation and brings the two closer together,’ says Mat. A similar checklist has been developed for ketamine – the ‘K-check’. Users can bring the K-check along to their GP visit.

In the meantime, the government is not taking responsibility. According to Mat the national government says it’s a regional problem, and local addiction treatment centres do not have the capacity to get involved. This is a big problem, because even though the group of problematic users may be small, they are suffering serious physical and mental consequences. In the most extreme cases, people in their twenties had their bladder removed. ‘These users are being neglected. There is barely any information on how to reduce risks,’ he says.

Moreover, in 2014 ketamine was further criminalised, resulting in higher penalties for possession, which – as predicted by expert advisors on the topic – only worsens the situation.

As Home Secretary Theresa May opted for increased criminalisation of ketamine use against the advice of the ACMD working group.

‘I gave evidence to the Advisory Council on the Misuse of drugs working group on Ketamine,’ says Mat. ‘It was called by Theresa May, then home secretary, to advise on the ketamine situation. My evidence said problems arose after criminalisation and that more criminalisation would deepen problems. But ketamine was further criminalised regardless. The view of key people in the working group was that Theresa May decided on a path of more criminalisation before they reported. This is what has resulted from a political move to be seen as tough on drugs regardless of actual impact of policy.’

For a while Mat distanced himself from ketamine harm reduction, hoping that others would pick it up. Sadly, this did not happen. And then, in 2016, Amy contacted Mat. She had watched one of his online videos on ketamine and came with a cry for help.

Amy is 28 years old and has been using ketamine for around seven years. Through her personal party network she already knows about 100 to 200 ketamine users, many of whom now have serious health problems – bladder and kidney trouble, mental health issues, and terrible pains in the stomach, known as ‘K-cramps’.

‘A lot of the people I know walk around with severe pains for a long period of time, because they do not get any help, and they use more ketamine to soothe the pain – something that usually only exacerbates the problem’ says Amy.

She too has sought medical help several times for her K-cramps, and often medics had no idea what to do with her problem. Twice they even prescribed painkillers that worsened the situation.

Not just the emergency services, but also urologists – who usually treat much older people – are struggling with this patient group. Even the addiction treatment services often have too little specific knowledge of ketamine and offer standard treatments – such as the 12-step-programme – that do not address the demand and needs of most ketamine users. As a result, many K-users have little trust in medical or drug services, leading them to walk around with problems for unnecessarily long periods.

Thus, Mat and Amy came up with the peer project ‘Straight from the horse’s mouth’. The project aims to provide users with better information about safer use, but also to improve access to care. Amy knows many users, Mat knows many professionals. Together they build bridges and create a space where K-users are not judged, and where they can learn.

‘Medics often have little understanding for continued drug use, despite the harm people inflict upon themselves,’ says Mat. ‘In our project, users share their experiences and knowledge with each other. They respect each other. If someone pees a lot or has blood in their urine, that person is stimulated to go and see a medic. That way chronic bladder disease – or even worse, the removal of the bladder – can be prevented.’

Practical advice on safer K-use is also exchanged. ‘For instance, before snorting ketamine it is much better to grind the crystals with a pestle and mortar, rather than heating them’, Mat tells us. ‘Because when you heat the crystals you lower the quality of the drug, and bacteria are released. Also, many problems can be prevented by drinking plenty of water during and after use, so you rinse the ketamine out of your body.’

Amy and Mat started a secret Facebook group with around 50 members so far. It is a safe space where ketamine users can share their health problems and advice with each other. ‘On YouTube we want to start a talking heads video dialogue between peers and professionals,’ they say. ‘We hope that commitment to the project will increase through social media, such as Facebook and YouTube. Soon the first YouTube video will be available online. In the future, we are hoping to offer even more, such as an online learning environment and meetings.’

If you are an experienced ketamine user interested in exchange on this topic you can contact Amy Massey or Mat Southwell by sending them a message via Facebook.

Sara Woods is project leader for the Amsterdam harm reduction organisation Mainline.

Sara Woods is project leader for the national department of Mainline, a harm reduction organisation based in Amsterdam, which works nationally and internationally to promote health, rights, and quality of life for drug users. This article is a version of Sara’s Dutch article, published in Mainline Magazine.

The explosion that never happened

At the end of the 1980s the threat of a crack epidemic in the UK loomed large as we scrambled to take heed of dire warnings from America. Mike Ashton and Natalie Davies delve into the Findings Effectiveness Bank to separate fact from fiction.

In its various guises, no drug has widely been considered so enticing as cocaine. Such beliefs played a part in lurid fears that cocaine would undermine the World War I war effort – for the Times, a drug even ‘more deadly than bullets’. However, modern-day concern over cocaine in Britain can be traced back to 20 April 1989, when Robert Stutman, head of the Drug Enforcement Administration (DEA) in New York, addressed Britain’s chief police officers.

His subject was the new smokable form, manufactured as small ‘rocks’ called ‘crack’. While snorted cocaine powder had a reputation as the drug for the champagne set and business high-flyers, crack lent itself to mass distribution in small quantities to the ‘persistent poor’ of US cities. Rapid onset created what, for some, was an appealing ‘rush’ – otherwise available only at greater expense and/or by injecting.

A powerful speaker credited by himself with bringing crack to national attention in the USA and ‘single-handedly changing the policy of the United States DEA’, Stutman set about waking Britain up to the threat.

There were fears that UK inner city areas like Depford could become US-style drug ghettos.

His story of an ‘explosion’ of crack use and related violence in New York ignited worries that crack could turn Toxteth, Handsworth and Deptford into US-style drug ghettos.

Most startling was the revelation that ‘a study that will be released in the next two to three weeks will probably say that of all of those people who tried crack three or more times, 75 per cent will become physically addicted at the end of the third time… We now know that crack is… certainly the most addicting drug available in Europe. Heroin is not even in the same ballpark.’ Without immediate action, Britain would, he warned, undergo the US experience within two years.

He was not alone. Addressing UK police chiefs in September 1989, Dr Tuckson, commissioner of public health in Washington, challenged notions that milder Britain would not react to crack in the same way as some of the USA’s poor black neighbourhoods: ‘There is nothing particularly unique about the water… in your country that would prevent the neurotransmitters and the pleasure centres of the brains of your citizens [being] overwhelmingly affected by the instantaneous and powerful euphoria that this drug presents. All you have to do is do it once and I guarantee you any, almost any, human being would want to do it again.’

Robert Stutman warned of an ‘explosion’ of crack use

Later in 1989 Bob Stutman was paired at a conference on crack with Dr Mark Gold, founder of the USA’s 1-800 Cocaine helpline. While Stutman told the London audience his tales from the street, Dr Gold offered scientific evidence of crack’s addictiveness and violence-inducing properties.

They had been invited by the City of London Corporation, whose delegation had been ‘deeply shocked’ by a visit to New York. The conference ended with a resounding attack from the City’s Lord Mayor on the ‘doubting Thomases’ in Britain who were the ‘biggest problem’ because they did not believe the clear evidence about crack, such as that three hits can ‘effectively kill the brain’.

The same year, ‘Three Hits Can Get You Hooked’ was the Sun’s headlined version of Stutman’s ‘terrifying statistics’. In the Times the as yet unseen study he’d trailed had become a ‘survey’ which ‘showed’ these disturbing facts, later attributed to the Home Office itself.

The Independent revealed that senior British police officers had ‘attempted to trace the studies and the figures he quoted and found they don’t exist’. Still, in 1989 an emergency report from the Commons Home Affairs Committee highlighted these same ‘facts’. The following year a BBC investigation found Stutman’s address ‘littered with misinformation’. The claim that 73 per cent of child-battering deaths in New York in 1988 were perpetrated by crack-using parents was based on just two deaths, one involving chronic alcoholism, and Stutman remained unable to produce the ‘three hits and you’re addicted’ study.

If study and ‘facts’ were illusory, so too was the forecast explosion of crack use and violence. It was not that crack never became a problem – it did, and in some localities, a big one – but Britain’s problems never rivalled the US experience. If it emerged at all, the supposed hooking power of the drug came from a constellation of circumstances, not deterministically from merely trying it a few times – and circumstances were different in the UK.

Rather than an explosive epidemic, crack crept up to become a feature of the UK drug scene and of the treatment caseload.

Rather than an explosive epidemic, crack crept up to become a feature of the UK drug scene and of the treatment caseload. In line with population trends, that caseload has been declining since around 2008. Instead of being hard to stop using, crack as well as cocaine, turned out to be hard to continue to use. And rather than ‘not even in the same ballpark’, heroin seems harder to leave behind.

As the patient’s primary drug, across the UK since 2010 cocaine/crack has accounted for about one in eight entering treatment for drug problems, down from about one in seven in 2008/09. In contrast, in the early 2000s opiates accounted for well over half, falling by 2015 to 21 per cent as cannabis took prime position. Total treatment entrants have fallen, meaning that cocaine/crack treatment entrants too have fallen from about 20,200 in 2008/09 to about 12,500 in 2015.

Where in the early 2000s crack was the main variant, by 2015 it was the primary drug for just 3 per cent of treatment entrants compared to 9 per cent for cocaine powder. Among patients starting treatment for the very first time, crack as a primary drug is even less apparent, accounting in 2015 for just over 2 per cent – only about 720 patients across the UK. Cocaine powder is more prominent, accounting for 14 per cent. Though uncommon as the main substance for patients entering treatment, crack is more common as a secondary drug, especially in England, where in 2015 its use was reported by 43 per cent of primary opiate users.

As well as the peak for treatment numbers, at 3 per cent, 2008/09 was the peak in the proportion of 16 to 59-year-olds in England and Wales who, when surveyed, said they had used cocaine in the past year. In 2015/16, all but 0.2 per cent of the 2.4 per cent had done so in the form of cocaine powder. Across the UK, most past-year users had taken it just a few times – well short of dependence.

Studies of problem drug use in England have instead estimated crack use by triangulating from treatment and criminal justice statistics, confirming that problem crack use is rare – in 2011/12 involving 166,640 adults, about one in 200 of the population. Most were using crack alongside opiates like heroin; about 38,000 were using crack without also using opiates. Crack’s peak in these estimates came in 2005/06, since when numbers have fallen by 16 per cent.

As for the ‘not in the same ball park’ claim about the comparative addictiveness of crack and heroin, that seems partly true, but in the opposite direction. In the latest English national drug treatment study, three to five months after starting treatment 44 per cent of followed-up heroin users had stopped using, and after a year, 49 per cent. Corresponding figures for crack were 53 per cent and 61 per cent, and for cocaine powder, 75 per cent and 68 per cent.

Confirmation comes from treatment completion and non-return figures, considered indicative of successful treatment. In England, 44 per cent of primarily crack-dependent patients entering treatment between 2005/06 and 2013/14 were recorded as not having returned after completing treatment and leaving free of dependence. For cocaine powder, the proportion was 55 per cent – both much higher than the 27 per cent for opiates.

The champagne of drugs may be a bubbly treat, and crack a marketing revolution, but neither can match more mundane intoxicants for staying power and mass appeal.

This article is based on the ‘hot topic’, ‘The ‘explosion’ that never happened; crack and cocaine use in Britain’ at http://tinyurl.com/yb6djeam. See for further details and links to source documents.

Mike Ashton is editor and Natalie Davies is assistant editor of Drug and Alcohol Findings

ACMD issues stark warning on funding cuts

Funding cuts are the ‘single biggest threat’ to treatment recovery outcomes, according to the government’s own advisors, the ACMD. Maintaining funding levels for treatment is ‘essential’ for preventing drug-related deaths and crime, states Commissioning impact on drug treatmentwhich contains examples of funding reductions brought about by re-procurement or variations to existing contracts.

Lack of spending on drug treatment is short sighted.

The disruption caused by frequent re-procurement was creating instability and churn in the system, ‘draining vital resources’ and leading to ‘risky transition points’ for service users, it says, with ‘significant extra efforts’ needed to protect investment and quality. Re-procurement was reported as an expensive process for both commissioners and providers, with some commissioners having to ‘fight’ for contract lengths of more than three years, while others said delays in local decision-making processes were leading to rushed processes and poor transitions’. Commissioning contracts should be between five and ten years, the report urges, while links between treatment services and local healthcare should also be strengthened.

The report also wants to see more transparency and ‘clearer financial reporting’ on treatment services to challenge local disinvestment and – alongside the recent National Aids Trust’s harm reduction briefing – calls for drug and alcohol services to be mandated within local authority budgetsand/or the commissioning of treatment placed within NHS commissioning structures’. 

‘A lack of spending on drug treatment is short sighted and a catalyst for disaster,’ said ACMD recovery committee chair, Annette Dale-Perera. ‘England had built a world-class drug treatment system, with fast access to free, good-quality drug treatment. This system is now being dismantled due to reductions in resources. Unless government protect funding, the new drug strategy aspiration of effectively funded and commissioned services will be compromised.

Report sets out ‘how challenging the environment has become.

The ACMD’s report set out ‘how challenging the environment has become’, said Collective Voice chair and Phoenix Futures CEO, Karen Biggs. The government shares the sector’s ambition to meet the needs of those impacted by substance misuse but without some change it will be increasingly difficult to do. Despite the challenging external environment, the third sector providers will continue to work hard to find ways to deliver the innovation required to meet the broader aims of the drug strategy. The costs of not doing so are too high.’

 Document at www.gov.uk

Boost harm reduction to halt deaths, government urged

The government needs to ensure that the provision of the ‘whole range’ of harm reduction initiatives is in place to address increasing rates of drug-related deaths, according to a National Aids Trust briefing endorsed by Blenheim, Release, IDPC, SMMGP and others. 

The use of drug consumption rooms should be considered.

The document also urges the government to take on the ACMD’s recommendation that naloxone be made ‘routinely available’, as well consider the use of consumption rooms in areas of high-prevalence drug use. The government should also take steps to minimise the impact of local authority budget cuts by requiring councils to provide drug treatment by law, it adds.

Despite ‘compelling and extensive evidence’ for the cost-effectiveness of harm reduction initiatives, political and financial support for them have ‘sharply declined’ in recent years, says Still no harm reduction? A critical review of the UK government’s new drug strategy. The 2010 drug strategy’s emphasis on abstinence ‘failed some of the most vulnerable people who use drugs’ while this year’s strategy ‘barely mentions’ harm reduction and proposes no concrete plans to tackle rising death rates, says the briefing. This is in ‘sharp contrast’ to Ireland’s new strategy documentReducing harm, supporting recovery, which includes support for the provision of consumption rooms (DDN, September, page 5). 

Cuts in public health spending are already having a ‘severe impact’ on the quality of harm reduction services, the briefing continues, with the King’s Fund predicting a further £22m hit to drug services over the coming year (DDN, September, page 5). However, the end of the ringfenced public health budget in 2019 will carry a ‘very real risk that even the priorities set out in the drugs strategy will fail to be implemented’, it warns, as there is no mandate in law for local authorities to provide drug services. 

‘Across the UK, we can already see the consequences when people are not able to access harm reduction initiatives easily, such as the recent outbreak of HIV among people who inject drugs in Glasgow,’ the briefing states. ‘There has also been a devastating spike in drug-related deaths, with deaths involving heroin and morphine rising by 109 percent in England and Wales between 2012 and 2016. In 2016, there were 3,744 drug-related deaths in the UK, the highest since records began in 1993. We should not underestimate the scale of the issue: eight out of every thousand people in the UK struggle with opioid use.

Briefing at www.nat.org.uk

DDN September 2017

‘As we celebrate recovery, let’s credit harm reduction’

As we enter ‘recovery month’ there’s no better time to reinforce harm reduction – the route to recovery, and the reason it’s sustainable. What works for one person won’t work for another and we need to open every door to better health.

At a recent parliamentary group participants voiced their anxiety about the way drug treatment is being compromised by lack of funding and prioritisation (page 10). There were calls for a new approach, condemnation of punitive measures, and yet more warnings about a looming public health crisis. All were concerned about taking the strain off the NHS by tackling chronic health conditions that could be treated at a much earlier stage by enhancing drug and alcohol treatment.

So as we celebrate recovery, let’s use this vibrant demonstration of success to credit the role of harm reduction. How many people who celebrate their number of years ‘clean’ nearly lost their life to an overdose? How many owe their life to a drug or alcohol worker, mentor or friend in the right place at the right time, who knew essential harm reduction or had a naloxone kit?

As always we try to bring you the information you need, and this issue’s cover story focuses on the much misunderstood drug ketamine (page 6). The Findings team offer a fascinating insight into a hyped-up crack epidemic (page 12), while Addaction and Blenheim share their work supporting young people (pages 8 and 16).

And we’re excited to announce a new feature – the iCAAD knowledge hub. This innovative team are supporting a regular column in DDN to showcase inspiring ideas, so please get in touch!

Read it here as a mobile magazine or PDF.

Claire Brown, editor
We welcome your letters – please email the editor by clicking here

Be overdose aware

Yesterday (31 August) marked International Overdose Awareness Day, a global event designed to spread the message that ‘the tragedy of overdose death is preventable’, as well as help reduce stigma and acknowledge the grief of the family and friends of those who’ve died.

The campaign’s website at www.overdoseday.com features a downloadable ‘overdose aware’ app and a wide range of other resources, as well as personal tributes from people around the world. Last year saw drug-related deaths reach record levels in Scotland and England, a situation Release called a ‘national crisis’ (DDN, September, page 4), while more than half a million people in the US have died of a drug overdose since the turn of this century (DDN, September, page 5).

Meanwhile, a set of best-practice principles to address rising death rates has been published by a working group of NHS and voluntary sector treatment providers. Improving clinical responses to drug-related deaths by the NHS Substance Misuse Provider Alliance and Collective Voice, with support from PHE, is an easy-to-use toolkit that combines best practice examples with advice on practical implementation.

‘Through the course of the last six months we have listened to people who use treatment services, researchers and analysts,’ said Phoenix Futures CEO Karen Biggs. ‘No one claims to have the whole answer. The causes of the high level of deaths our communities are experiencing over recent years are due to a range of complex interrelated issues that vary depending on your age, your gender and where you live in the country. The solutions therefore need to be sophisticated, tailored and delivered by a range of agencies working in local communities. We hope the report we have published today inspires a new commitment and new thinking, and goes some way to providing a solution.’

www.overdoseday.com

Improving clinical responses to drug-related deaths at www.collectivevoice.org.uk

DDN Residential Treatment Directory 2017

The DDN Residential Treatment Directory 2017

 

 

 

 

Recovery games celebrate a winning team

A fun-packed day was enjoyed by more than 650 people who came to Doncaster for the fourth annual recovery games.

Participants from all over the UK formed 36 teams for the gladiator-style games, which celebrated people in recovery from drug and alcohol addiction.

‘This year’s games were the biggest and best yet, with the recovery community being stronger and more vibrant than ever,’ said event organiser Neil Firbank, day programme lead for Aspire Drug and Alcohol Service. ‘The event is about letting people know that recovery is alive and being nurtured in many towns across the region and the UK.’

‘It’s been a fantastic day with hundreds of people celebrating and applauding those in recovery from addiction,’ added Aspire service manager Stuart Green. ‘The event has become a recognised milestone in the recovery calendar. It sees people with different addictions and health conditions come together, connect and learn new skills and most importantly have fun without the need for substances.’

The annual event, funded entirely by donations, is organised by Aspire Drug and Alcohol Service, run by Rotherham Doncaster and South Humber NHS Foundation Trust in partnership with the charity The Alcohol and Drug Service.

****Send us your recovery month activities****

September is recovery month! If you’d like your event to be mentioned in our round-up of activities in DDN’s October issue, please email up to 350 words to the DDN editor by Friday 22 September.

Let’s look ahead by investing in young people, says Mentor UK

We need to look ahead – prevention work with young people is an investment in the future, says Mentor UK’s chief executive Michael O’Toole.

Many young people do not have access to substance prevention education – and for many that do, it is ineffective or even counter-productive. Prevention needs to be different for all ages and what will be effective evolves as children grow into adolescence then adulthood. It needs to be carefully planned and adapted to maximise its relevance and usefulness.

It is crucial that evidence-based approaches are followed in a variety of settings for young people, as well as the adults in their lives. Not only must prevention be age-appropriate, but there are also different approaches required depending upon risk:

Universal  These are broad school and community programmes for all young people to better understand how to resist riskier behaviours.

Selective  Some programmes identify issues for sub-groups who are clearly vulnerable to a specific risk and help them to overcome problems particular to them.

Indicated  Young people can find ways to reduce specific harms by considering objective and relevant information resources.

One of the common ineffective approaches is to simply provide young people with information about substance harms and their legal status and then expect that safer choices will naturally follow.

Another approach seen to be ineffective is trying to scare young people off drugs through fear arousal or shock tactics. Evidence shows that a holistic approach to the development of values, skills and knowledge, which empowers young people to protect themselves in a range of risky situations, is much more effective.

The UN sets out some key facets of what works in substance prevention:

• Improving the range of young people’s personal and social skills

• Prevention through a series of structured, interactive sessions over multiple years

• Delivery by trained teachers or facilitators

Young people need to be thinking, engaging, discussing and building their own resilience to the risks that alcohol and drugs may present. We know that presenting information alone, especially when intending to evoke a reaction, will not help change behaviour for the better.

No single approach can prevent a young person experimenting with alcohol or drugs. What we need is to build upon their capabilities and potential, rather than telling them not to misuse substances or trying to scare them. What does work is empowering young people to build upon their skills, knowledge, positive attitudes and ambition to be more resilient. It is therefore critical that we understand their perspective to improve the effectiveness and impact of our work and programmes.

Prevention services are a crucial investment in the future. Public Health England estimates that drug and alcohol harm costs the UK £36.4bn every year, but there is no aggregate sum for the loss of ambition and harm to young people’s futures.

Michael O’Toole is chief executive of Mentor UK. He will be speaking at The National Substance Misuse Conference on 13 September, register at rsbevents.com

Leeds peer support launched for people with hepatitis C

Forward Leeds’ BBV nurse Karen Towning (centre) with recovery coordinators Mel Senior (left) and Louise Maidens.

A new peer-led group has been launched in Leeds to support people with hepatitis C. Staff from Forward Leeds are aiming to help clients gain support from each other and have the chance to talk to others in similar situations.

‘We recognised there is a real need for this kind of support group in Leeds,’ said Karen Towning, BBV Nurse at Forward Leeds. ‘There can be a lot of worry and uncertainty for people about getting hepatitis C treatment. There can also be a lot of stigma with the disease.’

Around 216,000 people in the UK have chronic hepatitis C, which prevents the liver from working properly, and half of people who have ever injected drugs are thought to have the disease. New treatment options are offering new hope to sufferers.

‘People don’t realise that current treatments can be shorter, with fewer side effects and more successful outcomes than there used to be,’ said Towning.

Are you affected by hepatitis C or involved in treatment? Please complete our confidential survey here – we need your views.

Beginning of the end

End of life care is a difficult topic to discuss. Kevin Jaffray suggests ways to start the conversation and provide better palliative options.

End of life care has many different elements to it, including palliative care, hospice, care for the carers, and much more, but underlying all the many aspects of care should be dignity and respect.

For many it can seem like a taboo subject, and few patients report having any discussions around end of life care with their GPs, despite the relevance in relation to their condition. We all die – so how do you introduce the conversation? It’s a discussion that needs to happen while there are options to put a comprehensive, person-centred care plan in place.

Such a complex area presents numerous dilemmas. Family values and ideals may differ as emotions run high, and there are all kinds of factors to take into account: cultural and socioeconomic influences, religious beliefs and core values, professional differences, political and financial restrictions – the list seems endless.

The National Council for Palliative Care (NCPC)’s guidance to doctors defines end-of-life care as helping people ‘with advanced, progressive, incurable illness to live as well as possible until they die’. It helps both the patient and their family throughout the last phase of life and into bereavement and as well as including management of pain and other symptoms – and just as important, it provides psychological, social, spiritual and practical support.

NCPC also recognises that ‘if end of life and palliative care were better and more widely understood, then this might enable better conversations between health and social care staff and people about death and dying, as well as services that meet their needs.’

Put simply, the principle aims of end of life care include:

• Placing the person at the centre of the caring process.

• Consulting and involving the person in decisions regarding their care.

• Recognising that in addition to their physical symptoms, people have emotional, social and spiritual needs that should be addressed by a multi-disciplinary team.

• Maintaining and enhancing quality of life for individuals and their families wherever possible.

• Providing bereavement support for families and carers after someone has died.

Making sure that these principles are met efficiently and professionally is a core value to all aspects of care and support. The process can be set in motion by collating a one-page profile that outlines what is most important to the individual receiving care: What are their expectations during the process, their fears, and their concerns? Who is closest to them and who might the individual perceive as being essentially involved in the care process? What are their significant needs, what kind of environment are they living in, and what are the key aspects of their quality of life?

‘It’s a discussion that needs to happen while there are options…’

If there is no supporting family and the socio-economic background is one that reflects a negative environment involving homelessness, a history of substance use, progressive underlying mental health condition, and no recognised community connections, should the approach to care be any different?

In all cases, treatment grounded in equality and diversity is essential, but addiction can have a double impact on end of life care – particularly when it involves taking medications to alleviate pain and other symptoms during treatment.

Social activist David Dellinger highlighted ways in which attitudes to substance use could have an impact on care. In some cases healthcare providers were heavily biased against ‘addicts’, while nurses had been reported to discount pain reports and under-treat pain in patients who had a record of substance use.

In many cases, those entering end of life care were not screened or treated for substance use or addiction issues, meaning that they did not receive the most appropriate treatment.

Various approaches can be adopted to improve the situation. First and foremost, clear and direct models of care, which identify potential risks and barriers, should be stored on a national database for easy access. This document could include personal testimonies from carers, family members and nurses involved in the end of life care process, showing which provision would be most effective.

This would also serve as a guide to care based on best practice, providing a space where innovative care approaches could be showcased. Relevant training should also be a necessity for all professionals in recognising signs of substance misuse, and in developing an understanding of the risks involved in inappropriate treatment.

Clear and direct strategies alongside effective support networks for family, friends and caregivers will not only improve practice and care, but enhance outcomes for all those involved in this difficult process.

Kevin Jaffray is an independent trainer and consultant

A need to inspire

We neglect our student nurses at our peril, says Ishbel Straker.

I have a dream…. that one day all student nurses will be made to feel welcome while on their placements… that student nurses will be nurtured and valued through their journey on hospital wards and community settings. They will arrive with a mentor already named and a timetable set, which will maximise their learning outcomes. They will be encouraged to ask questions and feel comfortable to highlight areas for improvement within services.

While undertaking my nurse training my learning experiences varied. On some placements I was met with the ‘dream’, and on others I was met with a response of ‘we didn’t even know you were coming’ – not the best start to a 12-week relationship!

What concerns me from a clinical director’s point of view is that nationally we are having a nurse recruitment crisis. We are unable to fill posts with permanent staff, let alone retain them. Our international drives have been unsuccessful and now our university intakes are looking worrying.

The bottom line is that we have a duty of care to encourage and nurture our students. We need to position them for the best educational experience they can have in order for the next generation of nurses to come out as well-rounded clinicians.

This leads me onto the student’s vocational experience: how are we to attract nurses into the field of addiction when this is not a standardised placement area? With the increase of awareness around comorbidities in addiction, why are we not seeing more general nursing students coming through our services?

You might say this is because of the lack of placement opportunities, and I can say that in my current and previous role I made it the top of my agenda to have our services filled with student nurses, to which some universities stated they would not use non-NHS placements. This is an interesting concept when the NHS has a consistently reducing portfolio of addiction services.

What is my point? Well, I want students to be welcomed and nurtured when on placement in our addiction services, so much so that they notice, just as I did as a student, that this field is different to any other in nursing. I want students to ask at the end of their placements with us to contact them should any jobs arise in the future, because that placement stands out more than any other in the whole of their three years’ training as one which they want to come back to as a qualified member of staff.

What better accolade than when a student nurse returns home to make their career?

Ishbel Straker is clinical director for a substance misuse organisation, a registered mental health nurse, independent nurse prescriber (INP), and a board member of IntANSA.

Scots drug death toll the highest yet

Scotland has once again recorded its highest ever number of drug-related deaths, at 867. The 2016 figure is 23 per cent higher than the previous year and more than double the number from a decade ago. Scotland’s drug death rate is now higher than anywhere in the EU, and roughly two and a half times higher than the UK as a whole.

More than two thirds of the deaths were among males, and nearly a third were in the Greater Glasgow and Clyde NHS board area. Nearly 40 per cent of the deaths were of people aged between 35 and 44, and a quarter were among those aged 45 to 54, with the median age at death 41.

Opioids were implicated in, or ‘potentially contributed to’, almost 90 per cent of the total number of deaths, and benzodiazepines almost half. Although NPS were implicated in, or potentially contributed to, 286 deaths, only four were ‘believed to have been caused by NPS alone’.

Aileen Campbell: ‘Many long-term drug users have chronic medical conditions.’

Public health minister Aileen Campbell said the country was dealing with a ‘very complex problem’ and a legacy of drugs misuse stretching back decades. ‘What we are seeing is an ageing group of people who are long-term drug users. They have a pattern of addiction which is very difficult to break, and they have developed other chronic medical conditions as a result of this prolonged drugs use. There are no easy solutions but we recognise that more needs to be done.’

The Scottish Government recently published its updated drugs strategy, which includes a joint initiative with the Scottish Drugs Forum (SDF) on engaging older drug users and keeping them in treatment, called ‘Seek, Keep, Treat’, while a report from NHS Scotland and the University of Glasgow blamed Scotland’s record drug death figures on the impact of political decisions and social deprivation in the 1980s. England and Wales also recently registered a record number of drug-related fatalities.

David Liddell: ‘The scale of this tragedy requires a fundamental rethink.’

‘The fatal drug overdose deaths are personal tragedies for the individuals and their families, and clearly of a scale which is a national tragedy that requires a fundamental rethink of our approach,’ said SDF chief executive David Liddell. ‘Other countries have achieved a reduction in overdose deaths by ensuring that people are appropriately retained in high-quality treatment and we must aspire to do the same.’

‘Today’s statistics are extremely concerning, but we believe that this number would be even higher if not for the efforts families are making in keeping their loved ones safe and alive,’ added Justina Murray, chief executive of Scottish Families Affected by Alcohol and Drugs, whose staff team were out across Scotland in response to the statistics, offering advice and support.

The free and confidential support service is funded by the Scottish Government and has a network of counsellors and a bereavement support service – call 08080 101011.

US administration to use ‘all appropriate authority’ in response to opioid crisis

The US president, Donald Trump, has instructed his administration to use ‘all appropriate emergency and other authorities’ to respond to the country’s opioid crisis. He later told reporters that the situation was a ‘national emergency’.

The move follows the recommendations of an interim report from the President’s Commission on Combating Drug Addiction and the Opioid Crisis, which also calls for a rapid expansion of treatment capacity as well enhanced access to ‘medication-assisted treatment’ and increased naloxone dispensing. The number of opioid overdoses in the US has quadrupled since 1999, says the report, with more than 560,000 people dying as a result of a drug overdose between 1999 and 2015. ‘Not coincidentally’, the level of opioid prescribing quadrupled over the same period, it states.

‘Americans consume more opioids than any other country in the world,’ says the document. ‘In fact, in 2015, the amount of opioids prescribed in the US was enough for every American to be medicated around the clock for three weeks. We have an enormous problem that is often not beginning on street corners; it is starting in doctor’s offices and hospitals in every state in our nation.’

As access to prescription opioids has been tightened, however, people have increasingly turned to street drugs, it points out, with just 10 per cent of the almost 21m people with a ‘substance use disorder’ receiving any type of specialist treatment – a factor that is ‘contributing greatly’ to the increase in overdose deaths. More than 40 per cent of people with a substance problem also have a mental health problem, the report adds, but ‘less than half’ receive treatment for either.

A return to ‘Just say no’? Nancy Reagan speaking at a rally in 1987.

‘Nobody is safe from this epidemic that threatens young and old, rich and poor, urban and rural communities,’ Trump told a press briefing. ‘Drug overdose is now the leading cause of accidental death in the United States, and opioid overdose deaths have nearly quadrupled since 1999. It is a problem the likes of which we have not seen.’ He added, however, that the best way to ‘prevent drug addiction and overdose is to prevent people from abusing drugs in the first place’ and that ‘strong law enforcement is absolutely vital to having a drug-free society’. Earlier this year his administration signalled that it intended to intensify the ‘war on drugs’ with a return to 1980s-style prevention campaigns (DDN, May, page 5).

‘An emergency declaration can be used for good but President Trump has given every indication so far that he and his administration want to escalate the failed war on drugs,’ said deputy director of national affairs at the Drug Policy Alliance, Grant Smith, who stressed the ‘stark contrast’ between the president’s preferred law enforcement approach and the health-based response prioritised by the opioid commission’s report.

‘Trump’s emergency declaration is likely going to amount to very little in the way of greater access to treatment and other help from the federal government,’ Smith continued. ‘President Trump made repeal of the Affordable Care Act a top priority, which would threaten healthcare and access to treatment and mental health services for millions of people living with substance use disorder. People who are looking for this administration to use a national emergency to ramp up access to treatment and step up a health-based response to the opioid crisis are going to need to be vigilant that this indeed happens, and that the emergency declaration doesn’t give the Trump administration more licence to escalate the drug war.’

President’s Commission on Combating Drug Addiction and the Opioid Crisis: draft interim report at www.whitehouse.gov

Advice on the hepatitis B vaccine shortage

Some of you will be aware that there is currently a shortage of hepatitis B vaccine, likely to continue until early next year. In response to this, PHE have issued temporary recommendations on prioritising risk groups and preserving stock as well as advice for patients who may have to wait for a vaccine dose (see weblinks below).

The situation has become particularly critical during August but limitations on supply are likely to continue until early 2018. To preserve stock for those at highest immediate risk and to maintain supply during the period of shortage, more restrictive vaccine ordering limits have been instituted by manufacturers.

Allocation of doses is based on an assessment of the proportion of vaccines used by those customers for individuals in the highest priority group. Some providers (eg GPs, travel clinics) will not be able to order vaccine until further notice. Community drug services will be able to order vaccine (with stricter limits in place) but this is contingent on them being recognised as the customer type: ‘specialist community care’ by the manufacturer or wholesaler.

Advice on risk-based prioritisation

The temporary guidance on prioritisation of Hep B vaccine is available here: https://www.gov.uk/government/publications/hepatitis-b-vaccine-recommendations-during-supply-constraints

It also appears on the main Gov.uk Hepatitis B page under vaccination: https://www.gov.uk/government/collections/hepatitis-b-guidance-data-and-analysis

In table 1 of the temporary recommendations guidance, people who inject drugs are considered a higher risk group for pre-exposure prioritisation for vaccination.

Service providers are advised to:

  • take note of the PHE recommendations
  • make all reasonable efforts to check a service user’s hepatitis B vaccine history and infection status before continuing vaccination
  • consider whether the standard 0,1, 2 month can be used in preference to the super-accelerated schedule (0,7, 21 days) for pre-exposure vaccination (taking into account compliance, risk and available stock)
  • defer the completion of primary courses where possible
  • defer booster doses in individuals who have had three doses of vaccine
  • institute a mechanism to track and recall service users who have had their vaccine dose deferred for when supplies have improved
  • reinforce other precautions to prevent hepatitis B infection (which also will prevent against HIV and hepatitis C infection)
  • provide appropriate reassurance and advice to service users who may not be able to receive a dose of vaccine using the patient advice leaflet as a resource.

Advice for patients who may have to wait for a dose of hepatitis B vaccine is available here: https://www.gov.uk/government/uploads/system/uploads/attachment_data/file/636079/Hepb_vaccine_advice_for_patients.pdf

 Advice on vaccine stock management

Service providers / managers and pharmacists are asked to:

  • ensure that stock usage is coordinated and monitored across the to ensure that scarce stock is used responsibly
  • only order essential vaccine stock (small amounts more frequently) and avoid stockpiling
  • accept and use alternative vaccines and presentations in place of the preferred or usual options eg combination hepatitis A/B vaccine, and multi-dose vials rather than pre-filled syringes
  • only request additional vaccine doses (above the manufacturers maximum ordering quantities) for exceptional individual cases
  • provide appropriate reassurance to patients who cannot be vaccinated, using the patient information leaflet as a resource.
  • check that the service is categorised by the manufacturer or wholesaler as ‘specialist community care’ customer type; if vaccine is bought via a different customer type, to let the manufacturer know when ordering that vaccine is used for people who inject drugs so vaccine may be released up to the limits set for the specialist community care customer type via the override mechanism.

The situation is dynamic and any updates will be posted on the gov.uk website at https://www.gov.uk/government/publications/hepatitis-b-vaccine-recommendations-during-supply-constraints

Responses to the new drug strategy

A new drug strategy was released by the Home Office on 14 July – here are some responses and we will add more as they come in. To add yours, please email the editor.


Concerned at lack of focus on harm reduction

Christopher Hicks of the National AIDS Trust, secretariat of the English Harm Reduction Group: ‘The new drug strategy simply does not support vulnerable people.’

The English Harm Reduction Group are a coalition of organisations including the National AIDS Trust, Release, Blenheim, DrugScience, International Drug Policy Consortium, SMMGP, Harm Reduction International and IDHDP.

We express great concern at the lack of focus on harm reduction in the new drug strategy. Harm reduction is an evidence-based response that protects people and ultimately saves lives – at a time when drug-related deaths are the highest on record.

  • Heroin and morphine deaths rose by 109 per cent in England and Wales between 2012 and 2016, when the evidence is overwhelming that harm reduction initiatives can reduce them. Initiatives such as opioid substitution treatment (OST) and needle and syringe programmes are only mentioned fleetingly within the strategy, and others such as drug consumption rooms and heroin assisted therapy (HAT) are completely absent.
  • It is appalling that the government acknowledges in the strategy that the rise in drug-related deaths is ‘dramatic and tragic’, but proposes no concrete action plan to reduce them. For example, the strategy comments on the importance of naloxone to prevent overdose deaths but proposes no national systematic approach to naloxone provision, nor any new funding for this vital intervention. It is shocking that while drug-related deaths have outstripped both road traffic fatalities and deaths from blood borne viruses, there is no coordinated response from central government.
  • This erosion of services continues against a backdrop of funding for all drug services being continuously reduced. Public health spending has been reduced by more than 5 per cent since 2013 and, according to analysis, a further £22 million in cuts are to be made to drug treatment by the end of 2017/18. Without funding, drug services will not be able to function effectively.
  • The government has dismissed decriminalisation of drug possession offences as being simplistic. Yet the World Health Organisation and a multitude of United Nations agencies have called for the end of criminal sanctions for possession and use of drugs in recognition that criminalisation creates barriers to those needing treatment and increases health harms.

People who use drugs are often vulnerable and marginalised. This new drug strategy simply does not begin to support them and reduce drug-related deaths. We call on the government to implement the recommendations of the Advisory Council on the Misuse of Drugs to tackle opiate related deaths. These include: optimal OST prescribing; easier access to naloxone; a national HAT programme; and that drug consumption rooms are implemented where there is need.

The government must also ensure a minimum level of care by requiring local authorities to provide drug treatment and harm reduction services by law.


 

Danny Hames, chair of the NHS Substance Misuse Provider Alliance

An excellent way forward

The NHS Substance Misuse Provider Alliance welcomes the publication of the drug strategy. From our perspective this provides a balanced roadmap for the future, which can either be embraced in spirit of co-production or alternatively critiqued to the extent where a desire for the perfect gets in the way of the good.

Our approach will be to make a success of the strategy, embrace the elements we deem positive and constructively work to address the areas where further development is required.

We welcome the strong focus on the importance of partnership working that is present throughout the document. This is particularly the case where the strategy stresses the importance of working with colleagues in mental health, employment, the criminal justice system and housing. These are not necessarily new ambitions and relationships do already exist in many areas, but from our perspective they often do not function operationally or have become ineffective. As NHS providers we are used to working in partnership and look forward to reinforcing these relationships.

The emphasis and focus on a number of vulnerable groups is important. However we particularly welcome the emphasis on the increasing relevance of physical and mental health issues and how these factors can compound an already complex picture with regard to the vulnerabilities of the ageing, traditional service user population.

As service users get older, drug and alcohol treatment services need to ensure they have an appropriate, knowledgeable workforce that is able to intervene appropriately and navigate the range of services someone encountering long term conditions will encounter. Drug and alcohol treatment should not be seen as a ‘niche’. Increasingly it is important that the sector steps up as a full and engaged partner in health and social care that understands its responsibility – not only to the individual, but in positively influencing the population’s health.

We are pleased to see the strategy acknowledging the changing profile of substance use in the country and the broad spread of issues now encountered, for example addiction to medicines, CSE, Chem sex, IPEds, the place of the internet and the global nature of both the issues and solutions associated with substance use. Of particularly note is the focus on substances such as synthetic cannabinoids and the renewed commitment to address these issues. The Alliance will continue to make its contribution to this and many of the debates included in the strategy.

We are aware that this is a drug strategy, but also note the inclusion of alcohol in many places and would welcome the merging of the two in future years, particularly as that is the expectation at a commissioning, prevention and treatment level.

We note that the strategy emphasises successfully addressing substances with the goal of complete abstinence. While an ambition of supporting individuals to become free from dependence must unify all treatment providers, it is important to guard against a simplistic or narrow interpretation of this – the most fatal interpretation being a lack of acknowledgment and value placed on the reduction of substance related harm. This is particularly pertinent when considering the very troubling rise in drug-related deaths. We wholeheartedly support a sophisticated, ongoing and energetic effort to reverse this trend.

We note that the strategy talks about extended and diversified information collection and analysis. While we value the availability of high quality information and deem this essential – particularly in measuring joint outcomes with partners in employment, mental health, housing and the criminal justice system – we would caution against any increased administrative and reporting burdens.

This is particularly important when we see drug and alcohol treatment budgets consistently reducing across the country. Providers are doing their utmost to innovate, target their resources and mitigate the impact on the person who receives treatment. The success of this varies and is heavily influenced by how budget cuts are applied. It is important that we are mindful of this scenario with regards to any development or initiative, and the potential impact on frontline resources.

The strategy does not particularly discuss the role of commissioners in local areas and the central function and accountability they should have for ensuring the successful commissioning and management of treatment systems. We would welcome a stronger overview of commissioning functions, processes and decisions along with more support and resources to support them in this function.

A move towards stronger governance, as described in the strategy, with the establishment of the Drug Strategy Board and the appointment of a national recovery champion is broadly welcomed by the Alliance. Senior ministerial control is a powerful statement that will aid the provision of stability and direction for the sector.

As a representative forum of service providers, we would assert that this board needs to include the voice of providers from both the NHS and voluntary sector to support its effectiveness and relevance. This will ultimately benefit our service users but we also would hope provide stronger assurance into local decision-making. We note that this function remains within the Home Office, but are encouraged at the commitment to a cross- cutting strategic view recognising the multi-faceted nature of these issues. We are particularly encouraged by the emphasis on moving mental health and substance misuse closer together.

Broadly, we feel the new strategy, along with the newly published updated clinical guidelines, provides an excellent road map for the development of the sector over the coming years. As with any roadmap there are some paths that will need to be trodden more, and ones that have not even been mapped yet.

The test of the success of this strategy is not now though, but when we reflect on it and ask ourselves: did we as government departments, local commissioners, elected members and service providers step up for those we ultimately serve, and for the reason that this sector exists – the individuals, families and communities blighted by drugs? I hope the honest answer will be ‘yes’.


 

Aspirational… but leadership and detail are missing

It has been a week since the new drug strategy has been published. Rather than rush to respond we have taken the time to read, consult and agree our views before outlining our considered response to the strategy.

Howard King, head of Inclusion

The emphasis placed on prevention is also to be welcomed. It is far better that we aim to prevent drug use rather than wait for it to develop and then attempt to tackle it. What is worrying is the lack of detail on how this will be achieved and what extra resources will be available to undertake this. The same could be said for the emphasis on dealing with young people, unfortunately as budgets are cut young people’s services are increasingly being commissioned as part of the wider adult services. A clear statement from the government that young people’s service should be separate and distinct and incorporate a high degree of prevention work would have been reassuring.

Where the strategy is strong is that it attempts to raise the profile of other drugs and also other marginalised groups affected by drug use. The sections on families, domestic abuse, sex workers, homeless, veterans, old users, the spread of NPS, chemsex, image and performance enhancing drugs and prescribed medication shows that the strategy is attempting to cover a wider remit and scope.

While the sections on dealing with drug users in the criminal justice system do outline a range of interventions from diversion through to sentence the greatest concern would be how much of this is achievable. Given the current state of the prison service and the problems with the CRCs is it realistic to expect any meaningful treatment to take place for those that involved in the criminal justice system and perhaps the ideas outlined are more aspirational than achievable.

It is good that the ring fence for funding for treatment services will remain till 2019 but disappointing that this isn’t for longer. It is good that the strategy highlights the risks associated with the tendering culture and reminds commissioners that there are other ways to enhance performance, quality and outcome that are more collaborative and do not require a re-tender.

I am pleased that the focus on recovery remains as I do believe that we should be encouraging, motivating, challenging and supporting people to change. A broader definition of recovery would have been useful so that stable clients on maintenance scripts aren’t excluded and measures to show reductions in medication were included. Both would have given a more nuanced overview of how treatment is working.

However the rise in drug related deaths is a major problem and the lack of detail or focus on harm reduction measures within the strategy is a worry. Harm reduction is the core of a quality drug treatment system and I would have welcomed a dedicated section outlining clear expectations on what harm reduction measures should be in place, rather than these being lost in other sections within the document.

I welcome the use of outcome data to show success and I welcome the focus on ensuring quality, it is good that the importance of high quality staff is recognised and that concerns about the residential sector have been highlighted. More detail in all these areas would have been good but it is helpful they form part of the strategy.

Overall the strategy attempts to cover a lot of ground. In doing so it doesn’t provide detail and some of the aims can be seen as unrealistic in a time of shrinking budgets and wider issues within the criminal justice system. However the establishment of a new Drug Strategy Board is welcomed in that we hope this brings a positive influence to bear on local government in protecting drug and alcohol budgets. Providers need to play a significant role on this with service users to ensure that the reality of the pressures on local authorities and providers in not diluted. Hopefully the new recovery champion appointed to the Drug Strategy Board will help with this process.

As a provider I don’t think it comprehensively addresses the core challenges of increasing treatment outcomes and reducing drug related deaths. It attempts to widen the focus of the drug policy but fails to provide the detail and leadership on how this can be achieved and therefore feels like a good, well intentioned effort but slightly disappointing.


Where’s harm reduction?

SMMGP welcomes many of the strategy’s ambitions including:

  • The emphasis on the importance of an evidence-based approach
  • The recognition of the importance of providing holistic services for those with complex needs
  • The importance of partnership working across a range of services, including housing, employment and mental health
  • Support for work with families
  • The importance of strong commissioning

However, it is difficult to remain positive about achieving many of the strategy’s good intentions working within the reality of the sustained and ongoing cuts to the drug and alcohol sector and the public and voluntary services in general.

One of the most concerning issues for those who work in the field in recent years is the rise in drug-related deaths in the UK. While this matter is raised in the new drug strategy, there appears to be an absence of support for evidence-based approaches to address this (for example drug consumption rooms, or consideration of decriminalisation of possession or use of drugs, or how to reach people who are not in treatment through for example harm reduction initiatives).

There is also an ongoing focus on the pursuit of abstinence without mention of the essential role that harm reduction fulfils in reducing drug-related deaths. So SMMGP believes that while the Drug Strategy’s ambitions are good, it frustratingly does not provide a realistic direction for how they will be delivered.


 

Lord Ramsbotham, chair of the Drugs, Alcohol and Justice Cross-Party Parliamentary Group

Resources are a must     

We welcome the long-awaited drug strategy, for which we have been pressing this last year. We trust that the required resources will also be forthcoming, to make the objectives outlined in the strategy a reality.

 

 


 

A welcome emphasis on complex needs

Turning Point welcomes the release of the new drug strategy, especially as we face changing trends in people’s drug and alcohol use. People continue to use new psychoactive substances despite criminalisation last year; there is an increasing number of people using image- and performance-enhancing drugs; and an ageing population of heroin and crack users has resulted in a dramatic increase in the number of deaths as a result of drug misuse since 2012.

Mark Sheppard, managing director for Public Health at Turning Point

We welcome the emphasis on equity of access for a range of people with differing needs and recognition of those with the most complex needs, people with a dual diagnosis – defined as someone with two or more co-existing needs – as well as wider population based interventions. We also welcome the emphasis on supporting people through peer support or recognising the centrality of housing and employment to a sustained recovery.

Mental health is a key theme throughout the strategy, recognising that mental health and substance misuse are strongly interlinked. Partnership working with other agencies is important in order to develop resilience among young people, families, homeless people, serving military personnel and veterans.

The establishment of a drug strategy board overseen by the home secretary should bring a much needed focus on drug treatment and help support local areas to ensure they are delivering safe and effective services. The focus on transparency of commissioning is also welcome and recognises the vulnerability of drugs treatment to local funding arrangements. It is essential that if basic standards of good treatment are to be maintained that there is monitoring of local spending on drug treatment.

We hope the emphasis on data collection and evidence-based support will highlight that investment in drugs services helps not only to save lives, but also to reduce the financial impact on the NHS, local authorities and the criminal justice system.


Clear call for decent housing

In the new drug strategy the government have announced their intention to appoint a national recovery champion who will report into a new drug strategy board, chaired by the home secretary and including representatives from the wider government departments. One of the important roles of the recovery champion will be to ‘seek to address stigma faced by people with drug or alcohol dependency issues’.

At Phoenix we are committed to giving people in treatment and recovery a voice. One area where people face significant stigma is in accessing decent appropriate housing that will support their recovery process.  At Phoenix we know the difference housing can make to helping people keep well during and after treatment.

Karen Biggs, chief executive at Phoenix Futures

We are very pleased to see a clear recognition from the government in this strategy of the need for decent housing for people in recovery. The strategy says: ‘We will work with treatment providers, the homelessness sector and housing support services to identify and share best practice to support local authorities in identifying routes into appropriate accommodation for those recovering from a drug dependency.’

The new strategy sets out some important priorities for all concerned with the impact of drugs on our society. The government has made it clear that the ambitions of the strategy can only be achieved through effective partnership working. At Phoenix we are in no doubt our work helps people and their families recover from the devastating impact of substance misuse. We are glad to see the government committing to a number of critical measures that we hope will ensure everyone can get the vital help they need, when they need it, wherever they are in the country.


No mention of LGBT people

LGBT Foundation are glad to see chemsex recognised within the strategy.

For several years, we have been providing advice and support for people involved in chemsex and we have seen the importance of targeted harm reduction advice and a holistic approach to addressing drug use, sexual health and other underlying issues, such as mental ill health and internalised homophobia.

Nic Mooney, policy & training coordinator, LGBT Foundation

We welcome PHE taking a lead in building consensus and awareness of good practice and ensuring needs are met in all areas.

However, it is important to recognise that LGBT people overall are much more likely to use drugs, as shown by evidence in our research Part of the Picture and the Trans Mental Health Study.

Even within MSM in Greater Manchester, we have found there to be huge diversity in drug use, including higher rates of using opiates and crack (www.lgbt.foundation/news).

Therefore, it is disappointing for there to be no mentions of LGBT people in the strategy as it is vital drugs and alcohol services are proactively engaging LGBT people, and staff are equipped to provide effective and appropriate support for LGBT people.


Continued investment is vital

Mike Pattinson, executive director, CGL

We welcome the new drug strategy. Since the 1990s the investment into, and delivery of treatment has increased significantly and we hope this will continue. This investment has contributed to many thousands of people receiving high quality treatment and recovering from their addictions. We have also seen huge reductions in drug related crimes and other harms.

We welcome the fact that the home secretary is to have direct involvement in overseeing the roll-out of the new strategy and will directly chair an inter-ministerial group ensuring that the aims and benefits of treatment are understood and owned across government.

We have a treatment system in the UK that is often considered to be world leading and we welcome the consistency in approach that the new strategy brings, its focus upon a system that balances the reduction in harm with long term abstinence, that focuses investment on those most at risk, that is rooted in clinical evidence of effectiveness and which also promotes those measures that we know have transformative impacts upon our service users: employment, skills and housing.

If substance misuse is going to be tackled, there needs to be cooperation between a number of government ministries and local government departments including health, justice, employment and children’s services. Drug treatment is a complex issue that requires the correct level of attention and emphasis on both recovery and harm reduction.

The renewed focus on drug-related deaths is encouraging. We have been working on a number of prevention techniques to reduce the number of drug related deaths, including identifying and predicting those people who are most at risk of overdose, and it is vital this continues.

A renewed focus upon tackling the specific problems facing our prison system and the prisoner population as a result of new patterns of drug use and supply is also to be welcomed.

Drug use affects families and communities across the country and we will be working tirelessly to promote the benefits of treatment, to reduce the unfair stigma often faced by our service users and are committed to ensuring that all agencies pool their resources and expertise to generate long term benefits.

Whilst we welcome the focus on alcohol abuse, it is disappointing to see it treated as a subset of this long-awaited drug strategy. There is a  lack of concrete strategy on mental health, dual diagnosis or joining up systems to treat those who need it, as the responsibility instead falls to local authorities to agree this approach. These are all factors which can play a part in substance misuse, and how it is treated, and we would look for clear national direction to effectively tackle these issues as a whole.

Although this strategy is encouraging, it is essential that all of these proposals are supported with relevant funding and investment. Everyone should have the best chance in life, but we are only able to continue our work to support these people with adequate support and investment.


A welcome commitment to evidence

Mike Trace, chief executive of Forward

We commend the government’s commitment to evidence-based drug treatment, as well as the introduction of a national recovery champion to drive improvements in rates of recovery from drug and alcohol dependence. Our experience at the frontline of drug services in both prison and the community shows that for successful recovery to truly happen, we need more evidence-based drug treatment programmes – such as our accredited prison substance misuse programmes.

The Forward Trust (formerly RAPt) have been supporting people to build and maintain a life without drugs and alcohol for more than ten years through our Recovery Support Service. This continued care can help build the resilience and strength needed to maintain recovery from addiction and live a positive and productive life with a job, family and community. Our dedicated employment services help people to break the cycle of reoffending and addiction through training and employment activities that are grounded in the real world of work. We believe that anyone is capable of transformational change, no matter how entrenched their addiction or prolific their crimes, and we hope that this new strategy will give more people the support they need to move forward with their lives.


Focus on families

Vivienne Evans, chief executive, Adfam

Adfam welcomes the strategy and draws attention to the following points. 

Commitment to evidence: Adfam is driven by what works and therefore endorses the strategy’s commitment to evidence-based interventions, in terms of both treatment options and support for families.

Inter-relatedness of problems: For most of the families we work with the substance use of their loved one is not the only issue they face. The challenges of mental ill health, domestic abuse, offending and bereavement sadly often go hand-in-hand with problematic relationships with drugs or alcohol. We therefore welcome the strategy’s acknowledgement that ‘there are families where substance misuse is just one of a number of other complex problems’ and the driving force social inequalities play in the development of all these issues.

Support for and work with families: We welcome the strategy’s recognition of the key role families and parents can play in prevention, the inclusion of the need to support families in their own right, with the suggestion that ‘evidence-based psychological interventions which involve family members should be available locally and local areas should ensure that the support needs of families and carers affected by drug misuse are appropriately met’. The strategy’s highlighting of the efficacy of peer support in the recovery journey of both drug and alcohol users and their families resonates with the experiences of the families and practitioners we work with, and is therefore welcome.

From our experience, much of the support families value can include broader work encompassing one-to-one practitioner support based on listening, signposting and the provision of information – the structured therapeutic approaches mentioned can be expensive or impractical for voluntary and community groups to deliver.

Harms experienced by adult family members: The main focus of the strategy’s coverage of families is driven by the desire to protect the children of those parents who use drugs or alcohol problematically. This desire is laudable. However the realities of the harms experienced by the families of substance users are significantly wider: many of the people Adfam supports are adults profoundly harmed by the substance use of partners, friends and children, both under and over 18. The focus on children within policy discourse means that sometimes the needs of adult family members are overlooked; we would therefore have liked to see a wider focus in the strategy.

Resourcing: The acknowledgement in the strategy of the important role played by the voluntary sector is good to see, as are the commitments to supporting those with substance use issues and their families. Adfam joins others in the sector in noting that the long-term challenge will be ensuring there is sufficient resourcing and political will to meet those commitments.


Read the drug strategy in full here.

To add your response, please email the editor.

 

Time for social action

Social action is the way forward in tackling complex needs, hears DDN.

The All Party Parliamentary Group (APPG) for Complex Needs and Dual Diagnosis recently launched a call for evidence around social action (DDN, May, page 5). With a detailed questionnaire, the group wanted to know what factors could really make a difference in helping people with complex needs. How could challenges be addressed around giving access to housing, employment opportunities and mental health services, alongside substance misuse support?

‘There are a lot of complex needs out there and not enough integrated services to address them,’ says Lord Victor Adebowale, chief executive of Turning Point, which provides the secretariat for the group. ‘What we’re talking about is a big problem – 70 per cent of people in drug services and 86 per cent of people in alcohol services experience mental health problems.’

Lord Victor Adebowale: ‘What we’re talking about is a big problem – 70 per cent of people in drug services and 86 per cent of people in alcohol services experience mental health problems.’

Add to that the 55 per cent with ‘severe multiple disadvantage issues’ and the four out of five prisoners with at least two mental health problems and it’s easy to see how the cost to society is reckoned to be at least £10bn a year. Unsurprisingly, most suicides occur among patients with a history of complex needs, and many psychiatric patients have substance misuse problems.

The Office for Civil Society, with its newly appointed minister Tracey Crouch, approached the APPG to undertake a call for evidence around the notion of social action – the idea that community-led initiatives and involving people with lived experience should be a natural and logical part of service design.

‘What I mean about social action is people coming together to improve their lives and solve the problems they report in their community,’ says Adebowale, adding that it’s an area that Turning Point knows well through its work on ‘connected care frameworks’.

The call for evidence involves a detailed questionnaire, circulated around many organisations including the substance misuse sector. The response has been heartening, says Adebowale, with detailed contributions from ‘a massive range of organisations… there’s clearly a lot if interest out there’.

‘We’ve received a lot of evidence from peer mentors themselves about how social action contributes to people’s recovery, self-worth and confidence, talking about their routine and the benefits peer mentoring can have – lots of living proof that change is possible and offering hope,’ he says. ‘So the question is, how can social action improve outcomes, prevent crisis, support recovery and develop more responsive services for people with complex needs?’

Next stage will be to produce a report over the summer, bringing together case studies, examples, key learning themes and ways forward, based on the evidence received and the discussions that take place at an imminent roundtable event for health and social care leaders.

‘We’ve got lots of positive evidence that social action improves employment skills, and we’ve also heard a lot on reducing stigma, both in the community and in the individual,’ says Adebowale. Many of the suggestions involve ‘breaking down the barriers between people with lived experience and so-called professionals’ and improving understanding of how to reduce stigma as a means of promoting recovery.

‘We’ve also had lots of evidence about peer mentoring giving a sense of belonging and responsibility,’ he adds. Build on Belief (BoB) were among those to talk about social actions and peer-led activity as a counter to loneliness and isolation, ‘which I think is a real issue here for people with complex needs.’

So how will this work galvanise the political process and have an impact? ‘That’s one of the challenges for the roundtable and the whole point of this work,’ says Adebowale. ‘We’re building the evidence case and there are challenges. Social action programmes are often dependent on a few, or just one creative person, and that person can disappear. Services take time to set up and become effective, and one problem at the moment is that funding cycles are often very short for projects to develop. And there can be issues – boundary issues and that kind of stuff – around getting individuals to work in an effective environment.’

But he is optimistic on ‘moving the needle on engagement activity’: ‘We’ve received quite a lot of evidence about what the keys to success are – dedicated staff, a partnership approach and personalised support for individuals. We’ve got some key people involved, including the minister for civil society… it’s also exciting that we’ve managed to engage NHS England.’

Key players are expected at the roundtable, including chief executives and directors of the NHS, charities, funding bodies, LGA, and Collective Voice.

‘We’re looking to make this work and to lift the lid on it – and to really shift what government does to encourage commissioners to learn from this,’ he says. ‘It has to be quality led and outcome based – and it has to be delivered in a way that makes sense, rather than cutting corners.’

******************

What would make a difference to me?

Given I have a number of complex issues and engage with multiple agencies, I was asked by DDN to write a little about my current experience.

I’m a 48-year-old single white British male and not only do I have HIV, but also ongoing mobility issues due to post-thrombotic damage in both my legs. I have multiple mental health issues: as well receiving help for a history of addiction I also suffer from a persecution complex, anxiety, depression and paranoia, all of which have worsened as I try to navigate through welfare reform.

Having been in receipt of Personal Independence Payment (PIP) for the last four years, I was invited on 2 June, albeit a year early, for reassessment of my mental and physical health needs. However, despite both my physical and mental health worsening, my score went from 13 to zero in the space of 18 months.

Despite numerous times offering to provide further medical and photographic evidence at my assessment, I was repeatedly told, ‘If you don’t stop offering me medical evidence then we won’t have time to complete your form.’ I subsequently failed my assessment and am currently appealing their decision, which unfortunately started the ball rolling for the problems that were to come.

Despite being in receipt of a number of benefits, because my PIP was suspended housing benefit also decided to stop any payments, despite me being in receipt of ESA [Employment Support Allowance], which subsequently meant letters from my housing association threatening eviction because my rent wasn’t being paid. I was never informed of any decisions until after they were made and had started affect my circumstances.

After speaking with DWP they informed me that this was purely an error on behalf of housing benefit and in fact they have the facility to check what claims are current for each client. However if they don’t know how to use the system, or fail to use it, the knock-on effect can be devastating.

Because I appealed against their decision, in the last six weeks not only has my benefit entitlement been cut by around 70 per cent, but also because of employee incompetence my housing benefit was stopped and in the last week I’ve received three letters of notice to quit by my landlord, despite numerous calls to DWP and housing benefit to rectify this situation and their error.

Not only has it affected my physical health, but also because of what I had gone through in the last month I couldn’t foresee doing the same for the next 18 months while I go through the appeal and tribunal process. I wanted to end my life.

It has left me unwilling to deal with these agencies but I intend to follow my case through to tribunal for an independent body to review my application and circumstances. I still face a long and hard fight to receive my correct entitlement, while also having to battle through non-curable physical health and worsening mental health.

As I look around my city and peer group it’s not something I can see improving any time soon, because despite having the systems and ability to share information, employees are using them in a completely different way to other services. If staff aren’t trained properly or do any cross agency work, then unless they use the same system in the same way, it’s doomed to fail.

It’s not something that should be happening after all the work that’s been done and the money that’s been spent over the last decade to set up these systems. There was no reason for me to be under the threat of eviction.

Joining up access to housing and employment opportunities and specialist services for mental health and substance misuse, and then actually using the same systems in the same way, would make a massive difference when helping people like me to address their multiple complex needs.

Our correspondent’s name has been withheld to safeguard sensitive information

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Highest number of drug deaths in quarter of a century

Last year saw 3,744 drug poisoning deaths in England and Wales, according to the latest ONS figures – 2 per cent higher than the previous year (DDN, October 2016, page 4) and the highest number since comparable statistics began in 1993. While the figure relates to both legal and illegal drugs, almost 70 per cent were classed as drug misuse deaths.

However, while more than half of recorded drug poisoning deaths involved an opiate, heroin and/or morphine deaths have remained ‘stable’, says ONS, at 1,209 compared with 1,201 in 2015. The number of heroin and/or morphine deaths in males also fell for the first time since 2012 – to 935 from the previous year’s 957 – although female heroin/morphine deaths increased from 244 to 274, their highest recorded level.

Deaths related to cocaine were also at their highest levels since records began, at 371 – up by almost 170 per cent since 2012 – while deaths relating to the prescription drug pregabalin were up from just four in 2012 to more than 100. The National Crime Agency (NCA) has also announced that the number of UK deaths related to the powerful opioid fentanyl or its analogues has reached almost 60 in the last eight months alone.

The highest rate of drug misuse deaths in 2016 was among people aged 40-49, and once again the North East saw the highest mortality rate from drug misuse, at 77.4 deaths per 1m population, a 13 per cent increase on 2015’s figure.

Release’s executive director Niamh Eastwood called the statistics a ‘national crisis’ and accused the government of ‘abrogating’ its responsibility by cutting investment in treatment services and pursuing ‘failed’ policies. ‘The government claims it wants to protect young people from the harms of drugs, yet its new drug strategy, released in early July, makes no reference to providing harm reduction services for people who use drugs recreationally,’ she said. ‘The government must fund the forensic testing of drugs, including at nightclubs and music festivals, so that people can be better informed of the purity and content of any pills or powder that they are taking. They must also consider reforming the laws so that people who use drugs are not treated as criminals, as this acts as a barrier to seeking help.’

Transform also stated that the government must ‘accept responsibility’ for the record number of deaths – a ‘direct result of the Home Office’s scandalous approach’ to drugs.

The LGA, meanwhile, said the figures were a ‘major concern’ for councils and a ‘worrying public health challenge’, while Turning Point stressed the need for more funding and investment in treatment, a call echoed by the Royal Society for Public Health (RSPH).

‘While the UK government stubbornly refuses to make meaningful moves towards a more progressive, public health-based approach to drug policy, and while local authority treatment budgets continue to be cut, it should come as no surprise that drug deaths in England and Wales are continuing to rise,’ said RSPH drugs policy lead Ed Morrow, who stressed that the levelling-off of opiate-related deaths ‘may be credited’ to councils making take-home naloxone more readily available. ‘If we are to make serious inroads on reducing those deaths, however, we need a much more comprehensive package of harm reduction measures. This could include supervised injection sites – such as the one planned in Glasgow – which are proven internationally to be one of the most potent tools at our disposal for preventing opiate overdose deaths.’

Figures from National Records of Scotland also show that alcohol-related deaths north of the border have increased by 10 per cent since 2015 to 1,265, the highest number since the start of the decade. ‘Behind these appalling statistics are real people – sons, daughters, husbands, wives, parents, friends and colleagues – who have died too young because of a substance that’s cheap, widely available and constantly promoted,’ said chief executive of Alcohol Focus Scotland, Alison Douglas.

Deaths related to drug poisoning in England and Wales: 2016 registrations at www.ons.gov.uk

Alcohol-related deaths at www.nrscotland.gov.uk

 

Nine out of ten councils now provide take-home naloxone

Take-home naloxone has been made available by 90 per cent of English local authorities, according to a report from the Local Government Association (LGA). Of those, 90 per cent provide it through drug treatment services, 25 per cent via hostels and 25 per cent through outreach workers, says Naloxone survey 2017.

The survey was sent to 134 of the 152 local authorities in England, as some services are shared, with an 89 per cent response rate. ‘Given the uniformly high response rate, the results should be taken as a good indication of the picture across all local authorities in England,’ says the report. Almost all (95 per cent) of the respondents that make naloxone available provide it to service users, while 79 per cent provide it to family, friends and carers and 64 per cent to opiate users not currently in treatment. Just over three quarters had a provision policy or framework in place.

Of the councils that have yet to make it available, half said they would do so if there was an increase in overdoses or opiate-related deaths in their area, with 29 per cent citing low numbers of drug-related deaths as a factor in their decision not to provide the drug.

Meanwhile, Public Health England (PHE) is renewing calls for people to get tested for hepatitis C. Around 200,000 people are thought to be living with chronic hep C infection in the UK, with a ‘substantial proportion’ unaware that they have it. Around a third of those with a long-term infection are believed to be over 50 ‘and may have acquired the infection years, or even decades, earlier’, stresses the agency.

Death rates for hep C in the UK are falling, likely as a result of improved access to treatment (DDN, September 2016, page 4) and increased treatment with new direct acting antiviral (DAA) drugs, says PHE’s Hepatitis C in the UK: 2017 report. However, figures for estimated rates of infection among people who use drugs and ‘prevalence of infection in recent initiates to drug use’ remain largely unchanged since the beginning of the decade. ‘Moreover, the proportion of PWID reporting adequate needle/syringe provision was found to be suboptimal, with only around one half of those surveyed reporting adequate provision for their needs,’ the document states.

‘We strongly encourage anyone who may have been at risk of hep C infection to get tested, whether or not they have any symptoms,’ said clinical scientist in PHE’s immunisation, hepatitis and blood safety department, Dr Helen Harris. ‘The sooner treatment starts, the greater the chance of avoiding long-term health complications.’

Naloxone report at www.local.gov.uk
Hepatitis C report at www.gov.uk

We need your views on hep C
DDN has partnered with the I’m Worth… campaign to create a survey that will inform initiatives for better access to hepatitis C treatment. Please complete the quick survey here.

A space to listen

Dual Diagnosis Anonymous is a new peer-led resource for people with co-existing mental health and addiction problems, as Dr Raffaella Milani explains.

Coexisting substance misuse and mental health disorders (dual diagnosis) are the norm, rather than the exception. A report commissioned by the Department of Health and NTA in 2002 found that 75 per cent of users of drug services and 85 per cent of users of alcohol services were experiencing mental health problems, and 44 per cent of mental health service users either reported drug use or had used alcohol at hazardous or harmful levels in the past year (Weaver et al, 2002).

The Prison Reform Trust’s 2010 Bromley Briefing reported that 75 per cent of all prisoners had a dual diagnosis, yet Lord Bradley’s 2009 review of people with mental health problems or learning disabilities in the criminal justice system stated that those needing to access services for both mental health and substance misuse/alcohol problems were disadvantaged by the system.

Furthermore, the 2016 national confidential inquiry into suicide and homicide by people with mental illness found that over the last 20 years, alcohol/drug misuse and isolation have become increasingly common factors as antecedents of suicide; more than half of the patients who died by suicide had a history of alcohol or drug misuse, but only a minority of patients were in contact with substance misuse services.

‘DDA offers an integrated approach to comorbidity.’

Despite the high prevalence of people with dual diagnosis and the associated negative consequences on the physical, psychological and social domains, there is a clear gap in the service delivery for these clients. Recovery is a long-term process, and for people with comorbidity it is a lifelong commitment. Non-judgmental attitude, integrated care, and a social network that supports abstinence are three key elements of successful and sustainable recovery. Mutual aid groups such as AA have been playing an important role in supporting individuals in achieving and maintaining abstinence in the UK and around the world, and are an invaluable source of social capital for those who are most at risk of isolation.

Since August 2016, a new peer-led resource has been made available in west London. It provides a non-judgmental, empathetic and welcoming environment where people with dual diagnosis can get their voice heard. Called Dual Diagnosis Anonymous (DDA), it is free, available in the community, does not require referral, there is no waiting list – and most importantly it adopts an integrated approach to comorbidity. The groups are facilitated with competence and compassion by John O’Donnell, a peer supporter with many years of experience in running groups.

DDA-UK was founded by Daniel Ware and Alan Butler, with the support of the Ealing Councils’ commissioners for addictions, Ealing Council commissioning for mental health and the clinical commissioning group. Daniel discovered DDA in 2014 on a research trip to Portland, USA, where he was studying approaches to homelessness and support. Having worked for the last 13 years in frontline homeless services in London, he was familiar with the lack of specific services and support for those with a dual diagnosis.

‘When I attended the US DDA meeting I was taken aback by the warmth, energy and positivity in the room,’ he says. ‘People were clearly in a supportive space which they could not find anywhere else.’

Daniel met DDA’s founder Corbett Monica, a Vietnam vet and an experienced therapist, who was himself in recovery. It all started when two of Corbett’s clients were politely asked not to return to a local AA meeting as they were ‘too unwell’. In response, Corbett gained permission from AA and devised the 12 steps ‘plus five’. The extra five steps related specifically to the mental health aspects of a dual diagnosis: acknowledging both illnesses, accepting help for both conditions, understanding the importance of a variety of interventions, combining illness self-management with peer supports and spirituality, and working the programme by helping others.

The programme also includes the Dual Diagnosis Anonymous workbook, which guides the reader through the 12 plus five steps with explanations and well thought-through reflective exercises. The meeting consists of a regular AA-style gathering and an additional non-compulsory facilitated workshop to go through the workbook.

The first time that I attended a DDA meeting I immediately sensed how people felt accepted and free to be themselves, whatever their mental health status at that moment in time. I was also surprised how diverse the group was, in terms of age, culture, gender, mental disorders and the addictive behaviours that members presented with.

During the meeting there were moments of shared sadness but a lot of laughs too. As the co-founder and peer supporter Alan Butler explains, ‘When people attend meetings the first thing that becomes apparent is that they are hearing their own life experience echoed in the words of others. When you attend meetings you are advised to listen for the similarities – not the differences. In the traditional AA or NA fellowship people attempt to separate two inseparable conditions, for fear of judgment and not being accepted. Historically this is something dually diagnosed sufferers have been asked to do by the statutory services.

‘There’s a place and space where people can finally be heard.’

‘DDA offers a place and space where individuals with comorbidity can finally be heard by those who identify with similar experiences,’ he continued. They can talk of their personal struggles with addictive behaviours as well as of matters such as positive effects or side effects of medications, the hearing of voices, the clinical interventions, or their worries and anxieties. Identification is what keeps people attending self-help groups.’

The initial evaluation is very encouraging. One young DDA member who had been suffering from psychosis and cannabis misuse said that for the first time she could identify with other members in the group. She felt that cannabis was not considered to be problematic by members in traditional NA groups, while the DDA facilitator, other members and the workbook helped her understand how use could affect her mental health.

‘I found the workbook and the workshops very helpful, I understand better what happened to me and I feel free to talk about my medication and how I feel,’ she said. ‘I have been able to stay clean for several months and I am doing very well with my studies… The difference in age doesn’t bother me – I think that it’s helpful to confer with people who have more experience than me. I also find that the facilitator is very competent and helps me understand what I’m going through.’

There are five meetings happening in London every week and they are inclusive and open to anyone who is interested in being alcohol/drug free. Family members and professionals who want to familiarise themselves with the programme are welcome too. The goal and the challenge now is to make the programme sustainable throughout London and the UK in the next few years.

Concluding with Alan’s words, ‘The fellowship of DDA is predicated upon hope – something that is voiced in the words penned by Fyodor Dostoevsky and adopted as our DDA motto: “To live without hope is to cease to live.”’

Find out more at www.ddauk.org/programs

Dr Raffaella Milani is senior lecturer and course leader for substance use and misuse studies at the University of West London. More about the university’s courses here.

Eighties deprivation blamed for Scots drug deaths

Rising rates of drug-related deaths in Scotland can be explained by the impact of political decisions and social deprivation in the 1980s, according to a report from NHS Scotland and the University of Glasgow. Drug-related deaths have been increasing among those born between 1960 and 1980, which is likely the result of ‘exposure to the social, economic and political contexts of the 1980s’, the document states.

Policy decisions in the 1980s that led to high unemployment and reduced support created increased inequality and the ‘erosion of hope’, with a ‘delayed negative health impact’ on those least resilient, it says. People in the most deprived areas were affected ‘earlier and more profoundly’, and were two to three times more likely to die as a result of drugs than those in the least deprived, with men also two to three times more likely to die than women.

Drug services urgently need to adapt to the needs of an aging cohort of people at greater risk, as ‘co-morbidities from chronic conditions’ become more prevalent, stresses NHS Scotland. Figures for 2015 revealed more than 700 drug-related deaths in Scotland, the highest ever number and almost two per day (DDN, September 2016, page 4). Scottish Drugs Forum (SDF) CEO David Liddell called the statistics ‘a national tragedy’ and the ‘ultimate indicators’ of the country’s stark health inequalities.

Poor neighbourhoods increased the risks of drug-related death.

‘The same kind of pattern we have observed and reported on previously regarding the risk of suicide in vulnerable cohorts in deprived areas in Scotland is repeated, and even more clearly visible, when looking at trends in drug-related death risk,’ said the report’s author, Dr Jon Minton. ‘For people born in the 1960s and ‘70s, the risk of drug-related deaths throughout the life course was much increased and gender and area inequalities in these risks increased even more.’ The risk factors of being male and living in a poor neighbourhood were ‘multiplicative’, he added, meaning men living in the poorest neighbourhoods ‘had up to a ten-fold greater risk of a drug-related death each year than women of the same age living in more affluent neighbourhoods. The similarity of trends in both suicide and drug-related deaths suggest a common underlying cause.’

The document’s publication comes as the Scottish Government announces a ‘refresh’ of its 2008 drug strategy, The road to recovery, along with a joint initiative with SDF on engaging with older drug users and keeping them in treatment, called ‘Seek, keep and treat’.

‘The nature of Scotland’s drug problem is changing and we need to adapt services to meet the needs of those most at risk, who we know face complex and wide ranging social and medical issues,’ said public health minister Aileen Campbell. ‘In setting out our plans to refresh the existing strategy, I’m encouraging everyone involved in treatment services to think about how they can make changes at a local level. There is also a collective need to challenge the stigma of addiction and build services based on respect and dignity, as well as clinical need. I look forward to hearing views from across the sector in the coming months as we work together to tackle the evolving and complex needs of those who suffer from problem drug misuse.’

Drug-related deaths in Scotland 1979-2013: evidence of a vulnerable cohort of young men living in deprived areas at www.healthscotland.scot

 

July/August 2017

How long have we needed to hear that drug and alcohol problems are not the ‘add-on’?

Problematic substance use rarely travels alone. The body of evidence keeps growing on the many strands that converge to make us lose direction, and we’re familiar with how drug and alcohol use can crash through Maslow’s hierarchy of needs.

We also talk a lot about revolving doors – to prison, debt, homelessness and a state of disconnection. So it’s heartening to hear that senior representatives from many health and social care sectors will be coming together to discuss joint action on complex needs (page 8). This follows a call for evidence from the Office for Civil Society – and a detailed questionnaire that keeps substance misuse problems at the heart of a shared agenda. How long have we needed to hear that drug and alcohol problems are not the ‘add-on’ but symbiotic with mental health problems and all number of signs of personal breakdown?

As a clear case study we focus on veterans this month, through talking to the charity Combat Stress (page 6). It’s hard to imagine the level of PTSD that drives many of those leaving the armed forces to self-medicate, but encouraging to hear that with the right dedicated support they can do ‘very, very well’.

And as the summer rolls on, so does the schedule of festivals that bring many young people face to face with the irresistible opportunity to experiment. Kevin Flemen’s article (page 14) should help to provide accurate advice, grounded in harm reduction.

We’re doing a combined July/August issue for the holiday period, but will be online, on Facebook and tweeting through the summer – and please keep emailing your letters to claire@cjwellings.com. We’re looking forward to hearing from you!

Claire Brown, editor

Read the PDF version or the mobile magazine.

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Our team at DDN has been producing a magazine for people working with addiction for 16 years. We make complex information readable and digestible for busy people. We have also become a trusted independent brand, with free thinking at its core. 

Our years of experience – writing news and features, editing articles of all standards and styles and designing them to catch the eye – have made us adept at creating copy for all occasions and styles of media. 

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Take the first step: We’re very approachable! So why not get in touch to see what we can do for you?

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Heavy drinking set to cost NHS £17bn over next five years

Alcohol harm will cost the NHS £17bn over the next five years unless current trends are reversed, according to a report from the Foundation for Liver Research. The figure includes 63,000 deaths and 4.2m hospital admissions, as well as £638m for cancer treatment, the document says. Admissions have increased by around 17 per cent since 2010-11, while alcohol-related liver disease accounts for 60 per cent of all liver disease and 84 per cent of liver-related deaths.

There were also just under 58,000 claimants for employment support allowance and incapacity benefit/severe disablement allowance citing alcohol misuse as their primary medical condition in 2015, it says, up from less than 39,000 in 2011. Liver disease ‘has grown to become one of the most common causes of premature death in the UK and its burden continues to escalate’, says the report, which also looks at the impact of viral hepatitis and obesity alongside alcohol misuse.

With the latest appeal by the Scotch Whisky Association and others against the Scottish Government’s plans to introduce minimum pricing being heard by the Supreme Court this week, the document renews the call for a minimum unit price of 50p and argues that it would save more than £1bn in total direct costs and £3bn in ‘total societal value’ in the first five years. It also wants to see off-licence trading hours restricted to 10am-10pm, and alcohol availability for licensed premises limited after midnight, as well as tougher regulation of marketing and advertising and a higher duty band for cider with an alcohol content of between 5.5 and 7.5 per cent.

The report also calls for protection of public health budgets to ensure effective hepatitis testing and diagnosis in the community with a focus on ‘groups at greatest risk and/or not in regular contact with health services’, as well as protection for harm reduction services. The impact of liver disease on the poorest in society is ‘disproportionally severe’, the document states, and contributes to the ‘widening of socioeconomic health inequalities in the UK’.

The Alcohol Health Alliance welcomed the report’s ‘compelling new evidence’ on the effectiveness of minimum unit pricing (MUP). ‘This latest research suggests that after five years of MUP in England over 1,000 lives would be saved,’ said its chair, Professor Sir Ian Gilmore. ‘In addition, £700m is estimated to be saved in crime costs over five years, and with over £300m predicted to be saved in health costs over five years we would see the pressure taken off our hard pressed NHS and emergency services.’

Financial case for action on liver disease at www.liver-research.org.uk