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Turning the tables

People with drug and alcohol problems can be used to a cycle of punishment and low self-esteem. Kaleidoscope used a recovery awards event to reverse the mindset of service users, as Barry Eveleigh explains

1Having worked in the field of substance misuse for more than 25 years as a practitioner, manager and commissioner, it’s always struck me how we constantly ‘punish’ people with drug and alcohol problems – withholding prescriptions, placing people on supervised consumption or reducing doses for non-compliance. Granted, these measures are for clinical governance and safety reasons, but ask yourself this: how often do we actually reward and acknowledge the successes of the people who, at the end of the day, pay our wages?

When I was commissioning, a study of our clients’ profile was undertaken. What was particularly interesting, but perhaps not surprising, was that most people in treatment had low-level academic achievement. Most had left school at an early age without any qualification whatsoever, or didn’t get any good grades if they did take exams (80 per cent fell into the former category). People who used our service also had a long history of loss, breakdowns and punishment.

Looking at these facts and how we worked with our service users, I began to question whether we simply affirmed a sense of hopelessness and failure within a group of people who already had significantly low self-esteem.

2When I moved to Kaleidoscope in Wales I was shocked, having worked previously in larger inner cities, to see how little rural treatment services had available – not just in funding terms, but also in relation to things like access to transport, employment and leisure opportunities. Despite these barriers I was amazed at how people who used our services overcame them. Just getting to our services deserved a medal. And that’s when the penny dropped – perhaps we ought to consider an awards ceremony that recognised people’s achievements? Combining this idea with the recovery agenda seemed the perfect opportunity to establish such an event, so this was how the first recovery awards event in July 2013 came into being.

We all know that recovery is a journey – or at least is meant to be – and should not purely focus on those individuals who had made and sustained abstinence (which is brilliant, don’t get me wrong). With a small group of staff who volunteered to get this off the ground we looked at where someone’s recovery journey started and finished and how we could incorporate this journey into a variety of awards. Rightly or wrongly, we decided that getting naloxone training should be the first award or first step to recovery, as this was where someone, who may not be stable or even in treatment, took responsibility for themselves and for others. From thereon in things started to flow and we ended up with a total of 14 awards (see table).

We tried to make the awards as inclusive as possible. Not only did we want to award recovery success, but we also wanted other service users to witness recovery success. Venues, transport and buffet were ordered – the next hurdle was making nominations and inviting guests along. This might sound easy, but in a rural community people are still very anxious about going public over a drug or alcohol problem. For some people who had left the service, their days of coming into contact with drug and alcohol users were over and they were quite adamant that they did not want any further contact with us.

4We finished up with 100 people getting awards and with a total audience of more than 200 people, including service users, members of the public and professionals. Each nominee would be called out – just like a graduation ceremony – and be given a certificate by our chief executive, Martin Blakebrough.

The event went well and the atmosphere was both relaxed and charged with excitement. The reception people gave each other as they went up for awards was so encouraging and emotional, especially as most people didn’t know each other. For a lot of people, this was the first time they had ever received a certificate or formal recognition of their achievements of any kind.

One service user who won the ‘Inspiration to others’ award, having conquered homelessness, severe alcohol abuse, poor health, antisocial behaviour and become abstinent alone, commented: ‘It was nice to feel valued and acknowledged as a person.’

For staff too, the event helped them to see improvements in their clients from a different perspective, when working with what they would often see as an unchanging caseload. ‘It was nice to see that we are making an impact,’ was a comment from one worker.

The event has made a difference to both staff and people who use our service and as a result we ran our second event last month. Staff were really keen to nominate individuals for this year’s awards, and in terms of clients’ recovery the event does seem to be contagious – our DNA (did not attend) rates have improved, more people are cutting down and more people are stopping. Word has spread and clients are really happy to be nominated this time around.

Staff have become so enthused with the recovery agenda that we have expanded from the recovery awards to a recovery month, in line with the UKRF, with staff working to produce a programme of events for each day of September. We tried to make the events open to service users, their families, the public, and community groups, to spread the recovery message. The month was called ‘My Month – My Recovery’ and events included a recovery photo competition with an exhibition of works that will travel across the county, country walks, litter-picking, gardening and allotment schemes, a ghost walk, an awareness event for faith group leaders, as well as bowling and sporting events. For a rural community with limited resources, this has been an exciting challenge to which everyone has risen and I am proud of everyone’s commitment in getting this off the ground.

From just one event, it is amazing the impact that this has had on both the people who use our service and staff. It has improved the motivation of all the people involved with Kaleidoscope in Powys and we can only see our recovery movement going from strength to strength. 

Barry Eveleigh is team leader at Kaleidoscope Project, North Powys

Vital care

Gordon HayGordon Hay talks to DDN about RADAR, a new pathway for alcohol-related A&E admissions into residential alcohol detoxification in Greater Manchester.

An estimated 35 per cent of A&E attendances in North West England are alcohol related. More generally, one in eight acute hospital admissions are due to alcohol. Manchester has one of the highest rates of alcohol related hospital admissions in England, significantly increasing over recent years. Many present recurrently at A&E, resulting in multiple short-term admissions which only address the acute effects of alcohol, such as withdrawal symptoms, and do not address the underlying cause. 

RADAR, Rapid Access (alcohol) Detoxification Acute Referral, is an innovative new pathway from A&E into specialist alcohol detoxification facilities within the Chapman Barker Unit at Prestwich Hospital. Developed by a team within Greater Manchester West Mental Health Foundation Trust, the pathway was established in November 2012, and in the first year of operation it was rolled out across 12 A&E departments in Greater Manchester.

RADAR works closely with alcohol nurse specialists, who identify patients presenting to A&E with alcohol-related problems requiring detoxification, suitable for immediate admission into the RADAR ward. The ‘rapid’ part of the name does not just make a memorable acronym – with the ability to accept referrals 24 hours a day and transport available, people can be admitted to the RADAR ward in a matter of hours, avoiding an overnight stay in the acute hospital.

Specifically tailored alcohol detoxification begins immediately, taking between five to seven days before discharge and referral to community alcohol services. While in the RADAR ward, patients have access to a multidisciplinary team providing 24-hour medical support, and individual and group psychosocial interventions. The aim of these evidenced-based interventions, along with a strong focus on engagement and aftercare planning, is to provide better outcomes from detoxification and reduce re-presentation to acute hospitals.

A team within the Centre for Public Health at Liverpool John Moores University is working with RADAR to explore whether the pathway is meeting its four clearly defined aims to: reduce the burden on acute trusts; improve clinical outcome; improve patient experience and demonstrate cost effectiveness.

The main reason for presentation at A&E was withdrawal (eg seizure), with mental health issues, including suicidal ideation, self-harm or depression, also prominent. Many patients had three or more admissions to A&E within the preceding six months and a minority were in contact with a community alcohol or mental health service.

Outcomes from RADAR are impressive. Three months after discharge, more than half who could be contacted reported being abstinent or being controlled drinkers. This reduction in alcohol consumption resulted in far fewer contacts with acute hospitals, with reductions reported in the number of A&E attendances and nights in hospital. Early findings from the evaluation suggest that the pathway is cost-effective, with substantial savings relating to reduced alcohol-related hospital admissions following discharge from RADAR.

Dr Chris Daly, the consultant addiction psychiatrist at the Chapman Barker Unit notes, ‘through the development of this pathway we are seeing real benefits in terms of improved patient outcomes and improved experience of detoxification following an acute presentation to A&E. One of the most important aspects is the ownership of the pathway by colleagues in acute trusts. In developing this pathway we have demonstrated that we can reduce the immediate and long-term impact of alcohol in acute trusts and more importantly, that patients respond positively to alcohol detoxification provided at the moment they need it most.’

Underneath the statistics are real people with personal accounts of their relationship with alcohol. Many patients admitted to RADAR have chronic and severe alcohol problems, often with other health complications, therefore successful outcomes are not across the board.

There have, however, been many encouraging stories. RADAR patients interviewed were overwhelmingly positive about their experience, in particular about the opportunity to talk to people who have been in the same situation. This is due to volunteers within the unit, many of whom are ex-patients of RADAR. Craig, an ex-patient who had more than 140 admissions into acute care before attending RADAR, and now volunteers in the unit, spoke of his patient experience, saying: ‘it not only saved my life, but gave me hope, strength and willpower to turn it around. To be met by a caring member of the RADAR team who knew and understood how I was feeling was paramount to my stay and early recovery.’

The evaluation team have been struck by the enthusiasm that patients and staff have shown for RADAR. The main negative comments relate to issues that are part and parcel of residential detoxification, such as missing friends, family and pets.

What makes RADAR unique is the immediate admission into residential detoxification straight from A&E, when the patient needs it most. From the initial findings of the evaluation, this appears to be one of the more positive aspects of the pathway that could be considered for rolling out more widely across England.

Gordon Hay is a reader at the Centre for Public Health, Liverpool John Moores University

The golden key

Steve-Brinksman_w01WEBWorking with people who use drugs is a multidisciplinary landscape with key workers at its heart, says Dr Steve Brinksman

For the past six months my practice has been providing the medical cover for some of the homeless and vulnerable persons’ drug service sessions in Birmingham. Because the doctor who usually covers these clinics is on sabbatical, it has been my privilege to do these clinics for the last three months.

Most of the patients are IV poly-drug users, many are rough sleeping, there are high rates of hepatitis C, and much higher rates than usual of HIV. A lot are groin injectors; DVTs and cellulitis are common and we had one patient recently who had a femoral artery pseudo-aneurysm rupture but fortunately survived.

The police have started to clamp down on begging and many of the patients have received criminal anti-social behaviour orders and are banned from large chunks of the city centre, which makes collecting their prescriptions and attending appointments a breach of their orders. There are no safe places to inject, so under flyovers, on flat roofs and in bushes by car parks there are needle litter and desperate people hurriedly injecting with all the risks that entails. This may make grim reading and sound very negative, and indeed much work is needed to change some of the attitudes within the authorities.

However my time there has felt incredibly positive, as despite these problems the staff are highly motivated and committed to working with this group, both through key working and support from the clinic, but also outreach. I was buoyed by their resilience and enthusiasm and reassured to see how individualised the care was for each and every client.

For me this has emphasised again the essential role the key worker has in an individual’s treatment journey. For the first 12 years I attempted to treat people with problematic drug use at my practice. They had to go elsewhere for key worker support, and this disconnection meant much higher dropout rates, difficulty in communication and multiple journeys and appointments for the patients. The day when the shared care system in Birmingham formally launched, and we had key workers in our GP surgeries, was probably the most effective change that has happened in my career.

I have come to realise over the years that while a prescriber’s role is important, what we do by providing a prescription for OST is to give people a choice. Without a script they have little option but to use drugs. On a script they have a choice to not use, however the confidence and ability to do that comes from within them and is usually a result of the strong therapeutic relationship that effective and caring key work brings.

Working with people who use drugs problematically needs a truly multidisciplinary approach. The bedrock of this is carers, peers and social support, but within treatment systems it needs doctors, nurses, pharmacists, counsellors and key workers who care about their clients and who communicate and work together to deliver the needs identified by the individual patient across the whole spectrum of treatment – from harm reduction to supporting abstinence.

Steve Brinksman is a GP in Birmingham and clinical lead of SMMGP. www.smmgp.org.uk. He is also the RCGP regional lead in substance misuse for the West Midlands

Adfam Families First 2014

Fam first

23 October 2014, Park Crescent Conference Centre, Central London.

Early bird delegate rates for bookings before Friday 29 August! Family members – £80 + VAT Professionals – £135 + VAT Joint ticket special offer: One family member plus one professional – £195 + VAT (save £20) An additional £10 will be added to all bookings made after this date.
Book now!

Family members – £90+VAT
Professionals – £145+VAT
Joint ticket special offer: One family member plus one professional – £205+VAT (save £20)

 

How can we support families to cope with the many facets of their loved ones’ addiction? The Families First conference brings together family members, treatment and support professionals and those who are willing to share their expertise from experience, to create a highly valuable one-day event.

Now in its third year, the event will offer inspiring examples of ongoing support, effective coping mechanisms, useful legal knowledge, and essential networking, to better equip family members and those who support them to deal with the challenges of addiction in the family.

This is the annual must-attend conference for family members affected by substance use and for all agencies and organisations who genuinely want to support them.

Please click here to view the programme.

Take a look at previous Families First events: 2013 conference2012 conference

Book your tickets now! 

fam footerTo discuss sponsorship, advertising and exhibition packages, email ian@cjwellings.com or call 01233 636 188.

 

 

 

 

 

 

Weighing Up the Odds interest

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England and Wales see sharp rise in drug deaths

Nearly, 2,000 drug misuse deaths were registered in England and Wales in 2013, according to figures released by the Office for National Statistics (ONS). 

Male drug misuse deaths involving illegal drugs rose by 23 per cent, from 1,177 in 2012 to 1,444, while female deaths were up by 12 per cent to 513. The upward trend is in contrast to Scotland, which saw deaths fall by 9 per cent over the same period (DDN, September, page 4).

Heroin/morphine remained the substances most commonly involved, up 32 per cent to 765 deaths, while 220 deaths involving the synthetic opiate tramadol were also recorded. Overall, nearly 3,000 drug poisoning deaths – including those involving legal drugs – were registered in England and Wales in 2013, more than 2,000 of them among males. In England, the North East was the region with the highest mortality rate from drug misuse, while London was the lowest.

The number of deaths involving new psychoactive substances was up by 15 per cent – from 52 to 60 – although the increase ‘was not as steep as that observed between 2011 and 2012’, says the document. 

DrugScope expressed ‘serious concerns’ over the figures, which marked a ‘reversal of the recent downward trend and appear to show the sharpest increase since the early 1990s’, said chief executive Marcus Roberts. ‘Of course, this is about more than just numbers; each death represents a tragedy for the individual concerned, their family and friends.’

The charity also urged the government to review the timetable for its proposed roll-out of naloxone provision – currently scheduled for October next year at the earliest – so that ‘this life-saving medication can be used as soon as possible, to prevent more people from dying’. Commenting on the release of the Scottish figures last month, community safety minister Roseanna Cunningham pointed out that nearly 4,000 naloxone kits had been issued in Scotland in 2012-13, ‘potentially saving more than 350 lives.’

Deaths related to drug poisoning in England and Wales, 2013 at www.ons.gov.uk

September 2014

Sep14In this month’s issue of DDN…

‘The NHS is committed to treating people with other forms of addiction, but not gambling, and so the onus is on the third sector to provide the services necessary to support those who suffer …’

In this month’s magazine, DDN reports on the level of treatment that is available for the estimated 450,000 people in the UK with a gambling problem. Click on the links below to read more, and don’t forget to join the discussion by commenting, tweeting and liking our Facebook page

PDF Version Mobile Version

 

Media savvy

Who’s been saying what..? DDN’s round-up of what’s being said in the national papers 

We do not want drug legalisation by the back door. But at the very least let’s have the debate. Two years ago the PM rejected calls for a Royal Commission on drugs policy. It’s high time for a rethink.

Sun editorial, 8 August

The Sun newspaper, which has in the past been a keen cheerleader and bootlicker for the Blair creature, the Iraq and Afghan Wars and for David Cameron, now wants a ‘rethink’ on drug laws. Well, you can’t rethink till you’ve thought in the first place. Its pretext for this irresponsible tripe is an interview with Nick Clegg, in which he claims we’re too tough on drug possession… The idea that this regime is too tough, and needs to be softened, could only find a home in the head of someone as dim as Nick Clegg.

Peter Hitchens, Mail on Sunday, 10 August

For many, an arrest for possession at a young age can start a chain reaction that leads first to drastically reduced employability and then to a higher likelihood of becoming engaged in the underground economy of drug distribution, often the only job available. Once this happens, it becomes almost a fait accompli that that person will spend a serious portion of his life rotating in and out of the system.

Eugene Jarecki, Observer, 3 August 

Only poor people are weighed and measured by how much they cost the country. In fact, all of us, one way or another, represent a cost: whether by living too long or studying too much or mismanaging complex financial products. Each of us could have a price tag stuck on our heads that the rest of society could then resent us for. But for some reason this is not thought at all relevant unless you have cost the wrong kind of money.

Zoe Williams, Guardian, 18 August

The chief executive of the Scottish Prison Service says people who end up in jails like Barlinnie shouldn’t be called ‘convicts’, ‘criminals’ or ‘offenders’ because it might stigmatise them and hamper their rehabilitation… Where do they find these people? I’m all for rehabilitation in jail. There’s not enough of it. Most prisons are grim warehouses. But resorting to euphemism to describe prisoners is absurd. Before people can be rehabilitated they must face up to their crimes.

Richard Littlejohn, Mail, 26 August

Is it really such a good idea to ban the e-cigarette if it helps people to give up? You can’t help but suspect that what is really going on here is that some people are so fanatical about not smoking that they refuse to tolerate something that looks like the real thing even though it isn’t. I’m no friend of smoking these days but this just looks petty and vindictive.

Virginia Blackburn, Express, 28 August

An imposed period of sobriety may help people gain some insight into how much their alcohol use is damaging other aspects of their lives. Making such a discovery voluntarily is hard, because the pressure to drink in our culture is so vastly underestimated.

Deborah Orr, Guardian, 1 August

Letters

LettersThe DDN letters page, where you can have your say.

The next issue of DDN will be out on 6 October — make sure you send letters and comments to claire@cjwellings.com by Wednesday 24 September to be included. Letters may be edited for space or clarity – please limit submissions to 350 words.

 

Mind the prejudice

After reading the latest challenges and condemnations of the 12-step philosophy via Stanton Peele (DDN, April, page 8, and subsequent letters pages), I felt compelled to contribute as someone who has experienced a very positive influence from a 12-step programme.

I have many friends who are atheist and agnostic who attend meetings. Speaking with my counselling hat on, the 12 steps are a CBT programme of behaviour modification before CBT was invented. It’s interesting that some professionals have such bitter reactions to it and my experience is that most professionals in the field have never attended an open meeting to gain their own perspective of the 12 steps. My experience in training professionals is that their biased judgements are either created from impressions and feedback from previous clients who have had a negative experience with a group or individual, or a prejudice they have that 12 steps is a religious cult or order.

Dispelling the myths of 12 steps is important for the sector. How can any professional give objective, non-biased opinions concerning 12-step groups if they have contempt for this approach? Let’s not forget what a resource it is, with more than 200 meetings a week of NA in London from 7am to 11pm daily, 95 meetings a week of CA, almost 400 meetings a week of AA – not to mention all the others such as Marijuana Anonymous and Crystal Meth Anonymous. The fact is, meetings are free – no one pays, there’s no commissioning involved, no staff needed and opening times are not restricted to nine to five.

Is the fact that 12-step fellowships are free one reason that they provoke such contempt in our field? Are they seen as a threat to professionals and services?

Mark Dempster, director, Mark Dempster Counselling

 

Strength inside

I am a first-time prisoner and, despite appealing my case, I have decided to use the time in prison as my rehabilitation. This is due to the fact that after many years in denial, I eventually admitted to myself that I am an alcoholic and had planned to go into a rehabilitation centre specialising in drying people out.

As that did not happen, my intention was to take full advantage of the help that the prison service would provide for alcoholics. Unfortunately, the prison system ‘talks the talk’ but does not ‘walk the walk’. 

When I had my induction in prison, I was delighted to hear all the in-prison support from RAPt (the Rehabilitation for Addicted Prisoners trust). This appeared to be a lot of empty promises, as all of the programmes that I wanted to do (ADTP, 12-steps, and Stepping Stones) have been cancelled due to budget cuts.

It has been difficult to receive books and literature associated with alcohol addiction, and when AA have sent me books, the prison will not let me have them as the justice secretary Chris Grayling does not allow books to be sent to prisoners.

There is no support from AA coming into prison due to the security issues, so despite occasional one-to-ones with a RAPt mentor, my rehabilitation has to be self-rehabilitation.

Through self determination, I am winning my battle and am today 200 days dry, but without my own will to win, I would think ‘why bother? Nobody cares’. I am going to do this to prove myself, and be the man my fiancée Karen wants, but with little help from the prison system.

I hope other prison inmates reading this can keep the faith and beat the drink, do it on their own and stick two fingers up to a prison system that does not care.

Peter Mace, HMP Bure

  

Tell us how it is (was)!

DDN will be a whole decade old on 1 November and we want to hear from you, our faithful readers! Did you read our early issues? How has your job changed over the decade? What are your most significant working moments and how do you see the future for the drug and alcohol field? What do you want to see us covering in the future?

We’ll be including contributions – memories, forecasts, whatever you want to share with us – in a special issue in November, so please get in touch with us by writing, emailing, Facebooking or Tweeting. We’re waiting to hear from you!

Editor, claire@cjwellings.com, @ddnmagazine

‘By our silence we let others define us’

AnnemarieIn the run-up to the UK Recovery Walk this month, Annemarie Ward looks at how far the charity has come and where it’s heading 

The UK Recovery Walk charity exists to spread the message that ‘prevention works, treatment is effective, and recovery is a lived reality in millions of people’s lives’. Our primary purpose is to deliver these messages of hope to the cultures of addiction in our treatment systems and communities, and the charity’s leaders are all people who are in long-term recovery from addiction. In order that we don’t get diverted from our primary purpose we are not involved in mental health advocacy and wider social justice issues. We have no opinion on political and philosophical ideologies, different approaches to community development and public health, or whose truth is better and more beautiful than anyone else’s.

Since our formation in April 2013 we have brought the film The Anonymous People to more than 40 locations throughout the UK to raise awareness of our mission, and so far we have been able to sign up nearly 700 members. We have also developed various resources to help mobilise, support and unify the UK recovery movement, all of which are free to download from our website, including Advocacy with anonymity, using your story, top tips for media, and recovery community organisations’ toolkit.

IMG_5152During the past year we have co-produced the 2014 UK Recovery Walk with the Greater Manchester Recovery Federation and in addition we have:

•            Developed two training courses: ‘Our stories have power’ with accompanying Q&A booklet, and The ‘UK Recovery Coach Manual’, complete with training exercises. (These can all be downloaded free from our website.)

•            Launched the Association of Community Recovery Organisations (ACRO), inspired by Faces and Voices of Recovery in the US.

•            Launched The ‘Give it back’ campaign (every September) – a national and regional media campaign to showcase examples of individuals and groups in long-term recovery voluntarily giving something back to their local communities.

•            Organised our sell-out conference, ‘Advocacy in Action’ (the day before the UK Recovery Walk) in partnership with Manchester Metropolitan University, which we hope will inform, inspire and guide our own movement.

The UK Recovery Walk charity is the only organisation in the UK with an explicit mission to respond to the organisational and leadership development needs of grassroots addiction recovery community organisations, and to develop and unify addiction recovery advocacy in the UK. Why not visit our website at www.ukrecoverywalk.org and even join the charity (it’s free!) and support our work for the next year, when our priorities will be:

•            Co-producing the 7th UK Recovery Walk in Durham in September 2015.

•            Developing non-stigmatising, evidence-based narratives for the recovery advocacy movement to engage the public and policymakers.

•            Advocating for the promotion of laws and social policies that reduce alcohol and other drug problems and support recovery for those suffering from addiction to them.

•            Organising and supporting local and national advocacy campaigns.

•            Further developing the Association of Recovery Community Organisations to support local action.

•            Developing a leadership forum to increase leadership capacity and capability in the UK recovery movement.

We look forward to seeing you at the 6th UK Recovery Walk in Manchester on 13 September to celebrate the achievements of individuals in recovery, and acknowledge the work of prevention, treatment, and recovery services.

Annemarie Ward is CEO of the UK Recovery Walk charity, www.ukrecoverywalk.org

 

Still going strong

KarenNow one of the oldest abstinence-based treatment centres in the UK, Broadway Lodge is celebrating 40 years of offering treatment for a variety of addictions. Karen Kirby shares the  steps they have taken to adapt and thrive

In 1974, Travis Cousins, then the director of the Bristol Council of Alcoholism, and Dr Dan Anderson, the principal of US treatment facility Hazelden, got together and came up with an idea to create a non-profit treatment centre that would offer support and counselling to individuals struggling with addiction.

Broadway Lodge opened its doors to eight clients in October 1974, with the objective of providing treatment for a number of different addictions, including everything from alcoholism and drug dependency to eating disorders, gambling and gaming.

Back then, treatment centres and therapeutic communities were only just beginning to develop in the UK, offering a new approach to support those struggling with addiction issues. The charity’s approach to recovery was client-centred, based on a 12-step model with abstinence as its core. It was the first centre in the country to provide treatment based on the Minnesota model, and the organisation now has more experience than any other agency in the country at working with this programme.

Throughout the years, staff have developed an innovative approach to treatment, creating a 24-hour medical in-house team so we could take in service users with complex medical issues. Responding to clients’ needs, we have developed units to support those in recovery throughout their journey, so the facilities include two single-sex units for those who need space away from a mixed-gender environment, and third-stage houses that aid recovery in the community.

Today, we employ more than 100 people and treat more than 500 people each year, and are proud of our reputation. Our CEO Brian Dudley says, ‘It never ceases to amaze me that wherever I travel for conferences, both in this country and abroad, people approach me and say, “I went through the ‘miracle mansion’ 20 odd years ago”.’

Our former clients are spread across the country, and we often receive updates on their lives and personal memories of their time in treatment. One such individual, who came to us in 1987, wrote that they were ‘broken and desperate’, and willing to try anything to combat their addiction.

‘I had no understanding of addiction and no concept of “recovery” – I had never met anyone who had stopped using and rejoined society,’ he told us. ‘The people at Broadway Lodge seemed to know how to recover, so despite my incredulity at some of what they told me, I followed everything that was suggested.

‘I did a most thorough step one, searching my wounded memory for examples of how I had been controlled and driven by the drugs and how my life had become completely unmanageable. I attribute, in part, the longevity of my recovery to the deep understanding this gave me about my relationship with drugs and the consequences of my using. 

‘Broadway Lodge gave me the solid foundation for a lifetime of recovery – full freedom and independence, and a rich and fulfilling life. The first five steps on which I worked during the five months in treatment gave me a platform for a life of self-discovery and growth. 

‘For me the gifts of recovery are manifold. There are numerous external signals of recovery; a passport and worldwide travel, an education, the ability to support rather than distress my family, respect in society and many more facets of a life that goes beyond any expectation I had when I was a slave to the addiction. But the most profound and rewarding transformation has been effected internally – an inside job.’

SONY DSCIn 2012, we won the Independent Specialist Care Provider of the Year, which highlights good work and innovative thinking in the UK specialist care sector. Building strong partnerships with other organisations has been a key part of our ongoing innovative strategy. Keen to evolve effective aftercare, we set up the Recovery Centre with support from the Department of Health, and work alongside the Carlton Centre, Voluntary Action North Somerset (VANS), Weston Works and Alliance Homes to support clients with educational, training, employment, and housing needs. The centre provides a peer support and mentoring scheme, training volunteers who are in recovery and providing them with the skills to provide structured assistance to others. Our staff offer a number of activities, such as weekly football sessions that allow participants to get fit, have fun and meet others in recovery.

Diane Smith started at the Recovery Centre on the aftercare programme, then came back to the centre a year ago as a volunteer, helping on reception, becoming a support worker and taking on acupuncture sessions. ‘I loved the support I received from clients and staff alike,’ she told us. ‘I lacked confidence and was always encouraged to keep pushing forward. I have gained so many valuable skills.’

Each and every one of Broadway Lodge’s employees and clients has brought something different to the table, enabling us to constantly learn, evolve, and find new ways to help people.

SONY DSCOur ongoing aim to share knowledge and good practice has opened new opportunities for partnership working. We continue to run a schools programme that challenges stigma by tackling pre-conceived ideas about addiction. Clients and staff go into local schools and educate both students and teachers about the negative consequences of drug and alcohol misuse, as well as combating the stigma associated with those in recovery. Our staff also offer their expertise to  local police and probation services, raising awareness and offering insight into the issues surrounding addiction.

Other initiatives include the ‘recovery renewal’ programme, which encourages clients to participate in a number of therapy sessions and group activities that encourage personal development and reinforce recovery. A family programme works in conjunction with this, allowing family members and carers of those in recovery to come forward and share their experiences with others who understand what they are going through.

Our milestone anniversary has inspired us to create a programme of festivities, from a golf day and kayak race earlier in the year, to a reunion celebration and a black-tie evening with rugby union player Gareth Chilcott as a guest speaker.

Buoyed by all those who have made it a success, Broadway Lodge will continue to expand, evolving with its clients and offering specialist support where it’s needed. Here’s to the next 40 years! 

For more information on the events being held by Broadway Lodge to mark its anniversary, visit www.broadwaylodge.org.uk/events

Spanning the years

SueRecently retired substance misuse manager for Bristol City Council, Sue Bandcroft, reflects on decades of change in the sector. 

‘There’s nothing like the sun shining to make you think how nice it is not to have to worry about going into work, but I do miss it,’ says Sue Bandcroft. ‘So I’m starting to look around for something else to get involved in.’

Although she retired as substance misuse manager for Bristol City Council in May, she’s been helping to finish off work around a framework for residential rehab services in the city. ‘I’m still dabbling in there, as it were, but I’m trying to say, “I have to let them get on with it” now. I’m just looking at whether I should be still involved in the field, or are there other things I can get involved in? A bit like someone who’s been a service user for a long time – you start to see that actually there are other things in life.’ It’s a field she first came into in the 1980s, but it was while working as a nurse in London in the early ’70s that she really became aware of the impact that drugs and alcohol could have. ‘Even before that, at school, I had friends who’d had not pleasant experiences around drug use,’ she says. ‘So it had always been around.’

While nursing she became involved in health and sex education in schools, and later HIV prevention work. ‘When I came to Bristol I was very much on the sexual health side, and in those days they had things called HIV prevention coordinators, so when the money came along I had responsibility for the drugs budget of that. One of the few things to thank Mrs Thatcher for was actually funding those sort of things.’

Her involvement in the sector then ‘just went from there’, she says. Before becoming substance misuse manager – a post she held for just under ten years – she’d worked in the PCT. ‘I feel incredibly lucky to be able to have been in on the birth of something. When I was first involved it covered a much wider area of responsibility and [the budget] was less than half a million. When I left Bristol we had a budget of over £15m for drug services, so it’s been a massive growth which has been wonderful to see. And now really we’ve got to consolidate and move forward together, rather than in this desperate way of everybody fighting each other.’


It’s well documented that the challenges facing the field are changing, with fewer people using heroin and crack and growing problems with newer substances. Bristol, however, was seeing acute problems with ketamine use long before it became a significant issue in many other places, partly connected to the city’s well-established squatting scene. ‘There’s that, and also where it’s placed geographically,’ she says. ‘Bristol is very much the gateway to the South West with very good links to lots of other places.

‘When I was first involved, there was no voluntary sector drugs service,’ she continues. ‘I was involved in putting together the bid for the Department of Health for a very small sum of money to start what has become Bristol Drugs Project (BDP), which is now a massive voluntary organisation providing services. So we’ve always worked, if you like, bureaucrats and providers together, across the voluntary and statutory sectors, and core to that has been working with service users very much at the centre.’

There’s also been a culture of ‘trying to see what was coming next’, she points out. ‘So ketamine was about working with urologists, and we also had someone working in Bristol prison way before the days of a national prison drugs strategy. It was about all partners working together, getting early warnings about what’s happening and then looking at developing responses. We had an integrated maternity service with social workers, specialist midwives and the voluntary sector very early on, and I personally visited virtually every GP surgery in what was then Avon and got about six GPs to start prescribing – now about 95 per cent of practices prescribe. So we always tried to look at what’s coming and prepare for it, not wait for some directive from somebody like the NTA to tell us to do it. In fact sometimes they’d tell us not to do things.’

Did she take any notice? ‘I’m not a person who does what I’m told unless I think there’s plenty of evidence for it,’ she says.

As someone responsible for commissioning services, obviously the last few years would have been to some extent defined by the squeeze on budgets and the austerity agenda. How much of an impact did that have on a day-to-day basis? ‘I think I’ve been very lucky in that we were able to have what I believe was a truly joined-up budget, so that health put its money into the local authority, and NHS-type services were commissioned alongside housing, alongside money from the probation services, alongside money from the police, and also, sometimes, a bit from the prison service,’ she says.

The result was a pooled budget that allowed the commissioning of genuinely joined-up services, she says. ‘The budget grew, most of the time, and we always planned in terms of looking at what happened when that pot of money ended. I do think budget constraints mean that you do focus on what’s core and what works, and make you look at re-designed services so you don’t get complacent. I know it’s really hard in terms of having to tender for services, but it also does sharpen up services an awful lot. There can be quite a bit of complacency about what’s offered.’

A recurrent challenge, she states, was trying to ‘break down some of the legislation that made it quite difficult to do things’, despite that well-established culture of joint working. ‘We worked very closely with the police and looked at how things could be done rather than why you couldn’t do them – with the needle exchanges and things like that – and some of our biggest supporters were the police. So in some ways it’s about finding the right person in the right place in some of the statutory organisations and then picking your way through the bureaucracy and the legislation. Rather than just going “oh no, you can’t do it”, it’s about trying to find a win-win way. And, obviously, when you can’t do anything, recognising that and moving on.’

Overall, what have been the most significant changes she’s seen in the sector? ‘Money’s an easy one. But also, although it’s still stigmatised, there’s much more recognition of this being a health issue. And then there’s also the recognition that one of the things that got us additional funding was the links to criminal activity, so actually this has been the shift – the joint working of organisations, rather than “us and them”.’

All that has gone alongside a recognition of the value of harm reduction, she says, as well as ‘looking much more at self-help and supporting people to make changes themselves, rather than telling them to make changes. It’s a subtle shift but I think it’s quite different. I hate the term “empowerment” but I think that is the thing. That’s what my inspiration is, seeing people making changes and developing, and not being – or labelling themselves – a service user or drug user any more.’


When Adfam published its report on OST and safeguarding children (DDN, May, page 4) she said that the sector often hadn’t been very good at looking at people in terms of couples or relationships, let alone families (DDN, June, page 6). Does she think there’s any sign of that starting to change?

‘I think it is, but for a long time the view was of the service user just as an individual. You might look at what else was happening in their life, but there was almost a sense of dismissing families as part of the problem – and sometimes they are. There’s a greater recognition of carer support, “significant others” – I hate these terminologies, but people who are close to people – and more joint working around those things. But I do think there’s a long way to go in terms of really thinking about what children’s experiences are.’

So is she optimistic about the sector’s future? ‘I’m optimistic if it doesn’t get engaged in infighting and sitting in one camp or another. Individuals need lots of different approaches. I do think the growth of recovery communities is very positive and I’m really pleased to see initiatives like SMART being taken forward, so it’s not one particular dogmatic approach or the other.’

Some of those divisions do seem to be finally breaking down now, though. ‘I think it’s quite slow, and I think there’s quite a lot of language attached that’s quite stigmatising,’ she states. ‘So I am optimistic but I do think there has to be a realism about the tight constraints, and workers do a disservice to their clients if they don’t look at what’s happening in the rest of the world with all the welfare reforms and so on. That’s what daily living is going to be for people and we do need to get involved in those sorts of discussions.’

Her main message, however, would always be ‘work together’, she stresses. ‘Don’t fight each other, because this is a critical time. As with all public sector funding, this isn’t about us and them. We’ve got to make the most of it, because it’s the service users who’ll lose out.’  

Doing it for ourselves

1 2Forget looking to government and corporations for answers to social problems. The answers lie in harnessing the strength within our recovery community, say Tony Williams and Mario Sobczak of Kingston RISE 

We’ve had a recovery community in Kingston RISE (Recovery Initiative Social Enterprise) since 2011. It has touched about 200 people – some a little, some a lot – supported by two employees and half a dozen volunteers. Each year we’ve cost less to run than it costs to put one person through treatment. 

So what does delivery look like for a recovery community? The bread and butter is our community café, where we meet regulars and new people. We check in together at the start of the week and check out at the end. We take care of each other. But we’ve done much more: we’ve acted in plays, played in a band, attended lots of festivals, and walked endlessly in the Surrey Hills. We’ve done yoga, mindfulness, three principles, and dug an allotment. We learned from each other at RISE College – and we’ve had fun.

People come and they go, but that’s OK. We’re not here to keep people locked into a service; we’re here to help people get their lives back. Quite a few of them we don’t see so much now because they’ve got jobs. We have measured our effectiveness using a tool by Martin Webber from the Institute of Psychiatry, which captures people’s connectedness and their access to resources, before and after. The difference can be significant. But the real measure is in how people behave – they get lively again. It’s in their faces, in their voices, when they spark with each other, and when they laugh. What are the ideas that have led us on this journey?

1Modernity and austerity

The modern world has brought us many benefits. We are, as a society, economically better off than the generations of our parents and grandparents. In general, life is easier. However, the modern world has brought us challenges not faced by previous generations, and the symptoms are evident almost everywhere. Obesity, malnutrition, mental illness, domestic violence and addiction are rife. The demise of extended families and the loss of a sense of community have left a significant proportion of society in desperate isolation. These symptoms can often strike together.

Today, faced with any kind of social problem, including the ones above, we typically look to government and corporations for answers. We cannot get those answers unless they are first monetarised, and ‘solutions’ competed and procured. Efficient processes, selection criteria and measurement become paramount; people secondary. Citizens have been repositioned as ‘consumers’, either in credit (as purchasers of products) or in deficit (as service users). A ‘parent-child’ relationship has been set up between those in authority and ‘needy’ consumers of services – with professionals sandwiched uneasily in between. It is possible today to believe that in the eyes of government, communities are problems to be solved.

Most recently, these issues have become worse because the funding for these ‘top down’ services has started to become scarce. Whether you believe in the austerity narrative or not, the reality for a substantial part of society – the most vulnerable – typically with a combination of issues such as homelessness, mental illness, addiction, poor physical health, and (underlying all) poverty, is that practical help is becoming harder and harder to find from traditional sources. For this section of community it’s possible to see that ‘everyone’s in recovery from something’.

It’s clear we need answers – and it’s also clear the current paradigm doesn’t deliver them. So what are we to do?

Resilient communities

In the recovery movement we are clear that the answers lie in each other, in community, so it is natural that we should look inside ourselves and to each other for answers. Answer number one is that the solution involves reinstating our notions of community. As Cormac Russell, of the Asset Based Community Development Institute, said: ‘There are some things community is best placed to do; but we’ve forgotten how to do it. Government needs to get out of the way and let us do it. And for things community can’t do; help them.’

Our notions of community will not, of course, spring into being at once after a 60-year lapse. We need to start by building communities that come together over pressing issues. Later, when we are strong, resilient and mobilised in a variety of ways, the chance will be there to join these communities together. Recovery communities have lessons for the community in general today, about how the cohesiveness we get from shared experience can translate into positive real outcomes that we achieve together. We are not passive, inert consumers of services; we can do things for ourselves. And that makes us, individually and collectively, stronger. We’re collaborating with Martha Earley, head of Kingston Council’s Equalities, Community and Engagement Team (ECET) to deliver community engagement and change, both within the council and to community groups using our approach and tools.

So how do we find the resources to deliver recovery today? Well, in a world where money is scarce, we use what is to hand that does not involve cash and profits. We are, all of us, endowed with an abundance of gifts – assets. These are the things we know how to do, or the things people we know can do. We’ve just forgotten to look for them, because we expect them to be provided for us. We need to look first at ourselves and our neighbourhoods for assets which we can make use of, rather than to look at our neighbourhoods as problems to be solved. 

2Reclaiming our citizenship

Next, we need to design our answers together, not have the answers given us from outside. To do this we need to organise ourselves without hierarchies, to be as diverse and open minded as we can – and we should make it fun. Most of all, we who experience the problem have the best understanding of the solution; and more, we need to be the solution. There is a power in recovery, as David Best says, and with this motivation we turn our deficits into assets. To do this involves our empowerment and a repositioning of the relationship between professionals, the deliverers of traditional services, and ‘service users’ – who in future must be part of the same, flat community. This is not natural for any of the participants and involves the biggest change of mindset. It does, however, work.

Finally, our solutions need to be designed beyond the soulless forms-driven answers that have come to dominate so much of the service delivery we have experienced in the past. We know, for example, that beneath all the symptoms is a loss of wellbeing, and that through community-led action our goal is to restore it. A good broad definition of a healthy life is the ‘five ways to wellbeing’ and our solutions need to embody those ideas. We believe that in any good answers, the scientific (true) must be balanced with the ethical (good) and aesthetic (beautiful). Today we have to recognise that it is just as important to lift people’s hearts as it is to lift them out of poverty.

Our Journey Together

Where is this all going? The challenge today is to broaden the debate on these ideas and to use them practically. We are actively seeking your involvement in their development. Any products we create on this journey we intend to provide free to other community groups. We hope that you will do the same. The first step on the journey is a common understanding and a common terminology. To read more on the ideas in this article, see the references below. The next step is to talk to us, and to each other.

Further reading:

Core Economy (Cahn, 2006); Asset Based Community Development (ABCD, McKnight, Building Communities from the Inside Out, 1993); Co-production (NEF, 2008); Five ways to wellbeing (NEF, 2008); Afternow; the Good, the Beautiful and the True (Hanlon, 2013); Recovery capital (Best, 2010).

Semantic challenge

Kevin FlemenThe language of new drugs can be unhelpful at best and risky at worst. Kevin Flemen offers a guide

Our KFx training course Cats, Bees and Dragonflies explores the subject of newer, emerging drugs, and one of the issues we address very early on is the frame of reference. This inevitably brings up the vexed question of what collective terms to use about newer compounds.

For well-rehearsed reasons we should avoid the phrase ‘legal highs’. Many of the compounds are no longer legal, and not all are stimulants. There is debate as to whether or not people equate legality with safety, but I am of the mind that ‘legal’ has connotations of being sanctioned or approved; it suggests legality via permission. As this is not the case, I prefer ‘unregulated’ as opposed to ‘legal’.

The phrase that has become de rigueur among academics and policy experts is novel psychoactive compounds (or substances). It’s the phrase of choice for the EU, and the EMCDDA defines it thus:

‘A new narcotic or psychotropic drug, in pure form or in preparation, that is not controlled by the United Nations drug conventions, but which may pose a public health threat comparable to that posed by substances listed in these conventions.’

There are a number of problems with this definition, not least that some of the compounds are not that new. Nitrous oxide has been around since the latter half of the 19th century, 4-mmc was first synthesised in 1929 and a lot of the benzo-type drugs doing the rounds at the moment were first synthesised in the 1960s. It also creates the small problem that as soon as the drug is controlled by the UN drug conventions, it ceases to be a novel psychoactive compound (NPC).

More problematically for me, the term has little or no relevance to end users. A resource, service or awareness session referring to NPCs will not register with key target groups. Asking people, ‘what NPCs have you used in the last month?’ won’t elicit the information that I am looking for. It’s akin to when the language switched from talking about ‘glue sniffing’ to ‘volatile substance abuse’. The language may be more accurate, but what it gains in accuracy it loses in comprehension.

The other thing that is interesting about all the widely used phrases – ‘novel psychoactive compounds’, ‘legal highs’, and ‘research chemicals’ is that the word ‘drugs’ is absent. According to Rick Bradley from KCA, presenting at a recent seminar, about 85 per cent of NPS users do not recognise themselves as drug users. The language we have all adopted contributes to the sense that these are somehow distinct from other drugs.

In turn, this linguistic sleight of hand has, to my mind, disempowered drugs workers. The recurrent theme from training sessions is a sense of not understanding this new world of NPS, and these are often experienced workers who can deal with the full spectrum of ‘traditional’ drugs. Reminding these workers that these are still drugs, much like ones they can and have worked with, does much to overcome this sense of disempowerment.

So, over time, I have tried to find a language that works to address these problems. I found that the phrase ‘newer unregulated drugs’ worked reasonably well – except when the law changes. What’s important is that we have the discussion and explore the role language and terminology plays in constructing paradigms. 

Language of assessment

What we call our emerging drugs also has a bearing on the assessment process. If we don’t ask and prompt about newer drugs, we may not get this information volunteered. And when it comes to newer drugs, this brings with it some very specific challenges.

1             Not perceiving substances to be drugs

            As highlighted earlier, there’s some evidence that some people may not consider their ‘legal’ substances to be drugs, so if they are asked about other drugs they may not volunteer emergent drugs.

2             Unfamiliar with collective terms

            We want to try and avoid the term ‘legal highs’ for reasons mentioned, and use of phrases such as novel psychoactive compounds may not have a high recognition factor with young people.

3             May not be familiar with drug families

            Routinely we would ask people about (for example) their benzodiazepine use. But asking this doesn’t automatically mean that the respondent will link their etizolam use to the use of benzos, and volunteer this as a response. Similarly, although we ask about cannabis use, the respondent may not volunteer that they are smoking synthetic cannabinoids.

4             May not know what they have used or have misidentified it

            The emergence of generic slang such as ‘legals’ could cover a wide range of drugs. Regionally, slang such as ‘monkey dust’ or ‘bubble’ could refer to a specific compound such as mephedrone or any unknown white powder.  In turn ‘mephedrone’, once referring to 4-mmc, could now be used interchangeably for other white powder drugs. So assumptions both by user and worker as to what a person is actually using could be both misleading and dangerous.

5             We don’t want to give people a shopping list

            Especially when working with younger, naïve users, it is important that the assessment process doesn’t end up introducing the client to a whole list of substances with which they were unfamiliar. So while initially tempting, an assessment form that either lists or illustrates a wide range of different products is risky. It is still unlikely to be comprehensive – there are so many brands on the market now. But it also risks introducing substances to a client who was hitherto unaware of that compound or family of drugs. We need to prompt, but without exposing the respondent to still more compounds.

Prompting, not promoting

After a numerous training sessions and a number of false starts, a screening process emerged which addressed all my key concerns. It sits alongside an existing standard screen and looks specifically at newer drugs.

Rather than exploring specific substances it looks at types of compound and routes. So for example by asking about smoked substances it can elicit synthetic cannabinoids, kratom, or salvia without naming the substances. Even vague references to ‘I smoked something, I’m not sure what it was…’ can be incorporated.

Likewise, by asking about ‘white powders’ we can explore all the different brands and unbranded substances again, without having to give names. Using the same format, the tool asks about pills and pellets, and other substances (swallowed, inhaled etc) to cover other drug groups.

Another key aspect of the assessment tool links back to the idea that we don’t know what the person has used, and a lot of the time, neither do they. The respondent says that they have used ‘mephedrone’ but we can’t be sure that this is the case. It is important to be able to hear their experience of what they used rather than imposing an assumption of how this substance should have felt.

In training we use the drug map to explore the relative location of different drugs. We can use it to explore potency, duration and effects. In the context of assessment it is left blank, so the respondent can describe how the substance affected them – strong stimulant effect, very hallucinogenic, drowsy and so on. This is useful, not least because it ensures that the client can articulate their experience of the substance. It can also highlight where there’s a high chance they have used something other than their named substance – where the effects described are at variance with typical reports of that drug.

The assessment tool goes on to explore key issues stemming from use and develop an action plan, and can be downloaded free from the KFx website. (Feedback on its use is very welcome and will help me to revise it.) Ideally use of the tool will be combined with staff training to increase awareness and confidence in responding to newer unregulated drugs.  

Kevin Flemen runs KFx, offering drugs information and training. For more information and free resources visit www.kfx.org.uk

Engaging with the experts

MKGMichael Gilbert talks to DDN about StreetRx.com, a new website that encourages the exchange of information between drug users while also promoting harm reduction 

Meeting people who use drugs ‘where they’re at’ is a core principle in the practice of harm reduction. Programmes are carefully designed to be culturally competent, respectful of dignity, and non-judgmental in their effort to reduce harms associated with drug use.

One of the challenges facing the harm reduction community is that health promotion information often comes in the form of media that are health-specific, and that rely upon their audience’s interest and engagement in health-seeking behaviours. Billboards and bus stop ads have trouble finding their target audience, and even the most eye-catching pamphlet or clever infographic will only reach those who walk into the needle exchange or seek out health-related information online.

Research on stage-based models of behaviour change suggests that 80 per cent of people who use drugs are in re-contemplation or contemplation stages, while 20 per cent are in the preparation stage – and yet our communications strategies towards people who use drugs are predominantly focused upon those in the latter group. The discrepancy between the harm reduction community’s communication strategies and the stage-based distribution of their audience presents an opportunity to reflect upon how we can ‘meet people where they’re at’.

An emerging approach to address this challenge is found in programmes that employ ‘magnet content’ strategies for distribution of harm reduction resources. These programmes use non-health-specific content to attract and engage their audience, while also providing links to health and wellness resources. The intent is to appeal to the social, economic and entertainment interests of drug users as a means to extend beyond those with active interest in health information, and to deliver health promoting resources as a complement to otherwise engaging media.

StreetRx.com is an example of this strategy – a website that gathers and presents information on the street prices of pharmaceutical drugs. After a strong debut in the United States, a group of epidemiologists, harm reductionists and informatics specialists have created an updated version of the website that asks UK visitors a simple question: did you get a good deal?

Visitors can view, post and rate prices in a format that offers price transparency in an otherwise opaque black market. All submissions are anonymous, localisation is set to the city level, and the feedback is shared via a simple price rating scale. This gives users access to information and assurance of privacy, while preventing the site from being used to make deals or set up stings.

The site appeals to the interests of people who buy and sell diverted prescription drugs, while also serving as a source of information on overdose prevention, emergency response and addiction recovery. Links to health and wellness information are subtle but frequently used, with the US version of the site making more than 10,000 referrals to external resources in the last year.

The appeal of this approach is that it establishes visitors as experts with valuable information and insights to share, and cultivates a frame of autonomy, competence and relatedness that the self-determination theory tells us will be conducive to engagement with health and information-seeking behaviours.

StreetRx also generates insights for harm reduction programmes and epidemiological research. Using the wisdom of the crowd, the site is able to identify differences in the appeal of conventional versus abuse-deterrent drug formulations, regional variances in diverted drug prices and changes in the localised price and availability of newly released products.

Information on populations’ drug preferences helps harm reductionists to tailor outreach information to local needs, and assists epidemiologists and policy makers to understand the effects of pricing, prescribing and access rules on the diversion of prescription drugs.

In a 2013 paper, Crowdsourcing black market prices for prescription opioids, researchers found that StreetRx data was strongly correlated with conventional key informant sources and prices on the online Silk Road market.

These insights would not have been possible without the active participation of tens of thousands of site visitors. They are the result of engaging the curiosity and expert knowledge of people who use drugs without relying upon users’ interest in health.

As harm reduction and addiction recovery professionals strive to reach a larger population of service users, we should look towards communication strategies that have appeal beyond health-specific interests.

By weighing up information-seeking behaviours focused on pursuit of entertainment, social engagement or economic interest, we can position health and wellness information as a natural complement to drug users’ needs. These strategies are not alternatives to conventional health promotion and harm reduction messaging. Rather, they can expand our audience and create opportunities for wider engagement in an effort to generate and share information that serves the public’s health.

Michael Gilbert is a research intern at Epidemico

MainPageUK

What state are we in?

A new, improved State of the sector report is underway and needs your input, says Paul Anders

Paul AndersLast year DrugScope, on behalf of the Recovery Partnership, undertook significant work to try to gauge the health and confidence of the adult community and residential parts of the drug and/or alcohol treatment system. The result was State of the sector 2013. Through a variety of means – an online questionnaire, regional events and telephone interviews – service managers and other stakeholders were encouraged to provide information about the condition of their services, how they’d coped with a period of significant change, how their partnership work was faring and what their outlook for the future was.

The resulting report gained significant traction. It received widespread coverage in both the specialist press like DDN and Druglink, but also in the broader voluntary and public service press, as well as being quoted by mainstream newspapers such as the Independent. It garnered ministerial interest through the Inter-Ministerial Group on Drugs, and Public Health England (PHE) took some of the key findings from the report as a mandate to prioritise housing and employment in its 2014-15 work plan.

The findings painted a picture of a sector in a state of flux. While there was little in the 2013 survey to cause particular alarm, many responses indicated that the process of change, driven both by changes to local authority funding and to the way that drug and alcohol services are commissioned, had only just started.

Some key findings included:

•No clear evidence of widespread disinvestment in treatment. Many respondents reported an actual or anticipated decrease in funding, but others reported an increase, albeit sometimes as a result of gaining business due to local authorities rolling smaller contracts together.

•Many respondents indicated that they were engaging with features of the post-2013 commissioning landscape like Health and Wellbeing Boards and police and crime commissioners.

•Respondents indicated that they were having difficulty in supporting people to accrue ‘recovery capital’, with employment and housing particularly problematic but some problems also being experienced around access to mental health support.

•Many participants were concerned about the potentially harmful and disruptive effects of frequent recommissioning and retendering.

Despite these challenges and more, most respondents were relatively positive about the future and some provided examples of how they’d changed their way of working to improve services, manage costs or improve partnerships.

 Looking forward

For 2014, State of the sector has been substantially revised, both to reflect the learning from 2013 and also to significantly broaden the scope of the work. While in 2013 we limited the survey to service managers from adult community and residential services, in 2014 we will be extending State of the sector to prison services and young people’s services. DrugScope has consulted widely with service providers, government departments, PHE and other key stakeholders to ensure that the questionnaires accurately reflect the characteristics of each part of the sector and the issues that they face.

The adult community and residential questionnaire has also been developed from last year’s, although changes have been kept to a minimum in the interests of being able to make comparisons with results from 12 months ago. By repeating the exercise, we aim to be able to learn – and say more about the pace of change and direction of travel, building on the baseline of State of the sector 2013.

However, while we were delighted with the response in 2013 when around 170 services responded, we would like to hear from even more this year, making the findings even more persuasive and useful to the policy-makers who in the end decide where to invest public funds.

We acknowledge that the questionnaires are quite lengthy, as we’re keen to capture a wide range of treatment and non-treatment related activity. To make it easier to complete, you may find it useful to have details of the following to hand:

•The number of clients accessing your service

•Details of your funding and the length of your contract

•Your clients’ support needs

•Any other services you work in partnership with, and

•To what extent your clients are able to access other specialist services.

All responses are entirely confidential, and there is no editorialising. While DrugScope can’t guarantee every comment a participant makes will be included in the final report, we take care to ensure that what is included is representative.

The State of the sector 2014 surveys will be launched in September. If you would like to discuss any aspect of the project, please contact Paul Anders at DrugScope – paul.anders@drugscope.org.uk. You can find the main and summary reports of State of the Sector 2013 here: http://www.drugscope.org.uk/POLICY+TOPICS/StateoftheSector2013

Paul Anders is senior policy officer at DrugScope

Loaded dice?

Loaded diceThe estimated 450,000 people in the UK with a gambling problem are at a distinct disadvantage when it comes to getting access to treatment. DDN reports 

Earlier this year no less an organisation than the Royal College of Psychiatrists (RPsych) called on the government to dramatically increase the level of support for people struggling with problem gambling (DDN, May, page 5), which it defines as ‘gambling that disrupts or damages personal, family or recreational pursuits’.

‘These adults deserve the same access to treatment services as those with alcohol and drug addictions,’ said the college’s Faculty of Addiction Psychiatry. It also pointed out that not only was current service provision ‘under-developed, geographically “patchy” or simply nonexistent’, it was also funded almost exclusively by the gambling industry itself.

For problem gamblers looking for support there’s Central and North West London NHS Trust’s (CNWL) National Problem Gambling Clinic, which offers one-to-one and group therapy, family services and referral to appropriate aftercare, as well as Gamblers Anonymous – which is holding events to mark its 50th birthday this month – and a network of just under 20 local services partnered with industry-funded support service GamCare.

As Broadway Lodge chief executive Brian Dudley told DDN last year, however, among the only residential centres offering treatment for gambling addiction are his organisation and the Gordon Moody Association, both GamCare-funded (DDN, November 2013, page 17). ‘It’s funded by the gambling industry because there’s no other funding,’ he said. ‘The need is there, but the money doesn’t follow it.’

RCPsych’s report, Gambling: the hidden addiction, called for the government to ‘recognise gambling disorder as a public health responsibility’, to allow treatment to be provided by existing drug and alcohol services. Lack of government action, however, alongside the ‘increasing availability and public visibility of gambling’ would provide ‘the perfect conditions for a new generation of problem gamblers – a future trend in addictions that we are ill-equipped to treat’, said the report’s co-author and consultant addiction psychiatrist, Dr Sanju George.

And that ‘availability and public visibility’ does seem to be increasing all the time, with an explosion in online gambling, gambling apps and more, much of it backed by well-funded advertising campaigns. Earlier this year there was a high-profile controversy around fixed odds betting terminals (FOBT) – frequently referred to as ‘the crack cocaine of gambling’ – installed in bookmakers, with MPs calling for a reduction in the maximum amount it was possible to gamble on them in one go, from £100 to £20.

There were 33,000 of these terminals in betting shops in the UK in 2013, accounting for more than half of the shops’ net takings, according to regulator the Gambling Commission. The Campaign for Fairer Gambling, meanwhile, claimed that a staggering £1.6bn was lost on FOBTs last year – up £89m in 2012 – and that almost £500m of those losses occurred in 55 of England’s most deprived boroughs. Even where money isn’t at stake, however, as in the case of ordinary online gaming, there’s real potential for addictive behaviour and negative consequences, with people becoming so obsessed that their health and relationships can suffer dramatically (DDN, February 2013, page 8).

As another RCPsych report in partnership with Alcohol Concern Cymru – A losing bet? Alcohol and gambling – illustrated, while there may be fewer people struggling with gambling problems than with alcohol, ‘often people with alcohol problems participate in unhealthy gambling, and vice versa’. Both industries have seen the rules governing them in the UK liberalised in recent years, it points out, along with an expansion of female-targeted marketing. One in six of those interviewed for the report who had sought help for alcohol misuse also admitted to problems with gambling.

‘There’s a lot of comorbidity,’ said Brian Dudley. ‘Someone will come in with a drug or alcohol problem but when we actually start working with them we might well find their primary addiction is gambling, but they’d never have got funded.’

So is there a real role for the treatment sector here? ‘Expert and experienced in the medical treatment of addictions, these services could play an important role in tackling adult gambling disorder,’ said the RCPsych report, with the basic service infrastructure and staff already in place. ‘Incorporating gambling disorder within this structure provides a method to meet a critical and growing need, and one which not only needs to be seriously considered by the government, but also acted on.’

Derek Irwin, a psychotherapist and counselling services manager at GamCare, which currently offers counselling through a partnership with 18 local agencies, says his organisation would definitely ‘support the same access for services related to gambling addiction’ as for drugs and alcohol. ‘Even though gambling as an addiction does not exhibit physical or health symptoms in the same way, the behavioural process is similar to other addictions and the consequences are often just as serious,’ he tells DDN.

‘The NHS is committed to treating people with other forms of addiction, but not gambling, and so the onus is on the third sector to provide the services necessary to support those who suffer as a consequence of their gambling behaviour,’ says Marc Etches, chief executive of the Responsible Gambling Trust (RGT), a charity which exists to help ‘minimise gambling-related harm’ via voluntary donations from the gambling industry – around £6m per year.

From March 2013 to March 2014, 80 per cent of this money was spent on treatment, he points out, including the cost of running GamCare’s National Gambling Helpline. However, there is ‘scope to spend more on support for people with gambling problems and the RGT has plans to do so – but I’ve little doubt that nationwide provision of additional support through the NHS, including training for GPs on how to spot and treat gambling addiction, would greatly help problem gamblers’, he states.

So could gambling be incorporated into the existing treatment sector, as RPsych’s report advocates? ‘Working with addictions in a treatment context would utilise similar skills, but training regarding gambling-related problems would be essential in order to deal with this specific problem,’ says Irwin.

The report acknowledges additional resources would need to be identified – and ring-fenced – with the most significant cost likely to be training existing staff, and potentially employing more. Much could also be achieved by improving non-specialist care, however, with RCPsych calling for better screening for problem gambling by GPs and other professionals and the use of low-cost brief interventions to try to stop people moving from being ‘at risk’ to developing a full disorder, particularly with clients who are unsuited to – or unwilling to access – more intensive treatment.

Screening and brief interventions are indeed ‘useful and important’ says Irwin, as people ‘would benefit from early intervention just like any other problem or condition’. 

Meanwhile, the RGT’s funding plan for 2014-15 has set aside £4.3m for the provision of services to treat problem gambling, stresses Etches. ‘This includes £2.4m for GamCare to provide treatment services, either directly or via its network of partners, to gamblers and others adversely affected by gambling via free and confidential counselling, one-to-one or in groups, face-to-face and online.’ The RGT has also made grants to CNWL to fund CBT-based counselling at the National Problem Gambling Clinic, he points out, as well as residential services at the Gordon Moody Association and GamCare’s National Gambling Helpline. ‘There is no national, publicly funded alternative to these services,’ he states.

And what about RPsych’s warning that without dramatically upscaled action now there could be a whole new generation of problem gamblers? ‘It depends how you look at problems causally,’ says Irwin. ‘A parallel could be made with legislation, advertising and availability around alcohol. It is the case, we feel, that other problems and issues lead to addictive behaviours, so addressing these other issues would be our priority. Of course, legislation and advertising need always to be monitored, but it’s not the solution.’  DDN

Gambling: the hidden addiction at www.rcpsych.ac.uk

A losing bet? Alcohol and gambling: investigating parallels and shared solutions at www.alcoholconcern.org.uk

A major London conference on 13 November will look at the level of gambling-related problems in the UK, the links with drug and alcohol misuse, and opportunities for the treatment sector. For more information, visit: Weighing up the odds

From debts to bets

 

 

Foil rules for services come into force

Legislation has come into force this month allowing services to provide aluminium foil ‘for the purpose of smoking drugs’, with a new briefing from Public Health England (PHE) explaining the new rules and providing advice on their implementation.

The aim of the legislation is to reduce injecting-related harms, with the condition that foil be supplied ‘in the context of structured steps either to engage people in a treatment plan or as part of a treatment plan’.

The Advisory Council on the Misuse of Drugs (ACMD) previously advised the government that ‘the balance of benefit’ from providing foil favoured exempting it from Section 9A of the Misuse of Drugs Act – which relates to the prohibition of supply of ‘articles for administering or preparing controlled drugs’ – with the home secretary announcing last year that the government had accepted its advice (DDN, August 2013, page 4).

Provision of foil with be monitored via new fields added to the Needle Exchange Monitoring System (NEXMS), along with a series of interviews with service providers to be carried out next year. The PHE briefing urges services to make sure staff are ‘aware of the respiratory complications of smoking from foil’ and able to provide advice, as well as address concerns around issues such as ‘drug smoking’s lesser effectiveness and increased cost’.

Aluminium foil for smoking drugs: a briefing for commissioners and providers of services for people who use drugs at www.gov.uk

Put health warnings on all alcohol, say MPs

Health warnings should be included on all alcohol labels, says the All Party Parliamentary Group (APPG) on Alcohol Misuse, to go alongside a new government-funded awareness campaign on alcohol harm.

The recommendations are among ten measures set out in the group’s Manifesto 2015, along with stronger marketing regulations to protect the young, increased funding for treatment, making public health a core licensing objective and minimum unit pricing. ‘Consumer information on alcohol products usually extends no further than the volume strength and unit content,’ it says. ‘In order to inform consumers about balanced risk, every alcohol label should include an evidence-based health warning as well as describing the product’s nutritional, calorific and alcohol content.’

The document also wants to see alcohol harms made the responsibility of a single government minister with ‘clear accountability’, and mandatory training in parental substance misuse for all healthcare professionals and social workers. ‘Alcohol abuse has become a national pandemic and needs to be treated as such,’ it says, and the group is calling on all political parties to commit to the ten measures.

‘Due to alcohol, one person is killed every hour and 1.2m people are admitted to hospital a year,’ said the group’s chair, Tracey Crouch MP. ‘Getting political parties to seriously commit to these ten measures will be a massive step in tackling the huge public health issue that alcohol is.’

Political parties ‘run for cover when they are confronted by the drinks industry and its immensely powerful lobby,’ added vice-chair Lord Brook of Alvethorpe. ‘These proposals give them another chance to consider whether they really have the guts to take a different line for the country’s wellbeing in the future.’

All Party Parliamentary Group (APPG) on Alcohol Misuse manifesto 2015 at www.alcoholconcern.org.uk

Scots drug-related deaths down from record highs

The number of drug-related deaths in Scotland fell by 9 per cent last year, according to figures from the Scottish Government, with deaths among under-25s the lowest since records began.

There were 526 drug-related deaths registered in Scotland in 2013, 68 per cent of which were among people aged 35 and over. The country recorded its highest ever number of drug deaths in 2011 (DDN, September 2012, page 4) when 584 people died, and just three fewer the following year (DDN, September 2103, page 5). Three quarters of the 2013 deaths were among men, and in more than 90 per cent of cases people had taken more than one drug.

The hope was that the increases in deaths in previous years had ‘now come to an end’, said community safety minister Roseanna Cunningham. ‘These statistics are a product of a long legacy of drug misuse among older users. We are clear that one death is one too many, and that’s why we are funding the Scottish Drugs Forum to work with older users and why almost 4,000 naloxone kits were issued through our prevention programme to people at risk of overdose in 2012-13, potentially saving more than 350 lives. We know we face a tough challenge, but there are signs our approach is working. Drug taking in the general adult population is falling, and far fewer young people are taking drugs than ever before.’

The number of deaths where new psychoactive substances (NPS) were present, however, rose from 47 in 2012 to 113, including 60 deaths where NPS were implicated – albeit along with other substances in all but five of the cases. The Scottish Government recently published its New psychoactive substances – evidence review and has committed to further research to address gaps in knowledge.

‘NPS may be cheaper than known illegal drugs and we are aware of people using them across different age ranges and social groups,’ said service delivery manager at Edinburgh-based Crew 2000, Emma Crawshaw. ‘People who haven’t used drugs before are at risk if they do not have experience or credible information.’

As DDN went to press, ONS figures revealed that the level of drug poisoning deaths – from both legal and illegal drugs – in England and Wales was 2,995 in 2013, the highest since 2001. Full details in October’s issue.

Drug-related deaths in Scotland in 2013 at www.gro-scotland.gov.uk

New psychoactive substances – evidence review at www.scotland.gov.uk

Legal high deaths ‘could’ top heroin deaths, says CSJ

The rate of deaths linked to new psychoactive substances could be ‘higher than heroin’ within two years, according to a report from the Centre for Social Justice (CSJ) think tank.

Hospital admissions related to new psychoactive substances (NPS) rose by 56 per cent between 2009 and 2012, says Ambitious for recovery, while 97 people were found dead with NPS in their system in 2012, up from just 12 over the same period. ‘Based on current trends NPS could be implicated in more deaths than heroin by 2016,’ it says.

The report calls for measures similar to those in place in Ireland to make it easier for police and courts to close ‘head shops’ selling NPS. It also wants to see a ‘treatment tax’ added to the cost of alcohol to fund ‘a new generation of treatment centres’ and states that Public Health England and local councils ‘risk giving up on many addicts’, with the treatment sector mainly concerned with ‘managing’ people and the government’s FRANK education programme ‘shamefully inadequate’.

‘Far too many’ people are prescribed opiate substitutes, says the CSJ – which was set up eight years ago by Iain Duncan Smith – ‘effectively replacing one addiction’ with another. ‘The most effective way to overcome addiction and eliminate its costs is to help people to stop taking drugs and become fully abstinent,’ states the report. ‘Yet as the CSJ has long argued, treatment services have continually failed to support abstinence-based recovery. Despite warm words in its 2010 drug strategy, this government has failed to create the recovery revolution that it promised.’

A ‘treatment tax’ levy of 1p per unit could raise more than £1bn for abstinence-based treatment over five years, says the organisation, with the government urged to ‘look at reducing welfare payments for claimants who continually refuse to address their addiction’ once the additional treatment centres are up and running. It also suggests piloting a ‘welfare card’ scheme, where a proportion of benefits would have to be spent on essentials such as food and clothes. ‘This would apply to alcohol or drug addicts with dependent children who refuse treatment and who have not been in work for a year,’ it says.

‘Addiction rips into families, makes communities less safe and entrenches poverty,’ said CSJ director Christian Guy. ‘For years full recovery has been the preserve of the wealthy – closed off to the poorest people and to those with problems who need to rely on a public system. We want to break this injustice wide open.’

Ambitious for recovery at www.centreforsocialjustice.org.uk

News in brief

South west strategy

A pilot programme to help tackle hep C in the South West has been launched by Addaction Cornwall in partnership with the Hepatitis C Trust and pharma company AbbVie. The project includes staff training and peer-to-peer education and buddying, and is designed to reduce transmission rates and free up NHS resources. ‘This is an exciting programme that we hope will maximise the opportunity for elimination of hepatitis C in the region and we are confident that where the South West leads, the rest of England will follow,’ said Hepatitis C Trust chief executive Charles Gore.

The write stuff

Adfam’s annual writing competition for those affected by drug or alcohol use has been announced, with a main prize of £150 and two runner-up prizes of £100. Adfam Voices 2014 is open until 31 October, and entries should be no more than 500 words. ‘We are looking to get a record number of entries this year so please spread the word,’ says Adfam. Details at www.adfam.org.uk

Add ’em app

A free iOS app to allow people to calculate alcohol units and calories has been launched by Drinkaware. It also provides personalised feedback as well as information on the health benefits of reducing consumption. More information at www.drinkaware.co.uk

Patient power

Treatment providers Delphi Medical have joined with the Patients Know Best organisation to give clients secure online access to their health records. ‘A patient recovering from a drug or alcohol addiction receives very fragmented care because none of the agencies dealing with them can access a single version of that person’s medical record,’ said Adelphi MD John Richmond. ‘Putting the patient in control of their records solves this challenge at the click of a mouse.’ Delphi plans to enhance the project with training material and video podcasts so that clients ‘can quickly and easily understand why doctors are recommending certain treatment plans and courses of action.’ www.delphimedical.co.uk

They call it madness

European Commission funding has been announced for a research project on new psychoactive substances led by the University of Hertfordshire. EU-MADNESS (European-wide, Monitoring, Analysis and knowledge Dissemination on Novel/Emerging pSychoactiveS) is a two-year project to monitor, test and profile the types of substances emerging in Europe along with their ‘associated characteristics and potential harms’. www.eumadness.eu

Family facts

Adfam wants to hear from organisations providing support for families affected by drugs or alcohol for its 2014 health check project. ‘We want to know more about what’s happening in the sector in terms of sustainability, funding, networks and partnerships,’ says the organisation, which will publish a report based on the findings. Service managers can take the survey at www.surveymonkey.com/s/9KYMHMH until the end of September. The annual Adfam/DDN Families First conference takes place in London on 23 October. 

Search me

The Home Office has published guidance for police forces on the implementation of the best use of stop and search scheme, which aims to create ‘greater transparency, accountability and community involvement’. A report from Release last year found that black people are more than six times more likely to be stopped and search for drugs, and more than twice as likely to be charged if drugs are found (DDN, September 2013, page 4). Best use of stop and search scheme at www.gov.uk

Mass debate

A guide to help people ‘make the case for the legal regulation of drugs from a position of confidence and authority’ has been produced by Transform. ‘If someone tells you that legal regulation would mean a drugs “free-for-all”, or that the war on drugs can be won if we simply fight harder, you’ll be equipped to reply with short, clear and memorable counter-arguments,’ it says. Debating drugs at www.tdpf.org.uk

E-cig safety

WHO is calling for a ban on the indoor use of e-cigarettes along with their marketing and sale to young people, as ‘experimentation with e-cigarettes is increasing rapidly among adolescents’. There is also ‘insufficient evidence to conclude that e-cigarettes help users quit smoking or not’, it says. While the report was welcomed by the Faculty of Public Health, Professor Gerry Stimson of Imperial College, and co-director of Knowledge Action Change, said that WHO was ‘exaggerating the risks of e-cigarettes while downplaying the huge potential of these non-combustible, low-risk nicotine products to end the epidemic of tobacco-related disease’. Report on e-cigarettes to WHO Framework Convention on Tobacco Control at www.who.int

Bereavement support

DrugFAM’s sixth annual conference, Supporting the recovery of those bereaved by drugs and alcohol, takes place in Birmingham on 4 October. Full details at www.drugfam.co.uk

Scots drug deaths fall

The number of drug-related deaths in Scotland fell by 9 per cent last year, according to figures from the Scottish Government, with deaths among under-25s the lowest since records began.

There were 526 drug-related deaths registered in Scotland in 2013, 68 per cent of which were among people aged 35 and over. The country recorded its highest ever number of drug deaths in 2011 (DDN, September 2012, page 4) when 584 people died, and just three fewer the following year (DDN, September 2103, page 5). Three quarters of the 2013 deaths were among men, and in more than 90 per cent of cases people had taken more than one drug.

The hope was that the increases in deaths in previous years had ‘now come to an end’, said community safety minister Roseanna Cunningham. ‘These statistics are a product of a long legacy of drug misuse among older users. We are clear that one death is one too many, and that’s why we are funding the Scottish Drugs Forum to work with older users and why almost 4,000 naloxone kits were issued through our prevention programme to people at risk of overdose in 2012-13, potentially saving more than 350 lives. We know we face a tough challenge, but there are signs our approach is working. Drug taking in the general adult population is falling, and far fewer young people are taking drugs than ever before.’

The number of deaths where new psychoactive substances (NPS) were present rose from 47 in 2012 to 113, including 60 deaths where NPS were implicated – albeit along with other substances in all but five of the cases. The Scottish Government recently published its New psychoactive substances – evidence review and has committed to further research to address gaps in knowledge.

‘NPS may be cheaper than known illegal drugs and we are aware of people using them across different age ranges and social groups,’ said service delivery manager of Crew 2000, Emma Crawshaw. People who haven’t used drugs before are at risk if they do not have experience or credible information with which to make informed choices about NPS and people who have previously used other drugs may not be aware of additional risks and consequences of use.’

Drug-related deaths in Scotland in 2013 at www.gro-scotland.gov.uk

New psychoactive substances – evidence review at www.scotland.gov.uk

Put health warnings on all alcohol labels, say MPs

Health warnings should be included on all alcohol labels, says the All Party Parliamentary Group (APPG) on Alcohol Misuse, to go alongside a new government-funded awareness campaign on alcohol harm. 

The recommendations are among ten measures set out in the group’s Manifesto 2015, along with stronger marketing regulations to protect the young, increased funding for treatment, making public health a core licensing objective and minimum unit pricing. ‘Consumer information on alcohol products usually extends no further than the volume strength and unit content,’ it says. ‘In order to inform consumers about balanced risk, every alcohol label should include an evidence-based health warning as well as describing the product’s nutritional, calorific and alcohol content.’

The document also wants to see alcohol harms made the responsibility of a single government minister with ‘clear accountability’, and mandatory training in parental substance misuse for all healthcare professionals and social workers. ‘Alcohol abuse has become a national pandemic and needs to be treated as such,’ it says, and the group is calling on all political parties to commit to the ten measures.

‘Due to alcohol, one person is killed every hour and 1.2m people are admitted to hospital a year,’ said the group’s chair, Tracey Crouch MP. ‘Getting political parties to seriously commit to these ten measures will be a massive step in tackling the huge public health issue that alcohol is.’

Political parties ‘run for cover when they are confronted by the drinks industry and its immensely powerful lobby,’ added vice-chair Lord Brook of Alvethorpe. ‘These proposals give them another chance to consider whether they really have the guts to take a different line for the country’s wellbeing in the future.’

All Party Parliamentary Group (APPG) on Alcohol Misuse manifesto 2015 at www.alcoholconcern.org.uk

Legal high deaths ‘could’ top heroin deaths, says CSJ

The rate of deaths linked to new psychoactive substances could be ‘higher than heroin’ within two years, according to a report from the Centre for Social Justice (CSJ) think tank. Hospital admissions related to new psychoactive substances rose by 56 per cent between 2009 and 2012, says Ambitious for recovery, which forecasts that deaths could reach 400 a year by 2016. 

The report calls for measures similar to those in place in Ireland to make it easier for police and courts to close ‘head shops’ selling NPS. It also wants to see a ‘treatment tax’ added to the cost of alcohol to fund ‘a new generation of treatment centres’ and states that Public Health England and local councils ‘risk giving up on many addicts’, with the treatment sector mainly concerned with ‘managing’ people and the government’s FRANK education programme ‘shamefully inadequate’.

‘Far too many’ people are prescribed opiate substitutes, says the CSJ – which was set up eight years ago by Iain Duncan Smith – ‘effectively replacing one addiction’ with another. ‘The most effective way to overcome addiction and eliminate its costs is to help people to stop taking drugs and become fully abstinent,’ states the report. ‘Yet as the CSJ has long argued, treatment services have continually failed to support abstinence-based recovery. Despite warm words in its 2010 drug strategy, this government has failed to create the recovery revolution that it promised.’

A ‘treatment tax’ levy of 1p per unit could raise more than £1bn for abstinence-based treatment over five years, says the organisation, with the government urged to ‘look at reducing welfare payments for claimants who continually refuse to address their addiction’ once the additional treatment centres are up and running. It also suggests piloting a ‘welfare card’ scheme, where a proportion of benefits would have to be spent on essentials such as food and clothes. ‘This would apply to alcohol or drug addicts with dependent children who refuse treatment and who have not been in work for a year,’ it says.

‘Addiction rips into families, makes communities less safe and entrenches poverty,’ said CSJ director Christian Guy. ‘For years full recovery has been the preserve of the wealthy – closed off to the poorest people and to those with problems who need to rely on a public system. We want to break this injustice wide open.’

Ambitious for recovery at www.centreforsocialjustice.org.uk

August 2014

Autumn July

In this month’s issue of DDN…

‘The idea is that you have a pathway from the street into supported housing and then into independent housing… What you can’t do is put people in mainstream housing and leave them there.’

DDN reports from the Recovery Festival 2014, where delegates heard what could be done to address the lack of provision of decent housing, and how the right policies and culture could help meet the challenge of reintroducing people to stable employment. Click on the links below to read more, and don’t forget to join the discussion by commenting, tweeting and liking our Facebook page.

PDF Version / Mobile Version

 

Step by step

Reintroducing people to stable employment and supporting them in the workplace are challen­ges that can be met with the right policies and culture – and a dash of inspiration, heard delegates at the recent Recovery Festival. DDN reports from the 2014 Recovery Festival

Screen shot 2014-08-19 at 14.26.54‘How can we get employment at the heart of our services,’ asked Selina Douglas, managing director of substance misuse and offending at Turning Point. ‘We’re a social enterprise with an ethos of helping and supporting,’ she said. ‘So how can we join up a network of social enterprises? Let’s get some energy behind it.’

There were many questions surrounding barriers to employment. ‘How do we give people hope that there’s employment at the end of this?’ she asked. ‘How can we make sure frontline staff are positive and motivated? How can we make partnerships real and get people into employment?’

The reality of the sector was that we were being asked to do more for less, but partnerships – such as those with colleges, training providers and the job centre – were more important than ever.

Turning Point’s ‘Back in Business’ model involved talking to people about their aspirations and how to reach them, and included looking at life skills, literacy and IT, as well as offering trial interviews.

‘It’s important we talk about these small goals and steps,’ said Douglas. Turning Point was also keen to ‘help social enterprises to stand on their own two feet’, and had been working with Business in the Community to build relationships with local business and tackle stigma in the workforce.

Screen shot 2014-08-19 at 14.27.01

Central and North West London NHS Foundation Trust (CNWL) had created a peer support network to bring ‘experts by experience’ into the workplace, said Annette Dale-Perera, strategic director of addiction and offender care at CNWL. Co-presenting with Alan Butler, who was a peer support worker at the Max Glatt Unit, an inpatient detox facility for drug and alcohol addiction, she explained that the success of such schemes depended on thorough preparation with the staff teams, getting them used to recovery-orientated approaches.

‘We rewrote policies and renewed support mechanisms – this is a learning experience,’ she said. Supervision, support and training days for the new recruits were enhanced by ‘giving them time and space where they owned the environment and when they shared it with staff,’ she said. ‘It’s about respect.’

While CNWL were ‘very active on keeping staff and experts by experience happy’, through encouraging them to be healthy and active and explore the ‘five ways to wellbeing’, she was realistic that people did sometimes relapse and ‘fall over’. Alongside having robust support systems in place, she said, it was important to ‘try to learn together’.

Having ‘lived in addiction for three decades’, Alan Butler was driven by wanting to use his experience to help others.

‘I came to the unit and wanted to give my lived experience to the patients who were suffering,’ he said. ‘But I didn’t realise how much my experience would benefit the staff, giving them insights they’d never had before.’

Arguing his case to stay at the unit at first (because of the perceived risks to his own wellbeing), the value of his work was quickly recognised and valued.

‘A gambling man wouldn’t have put a pound on my recovery, yet here I am. I would say to patients that if it’s possible for me, it’s possible for them. I’m just a bog-standard addict,’ he said. ‘This work has a value. It provides a lifeline that’s vital.’


‘How do we get to people before they get to chaos?’ asked Martin Blakebrough, chief executive of the Kaleidoscope Project, who presented with his colleague Rondine Molinaro.

Blakebrough described Kaleidoscope’s partnership with Tata Steel, one of the biggest employers in South Wales, which involved helping them to review their drug and alcohol policy and realise that it should be dealt with as a safeguarding issue for people involved in dangerous work.

The skill base of the drug and alcohol workforce could also bring value to many other businesses, he said, such as helping retailers to train security staff in drug awareness. Skills were also useful in helping businesses to reduce stigma and address prejudice that often stood in the way of treatment.

Molinaro ran a peer mentoring service that was targeted on employability. Initiatives included a partnership with Railtrack and a scheme at Prescoed Open Prison, helping prisoners to get references and gain qualifications and work experience.

‘The mainstream media don’t talk about partnership stories, such as The Hub, a volunteer-run café,’ she said. ‘But I’m in recovery myself and I truly believe that finding a job saved my life.’

Peer mentoring services, such as ‘Change Step’ for military veterans and those from the emergency services, were proving to be an effective way of supporting people in the workplace – and a way to ‘save a lot of money for the NHS’, according to Blakebrough.


Screen shot 2014-08-04 at 13.17.49Catherine Sermon of Business in the Community (BITC) explained a campaign called ‘Ban the Box!’, which looked to change criminal record disclosure policy – the tick box on application forms – in a bid to create fair opportunities for people with conviction to compete for a job (DDN, June, page 8).

‘We’re not asking to ban disclosure, just delay it,’ she said. ‘We’re forcing people to scratch their heads.’

One of the catalysts had been her own organisation’s difficulty in getting clients on employment placements: ‘We thought, if we’re struggling, what are the chances for everyone else?’

BITC also ran a programme called ‘Ready for Work’, which helped around 700 disadvantaged people a year to find work, many of whom had had drug and alcohol dependency and convictions. ‘It’s all about challenging stigma,’ she said.

Philip Richards, senior partner in major law firm Freshfields Bruckhaus Deringer, demonstrated the scheme in action, by explaining how the company signed up to the Ready for Work programme and offered 25-30 places a year.

‘You can’t work as a lawyer with a conviction, but there were lots of opportunities for support staff,’ he said. ‘At first we bottled it – we thought the lawyers wouldn’t like it. But the numbers of people going back into jail is a national disgrace, so we asked ourselves whether people could come and do work placements with us.’

Realising they needed help with considering the risks, they talked to probation officers and decisions were made by the company’s global HR. But once the scheme started, ‘the clients have been great – committed, energetic and employable,’ he said. ‘When Business in the Community started “Ban the Box” it wasn’t a difficult decision.’

‘This is a huge problem and we can’t make a difference on our own,’ he added, urging delegates to think about the influence big national companies and public sector employees could have. ‘We need to get the word out.’

Lester Morse and Dan Farnham from East Coast Recovery gave a perspective of how they, as treatment providers and a recovery community, were making clients ‘work-ready’.

‘We’re more than a rehab – we try to create spaces,’ said Morse. ‘We create lots of projects and keep it as close to real living as possible to get the foundations in place.’

Screen shot 2014-08-04 at 13.18.10Farnham described how East Coast Recovery’s range of opportunities, such as their woodworking business, were investing in the recovery of their employees. Together with the education programme, they were making sure people were leaving with the skills necessary to get a job.

Don Shenker, director and founder of the Alcohol Health Network, brought a much-needed perspective on reducing alcohol in the workplace.

‘Most of the population are rubbish at working out how much they drink,’ he said. ‘We are trying to work with the people who are in work but drinking at too high levels.’

Drinking at these levels could have a serious impact on work performance. ‘Our intention is to support people at a much earlier stage,’ he said.

The aim was to work proactively and preventatively in all sorts of ways, rather than reactively, signposting them to support and linking them to local services.

‘But are there other ways we can engage with people we know are stuck,’ he asked. ‘We want to engage the recovery community to bring in expertise. Come and speak to us – we want to find a way of joining the dots together and supporting people in work.’  DDN

Over to you…

Screen shot 2014-08-04 at 13.18.38BBC broadcaster Edward Stourton chaired an expert panel, with contributions from the floor 

Is volunteering viable?

‘Volunteering is really key… employees need to be as clear as possible about working requirements.’ Don Shenker, Alcohol Health Network

‘I was petrified of doing “normal things”, like going into a shop and buying a newspaper. People don’t get that – it’s a petrifying world. If you’re taking on volunteers, it’s important to have structure and support… but sometimes it’s the little things that are important as well.’ Richard Maunders, UKRF

‘There are two problems with volunteering – the first is that you’ll give people the impression you’ll give them a job at the end of it when you can’t. The second is that some employees now see themselves above volunteers. We need to break down the hierarchy.’ Martin Blakebrough, Kaleidoscope

 ‘After 17 years in recovery, I’ve been professionalised. I felt better when I was a volunteer – I felt like I was giving. There should be routes to both choices.’ Ashley Gibson, The Basement Recovery Project

‘How about professionalising and training people rather than just calling them volunteers?’ Andy Stonard, Esprit de Bois

‘Part of the problem is that the conditionality regime doesn’t necessarily support volunteering. It’s important to have a clearer, more consistent message across the board.’ Paul Anders, DrugScope

How can employers be more supportive?

‘It’s about having a conversation with people and having appropriate supervision. Learn from your own experience and empathise with other people.’ Martin Blakebrough, Kaleidoscope

‘Make companies aware that there are different types of issues with problem drinking. Employers have a duty of care.’ Don Shenker, AHN

‘I’m a service user and I come from a corporate environment. It’s dog eat dog out there, so the last thing we were there to do was talk about problems. It was a liberating experience to ask for help; it takes strength to do that. The corporate attitude is all about going on the piss.’ Delegate

The UK Recovery Festival was organised by DDN on behalf of The Recovery Partnership, with the aim of creating a dialogue between the treatment, housing and employment sectors. 

Is anyone in?

Decent long-term housing has been identified as one of the biggest deter­min­ants of recovery, so how can we address a critical lack of provision? DDN reports from day one of the 2014 Recovery Festival

Housing and employment are at the core of recovery, said Marcus Roberts, chief executive of DrugScope, referring to the charity’s State of the sector report. But there were significant challenges. It was not just about the availability of housing, but also the quality. There were significant gaps in housing and housing support, with a distinct lack of suitable accommodation for people still using drugs.

Screen shot 2014-08-19 at 16.58.52Localism had given local authorities more discretion, so it was important for the substance misuse sector to make its case, said Roberts. ‘We need to respond to the new challenges with resilience,’ he said. While the squeeze on local funding was painful, it should also make us ‘think more creatively, with energy and passion’.

There was a lot going on that we could learn from, he said, including the Chartered Institute of Housing’s compendium of good practice and St Mungo’s Broadway’s (SMB) report on the needs of homeless women.

But we needed to fight to maintain a skill base and the ‘multiplicity of people’s needs should be a starting point to rally around’. It was a ‘critical time of challenge, but also of opportunity,’ he said.

Bill Randall, chair of Brighton and Hove City Council’s housing committee, shared his experiences of a densely populated city that had ‘an enormous problem with space for housing’, where local landlords were increasingly reluctant to take people on housing benefit.  The city had 2,000 heroin and cocaine users and although drug-related deaths were now falling, it had had the unenviable title of being ‘the drugs death capital of Britain’ for some time.

‘A real spirit of partnership’ had been key to changing the city’s approach to drug and alcohol problems, pulling together housing providers, public services, the voluntary sector, faith groups and other organisations. Pooling budgets to make the most of diminishing resources was a constant challenge, but ‘returning public health to local government has been critical to changing what we’re doing,’ said Randall.

With much of Brighton’s housing allocated to market rent, shared ownership or sale, imaginative solutions had been needed to help the city’s most vulnerable. One such example was Brighton Housing Trust (BHT)’s scheme of container homes, shipped from Holland, which were of a much higher standard than some of the existing private rented sector.

‘The idea is that you have a pathway from the street into supported housing and then into independent housing,’ said Randall. ‘What you can’t do is put people in mainstream housing and leave them there, which has happened in the past with disastrous effects,’ he added. ‘As someone said at a recent tenants’ meeting, if you put a vulnerable tenant in a block of flats and don’t support them, you make every other tenant vulnerable.’

Screen shot 2014-08-19 at 16.59.05The value of partnerships was underlined by Ron Dougan, chief executive of Trent and Dove Housing, who pointed out that ‘the media love nothing better than to give bad news stories about housing associations and their tenants’, highlighting anti-social behaviour stories as front page news. He admitted that he had himself ‘not been hugely keen to welcome the people that had come through this particular route into our homes.’

His attitude had been changed through a ‘proper partnership’ with the BAC O’Connor, which involved intensive pre-tenancy work.

‘We understand the person and what their needs are,’ he said. ‘We give them just the right amount of support to sustain their tenancy and support them into the community.’ This support extended beyond housing to mobility, mental health, addiction – ‘the whole gamut of problems’. And progress had been encouraging: ‘people we house through BAC have a far greater rate of successful tenancies,’ he said, which made a strong case for housing authorities homing people who had come through the recovery route.

People needed three basic things, he said: a decent home in the right area, continued support including a network of family and friends, and something decent and permanent to do.


Screen shot 2014-08-04 at 13.16.22Susan Fallis, director of Real Lettings, shared an innovative scheme from St Mungo’s Broadway, which helped homeless people to move into the private rented sector while reducing the risks for landlords. It was a simple model, with SMB leasing the property for three to five years, maintaining it, and effectively becoming the tenant.

The short tenancies were ‘no hassle to landlords as they know they’ll get the rent’ and a sustainable business model for SMB. Landlords were charged 17.5 per cent of the local housing allowance as a management charge, which paid for the cost of managing and maintaining the property. 

There was a tight arrears procedure, with tenants being contacted as soon as they missed one payment, but the links with support services meant it was all about tenant sustainment, further enhanced by helping them to gain skills for employment and volunteering.

But things had changed over the last two years as ‘property procurement became a nightmare’. The Local Housing Allowance (LHA) had been capped at 1 per cent, deterring landlords who were relying on a rent increase. The solution was to get people to invest in properties, for an anticipated 20 per cent return.

SMB found a fund manager, the Real Lettings Property Fund, a private rented sector investment fund delivering commercial returns. It was the first property fund in the UK to buy accommodation to support homeless people, and ‘it was not just about the rent to them, it was a true partnership,’ said Fallis.

The aim was to get £45m investment to purchase at least 240 one and two-bed homes in London, near to public transport and amenities. With The Esmée Fairbairn Foundation as the first investor, others were following.

All of this showed what a small social enterprise could achieve in this sector, opening the doorway to procuring large numbers of private rented properties, said Amy Webb, SMB’s Real Lettings manager. This model represented a bridge between the private rental model and services, she said.

While the private rented model was a viable option for vulnerable people, it was essential to have the right kind of support available so they could sustain their tenancies.

‘We’re not support workers, we’re a landlord – but we can create a system where we can provide practical advice and support around how that person is performing in their tenancy,’ she said.

Part of the support entailed taking risk. Rules had been changed so that the tenant could be evicted after 12 months rather than just six, and they no longer had 20-page assessment forms. Instead, the tenant needed to commit to having ‘milestones of engagement’ in a very proactive style of rent management. Rent officers  aimed not to ‘harangue’, but opened doors to sources of advice.

‘We really want people to be able to move on,’ said Webb. ‘Real Lettings isn’t the end of the road – it’s a chance to prove you can develop a rent history and hold down a tenancy.’


Screen shot 2014-08-19 at 16.59.15The long association between the worlds of homelessness and recovery meant there were many opportunities for organisations to work collaboratively together, said Thames Reach chief executive Jeremy Swain.

Dealing with a ‘homelessness backlog’, created by the housing shortage, required creative solutions. Thames Reach’s solutions included a shared housing model with an employment focus, which was supported by social investors. Three people lived in a shared house, with one of the residents given a special role as peer landlord, offering support to others on issues around housing and employment and ‘making shared housing into something beneficial’, according to Swain. With the money from investors, the housing could be offered at below-market rent.

Other housing schemes were creating ‘a realistic package of support’, such as Thames Reach’s partnership with the local authority in Greenwich, CRI and South London and Maudsley NHS Foundation. Another partnership with Vision Housing was enabling Thames Reach to refer rough sleepers into self-contained accommodation, an initiative funded by a social impact bond.

Swain also outlined the benefits of the Housing First model, accepted in the US as the best way of helping people off the street. Unlike many of the housing schemes this model relied on harm reduction rather than the requirement of abstinence, but achieved positive outcomes through linking with long-term multi-agency support.

Housing was an important element to sustaining the recovery model, said Karen Biggs, chief executive of Phoenix Futures – a housing association as well as a treatment provider.

Screen shot 2014-08-19 at 16.59.25‘The model isn’t the bricks and mortar – it’s the process of making sure people have what they need,’ she said. The power of communities played a huge part in that, with meaningful interaction and relationships a vital part of ‘recovery capital’.

A snapshot of Phoenix service users showed that 21 per cent had been homeless, 6 per cent were in full-time employment and 25 per cent had been in care (compared to just 1 per cent of the general population).

Interventions were vital, as service users tended to think they could have little impact over changing their lives. But alongside treatment, it was important to increase ‘personal recovery capital’ through building a sense of optimism, ‘social recovery capital’ through valuing the importance of relationships, and ‘collective recovery capital’ through realising ‘the impact of good quality, decent housing that shows that we value people in recovery.’

The organisation had developed ‘Phoenix Plus’ models as a way of taking treatment gains beyond the treatment setting, an initiative that was supported by ‘an army’ of housing associations.

‘The housing model is the process – it’s not the physical environment someone goes into, it’s not the tenancy that they’re issued, nor their landlord,’ said Biggs. ‘It’s the process of ensuring that there are appropriate pathways to align what people need with their recovery journey.’

There were plenty of barriers to overcome, such as funding cuts and benefit changes. ‘But there’s an opportunity to work together to create recovery communities to take us past bricks and mortar,’ she said. 

Words from the day’s panel session…

How can we work better with private landlords?

‘Each landlord is different, and that’s part of the biggest challenge. There are many different types of landlords and many different types of businesses. You’re dealing with hundreds of small businesses in one area, and that’s very complicated for many councils to understand because they want one person to deal with. Having to deal with lots of small businesses is quite complicated and takes a lot of work.’

Gavin Dick, National Landlords Association

‘When we were doing the State of the sector, we found numerous examples of good partnership working between landlords and treatment providers. They all fell into two or three categories. Some happened by chance. In other cases, there was a local landlord who had some experience of, or sympathy for, substance misuse and treatment, then worked with other landlords to build relationships. Finally, some examples had been brokered by positive local authorities and other organisations who had gone out and made contact with their local landlords and built relationships with them.’ Paul Anders, DrugScope

How can we mitigate the implications of universal credit?

‘DWP recognises that some people in receipt of universal credit may need additional help to make and manage their payment of universal credit. We have been working very closely with local authorities to provide a support services framework (published in 2013), to support people who need extra help. The framework promotes partnership working between DWP and local authorities as well as housing and voluntary sectors. The general idea is that these partners working together actually provide a service to help with budgets and can allow payments to be made directly to landlords.’ Izzie Pragnell, Department for Work and Pensions (DWP)

With Supporting People budgets no longer ring-fenced, what does the future hold?

‘Brighton and Hove have completely protected the supporting people budget. In some places it has been absolutely decimated.’ Bill Randall, chair

‘There is hope – new models are being put into place.’ Paul Anders, DrugScope

Should Housing First mean ‘housing before treatment’?

‘There’s a risk that Housing First is becoming “housing only” and that would be a very grave mistake. Having the support is vital.’ Paul Anders, DrugScope

‘There’s very much an ideological stance behind Housing First. But it’s important to consider those who won’t embrace treatment and their right to basic human rights around housing, regardless of whether they embrace recovery. Good housing, wherever possible, should be a basic human right.’ Alex Boyt, user involvement coordinator

‘Local councils need to look at the community and the bigger picture before rehousing people. In most situations, the policies are not thought through. Local councils need the courage to actually engage and do something about the housing problems in their area.’ Gavin Dick, NLA

The UK Recovery Festival was organised by DDN on behalf of The Recovery Partnership, with the aim of creating a dialogue between the treatment, housing and employment sectors. 

Filling the gap

Screen shot 2014-08-04 at 12.09.41The NNEF was encouraged by the success of its first free training day for needle exchange staff, says the forum’s chair Jamie Bridge 

‘We have no budget for training.’ We heard this plenty of times at previous NNEF events – when budgets get tight, one of the first casualties is staff training. Yet training is essential for this sector. We often have relatively high staff turnover, and staff need to be empowered with the knowledge and confidence to provide the best advice to our clients.

The National Needle Exchange Forum (NNEF) is a voluntary network that promotes and supports the provision of high quality needle and syringe programmes. In June, we organised our first ever free training event for needle exchange workers, with parallel courses offered on safer injecting, overdose prevention, peer distribution, and bacterial infections. Trainers from across the country were brought to Liverpool to deliver to more than 80 participants – and the event was kept free of charge thanks to the generous support of Frontier Medical Group, Liverpool John Moores University, and a number of exhibitors.

The feedback from the event was overwhelmingly positive: all of those who left feedback said that they would recommend future NNEF events to their colleagues, and that they were able to access training that they would otherwise not have been able to. As a result, the NNEF will look to provide more training events in the future – at locations across England – to support needle exchange staff as much as possible in their important, lifesaving work.

To find out more, join the forum at www.nnef.org.uk/nnef_join.html – membership is free. 


 Screen shot 2014-08-04 at 12.10.08Nigel Brunsdon was among the trainers at the NNEF event. He shares key messages from his workshop on preventing overdose

 I was lucky enough to be asked to run two half-day workshops on promoting overdose prevention at the NNEF’s free training event. Although drug services and needle programmes have always had a duty to reduce drug-related deaths, this often has in practice involved little more than asking someone if they have overdosed in the last four weeks, with very little in the way of follow-up. Some services do go further, but staff training around this is often just a small aspect of a wider training programme rather than intensive overdose prevention work.

Training people in promoting overdose prevention messages has to include a large amount of ‘myth-busting’; both workers and people who use drugs can have fixed ideas learned from their peers and the media. Challenging these ideas requires sensitivity and understanding.

For example, explaining to a group that walking people around when they’ve overdosed won’t help them. You’re likely to come across someone who has done this in the past, and the person lived. They may have gone though years believing they saved someone’s life, and you have to explain that not only did this not help, but that they might have put the person at a greater risk of injury from falls as well as increasing the overdose risk by delaying the process of getting help. Imagine how you might feel in that same situation.

Overdose prevention also has to be practical and realistic; take for instance the recovery position. Almost everyone I’ve trained has some idea of how to put people into the ‘correct’ position. But how often does this kind of training include coming across people who are not flat on their back with their hands by their sides. Unfortunately people don’t always fall to the floor in a neat and tidy way, they might be slumped over, face down, or even wedged between furniture. If all we do is talk to people about artificially ‘tidy’ scenarios then they won’t be confident responding in real life situations.

During the training at the NNEF, one exercise was for people to develop their own overdose education plans that could be incorporated into the kinds of programmes they worked in. This might be a formal one-hour one-to-one session, a group situation or even just small bite-sized chunks of information that can be delivered while supplying sterile injecting equipment. When developing this kind of plan, think about the resources you have – are you going to give people handouts? What practical exercises can you run (have you got access to a resuscitation doll?) and, of course, are there partner agencies you can work alongside to deliver this?

Both the sessions at the NNEF event were very well attended, showing that there is a real need for this kind of work from the point of view of the workers involved. The last drug-related deaths figures showed more than 500 people died from heroin use. With other drugs added the figures are more than 1,000 people, so this needs to be more of a priority than a couple of questions on an assessment.

Overdose prevention is something that should be done at every stage of drug service work, from brief interventions during needle sessions, right though to relapse prevention overdose work in rehab situations.

Nigel Brunsdon is community manager at HIT and a harm reduction trainer, www.injectingadvice.com

Becoming change-makers

Alistair sinclair WEB. jpgIt’s time to leave our little bubbles and make recovery visible, says Alistair Sinclair

Watching the news last week, the brutality in Gaza, the tragedy in Ukraine, I reflected on the little bubble I live in. It’s easier in the bubble. The brutality, horror and carelessness that exists outside seems so overpowering and huge. Despair poised, ready to envelop and suffocate. Some call this depression and give you pills and/or CBT. Some self-medicate, losing themselves in their dependencies. I cling on, just about, to the belief that in my bubble I can find new paths to tread.

But can I ignore what’s happening outside? Surely what we say, what we do has to be rooted in an attempt to alter fundamental inequalities? Or else, just in terms of my own self-interest, where can I go, how will I recover? How will I be at ease when all the taking notice I do tells me that I live in an asylum that’s making me and all the other inmates sicker?

In July’s DDN I suggested that it’s the sick and the afflicted that bring warnings, answers and healing in a world ravaged by the sane. Not a new concept but I thought it useful to throw out into a treatment and recovery world which often seems to view success as assimilation back into normal society, back into the consumerist/materialist bubble. I was trying to say that for me recovery, co-production and ABCD isn’t about empowering communities to become new producers, consumers and responsible partners in a neo-liberal landscape.

It isn’t about attacking the welfare state and the working-class people that make it work. It isn’t about being praised by politicians and welcomed back into the fold. ABCD is a tool (be careful with tools) to enable individuals and communities to discover or re-discover their power, their agency and capacity to become change-makers. My kind of recovery is liberation, empowerment and social justice. I believe we should start talking about the kind of change we want to bring about, the sort of world we want to live in. I think it’s time to pull recovery from the reductive treatment ghetto and perhaps start to leave our little bubbles behind.

Which is why the UKRF is promoting and supporting recovery month in September – a month which will make recovery more visible all over the UK and perhaps support a rejection of our default deficit thinking. It will be a month that will focus on community strengths and resilience. We want to celebrate and promote the passion, wisdom and strengths that exist in families, neighbourhoods and communities and nurture relationships within and across communities. We want to write new inclusive and hopeful stories.

Recovery month 2014 is shaping up. Writing this I’m aware of 37 events in the UK and the list is growing every day. Alongside the UK recovery walk in Manchester on 13 September there will be walks in Ireland, Scotland and Wales and local walks in other places. There will be festivals, film shows, workshops, cricket matches, parties, all sorts of stuff, big and small – lots of people coming together to share, learn and have fun. Lots of people stretching their bubbles, perhaps even stepping outside for a while. Making the path as they walk it.

Recovery month 2014 events: www.ukrf.org.uk/index.php/recovery-month/events

Recovery month 2014 t-shirts details here: www.ukrf.org.uk/index.php/recovery-month/recovery-month-t-shirt

Alistair Sinclair is UKRF director

Reaching out

The Reach Out festival in Bristol aimed to raise awareness of carers affected by loved ones’ substance misuse. DHI’s Richard Brookes reports.

For every person grappling with drug and alcohol misuse, it’s estimated that at least five others are affected – husbands, wives and partners, mothers, fathers, siblings, children, grandchildren, friends, employers. Yet, as with most carers, their struggles go largely unacknowledged and under-supported.

_DSC1684The DHI Reach Out one-day event in Bristol – now in its seventh year – offered a unique opportunity for families and loved ones to share their experiences with peers and professionals. The event included social care professionals, families and carers already in service, and those hoping to learn more as they considered seeking support.

The programme included talks from family members and professionals, as well as a keynote speech from Duran Duran bassist John Taylor on his own personal experience of addiction as both user and concerned other. It also featured stories of recovery from three family members, who bravely chose to break the silence associated with caring for a loved one struggling with substance misuse and highlighted the value of accessing support. ‘I was only interested in getting help for my son,’ said one family member. ‘The thought of getting help for me was not something I considered. It felt selfish.’

One of the key aims of the event was to gain first-hand insight from families and carers on how to improve services. With a wide range of professionals from across the south west present, Reach Out was an opportunity to give loved ones a voice where it mattered and play an active role in shaping services for others.

Rosie Phillips, DHI’s CEO, said of the event, ‘It is impossible to underestimate the effect of addiction on families and carers of those misusing. Many suffer anxiety, depression and poor health because of the stresses and strains in their lives. This conference brought them together, alongside drug treatment and other professionals, to enable them to shape services and get the best possible support.’

_DSC1693The Helping your loved one by helping yourself session worked to develop a user-generated toolkit on regaining control of your own life and wellbeing, designed by families and carers for families and carers. The toolkit is currently being edited and designed and will be freely available from DHI’s website later this year.

Important suggestions for the toolkit included using case studies of family members’ journeys through the service to give carers relatable insight into how their situation could be improved. It was also identified that clear, easy to understand information about the nature of addiction and the cycle of change that helps carers understand what is happening to their loved one was crucial, and that there needed to be greater promotion of the positive impact that looking after yourself can have on your loved one’s chance of recovery.

The workshop was co-facilitated by Gareth Ellaway, treatment services manager for South Gloucestershire. ‘This was an extremely positive experience for those involved, many of whom had previously accessed our families and carers services as clients. To now be able to turn what was for many a very harrowing experience into something positive that may help others was clearly very empowering,’ he said.

It can take up to seven years for a family member or carer to seek help. A workshop on first steps for families and carers asked why it took so long to access support, and aimed to develop actions to address the situation. This session proved very popular with families and carers, who had plenty to say regarding their own experiences.

Workshop attendees identified a number of possible reasons for the delay in seeking help. Many families and carers had been purely focused on looking after their loved one and had no interest in seeking help for themselves. Some had felt they could ‘handle the situation’ within the family unit. It was only later they realised that their concept of support may have actually enabled their loved one to continue with their substance misuse.

The majority of participants also had no idea that support for families and carers was available, even after numerous meetings with their local GP or hospital, and there was a lack of general public awareness and understanding regarding the issue that left many feeling too isolated or ashamed to seek help.

Screen shot 2014-08-04 at 11.56.14Peter Main, Bristol’s first openly gay lord mayor, also gave some insight as to how this issue specifically affects the LGBT community. Peter’s partner died five years ago from complications caused by alcohol dependency. ‘There is a double stigma for members of the LGBT community affected by a loved one’s alcohol use,’ said Main. ‘They must not only summon up the courage to seek help regarding their partner’s addiction, but are then faced with the significant prejudice that still surrounds homosexuality.

‘To raise awareness of support available you have to go out and engage with these communities directly. This is why after taking part in today’s event I will be helping DHI promote their support services at the Bristol Pride festival in July.’

Many of DHI’s family practitioners have raised the issue of it being difficult to persuade clients of the benefits of group support. Another workshop gave those who have been reluctant to attend groups the chance to experience a taster of how they work without committing to actively participating.

One carer commented, ‘I had never felt comfortable enough about what was going on in my life to join one of the groups. I thought it would all be too raw. But I’m now more open to it, and can see it might be something I’ll benefit from in the future.’

Keynote speaker John Taylor shared his own personal experiences of addiction and its impact on others. ‘Events such as these are vital to both the families and support communities dealing daily with issues of addiction,’ he said.

‘So often they feel isolated, unclear of how to proceed and silenced by the stigma they perceive to be attached to this widespread and indiscriminate disease.’

A longtime supporter of DHI, Taylor spoke frankly about his own struggles and the value of support from services and peer support groups. ‘A day like today is important because people need encouragement. One of the big problems is acknowledging the problem, that’s the first thing. And then knowing there are solutions out there and connecting people is a big part of it too.’

Photos by Pete Cranston

DHI runs families services across Bath and North East Somerset, South Gloucestershire and Bristol, and the event was supported by South Gloucestershire Council, Bath and North East Somerset Council and Rotork. www.dhi-online.org.uk

The 2014 Adfam/DDN Families First conference will be held on 23 October in London, aimed at helping to equip family members and those who support them to deal with the challenges of addiction within the family. For more information, click here

The realms of possibility

Sunny Dhadley

Sunny Dhadley talks to David Gilliver about peer mentoring, raising awareness and the importance of seizing the moment

‘Anything’s possible if you make the most of your opportunities,’ says Sunny Dhadley, service user involvement officer at SUIT and director of the Recovery Foundation CIC in Wolverhampton. ‘Or create opportunities if they’re not available.’

He first entered treatment at 19, the beginning of a long period of being ‘in and out’ of services, he says. ‘Once I started using heroin and crack cocaine it was initially a matter of me saying, “I can stop if I want to stop” but it soon became apparent that it wasn’t going to be that straightforward. I thought my life would still work out the way I wanted it to, but I was constantly being pulled back by my addiction – I had traits of my previous life that were apparent within my treatment journey.’

He finally completed his detox eight days before his wedding day in 2007, which was also his 27th birthday, leaving him drug-free but unsure of what to do next. ‘I didn’t know who I was or what I enjoyed doing,’ he says.

One thing he did know was that he wanted to try to ‘influence other people not to go down the same road’, and decided to get involved in volunteering. ‘I had to find out about it myself – I had no guidance in terms of someone saying, “do this course” or “go and see these people” – and within quite a short time I found myself managing the organisation that I’d started volunteering at.’

That was Wolverhampton’s SUIT (Service User Involvement Team), which originally launched with just two staff and one volunteer. ‘It was in its embryonic stage really when I took over, so I kind of had a blank canvas, other than contractual obligations,’ he says. ‘The service developed very much as a result of the needs and wants of the service user population.’

As well as his role as service user involvement officer with SUIT, he also set up the Recovery Foundation last year. ‘SUIT sits within an infrastructure organisation – which is a non-drug and alcohol organisation – the local CVS [council for voluntary services],’ he explains. ‘That’s been a fantastic place for our organisation to be based because we receive a lot of support and resources from the voluntary sector.’ The arrangement is not without its downsides, however, and it was this that provided the initial impetus for the Recovery Foundation.

‘It soon became apparent that what we were doing was growing but when I was looking to expand, the local funding channels that we had were diminishing,’ he says. ‘So I wanted to find ways for us to go about attracting additional funding so we could increase the range of work we do, and I set up a CIC as a way for us to be able to do things outside the scope of our current contract, which is restricted by the SLA [service-level agreement]. And also there were issues of people not wanting to fund a small organisation that was part of a larger organisation, when they looked at the larger organisation’s overall income.’


In June it was announced that SUIT had won one of the Queen’s Awards for Voluntary Service, established to recognise the ‘outstanding contributions made to local communities by groups of volunteers’ and with an equivalent status for voluntary groups as an MBE. ‘For me, accolades are brilliant and we’ll lap them up, but it’s not what we set out to achieve,’ he says. ‘But SUIT is made up completely of people in recovery from drugs, alcohol and criminal involvement, so to be awarded the Queen’s Award was a fantastic achievement for everybody involved. And attending a royal garden party – if someone had said that to me eight or nine years ago, I’d have laughed my head off, to say the least.’

Drugs can be a particularly taboo issue in the Asian community, with people afraid to be seen accessing services and worries about bringing shame on their families. What sort of things can realistically be done to tackle that? ‘I think there are a number of things – proactively encouraging people from different ethnic groups to access treatment and outreach work in the community, and also if we could get certain kinds of establishments and people onside I think that would help. I’m particularly thinking about faith groups, because a lot of people tend to turn to faith as a way of getting the help and support they need.’

While this would mean tackling prejudices in some instances, raising awareness is key, he believes, ‘not just in the Asian community but any ethnic group, because public services are open to all members of the public, as the name suggests. So services need to be doing more to encourage all members of the community to access them.’

Should there be more drug workers from BME communities, in that case? Some people say that’s a vital issue, while others are less convinced. ‘I’m going to say yes because I think any workforce – particularly if they’re public-facing and public-supporting – should be mirroring the communities they serve,’ he states. ‘That’s not to say we should have positive discrimination, but in terms of connecting with individ­uals, I think if people from BME groups could see people in services who they could maybe relate to in terms of their ethnicity it would be a step in the right direction.’

One of his main passions remains peer mentoring, and it’s an area of work he’s hoping to expand. ‘I’ve been heavily involved in it since before it was even called that,’ he says. ‘It’s not a surprise to me that there’s so much emphasis on it and it’s so much in the limelight, because of the outcomes that can be achieved. One of the things I’m really looking forward to extending is helping other areas in developing really meaningful peer support-type programmes that add value to the local treatment systems.’

He’s currently involved in doing that on a consultancy basis in another region, Telford and Wrekin, supporting an after-care service and ‘really developing a robust way of evidencing what they do – having strong governance structures in place and effective monitoring tools so that they can really show and demonstrate to local stakeholders the difference they’re making to their community.’

This is something he’s now looking to do on a bigger scale, possibly through the creation of a social franchise of the model he’s helped to develop in Wolverhampton. ‘That means other areas can benefit from all the ups and downs and left and rights and diagonals we’ve been through, and have something really dynamic and innovative in place,’ he says.

The consultancy work has also helped to give him some perspective on his own service and locality, he explains. ‘It’s only by coming out of your area that you can see all the things you have in place that you take for granted and other people don’t have – performance management, financial systems, governance structures, a robust volunteer programme. These are all the things I’m working on in helping this organisation to develop.’


On top of his work with SUIT and the Recovery Foundation, he’s also sat on boards at the Skills Consortium for Substance Misuse and Public Health England, is soon to become part of the All Party Parliamentary Group on Drug Misuse and is a third sector representative on Wolverhampton’s police and crime board. ‘That’s good on two counts,’ he says. ‘I can bring the background and knowledge of substance misuse, but also being from the BME community gives me a double-pronged approach to looking at supporting and influencing police objectives and plans. It’s been really interesting to be involved.’

He’s lately also become involved in Operation Black Vote and their West Midlands civic leadership programme. ‘I thought it was a fantastic opportunity to get behind the scenes and have a look at some of the civic roles that affect all of us. So as part of that I’ve had training on becoming a trustee and I’ve been shadowing the leader of Wolverhampton City Council, Roger Lawrence, to kind of pick his brains and find out what his function and role is. When I shadowed him it was in the midst of some really challenging times in terms of funding cuts, so it was really interesting to see how he handled that.’

On top of all this he was also part of a campaign to get local MEP Neena Gill re-elected, and now has aspirations to possibly run himself at some point. ‘I canvassed with Neena and just kind of badgered her and asked her questions, and she was really supportive,’ he says. ‘I was part of a successful MEP campaign so hopefully one day I’ll get to run my own.’ So does he ever have any free time? ‘Well on top of that I’ve got two very young children,’ he laughs, ‘so I could do with a few more hours in the day and a few more days in the week.’

While it would be tough to pick a highlight out of the last few years, one would have to be meeting the Reverend Jesse Jackson, as part of the 50th anniversary commemoration of the march on Washington DC, he says. ‘He said, “Learning and literacy are the key to liberation”. He was talking about the civil rights movement but it’s obviously the same for any vulnerable or marginalised groups, so I think it applies perfectly to substance misuse as well.’  

www.suiteam.com

Right to choose

Rosie Mundt LeachWith family planning a sensitive and controversial subject, the sexual health needs of service users can be overlooked. Rosie Mundt-Leach tells DDN how a south London drug service has teamed up with commissioners and sexual health experts to offer open in-house clinics, with promising results

The pain of a pregnancy ending in a baby being removed into care immediately after birth is one of the most distressing experiences known to those involved in drug and alcohol treatment – yet it is all too familiar to drug and alcohol service users, their families and clinical staff. When it has happened once to an individual woman, it is more likely to happen again when another pregnancy occurs – often very soon after the first removal, and with no time to achieve stability before the mother is once again traumatised and demoralised even further.

The Hidden harm report (2003) recommended that contraceptive services should be provided through specialist drug agencies, but this has not happened in practice. Staff at South London and Maudsley NHS Trust (SLaM) addiction services approached colleagues in Guy’s and St Thomas’ NHS Foundation Trust (GSTT) community sexual health and asked for help to make contraception available to women with substance problems, while enabling them to retain their fertility and have the best possible chance of successfully conceiving and keeping their children when their recovery was secure. Two years later, we can evaluate the success of this joint working and look at further ways to help marginalised people gain access to sexual health services.

An audit in 2012 showed high levels of unmet need for contraception among women using SLaM addiction services. Sexually active women said they were worried about pregnancy, but were not using contraception. In April 2013, using one-off start-up funding provided by Southwark drug and alcohol commissioners, an agreement was reached that the consultant in community sexual health and HIV from GSTT together with our already established BBV nurse would start providing health care on drug service premises. 

Due to administrative delays, direct work with patients did not start until June. While waiting, links were made with a brand new, fully equipped, sexual health clinic just ten minutes’ walk from the Southwark community drug and alcohol team (SCDAT) base.  Staff at SCDAT visited this clinic and actively informed service users about it. Privileged access was provided so there would be no need for appointments and no queuing, but even so, only one person per month used this opportunity, demonstrating that an in-house service might be more effective.

In June 2013, the in-house clinic opened for four hours per week, backed up by some additional visits outside clinic hours when SCDAT service users asked to see the sexual health consultant. There have now been 52 clinic sessions and a total of 184 consultations; 43 individual men and 74 women have received services. Some people have come with a partner (both different sex and same sex), many have come on their own, and often introductions have been made by their key worker.

A total of 74 sexually transmitted infection (STI) screens have been carried out and 67 BBV (including HIV) screens. Treatments for STIs have been started and/or completed and the risk of transmission has been eliminated. Twenty-five women have received (often long overdue) cervical smears. Investigations of incontinence, sexual dysfunction, and prostate cancer have been carried out, and concerns about sexual abuse, sexual assault, intimate partner violence, and infertility have been raised and suitable referrals made.

Long acting reversible contraception (LARC) gives drug and alcohol dependent women the opportunity to delay pregnancy while establishing their recovery. If the woman chooses to stop the method it is removed and fertility is restored – she doesn’t have to give a reason for asking for removal, this is done immediately, at any time, on request without question. The hormonal contraceptive Depo-Provera (depot medroxyprogesterone acetate, or DMPA) is an exception to this, as the 12-week injection itself cannot be reversed and there can be a delay before fertility resumes once the method is stopped; this is always explained before a woman chooses this method. None of the LARC methods prevent STI transmission, and none are prone to failure due to user error as is the case with oral contraceptive pills and condoms.

Data shows that individuals using the clinic represent service users with the most complex needs and the most severe poly-drug and alcohol dependency. This demonstrates that the clinic is meeting the needs of drug and alcohol users who would not otherwise attend any sexual health service, and is not just being used as an alternative to mainstream services by people who have milder addiction problems. Women were more heavily represented in the group using the service, although they only make up one third of the CDAT population, so we are satisfied that they are gaining more than fair access to the provision that they need.

The average number of consultations per clinic session is 3.5, leaving room for more, and we have provided contingency management to increase uptake. Small value shopping vouchers of £2 have been offered to people for having an STI screen and £5 for those having a LARC method or a cervical screen. This gained ethical approval and is in line with local policy for incentivising BBV screening and vaccination. The sums were deliberately kept small in order not to bring undue influence to bear on decision making.

We believe that the most important factor influencing attendance at the clinic is accessibility and also providing additional training to drug service key workers to enable them to become more confident in recognising unmet sexual/reproductive health needs and to talk in more depth about options.

We opened a subsidiary clinic in another smaller agency run by Blenheim that is also part of Southwark Treatment and Recovery Partnership. However, we found that the uptake was low, so this was suspended. All service users from any drug/alcohol treatment agency in the borough are invited to use the clinic at SCDAT, so nobody is excluded.

Both sides of the professional partnership have learned valuable lessons from one another and from the service users’ reactions to the new service. The addiction staff group was originally focused on contraception, but soon realised the huge benefits to patients of a full sexual and reproductive health service provision, including STI screening and treatment, initial management of sexual dysfunction, genital skin problems, cervical screening, initial management for fertility and menstrual and bladder problems. 

The sexual health staff found how closely addiction staff work with service users and how fundamental the key worker relationship is to enabling people to take up healthcare. Simply placing a sexual health clinic in the drug service would not have worked – the partnership between staff, service users, reception staff and peer mentors was vital to the project being accepted and used. The most important factors in overcoming reluctance to attend the clinic were the expertise of the staff and word of mouth that the treatment was quick, painless and empathetic.

Working with drug or alcohol dependence provides technical challenges for clinical staff, which this approach has succeeded in addressing. Firstly, our BBV nurse who supports the clinic has a local reputation for expert blood taking skills, so blood tests are done quickly even for people with very poor veins, and everyone knows they have nothing to fear. This facilitates STI screens and liver tests. 

Secondly, liver damage is a relative risk factor that has to be assessed when providing most prescribed contraceptive methods. Having a consultant-level clinician available to assess that risk is an efficient way of safely establishing the options that are available to the woman concerned and confidently helping her to decide how she wishes to proceed.

The host drug/alcohol service needs a relatively high level of daily visits to make adequate use of the time of the specialist service providers. Even though numbers seen in our service have been relatively low each week compared to mainstream sexual health services, the positive impact is disproportionately high. Undetected and untreated STIs, incontinence suffered in silence, hidden sexual dysfunction and worries about cancer are bad enough, but the human and financial costs of an unplanned pregnancy where a baby will be placed in care (care proceedings alone cost £25,000 per child) are devastating. We believe that we have found a way of addressing these issues by providing an in-house reproductive and sexual health clinic.

We were delighted that the clinic won the 2013 David Bromham Memorial Award from the Royal College of Obstetricians and Gynaecologists’ faculty of sexual and reproductive health in recognition of innovative sexual health practice. We are now looking at developing our approach in other drug services and we are also considering the implications of what we have learned for people with mental health problems and for other socially disadvantaged people who may be at risk of exploitation or unplanned pregnancy with a high risk of repeat removals of children into the social care system.

Rosie Mundt-Leach is head of nursing for the Addictions Clinical Academic Group, South London and Maudsley NHS Foundation Trust.

Letters

LettersThe DDN letters page, where you can have your say.

The next issue of DDN will be out on 8 September — make sure you send letters and comments to claire@cjwellings.com by Wednesday 24 August to be included. Letters may be edited for space or clarity – please limit submissions to 350 words.

 

Vital legacy

Caroline Blackburn’s obituary captures her passion for service user work. Yet other things need to be mentioned.

Advocacy and peer-based work are very much needed today. With resources increasingly under pressure, independent advocacy may be seen as an unaffordable luxury. However, conflicts frequently occur between service users and professionals in addiction treatment. Some remain unresolved – through impasse, drift, unnecessarily bureaucratic pathways/criteria, clinically imposed decisions, communication breakdown or lack of confidence among service users to broach their true feelings about their treatment. 

Such situations will invariably impact negatively on people’s recovery and the overall effectiveness of resources. They only become visible if managers acknowledge that fallibility in treatment conversations is not limited to patients, and invest in independent ways of capturing, counting, expressing and making sure that such issues are present, supported, and understood as a wider measure for service improvement. Some localities did this.

 Advocacy is an art. Caroline had this in bucket-loads and was respected by service users. Her work was grounded in service users’ own experience – while reminding them of their responsibilities. It is a pity that in these hard times, this approach is rarely seen. Perhaps this may not be because of the case for such work, but rather, unwillingness in localities to face up to uncomfortable truths.  Equally though, a lack of capable leaders of service user organisations makes life easy for some to portray everything as rosy.

Caroline was deeply respected. Those close to her understood that she helped change numerous lives for the better. She was a qualified counsellor, and a committed advocate. Readers should perhaps recognise this by critically reflecting on present provision, and continue asking ourselves this important question: Who now independently engages with individual service users’ views about their treatment, and advocates for them – regardless of their treatment goals?

Name and address supplied

 

Radical talk

A couple of years ago I wrote a blog article about the strained relationship between radical politics and drug dependency. I was reminded of this blog on reading Alistair Sinclair’s excellent article ‘Catching the Wave’.

A bit that I find fascinating is the line ‘we have been discouraged… from looking at the mine itself.’ Discouraged by whom, and why?

Sinclair’s article talks with the passion of a fin de siècle theorist of how we are ‘staring in to an abyss and facing the challenges of modernity’. Radical talk indeed. Almost revolutionary. How well does such radicalism sit alongside 12-step traditions?

While the spaces that the recovery community creates may themselves be apolitical, they are unavoidably located within a wider political context. The political idealism which has driven much of what is now labelled ‘recovery’ has very definite views of canaries and mines and recovery. Once recovered, a canary should very much get itself back down the mine, and become a hard-working canary, especially if it wants any more millet.

Far from critically looking at the society that creates the sickness, the political paymasters are disinterested in healing a sick society rooted in inequality. They want the sick well so that they can go back to being efficient healthy cogs in the machine, but with an adjusted mind-set that allows them to cope with the machine better, in gratitude and humility.

Extracted from ‘Old waves, new waves, permanent waves’ on the KFX drugs blog at www.kfx.org.uk

 

No quick fix 

Alistair Sinclair makes an interesting analogy about society’s casualties, as canaries in the mine, in his article ‘Catching the Wave’. His idea of looking at the mine itself is bold, even revolutionary in its ambition. In the meantime the widely held therapeutic approach of fixing such casualties and returning them to productive life needs to be challenged for other reasons.

 Many, if not most, problem substance users never had a productive life to return to. Similarly this also applies to concepts of rehabilitation as it implies that such people were habilitated before their problems began.

 So rather than seeking to return these damaged people to productive lives or re-habilitating them, a different approach is needed. Better to begin working with the recognition that they lack important life and social skills, having never known or learned them in their young lives. An assumption that they previously knew how to manage in our ‘sick nation’ or were somehow previously productive is to miss a trick and overlook key deficits, which are maybe why they became ‘canaries’ in the first place.

 The role of canaries has been phased out by different and changing approaches; therapeutic recovery approaches may need to begin from a different place.

Andy Ashenhurst, Canterbury

 

The way forward

As an ex-drug worker I used to constantly believe in all of this (‘The Buddhist Way’, DDN, July). Unfortunately the best I got out of my agency was to allow yoga once a week, which in itself was amazing for the clients but not enough. Let’s hope this is the true way forward.

Becky

On The Buddhist way, July 2014

  

Get involved!

Consultation is now active for DDN’s annual service user conference, with a steering group meeting taking place in September. We want your ideas on the programme and suggestions for speakers. Never has true SU involvement been more vital and we need to make sure the conference addresses your concerns and reflects your priorities.

Please click here.

Mind the gap

Amar_smallWEBEmployability support should be an important part of tackling reoffending rates, says Amar Lodhia

Last month I was invited to take part in a ‘MOPAC Challenge’, a regular deep dive into one aspect of criminal justice conducted by London’s deputy mayor for policing and crime, Stephen Greenhalgh. Held at City Hall, this particular MOPAC Challenge focused on substance misuse; I was representing the charity sector alongside Addaction. We were joined by senior officials from the NHS, local authority community

safety teams and, of course, the Metropolitan Police service.

During the session, we reiterated our belief – which we’ve made in this column many times – that employment and self-employment work. I also spoke about the natural entrepreneurial flair in many of the people we encounter and how this needs to be channelled into something positive for the individual and for society.

But our key point, which I’m glad was supported by other participants at the challenge, was to identify a gap in the provision and resourcing of employability skills in the Integrated Offender Management (IOM) teams with local crime fighting forces. These are multi-agency hubs, run by the police, looking to bring together a wide range of organisations to help tackle the most prolific of reoffenders, up to a third of whom also have substance misuse issues. However, we’ve found that employability support and promoting self-employment is one area that, in most cases, is missing from these IOM hubs – support that we know can help reduce the rates of reoffending and substance misuse.

Of course, having identified the gap, the challenge now is how to fill it. It’s an area that we know the deputy mayor took on board as one of his three actions from the session, and which we hope to be supporting him on, given our experience.

In fact, this is the gap that we are hoping to fill in West Yorkshire. We recently visited three major IOM hubs there as a part of our planning for an innovative service to reduce crime and drug-related crime in the region. These Integrated Offender Management teams were some of the first to be set up anywhere in the country and have been having a real impact in reducing the levels of reoffending. The visit confirmed everything we’d been saying about a gap, but they also reminded us how we can achieve so much more when agencies and organisations work together.

How to get these smaller organisations and charities working and delivering in the public sector, in the face of competition from far larger organisations, is an issue that will exist at least until the general election next year. The shadow social enterprise minister, Chi Onwurah, announced that a Labour government would offer some government contracts that only not-for-profit organisations could bid for. Following one of the biggest shake-ups in government since the 1960s, the departing minister for civil society, Nick Hurd, urged the prime minister to do more to enable small charities and social enterprises to win public contracts. As we get closer to May 2015, I hope we’ll hear a lot more from all the political parties on this subject, but I’m keen to get your thoughts as well.

To enquire more about our work, please contact me at amar@tsbccic.org.uk and follow me on Twitter @amarlodhia or @tsbclondon. Don’t forget to use the #tag DDNews when tweeting!

Amar Lodhia is chief executive of The Small Business Consultancy CIC (TSBC), thesmallbusinessconsultancy.co.uk

Media savvy

Who’s been saying what..? DDN’s round-up of what’s being said in the national papers 

 

When laws are widely flouted they cease to be laws and instead become instruments to punish certain members of society. When the government sacks its chief drugs advisor for stating scientific facts it exposes itself as arrogant and unheeding. When billions are pumped into prohibition without producing any significant reduction in drug use – during a period of austerity no less – it makes a mockery of our system of governance.

Alex Horne, Independent, 4 July

 

In the boomerang sting that stung the stinger, [Mazher] Mahmood posed as a Bollywood producer and enticed Tulisa [Contostavlos] to Las Vegas to discuss paying her £3m to star in a movie with Leonardo DiCaprio. Two minutes into the pitch, a less naive soul would have thought: “Aye, aye, it’s that tosser Mazher Mahmood.” …Beyond the priestly enclave of the red-top news conference, does anyone care if a music industry twentysomething likes the odd line? Or claims, after being plied with booze, to be willing to facilitate a deal to ingratiate herself with an apparent film producer? …Targeting a vulnerable young woman with the intent to destroy her is a deeply despicable act of bullying.

Matthew Norman, Independent, 22 July

 

Failed relationships, aspirations not achieved, mental breakdown, poverty, unhappiness, alcoholism, drug addiction. All of that the consequence of someone having behaved badly towards them several decades before. Maybe put a hand on their thigh. Maybe worse. And you dare not gainsay these furious litanies of complaint, because if you do then you are in some way complicit. It is a bizarre state of mind, in my opinion, that enables normally rational people to swallow this paradigm – the official paradigm now – whole, and does not question it at all, just accepts it as fact.

Rod Liddle, Spectator, 12 July

 

We must challenge those who label drug addicts as weak. Only then can we call ourselves a compassionate society.

Liz Macdonald, Guardian, 24 July 

 

A judge has ruled that an American drugs dealer [Johnny Callie] can’t be deported from Britain because he has a ‘human right’ to free medical treatment on the NHS… Callie’s case was bolstered by a supportive letter from the Norfolk and Suffolk Probation Trust. There’s a surprise. The Guardianistas who run the probation service would consider Callie a valued ‘client’. The interests of the wider public are never taken into consideration.

Richard Littlejohn, Mail, 15 July

 

It would be hard to imagine a less deserving case for free healthcare than Callie, a US citizen who was jailed in 2007 for supplying heroin and cocaine. I am sorry that he is said to be depressed and to suffer from diabetes and high blood pressure, but he was part of a trade which has inflicted far more misery and ill­ health on others. Rather than treat him for free, logically Britain should send him a large bill not just for his own treatment but to cover the treatment the NHS has provided for the drug users who bought the heroin and cocaine he supplied.

Ross Clark, Express, 15 July

Getting a fix on figures

aug14Just how closely linked are drug misuse and acquisitive crime statistics?

‘Drinking sensibly, never doing drugs – is this the age of the young puritan?’ asked the Guardian last month. ‘Why drugs are no longer cool: teenagers are internet addicts while their parents snort cocaine,’ offered the Telegraph.

The Health and Social Care Information Centre’s latest figures on falling rates of drug and drink consumption among secondary school pupils (see news story, page 5) made national headlines, just the latest of countless reports over the last few years that seem to confirm that younger people are slowly turning away from drugs – or older-established drugs anyway. While services can struggle to keep up with the growing list of new psychoactive substances, as well as higher rates of image and performance-enhancing drug use, problem heroin and crack use does seem to be increasingly confined to an older, entrenched population, many of whom started using in the ‘heroin epidemic’ of the 1980s when new supply routes meant more drugs coming into the country at a time of mass unemployment.

It’s no secret that the dramatic increases in funding for drug services that came with the advent of the NTA was in part driven by a desire to keep a lid on crime figures, but few attempts have been made to properly map out the link between acquisitive crime rates and problem drug use until the Home Office’s new report, The heroin epide­mic of the 1980s and 1990s and its effect on crime trends – then and now.

According to the document, the national peak of the epidemic was ‘probably’ between 1993 and 2000, while crime peaked between 1993 and 1995. As well as a comprehensive review of existing research literature, the report used police force area-level comparisons of the ‘Addicts Index’ and recorded crime data from 1981 to 1996, alongside modelling the number of heroin/crack users and their offending. 

The police area comparisons showed that ‘different types of theft generally peaked together within an area’ but ‘the timing and size of these peaks varied across areas and was highly correlated with heroin use’, concluding that about 40 per cent of the national rise in the highest-volume crime types – such as burglary and theft from vehicles – from 1981 to the peak could be ‘attributed to rises in the number of heroin users’. The modeling approach, meanwhile, found that ‘heroin/crack use could account for at least half of the rise in acquisitive crime in England and Wales to 1995 and between a quarter and a third of the fall to 2012, as the ‘epidemic cohort aged, received treatment, quit illicit drug use or died’.

However, the document makes it clear that – despite the wide body of evidence drawn together by researchers – the ‘hidden’ nature of the study group ‘means that robust data remain sparse’. The paper is also careful to stress that other factors – most obviously unemployment – also play a significant role, and while peaks in acquisitive crime levels matched the timescales of heroin epidemics in England, the US and parts of Europe, there were also regional exceptions.

The lack of high-quality data means that the fundamental questions of whether opiates/crack caused the crimes committed by the people taking them, and whether the peaks in drug use correlated with peaks in crime may never be answered ‘definitively’, it states. However, ‘on causality, the evidence gathered here shows that opiate/crack use almost certainly generated additional offences, but quantifying this precisely remains challenging’.

The best summary, it concludes, is to demonstrate the existence of an ‘epidemic narrative’ that fits the facts. This is that drug epidemics produced a cohort of users, and a steady rise in crime during the 1980s – during which most of England and Wales ‘remained relatively unaffected by the epidemic’ – then increased ‘very rapidly in the 1990s as every police force area except Merseyside reached its peak of opiate/crack use’. Then, once ‘all susceptible individuals had been “exposed”, the number of new users probably decreased just as quickly as it had risen’ and crime fell – at first quickly as ‘less-recalcitrant’ users quit in large numbers, and then more slowly.

‘The cohort was not homogeneous,’ it states. ‘Many (perhaps most) did not become either long-term addicted or prolific criminals and some were offenders before using opiates or crack. While many probably had the clustering of crime risk factors that c

ould have marked them out for a criminal career in the absence of the epidemic, the cohort probably also included a number of individuals whose only crime risk factor was a suscep­tibility to peer influence at a time when heroin use was spreading in their area. For the first group, heroin use may have accelerated and extended an existing criminal career and for some of the second group heroin may have kick-started a criminal career.’

Perhaps mindful of the potential media reaction, the paper also clearly spells out that the impact was on crime volumes rather than overall harm, which is largely driven by violent and sexual offences. ‘The most important caveat though, is that this narrative does not imply that opiate/crack use was the sole factor driving crime trends,’ it states. ‘Many factors are likely to have been important and interactions may also be crucial.’

Among the policy implications, it says, are that as the number of heroin and crack users continues to fall, it will continue to be at a relatively slow pace, as many older users will have been in and out of services for years, and ‘focusing resources on the most important individuals may be the key.’

The other main policy conclusion, despite shifting drug trends, remains the  importance of preventing a future epidemic, it stresses. ‘Evidence shows epidemics do not strike all areas simultaneously and there is a lag between epidemic start and the moment it becomes visible on treat­ment or criminal justice datasets. Local-level monitoring is therefore crucial.’

Report at www.gov.uk

Young drug and alcohol consumption continues to fall

Illegal drug use among secondary school pupils remains significantly lower than a decade ago, according to new figures from the government’s Health and Social Care Information Centre (HSCIC).

Sixteen per cent of pupils had ever taken drugs, 11 per cent had taken them in the last year and 6 per cent in the last month, says Smoking, drinking and drug use among young people in England in 2013, figures similar to 2011 and 2012 but ‘considerably lower’ than in 2001. Pupils were more likely to have taken cannabis than any other drug.

Thirty-nine per cent had drunk alcohol at least once, but only 9 per cent in the last week, continuing a downward trend since 2003 when a quarter of pupils had done so. Among those who had drunk in the last week, the amount of units consumed was also lower than in previous years. While more than half of pupils thought it was acceptable for someone their age to try drinking and a third thought it OK to try smoking, only 9 per cent thought it was OK to try cannabis and 2 per cent cocaine. The figures are based on a survey of more than 5,000 pupils in almost 200 schools across England.

According to the 2012/13 Crime Survey for England and Wales, 8.2 per cent of adults had taken an illicit drug (excluding mephedrone) in the last year, a fall from 8.9 per cent in 2011/12. While the proportion of 16 to 24-year-olds taking any drug in the last year was almost double the proportion in the 16 to 59 age group – at 16.3 per cent – it was still down on 19.3 per cent in 2011/12. 

Meanwhile, a new Home Office report states that declining heroin and crack use over the last decade – particularly among young people – has gone hand-in-hand with lower rates of acquisitive crime. ‘Studies agree that, in aggregate, heroin/crack users commit a large number of offences; large enough, this paper shows, to be an important driver of overall crime trends,’ says The heroin epidemic of the 1980s and 1990s and its effect on crime trends – then and now.

While the number of heroin users increased substantially during the 1980s and ’90s – and ‘many also used crack as their drug-using career developed’ – the national peak was probably between 1993 and 2000, says the document, while crime also peaked between 1993 and 1995. Previously, the rise and fall in illicit drug use had not been ‘especially prominent’ in the debate about crime levels in the UK, however, ‘perhaps due to a lack of robust data for the whole period’, it adds.

‘Studies disagree about whether it is illicit drug use that causes the criminality,’ says the report. ‘This is because a sizable proportion of heroin/crack users do not resort to theft. And many were offending before taking these drugs. However, evidence suggests that, for at least some users, heroin/crack was the catalyst for offending, and for others it probably accelerated and extended their criminal career. Thus aggregate-level change in numbers of heroin/crack users is likely to affect crime trends.’

See news focus.

Smoking, drinking and drug use among young people in England in 2013 at www.hscic.gov.uk

The heroin epidemic of the 1980s and 1990s and its effect on crime trends – then and now, and Drug misuse: findings from the 2012/13 crime survey for England and Wales at www.gov.uk

 

Funding fears for harm reduction

International provision of harm reduction services is under threat from a funding crisis and lack of political will, according to a report from Harm Reduction International (HRI), the International HIV/Aids Alliance and the International Drug Policy Consortium (IDPC).

Funding has been falling ‘dangerously short’ of estimated needs for some time and is set to deteriorate further, says the document, the result of changes in donor policies and neglect on the part of national governments. The report urges international donors, UN agencies and national governments to take action, stressing that ‘there can be no “Aids-free generation” without targeted efforts with and for people who inject drugs’.

Around 40 per cent of new infections are the result of unsafe injecting practices in middle-income countries – particularly in Eastern Europe and Asia – where around three quarters of people who inject drugs live. However, changes in Global Fund funding policy ‘threaten to significantly reduce’ harm reduction allocations in these countries, says the report. Major international donors like the US and UK are also withdrawing aid from many of these countries because of their middle-income status. Of the 15 countries prioritised by UNAIDS for harm reduction programmes, only Kenya is still classed as a low-income country according to World Bank definitions.

‘Donors are retreating from these countries under the premise that they are wealthy enough to resource their own HIV responses,’ the report states. ‘Yet national governments are often unwilling to invest in services for key populations, leaving existing programmes under threat and scale-up impossible.’ It cites the example of Romania, where many programmes closed following the end of Global Fund support and where a subsequent rise in HIV transmission through unsafe injecting has been reported. ‘Underpinning many of these resource gaps lies a fundamental inhibiting factor: harm reduction services for people who inject drugs are often politically unpopular,’ it adds.

Around $2.3bn is needed next year alone to fund HIV prevention among people who inject drugs, according to UNODC estimates, but only around 7 per cent of that has been invested by international donors so far. National governments are also choosing to prioritise ‘ineffective drug law enforcement’ over harm reduction, even in countries with high drug-related HIV transmission rates, the report says. ‘Just one tenth of one year’s drug enforcement expenditure (estimated to exceed $100bn globally) would fund global HIV prevention for people who inject drugs for four years,’ says HRI.

The funding crisis for harm reduction at www.ihra.net

‘New pledges’ announced as part of alcohol deal

A set of new pledges has been announced by the government as part of its ‘responsibility deal’ with the alcohol industry. They include an end to the sale of super-strength drinks in large cans and more ‘responsible’ displays and promotions in shops.

There is also a commitment to promoting lower-alcohol products in pubs and bars, and making sure that house wines below 12.5 per cent are always available. Initial funding of £250,000 from the drinks industry to provide alcohol education programmes in schools has also been announced.

The responsibility deal was launched as a partnership between the government, the industry and the voluntary sector, alongside similar arrangements with the food industry and others, and originally announced in the 2010 public health white paper (DDN, 6 December 2010, page 4). Controversial from the start, it was branded ‘the worst possible deal for everyone who wants to see alcohol harm reduced’ by Alcohol Concern (DDN, April 2011, page 4), with the charity refusing to sign up – along with the Royal College of Physicians, the British Medical Association and the British Liver Trust – despite government claims that the arrangement would deliver ‘faster and better’ results than legislation.

Other organisations including Cancer Research and the Faculty of Public Health later withdrew from the responsibility deal network following the government’s announcement that it was not planning to introduce a minimum unit price (DDN, August 2013, page 4), and although the government has said the aim is to remove a billion units of alcohol from the market, a recent report on the progress of the deal found that the reduction so far had been a quarter of that (DDN, May, page 4).

‘Alcohol-fuelled harm costs taxpayers £21bn a year. It is therefore right that the alcohol industry is taking action to help reduce this burden, without penalising those that drink responsibly,’ said home secretary Theresa May of the new arrangements. ‘The government welcomes the progress the alcohol industry has made so far in responding to the challenge we set them. We now look forward to seeing the positive impact of these pledges and continuing to work with industry to explore what else can be done to tackle alcohol abuse.’

‘As responsible businesses, we are determined to play our part and have set out a whole new programme of voluntary actions in response to the challenge set by the home secretary,’ said Portman Group chief executive Henry Ashworth. ‘Working in partnership with business is a great way to get positive change happening quickly in towns and cities throughout the UK.’

News in brief

Psychoactive survey

A consultation on new psychoactive substances has been launched by the National Assembly for Wales’ health and social care committee, looking at issues like awareness, legislation, service capacity, partnership working, data collection and international evidence. The committee is looking for submissions from both individuals and organisations and the consultation, which has been welcomed by the BMA, runs until 26 September. ‘Our members are increasingly seeing problems as a result of these substances,’ said BMA Welsh secretary Richard Lewis. ‘Health and education services need to have a consistent way of monitoring these changes as new products are coming out all of the time.’ Consultation at www.senedd.assemblywales.org

ACMD additions

Nine new members have been appointed to the Advisory Council on the Misuse of Drugs, including DrugScope chief executive Marcus Roberts and professor of neuropharmacology at the University of Reading, Ben Whalley. ‘Their considerable experience and expertise will further strengthen our council,’ said ACMD chair Les Iversen.

Continental comparisons

A Europe-wide overview of the history and availability of residential provision in different national drug treatment systems has been published by EMCDDA. Among the areas looked at in Residential treatment for drug use in Europe are coverage, organisational structure and treatment components. Available at www.emcdda.europa.eu

A brief word

More than 100 people attended a training and networking event in Monmouth last month to promote ‘Have a Word’, the national alcohol brief intervention training programme for Wales. ‘The “Have a Word” training has enabled over 6,000 people in Wales to identify hazardous and harmful drinkers and provide advice to reduce alcohol-related harm,’ said the Kaleidoscope Project’s alcohol service team leader and training coordinator, Tom Damsell. ‘By working in collaboration with Public Health Wales to deliver the training and by putting on events like this, I hope that in a few years time alcohol brief intervention training will be commonplace and fewer and fewer problem drinkers will be slipping through the net into alcohol dependency. 

Sensitive subjects

A briefing to help ensure that pupils receive relevant alcohol and drug education in the context of cultural differences has been published by Mentor ADEPIS. Making it inclusive: alcohol and drug education in multicultural settings sets out the key requirements for ‘culturally sensitive’ teaching. Available at mentor-adepis.org

Stark statistics

Hospital admissions for hepatitis C-related end-stage liver disease rose to nearly 2,400 in 2012, up from just over 600 in 1998, according to new figures from Public Health England, with deaths rising from less than 100 to 428. The agency recently warned of a ‘liver cancer time bomb’ if levels of hep C treatment were not scaled up (DDN, July, page 5). ‘Despite the examples of good practice and the availability of effective treatments, we must accept that the rising hospital episodes and deaths, the poor diagnosis rate and the shockingly low level of treatment means we are failing patients,’ said Hepatitis C Trust chief executive Charles Gore. Hepatitis C in the UK: 2014 report at www.gov.uk

Benzo benchmarks

New guidance on benzodiazepines for primary care professionals has been produced by SMMGP. Written by Chris Ford and Fergus Law, Guidance for the use and reduction of misuse of benzodiazepines and other hypnotics and anxiolytics in general practice is available free at www.smmgp.org.uk

Orange updates

Public Health England is consulting on whether parts of the 2007 Drug misuse and dependence: UK guidelines on clinical management – known as the ‘orange book’ – should be updated in the light of the evolving evidence base and changes in the sector such as an ageing treatment population, fewer people using heroin and increasing use of new psychoactive and performance-enhancing substances. ‘An update would build upon the original version to reflect new evidence, issues and ways of working, as well as developments in the recovery orientation of drug treatment,’ says PHE. Have your say at www.gov.uk/government/consultations/drug-misuse-and-dependence-uk-guidelines-on-clinical-management until 30 September. 

Strange molecules

A new legal high information website has been launched by CRI. www.strangemolecules.org.uk is aimed at young people, their families and professionals, and named to ‘more accurately reflect’ the nature of the drugs –‘unsafe substances that can be even more dangerous than their often illicit counterparts’, says CRI.

Prison presumptions

A new report on the reasons behind the UK’s large prison population has been published by the British Academy. A presumption against imprisonment: social order and social values looks at ‘why we seem unable to reduce our reliance on imprisonment’ and includes strategies for cutting the number of prisoners. Available at www.britac.ac.uk

 

Service User Involvement Conference 2015!

suconf

Next February, the 2015 service user involvement conference will be taking place and we want to hear from you! Your input is vital in order for us to make sure you’re getting the most out of the event. Please fill in the form below. 

[contact-form-7 id=”9047″ title=”2015 SU consultation form”]

DDN/FDAP workshop booking form

[contact-form-7 id=”8917″ title=”DDN/FDAP Workshop booking form”]

Make it Happen!

You made it happen!

The DDN team would like to say a big thank you to everyone who came along and supported the 2014 DDN service user involvement conference. It was an action-packed and inspiring day, filled with networking, ideas for positive change and your personal stories of making it happen.

Below you can find coverage of the event – and please let us know your thoughts on the day by filling out the feedback form.

For live social media coverage of the day, check out our Storify page:

 

Make It Happen!

 

Opening session

http://www.youtube.com/watch?v=JIJ73qx8ocY&feature=youtu.be<code></code>

Panel discussion

Perspectives

Recovery history

Closing session

 

We would like to thank everyone who helped to create Make It Happen!, the seventh national service user involvement conference – NUN, UKRF, FDAP; main sponsors Martindale Pharma; all our speakers and exhibitors; therapists Lois and Jo, yoga instructor Karen, and auricular acupuncturists Acudetox Plus; everyone who contributed to the conference programme consultation; our volunteers: Lee Collingham, Beryl Poole, Jules Hunt, Si Parry, Sue Tutton, Carole Sharma, Tidjane Gbane and members of the Coventry and Birmingham recovery communities – Rich Maunders, Emily Goodyear, Kam Sidhu, Carole Darch, Indy Thandy, Mark Quinn, Robin Toft, Carl Allcott, Azad Sparnie, Leon Kearney, Leon Gallagher, Gary Graytrex, Neil Williams, Matt Woodfield, Darren Steele, Paul Carter, William Campbell and Scott Bowren; Paul Husband, photographer at LUF – and most importantly all the delegates whose participation made the conference a success. Hope to see you all next year!

The Buddhist way

The practice of mindfulness can be a powerful tool in preventing relapse and supporting recovery, says Dr Paramabandhu Groves.

Mindfulness has been a cornerstone of Buddhist practice for about two and a half thousand years. The essence of mindfulness is paying deliberate attention to our experience as it unfolds moment by moment, with an attitude of friendliness and curiosity.

In the late 1970s Jon Kabat-Zinn in Massachusetts started using mindfulness as a therapeutic modality, especially for people with chronic pain, but also for people with anxiety and stress. He developed an eight-week course called mindfulness-based stress reduction (MBSR) using mindfulness meditation and simple yoga. His work showed that about two thirds of people with chronic pain benefited, and benefits were maintained at four-year follow-up. In particular, people benefited if they continued to practise mindfulness, even if only informally (as oppose to formal sitting meditation).

Mindfulness-based cognitive therapy (MBCT) for depression was based on Kabat-Zinn’s work, incorporating some ideas from cognitive therapy. Depression has a high relapse rate, and the aim was to develop a maintenance form of cognitive therapy that could keep people well after they had recovered from an episode of depression. Although initially work began as cognitive therapy with some elements of mindfulness added in, it ended up being primarily a mindfulness meditation course. A three-centre trial showed that it reduced the risk of relapse in those with three or more episodes of depression, and subsequently it was included in the NICE guidelines for preventing recurrent depression.

MBSR and MBCT have generated a wide interest in using mindfulness for a range of conditions. A review in 2013 reported that there had been 209 randomised controlled trials involving mindfulness. Given the relapsing nature of addiction, the work on MBCT suggested mindfulness might also be helpful for use in addiction. Mindfulness-based relapse prevention (MBRP) is an adaptation of MBCT for preventing relapse into addictive behaviour.

Relapse prevention

The key components of MBRP are threefold (in a handy ABC). The first part is developing awareness. This is done through sitting meditation, a body scan, mindfulness of everyday activities such as walking or eating, and a ‘breathing space’ – a mini-meditation that can be done anytime during the day. Bringing awareness to simple activities like eating, we start to recognise that frequently our mind is not fully attending to what we are doing. Often our minds are caught up in worrying about the future or going over the past, rerunning arguments or playing out fantasies – a condition referred to as automatic pilot.

The sitting meditations provide an opportunity for watching the mind in more depth. For example, in the mindfulness of breathing meditation the breath is used as a focus. Inevitably the mind frequently wanders off from the breath, and in acknowledging where the mind has gone we can develop awareness of habitual thoughts and emotions. By recognising what is going on, we step out of automatic pilot, with its danger of running off down relapse-predisposing mental habits. Triggers and unhelpful mental patterns are recognised earlier, when it is easier to choose something other than an addictive behaviour. The second stage is learning to ‘be’ with experience. The emphasis is to not push away unwanted experiences, but instead find a way of letting them be. This helps to avoid suppression or unhelpful habitual reaction. It can also lead to a change in perspective so that thoughts and emotions are not over-identified with: thoughts are just thoughts, not (necessarily) facts.

The third stage is making skilful choices. On the basis of greater awareness and when not acting out of habitual reactions, it is possible to make wiser decisions about how best to act.

Is mindfulness effective?

Preliminary work suggests that MBRP may be helpful in preventing relapse into substance use. To date there have been eight randomised controlled trials. Two showed no difference from controls, but the others showed reduced substance use. Some studies also showed improvements in other areas, such as enhanced psychological and social adjustment, and reduced craving.

Mindfulness is being used with other therapeutic modalities. In developing dialectical behaviour therapy (DBT) for borderline personality disorder, Marsha Linehan included mindfulness as part of the package. Mindfulness is used to encourage acceptance and to extinguish automatic avoidance of emotions, and DBT has been adapted for substance misuse treatment.

Acceptance and commitment therapy (ACT) emphasises accepting difficult thoughts and emotions in the service of moving towards goals that are in line with a person’s values. Although ACT was not developed from the mindfulness tradition, mindfulness practices are now often used to enable the acceptance part of ACT. It has been used to help with a wide variety of disorders including substance misuse, for which there is a growing interest in its application.

Mindfulness appears to be helpful for a range of psychological disorders, as well as improving well-being and psychological functioning. For the future, rather than focusing just on relapse prevention (MBRP), mindfulness courses – referred to as mindfulness-based addiction recovery (MBAR) – may be seen as a support to the broader journey of recovery.

Dr Paramabandhu Groves is an NHS consultant psychiatrist at Camden and Islington NHS Foundation Trust, specialising in addictions, and clinical director of Breathing Space, www.breathingspacelondon.org.uk

What you’re saying

On Stanton Peele’s article,

‘Mind the steps?’, DDN, April, page 8…

ALL RECOVERY GROUPS are about the people that attend them. I tried AA for a couple of months as I didn’t know of anywhere else to go. The first thing that shocked me were people at the group who had not touched alcohol for many years (eg 20), so they said. Why were they still attending AA? To keep them sober, apparently. The fact is there is no discussion allowed, only listening to someone else telling you the same old story about what they did when they were drunk. You can’t challenge anything anyone says (no cross sharing). It is all religious dogma founded in 1930s America. I have not had a drink for three years, so I have got power over alcohol. 

Many GPs for example don’t realise it’s a quasi-religious organisation. ‘Humbly asked God to remove my shortcomings’ – why did he give them to me in the first place then? I told them I did not believe in the 12 steps so was asked to leave – in fact AA state the only criteria for joining is a desire to stop drinking. No, it’s a religion in my opinion and they try and convert you. It’s all about God, although they deny that. Count how many times alcohol is mentioned in the 12 steps then count how many times God is mentioned. I formed my own SMART Recovery group. If AA works for some people great, but treatment providers should be aware of other self-help groups in their area and most aren’t.

Stephen Keane

ONE ONLY HAS TO READ STANTON’S BLOGS to understand why he is critical of AA, and an interpretation of the 12 steps as has been made known to him. The abuses that he has heard about in AA and has written of do occur in AA meetings, and among AA patrons outside of the meetings. That these abuses occur has been acknowledged in AA circles, down to and including conference level, however, beyond acknowledgement little has been achieved by way of effective action. The lack of action is possibly due, in part, to members’ vulnerability (especially in early recovery) being taken advantage of, and particularly in the UK, to confusing anonymity with secrecy. There is also the wider societal and cultural reluctance (professional and lay) to address, let alone deal effectively with, abuse.

12-step philosophy is open to interpretation, as is any philosophy (and I use the word ‘philosophy’ as a coverall for all approaches to thought, including theology). There are those that distort (intentionally or thoughtlessly) a philosophy to rationalise their behaviour, hence some religious adherents engage in various forms of abuse. AA and 12-step philosophy is not immune to being abused, especially when proponents of such interpret ‘powerless over addiction’ to mean ‘powerless, period’. I find Stanton’s criticism of this interpretation of the 12-steps as reinforcing victimhood valid. Personally, I admit I am powerless over addiction, mine and others, however, I interpret that in an empowering way in that, I will do all that I can to stay sober (and staying sober is more than just not drinking.)

My own journey with the 12 steps has been a solitary one. Having been rendered a victim by a brutal religious regime in a life pre-addiction, my personality is now such that I will not accept a code of conduct without challenging it. I do not prescribe to the fundamentalist religious view of ‘my way is the only way’, as quasi-religious types in AA do. As such, my challenges offend those over-inflated egos attracted to AA, and their cliques.

I have spent over two sober decades poring over various approaches to life and living. I cherry-pick, and accept responsibility for that which I have chosen, and that which I have discarded. I may just take a Stanton cherry, though it will be one that appeals to me now, at some tomorrow I may return for more. Am I prepared to accept Stanton’s valid perception as the only way? Of course not, ‘He’s not the Messiah, he’s just a(nother) naughty boy’.

Trevor H

Challenging behaviour

Steve-Brinksman_w01WEB

It is my firm belief that the majority of people with drug and alcohol problems can be managed in primary care, albeit with the proviso that appropriate access to psychosocial treatments are in place. I was initially therefore fairly downbeat about having to refer Bill back to our local secondary care provider.

He and his brother Jack are both registered at our practice and have been for a number of years. Now in their late forties, they each have a long history of chaotic IV polydrug use and alcohol dependency, punctuated by numerous prison sentences. Over the years their lifestyle has taken its toll and they both have a number of physical health problems, mainly related to alcohol use, and previous encounters with mental health services.

Jack, the older of the two, was being treated by the secondary care drug service for a number of years when we were approached to see if his care could transfer to our practice as, due to some of his other problems, attending treatment was becoming more difficult. In the three years since then there have been spells when he has lapsed into more problematic drug and alcohol use, but with a lot of input from his keyworker at our surgery we have succeeded in integrating his care into our practice. This is also testament to the skill of our receptionists who have managed to build a good rapport with him that on the whole nullifies his occasional outbursts.

Perhaps feeling flushed with success we then agreed that his brother Bill’s opioid prescribing could also be transferred from the secondary care provider. Despite trying the same approach, this has been much less successful. Three local pharmacies have barred him due to abusive language and he would regularly cancel or not attend key worker or doctor appointments. His alcohol use escalated and he was verbally offensive to the receptionists on several occasions.

We have a policy of discussing patients with any conditions whom we are struggling to manage either clinically or behaviourally at our weekly practice clinical meeting. As a result of one of these discussions it was decided to transfer Bill’s care back to the secondary care drug service.

This was a difficult decision and made me realise that whilst we may be fortunate to have the clinical and case management skills available to support less stable people, the roles of other staff and colleagues are equally important. Primary care is a fantastic place to deliver care to those using drugs and alcohol problematically, but some will need extra support and care and I am grateful that additional services are available.

Bill still comes to see me and we are now starting to address some of his physical and mental health issues. I hope that at some point he may again receive all of his care at the practice but for now transferring his opioid substitution treatment out has meant he has remained a patient at the practice.  For all concerned, a positive outcome.

Steve Brinksman is a GP in Birmingham and clinical lead of SMMGP, www.smmgp.org.uk. He is also the RCGP regional lead in substance misuse for the West Midlands.

Obituary – Phil Fox

Screen shot 2014-07-07 at 15.03.34Phil Fox 8 June 1959 – 16 June 2014 

It is with greatest sadness that we break the news of the passing of Phil Fox, our founder and creative director. He passed over on Monday night, 16 June.

Everyone will remember him as a truly inspirational person who founded Outside Edge Theatre Company, as well as a friend and mentor to so many. Being involved in theatre saved his life in 1999; through founding Outside Edge, he was able to share that love of theatre and challenge and engage us all to support his work so that he could help others through their own recovery.

Our deepest sympathy and heartfelt consolations go to his family and to everyone whose life he has touched. We are ourselves coming to terms with this very sad and sudden loss. We will, as soon as we are able, share further information about how we can remember and celebrate his life and the gifts which he was able to share through his work. The company will continue to operate as normally as possible which is what Phil would have wanted.

Jim, John, Patricia, Shereen, Yvonne, Cathy, Siva and Annamaria, Outside Edge Theatre

Media Savvy

Who’s been saying what..? DDN’s round-up of what’s being said in the national papers

I’m wholly on the side of senior nurses who, at their annual conference in Liverpool, called for those with drink-related injuries to be turned away from A&E and directed instead to ‘drunk tanks’… It’s not just that these idiotic individuals cost money we can ill afford (£3.5bn a year is spent on treating patients for the effects of alcohol; at weekends, up to 70 per cent of A&E admissions are alcohol-related); it’s also that patching up these fools diverts precious resources from other areas of the NHS. Areas such as care for the elderly, that are manifestly more deserving than some silly girl who’s drunk her own weight in Bacardi Breezers and who is slumped unconscious in a pool of her own bodily fluids.

Sarah Vine, Mail, 18 June

 

The next time you hear someone complaining about the ‘nanny state’ or the right of individuals to drink as they see fit, spare a thought for the people around the drinker. In particular, consider whether our children and young people have the right to grow up in an environment that protects them from the harm that alcohol causes.

Dr Evelyn Gillan, Scotsman, 5 June

 

The elephant in the room is the truth that it’s pleasure that drives drug use – guidelines that fail to acknowledge this will mean people will not pay attention to them.

Adam Winstock, Observer, 22 June

 

E-cigarettes are either going to save millions of lives by helping people to quit smoking or they are going to destroy millions of lives by luring children and young people into the habit. It is very hard for the onlooker to know what to believe, when the rhetoric is flying in both directions from very eminent people who all have a passionate commitment to public health.

Sarah Boseley, Guardian, 16 June

 

The wildly contradictory reports on the health effects of the e-cigarette mean the only certainty I have about them is that no one knows what sucking in clouds of liquid nicotine really does to the human body… it’s not all that long ago that cigarettes were warmly welcomed into society – and millions suffered and still suffer the cancers to show for it. Well before e-cigs become just as entrenched, we need more research to discover how they work.

Lucy Tobin, London Evening Standard, 13 June

 

Sending drug users to jail is usually an expensive waste of time. But decriminalisation’s flaw is that it does nothing to undermine the criminal monopoly on the multi-billion-dollar drugs industry. The decriminalised cocaine consumed without criminal consequences in Portugal is still supplied by the gangs who cut off heads in Colombia. Only legalisation takes the business out of the hands of the mafia.

Economist, 18 June

 

Tony Blair was absolutely right to make the link between opium production in southern Afghanistan and heroin use in Britain. But it is clear now that he and others were wrong to think this link could be broken through military action internationally and police enforcement domestically.

William Patey, Guardian, 25 June

letters 7 july

LettersThe DDN letters page, where you can have your say.

The next issue of DDN will be out on 7 July — make sure you send letters and comments to claire@cjwellings.com by Wednesday 25 June to be included. Letters may be edited for space or clarity – please limit submissions to 350 words.

 

 

Applying with conviction 

I’m writing in response to Nicola Inge’s article Beyond conviction (DDN, June, page 8). The ‘Ban the Box’ campaign is an excellent idea and fully supported by online magazine theRecord and our partners at Unlock. The principle behind the Rehabilitation of Offenders Act was to break the cycle of offending and re-offending by enabling people with convictions to gain employment, and led to the concept of a spent conviction.

Sadly, with the inception of the CRB, now DBS, this principle suffered a massive setback, and asking about previous convictions at the application stage became commonplace, particularly in health, social care and education – the very services that espouse a progressive approach to rehabilitation. This, in turn, led to people with convictions not even applying for jobs that require a disclosure at the application stage.

The US approach based on the equal opps agenda and its accompanying legislation is well worth emulating in the UK, for all the reasons set out in the article. And, following Gandhi’s famous dictum, it would serve people with convictions, the recovery industry and the wider society well if drug and alcohol treatment services were to ‘be the change they want to see in the world.’

If recovery services were truly committed to equal opps, they would never expect candidates to discuss their offences at interview because this never gives people with convictions the opportunity to present themselves as equal to those without convictions. This differentially discriminates against those from minorities, as mentioned above, and male applicants – often under-represented among the recovery workforce – because they are seven times more likely to have a conviction than females.

There are only three reasons employers ask about convictions on application forms: because they think they ought to, because they intend to use that information to discriminate or because they are just plain nosy. The simple fact is that an employer only needs to know about the criminal record of people they will employ, i.e. the person who emerges as the leading candidate, after the interview stage is complete. There is no need for any employer to elicit or, more seriously, retain information about a person’s criminal record if they are not going to employ them. It is only the successful candidate who ever needs to be asked. The other candidates should be able to exit the recruitment process with their privacy intact. Sadly, this is not the case with any of the treatment service recruitment processes that theRecord is aware of.

Often, employers are also labouring under the illusion that screening for convictions at the application stage is a form of risk assessment. It is not. The absence of a conviction tells you nothing about a person’s honesty or safe conduct, it only tells you that they have never been caught and convicted.

A person with a history of, say, violence or fraud, but who was never caught, can sail through the process untested, while the poor sod convicted of possessing a few grams of weed or stealing a car 20 years ago gets grilled by complete strangers in a powerful position in a non-therapeutic setting. Any therapist will tell you that this can be devastating, even relapse-inducing. Both Unlock and theRecord regularly receive mail and calls from people who’ve been treated in this way only to be told that a stronger candidate got the job, so there was never any need to put them through that part of the interview because their record was never actually relevant to the employer. And even when they are successful, they are often then faced with working alongside people to whom they have disclosed their convictions – the people who interviewed them. It might be better if such disclosures are only ever made to HR and passed to senior management, not colleagues, because you never get a second chance to make a first impression.

So, if recovery employers want to offer an equal opportunity and run a safe and legal service, there are just three things they need to do. Firstly, ask only the prime candidate about previous convictions. Secondly, follow that up with the appropriate level of DBS check and, thirdly, risk assess that candidate regardless of whether they have a conviction or not. There are several psychometric tests that can be used for this in consultation with a suitably qualified psychologist. If their favourite candidate proves risky, then move on to the next. It would also be very helpful if employers would state at the application stage which level of DBS check is required for that specific post. This would give the candidate an informed choice whether to proceed with an application or not.

Richard, editor, www.the-record.org.uk

 

Once removed

I totally agree that commissioning needs to change dramatically in order to provide a better service (DDN, June, page 18). The work done to help people is extremely undervalued and underrated, the service user suffers and the high pressure of more responsibility puts stress levels up. This can cause sickness and puts many workers at risk for their own mental wellbeing. Erm hello, is anyone actually concerned, or are they so far removed from the problem they have no idea?

Rachael Almond, by email

 

Getting perspective 

I am currently studying at the BRIT School and am in the process of producing a news show for FM and internet broadcasting through ‘BRIT FM’.

I am producing a five-minute package about a common issue in our society. I see how drugs are very incorporated into young people’s lives and how drugs surround our youth culture heavily.

I wish to gather a few interviews to gain a professional perspective on the issue – the effect of certain drugs on performance or health, or why people turn to drugs (both legal and illegal) habitually. You can contact me at frazerleonfoster@gmail.com

Frazer Foster, by email

 

Banana splits 

I went to a few of the big debates on abstinence versus harm reduction in London in 2008 and 2009 and listened to a lot of fear coming from the floor, and anger. Paul Hayes, chief executive of the NTA, when the question about spirituality came up said, ‘I don’t do spirituality’. Nearly all the people there cheered and clapped and I heard the person behind me say, ‘what do the 12-step lot think about that?’ When I looked around the person who had made the remark was a drug worker and was laughing to three service users from the area I come from, who, by the way, are still in the tier 3 system.

Harm reduction should be the first port of call for the addict who suffers – and I say suffers because people do not turn up at services if everything is alright in their life. Everyone has an opinion, and that’s all Stanton Peele has (DDN, April, page 8). Oh, and a book to promote.

This government has it right when they say people can recover and live fulfilled and productive lives by turning up to 12-step meetings without ever stepping into the UK’s tier system. Twelve-step meetings are where they meet others of their kind who have a solution which they give freely. Public Health England are promoting that drug services should take service users to meetings, yet they are still telling people that they must first do their groups or consider applying for detox and rehab funding.

The word recovery is not new, though it’s thrown about and being defined to death. Let’s hope next we will get some expert saying ‘Bananas’ is the new buzz word –someone might even write a book about it.

Martin Territt, by email

 

Competition update

The first ever Global Drug Survey drugs meter minutes video competition (DDN, April, page 14) has extended its entrance deadline. You now have until 14 February 2015 to submit a harm reduction and drug education related video – for more information, email adam@globaldrugsurvey.com.

www.globaldrugsurvey.com; www.drugsmeter.com

Adam Winstock, consultant psychiatrist and addiction medicine specialist, and founder of the Global Drug Survey

Primary position

Judith‘I do believe that the best care for people who use drugs and alcohol is in their own GP surgeries where possible,’ says Dr Judith Yates, who – although retired from her GP practice since 2010 – is far from retired from the drugs field.

She’d wanted to go into medicine since childhood but dropped out halfway through medical school to ‘explore the world and myself a bit’, an experience that helped her decide that it was being a GP – as opposed to other areas of medicine – that would provide the most interesting challenge. As a young trainee in the late 1970s, and her practice’s only female GP, she soon discovered that the only way to see male patients was though consultations with those who had drink and drug problems. ‘At that time the psychiatric addiction services were struggling to find their way and the heroin was flooding in, and by the ’80s the waiting lists for treatment by the psychiatrists were rapidly building up,’ she says. ‘People were falling out of their care and turning up on my doorstep.’

Her other discovery, however, was just how rewarding helping this client group could be. ‘It just seemed to be something that I could easily do. The rest of general practice – which I was doing as well, of course – often involves the long-term care of physical ailments, some of which are quite gloomy, whereas these were young people with lots of potential who’d struck upon hard times and with a helping hand could get on with their lives. The transformations could be quite rapid.’ She went on to spend three decades as a Birmingham GP, working in the city’s first community drug team in the early ’90s at the same time, and after a while the group of patients at her surgery who used drugs numbered around a hundred. Clearly, not all practices were – or are – as accommodating. Does she feel that the stigmatising attitudes of some GPs are starting to change?

‘I think it’s very patchy and postcode-y,’ she says. ‘In Birmingham we were lucky in that when all the crime money came in with the NTA all the GPs working in this field – only about four or five of us – joined the newly formed shared care monitoring group and managed to use that money to set up probably one of the biggest primary carebased drug treatment services in the country. It’s been very effectively organised and managed in that drug workers go out into GP services as opposed to sitting in a centre somewhere waiting for patients to come to them. Around half the people who are scripted in Birmingham are treated in primary care, which is good but it does need proper focus. GPs on their own can’t do it – they need properly organised key workers coming in because there just isn’t the time in ordinary primary care.’

She still does a weekly clinical session with the community drug team and also helped to plan and set up a new residential detox and rehab clinic, working there for two ‘enormously enjoyable’ years after retiring from her surgery. But it’s policy work that’s been taking up most of her time lately.

‘I had a bit more time to pick my head up from the coalface and look around so I started to look at ways to reduce drug related deaths in Birmingham and work on our take-home naloxone project,’ she says. ‘I thought I’d be able to just put on a couple of training the trainer sessions and then someone else would take over and it would run itself, but that didn’t happen. I discovered that you have to chip and chip away at all these little tiny local barriers that prevent any change.’

It was through the naloxone project that she met Philippe Bonnet (DDN, October 2013, page 16) and started investigating the growing international evidence base for consumption rooms. Is she confident that the Independent Consortium on Drug Consumption Rooms (ICDCR) can achieve its aim of establishing a facility in Birmingham?

‘We’ve been waiting for the Birmingham re-commissioning to finish because – quite rightly and reasonably – we were asked to not take our plans forward in any concrete way while all the services were going through this enormously time-consuming recommissioning round, and we didn’t know who was going to be running treatment services anyway. So we’ve been collecting information and improving our understanding of what could be done and what would be costeffective. We’ve spoken to some people among the police and the local authority who are cautiously interested, but we obviously need the clinical arm.’

The city’s main clinical provider is likely to be announced this month and ICDCR is confident that they’ll be interested if it can be shown that consumption rooms are both necessary and value for money. ‘I think we can prove that it’s costeffective if we don’t have grandiose ideas. The Vancouver and Sydney ones are big, all-singing, all-dancing versions but we see a Birmingham version as being part of the existing needle and syringe and outreach programme – there’d be no new staff or new budget. If we could find a backroom associated with the existing services, with a few sinks for people to wash their hands and a kettle to offer people a cup of tea and a listening ear, that would be fine. It’s not a high-tech answer to anything – it’s not like heroin-assisted treatment, which is very expensive.’

What about the legal status of consumption rooms – how much of a barrier could that be? ‘In parts of Europe allowing your premises to be used for taking drugs is still against the law but there are local accords with the police, and we see that as the way it could happen in the UK, although we’d obviously like to change the law eventually,’ she states. ‘If you think about needle and syringe programmes, the police don’t arrest everyone going into those, which they could because they know they’ve got heroin on them. The same would apply to consumption rooms – they’d know they were people who used drugs but they’re not the big dealers, they’re people with a dependency who are street injectors.’

The international evidence also shows that people ‘tend to up their game’ once they start using consumption rooms, she says. ‘The staff wax lyrical about the transformation in their behaviour, and they carry on those learned habits when they’re not in the centre – their health improves, they no longer attend A&E and they begin to re-engage with society.’

Being able to provide the service without a new budget could clearly go some way towards making it more attractive in today’s environment – how optimistic is she about the state of the sector overall? ‘There’s no doubt that the money is tight and not ring-fenced any more, so we have to be smarter with it,’ she says. ‘Obviously the more resources you have the more quality you can offer but there isn’t any choice about it, I suppose. But in terms of human beings I tend to be an optimist and I’m hoping that we’re still learning.’

Indeed the whole of her involvement with the sector has been a learning curve, she states. ‘It has been for all of us – before the 1980s there wasn’t a big heroinusing population in the UK. It was small numbers of people, mostly dependent on pharmaceuticals – they’d blag their GPs for Diconal and all those things. So the huge flood of heroin that came into the country and the huge increase in people using it involved us initially working out how to keep people alive and help them with substitution treatment.’

As has been widely documented, that heroin-using population is now growing older, and so far the indications are that it’s not being replaced by a significant younger one. ‘I do hope that’s a societal change and gradually people will not get into this dependency on opiates, because it’s such a long-term trap,’ she says. ‘Some of the stimulants and novel psychoactives have their own problems but – even with cocaine – they’re things that you can walk away from a bit more easily than an opiate habit. So I’m hoping that we won’t be seeing families affected quite so much, and the policies have kind of followed that learning curve in a way. We’re kind of all learning together.’

She’d long been part of SMMGP (Substance Misuse Management in General Practice) and when SMMGP’s Chris Ford set up IDHDP (International Doctors for Healthier Drug Policies) she was asked to become a director. This year has seen her visit the Commission on Narcotic Drugs (CND) in Vienna, representing IDHDP’s rapidly growing membership of almost 600 doctors from more than 70 countries who ‘believe we need health-based rather than criminal justice based drug policies’, she says.

And it’s in arenas like this that real change can be brought about, she believes. ‘I’ve always supported the test-and-treat approach to hepatitis C and HIV, for example, but while you’ve got to do it on a one-to-one basis you do also need to have it as national and international policy to make a real difference. If you can get people into treatment you can also defeat the disease, because even if they’re not immediately completely cured their virus count goes down so they’re not so likely to pass on the infection, and it’s the same with HIV. The liver specialists are now very excited, saying that we’re on the “cusp of a new dawn” and that the new treatments mean that we could eliminate hepatitis C within 15 years.’

She praises the Scottish plan to treat more people for hep C each year than are becoming infected with it as a way to ultimately eradicate the virus. ‘Also you don’t end up bankrupted by the exponential growth of cirrhosis and liver failure,’ she says. ‘And they’ve got a national naloxone programme of course – if they vote to opt out of the UK, we should all vote to join Scotland!’

While there’s ‘no simple step’ to eradicating drug-related deaths or harm it’s essential to be part of the ‘international conversation’, she stresses. ‘Take-home naloxone has been shown to reduce drug-related deaths in parts of the US by up to 50 per cent, and I hope there’ll be new regulations to allow its even wider provision in the UK.’ It was also announced at the Vienna CND that forthcoming WHO guidelines will state that everybody who could potentially be at the scene of an opiate overdose should have access to naloxone, she adds.

‘I believe that it may come to be seen as negligent to prescribe methadone without also prescribing a take-home naloxone kit. Drug consumption rooms have also been shown to be a cost-effective step as part of existing treatment services around the world, and I believe we should look seriously at small pilots in parts of the UK where there’s a need. Applying a criminal penalties to drug use has never made any drug safer, and the sky hasn’t fallen in on countries like Portugal and the Czech Republic where steps towards decriminalisation have been in place for many years.

‘These are all areas where policy and central guidance and leadership are needed to drive change. I see my pension as a government grant that allows me time to apply my past clinical experience to these broader areas, where policy change can make such a difference to the wellbeing, not just of individuals, but of populations.’ www.idhdp.com

All Change

Things are changing fast at the Care Quality Commission (CQC) this summer. In the light of previous negative publicity there is a new structure and a new approach developing. CQC say that by October there will be a new inspection methodology in place, so inspectors will be looking for different things and writing different reports.

The big news for the substance misuse sector is that all treatment services, whether residential or community services, will be based within the hospital directorate; more specifically within the section of this directorate that deals with ‘community based services for people with mental health needs’. This means that there should be a similarity of approach to community drug and alcohol services and residential rehabilitation services.We wait to see whether this means that the methodology being developed will be more similar to clinical treatment services than adult social care. For a long while residential services battled to be thought of as ‘treatment services’ rather than ‘care homes’, so maybe this will lead to a more realistic and ‘joined-up’ approach to inspection?

Another piece of good news is that CQC has appointed a ‘national professional advisor and policy manager for substance misuse’. Her name is Violeta Ainslie and she used to work as treatment provider with Cranstoun Drug Services until very recently. I am personally very encouraged on two counts. Firstly, this is a full-time post dedicated to this sector. In my previous role, the substance misuse sector was only a small part of my job; now there is someone dedicated to the sector, who can join up all the dots within CQC and be a point of reference for external agencies. Secondly, as someone who was recently working within the sector, she is well placed to understand the unique characteristics of substance misuse treatment.

Part of the national advisor’s role will be to set up an ‘expert group’, which will be a reference point for the development of the new methodology for this sector. At the time of writing, this group was due to begin its deliberations at the beginning of July. The next step will be publishing a ‘signposting’ document which will chart the way forward and explain when the new methodology is likely to be implemented. So, while the adult social care sector is planning to implement in October 2014, the substance misuse sector may have to wait a while. The message is, ‘watch this space!’

Having completed the first consultation phase on 4 June, in which CQC tested various elements of the new methodology in hospitals and care homes, CQC will now no doubt use some of the feedback and incorporate it in the new approach to the substance misuse treatment sector.

New Methodology

There is no doubt that the new methodology will focus on the ‘five questions’, which are: Is the service safe, effective, caring, responsive and well led? You may have seen the provider handbooks and appendices on the CQC website, which set out the proposed framework. There are some key features which mark a change from the previous approach:

• The ‘provider information return’ will be sent out to services before the inspection, so that they can self-assess against the five questions.
• There will be ‘key lines of enquiry’, which will act as prompts to inspectors as they look at how the five questions are worked out in the service.
• There will be ‘ratings’ which will be published and will determine inspection frequency. These ratings extend from ‘outstanding’ to ‘good’, then ‘requires improvement’ and finally ‘inadequate’. There are complicated rules which determine how these rating are arrived at – however there are also helpful guidelines that tell you what each rating might look like for each question.
• There will be a greater reliance on ‘experts by experience’ to provide the service user perspective.
• There will be an emphasis on ‘intelligence monitoring’, which means gathering information from a range of stakeholders.
• Finally, although the Care Act 2014 has been granted Royal Assent, the new draft ‘fundamental standards of care’ and ‘regulated activity regulations’ are now awaiting parliamentary approval so cannot be enforced until that is achieved. It is expected that this will happen by October 2014 so that the new approach is fully grounded in law. 

Meanwhile, between now and October 2014 CQC will continue to undertake routine inspections, so if you have an unannounced inspection this will be according to the existing methodology. There will be one difference and that is that the summary at the beginning of the report will focus on the ‘five questions’ as a taster of what is to come. The possible reasons for an inspection before October are: that your last inspection occurred between April and October 2013; there are outstanding compliance actions; there have been complaints made to CQC which they may be following up in terms of compliance; or you have changed registered manager in the last 12 months.

When looking forward to the new approach, some of the most recently published inspection reports give clues as to what may be asked. However it is worth waiting to see exactly what is proposed for the substance misuse sector and, where possible, contribute to the debate through routes such as FDAP and your representatives on the ‘expert group’.

As CQC publish more information, such as the ‘signposting’ document with an outline of their new approach, it will be possible to look at the implications for your service more fully. To help this process there will be courses which will focus on the substance misuse sector this autumn, organised through DDN.

David Finney is an independent social care consultant. His course on everything you need to know about the new structure is on 6 November in central London

 

 

Mind Over Matter

Mat Southwell opened the 2014 Kaleidoscope Conference by linking harm reduction to mindfulness: ‘I find injecting ketamine helps me with mindfulness.’ The challenge he gave delegates was that governments may define recovery as one without drugs, but as a service user he wanted to set his own agenda. The challenge of harm reduction has always been one where the service user sets their agenda for change.

The need for harm reduction is as true now as it ever has been in that we need to keep people safe, so naloxone and needle and syringe exchanges are focused on doing this. Mat talked about a time when he was using drugs chaotically, which badly impacted on his life. He sought to change, but that change led him to consider what drugs he could take and what drugs he was not able to live with. The problem today is that many commissioners are focused on recovery, which they see as primarily moving a person to being abstinent from drugs. The harm reduction message is being disinvested in, which means many services are not being empowered.

Harm reduction, according to Dr Julia Lewis, is like Marmite – you seem to either love it or loathe it. Its importance must not be minimalised, however. It is an evidencebased approach that has saved millions of people – a principle that originates fromthe UK and is now globally accepted. The development of needle and syringe exchanges alongside substitute prescribing has made a real difference to people. Yet many people find it a difficult concept as it seems that one is condoning behaviours that many feel are immoral and destructive to society, as well as to the individual. 

The use of drugs among drugs workers is a topical issue. Should staff not set an example and advocate the perceived ideal of a drug-free lifestyle? If workers talk about their own safe using does this not cause problems for someone who is chaotically using drugs? The experience I have had does not bear this out. One of the most successful programmes Kaleidoscope has run, Simplyworks, included a staff member on a methadone programme, and that person had the best engagement and outcomes of any of our staff.

In Wales, drug agencies have come together and established a peer mentoring project, which has included substance users and has achieved staggering results; Kaleidoscope in Cardiff found more than 200 permanent jobs for service users. In India, one agency has active drug users providing needle syringe exchange and substitute prescribing and again meets the needs of that drug-using community. When we look at naloxone, it works best when we empower service users and I would argue that we also give the dealers clean needles so at least people injecting for the first time do so as safely as possible. Harm reduction is not an ideology, it simply is based on what works – and that was the key message of this conference. Service user empowerment is a fundamental part of harm reduction and in Gwent Kaleidoscope has been delighted to work closely with The Voice, a proactive service user group that has just opened its own Newport service, called the Hub. 

What is critical to them is ensuring people receiving services are able to challenge treatment providers and commissioners in designing the right services for their needs. The service again is not driven by one theme, such as recovery, but looks practically to support the user in the changes they wish to make. It has also managed to reach out to an open prison, developing a very strong link with HMP Prescoed, where some prisoners have volunteered to support the Hub with their unique skills and at the same time address their own issues through peer support. The workshop they ran at the conference gave space for service users to talk about their own personal journeys and was one of the highlights of the day.

Workshops enabled proactive debate as well, from looking at the place of alcohol in society to how service providers can be more effective when they provide integrated services with the service users’ needs placed at the centre. Many of the pioneering drug takers took drugs to look for profound mindaltering experiences. Psychonauts are people seeking to push the boundaries of mindful experience and certainly Mat Southwell would consider himself in this category. The desire to push human mind experience is in many ways part of the human tradition, be that through taking substances, or by travelling, or even excessive sport.

The problem for treatment providers is that this dash for experience is often forgotten, so treatment focuses on the medical aspects of addiction. It may help someone deal with a traumatic experience, but in a dash for secularism has forgotten that, for many, drug use is about finding the meaning of life – a profound experience.

So where is the place for the spiritual element – is it religious or can meaning be found through other means? Mindfulness is becoming a major force, not just in drug treatment but as a tool when working with any group of people, from education to boxing. To enable people to experience mindfulness, we provided a workshop run by Eluned Gold, head of personal and professional programmes at Bangor University.

Eluned was also one of our main speakers on the subject of mindfulness, looking at support for parents and carers, while Dr Paramabandhu Groves, consultant psychiatrist at Camden and Islington NHS Trust (see page 13), looked at mindfulness for addiction recovery.

Dr Groves reminded us that the concept comes from a Buddhist tradition but is not one that requires a person to be an adherent of a religious perspective. Mindfulness creates time to reflect, to contemplate or meditate, enabling a person to understand issues in a different way. For some they may experience a spiritual enlightenment, for others it may be a better understanding of the self. The importance of the metaphysical, however, is a vital component of our human nature.

The day ended in style, with a panel discussing the place of spirituality or faith in the recovery journey. The meeting was chaired by the former chief executive of Newport City Council, Chris Freegard and included Dr Groves from the Buddhist tradition, Bishop John Davies of Brecon and Swansea, Roderick Lawford from the humanists in Cardiff, Tazlim Hussain from a mosque in Newport, and the founder of Kaleidoscope, former Baptist minister, and my father, Eric Blakebrough, who made the case passionately for harm reduction from a theological perspective. 

Martin Blakebrough is chief executive of Kaleidoscope, kaleidoscopeproject.org.uk

Catching the wave

‘A people are as healthy and confident as the stories they tell themselves. Sick storytellers can make their nations sick. And sick nations make for sick storytellers.’ Ben Okri, Birds of Heaven.

Alistair sinclair WEB. jpgThis was a quote I threw into the room when I presented to DDN’s national service user conference in Birmingham in February – because I believe we live in a sick nation, full to the brim with sick storytellers who dominate our mainstream media and political discourse. It’s a reflection of the deficit world we live in. A world of needs and gaps and experts that is increasingly apportioning blame to the other, the alien, the vulnerable, the undeserving poor, whether that be the Muslim, the immigrant, the benefit scrounger, the homeless or the drug user.

We live in times of great fear and anxiety, times of austerity, and this narrative, this story, now permeates every aspect of our lives. The wealthy and privileged, rather interestingly, have got richer during these times as they’ve retreated even further into their gilded gated communities. Meanwhile the poor have got poorer and the ‘squeezed middle’, those hard-working families, anxiously scrabble to hold on in this era of zero-hour contracts, flexible working and creeping neo-liberal privatisation.

We live in interesting times, and in Birmingham I offered a perspective that I’m sharing with you now. It’s a perspective that seeks to place ‘recovery’ within a historical context, and position the future British ‘recovery movement’ as something with the potential to be positive, inclusive and, rooted in the promotion of social justice, truly transformative.

I’ll start with a little recovery history. There are many who recognise recovery as a term within the 12-step movement going back 79 years, and others who think it popped into treatment land with the drug strategy in 2010. As Larry Davidson from Yale University illustrates in The Roots of the Recovery Movement in Psychiatry (2010), recovery’s roots as a service orientation (putting aside recovery within communities for hundreds of years) can be traced back to 1793 and the groundbreaking work of Philippe Pinel and Jean-Baptiste Pussin.

In recognising the importance of mutual aid and a meaningful life, giving jobs to the inmates of a Paris asylum, Pinel and Pussin lay the foundations of the peer support we see today. In the US, Dorothea Dix (1840), a tireless advocate for the mentally ill within prisons and Jane Addams (1889), the founder of the resettlement movement, were instrumental in advancing the notion that healthy environments promote health, and their work emphasised the key importance of ‘living with’ and ‘doing with’ in communities as opposed to the usual defaul deficit setting of ‘doing to’.

The psychiatrist Adolf Meyer (1900) went on to make a number of significant observations which at the time – and perhaps still today, in some quarters – were regarded as radical. People can and do recover; even those in the midst of illness possess valuable strengths and it’s our interactions in the social world, in the everyday, that are key to recovery.

The founding of AA in 1935, with its emphasis on mutual aid and self-help, has major significance in this recovery history, as does the civil rights movement of the 1960s and the consumer/survivors/ex-patient movement of the late 1980s and early 1990s. Phil Hanlon, professor of public health at the University of Glasgow, outlines another kind of history in his book The Future Public Health (2012), which I believe also has deep significance for the British recovery movement. He suggests that there have been four waves of public health, which have brought significant improvement to health over the last 184 years.

Each new wave begins while the previous wave is at its peak. The first wave of public health (1830-1900) saw the rise of ‘classical public health interventions’ – a recognition, before the science caught up, of the importance of clean water and sanitation. In this period we see the growth of municipal power and influence, and the beginnings of the rise of the ‘expert’. The second wave (1890-1950) sees the continued ascendency of the expert, the flowering of ‘scientific rationalism’, expansion of hospitals, health visitors and the germ theory of disease. The third wave (1940-1980), born of a deep demand for change and a post-war consensus, sees new forms of social solidarity and collective responsibility leading to the creation of the NHS, the welfare state and social housing. While the fourth wave (1960-2000), which also sees the rise of neoliberalism (perhaps a partial response to the third wave?), focuses on individual risk factors and lifestyle issues.

These four waves have had a significant impact on health and continue to do so. However Hanlon is very clear, as are many others in the fields of public health, economics, environmentalism and politics (to name a few), that we are now, all of us, in an age of crisis, staring into the abyss and facing the ‘challenges of modernity’. Across the developed world and increasingly in the ‘majority world’, people are getting sicker in increasing numbers. As communities continue to fragment and social ties fray (something Bruce Alexander describes eloquently in his book The Globalization of Addiction: A study in poverty of the spirit, 2008), levels of unhealthy dependency – drugs being just one among many – and mental distress are rising dramatically.

Needs are rising and resources are dwindling. Hanlon contends that currentinterventions are failing to address societal issues because they are grounded in an acceptance of cultural norms that are fundamentally part of the problem: ‘economism (the belief that money will sort things out), individualism, consumerism and materialism’ – all of these driven and sustained by the deficit world we live in. Modern society is unequal, inequitable and unsustainable, says Phil Hanlon in The Future Public Health.

It’s not all doom and gloom and this, I believe, is why the British recovery movement, if it learns from its history and puts social justice at its heart, has a major role to play in the response to this crisis of modernity. Hanlon suggests there is a need for a ‘fifth wave of public health’ which will challenge the rampant individualistic consumerism that underpins a dominant economic model based on endless growth – a model that is taking us, as I commented in Birmingham, ‘to hell in a hand basket’. While we have been encouraged to focus on the ‘canaries in the mine’, those who are the first visible casualties of a sick society, fixing them and returning them to productive life, we have been discouraged, interestingly, from looking at the mine itself. So while we rebrand and tinker at the margins, all of us ‘users’ within a dysfunctional system, we remain silent as to the really destructive addictions.

As George Monbiot put it in the Guardian on 27 May, this issue is ‘the great taboo of our age – and the inability to discuss the pursuit of perpetual growth will prove humanity’s undoing… The inescapable failure of a society built upon growth and its destruction of the Earth’s living systems are the overwhelming facts of our existence. As a result, they are mentioned almost nowhere. They are the 21st century’s great taboo, the subjects guaranteed to alienate your friends and neighbours.’

Hanlon believes that our current system, with its acceptance of modernity’s ‘norms’ and overriding emphasis on the objective (evidence and science) at the expense of the subjective (the many meanings found within the ‘I’ and the ‘we’) is failing. He calls for new ‘integrative’ approaches that will bring the subjective and objective together on equal terms, valuing the stories and wisdom found within families, neighbourhoods and communities. He suggests that we need new approaches that are ‘creative, ecological, ethical and beautiful’, which will reintegrate ‘the good, the true and the beautiful’ – grand language that needs to be turned into reality within communities, which is where I believe the British recovery movement comes in.

In positioning ‘recovery’ as the ‘remaking of meaning’, and a shift from a deficitbased world to new strength-based ways of being, it is possible to see the movement as central to the search for the ‘good, the true and the beautiful’. Where else would you start if not with those who still struggle in this deficit world, with the people who are trying to recover, with the ‘canaries’ and with the people who have managed to ‘remake’ themselves? Where else will we find the wisdom and the learning that will enable us all to deal with our damaging dependencies?

Which is why the UKRF is promoting a recovery month in September that supports movement toward a strength-based world founded on community resilience and potential; a month that will write new hopeful stories. And it’s why we’re gathering in Leicester on 26 September at an event entitled ‘Creating Narratives for the recovery movement: the good, the true and the beautiful’. We believe we will make the path by walking it. So we’ll do a little walking together. I hope some of you can join us.

Alistair Sinclair is UKRF director. The UKRF’s event, ‘Creating narratives for the recovery movement: the good the true and the beautiful’ is on 26 September in Leicester. Details at www.ukrf.org.uk

Breaking bonds

karenA new study by the universities of Manchester and Brunel, funded by the Nuffield Foundation, has been looking at the incidence of recurrent care proceedings in family courts and found that approximately one in three care applications concerns a mother who ‘can be described as a repeat client’. Problematic drug and alcohol use – and associated chaotic lifestyles – is a major contributory factor, researchers say.

The research team studied records held by the Child and Family Court Advisory and Support Service (Cafcass) – the only centrally stored source of data linking children, mothers and care proceedings – covering the period from 2007 to 2013, and concentrated on completed cases of recurrent care proceedings issued under section 31 of the Children Act 1989. Its conclusions were that recurrence was a ‘sizeable problem’ for family courts in England.  

Local authorities issue care proceedings when concerns are such that compulsory legal intervention is thought necessary to ensure the safety and wellbeing of a child. While the high volume of annual care applications has led to members of the judiciary raising concerns about ‘repeat clients’ who go on to lose their children to care or adoption, no one has really known the extent of the problem until now. 

During the period covered by the study, 7,143 birth mothers appeared in 15,645 recurrent care applications regarding 22,790 children. Was the team surprised by the findings? ‘No, I think we’ve underestimated the problem,’ Dr Karen Broadhurst of the University of Manchester tells DDN. ‘We can only capture recurrent care proceedings, but children can come into care through other routes – via a section 20 agreement with a parent, or they can bypass care proceedings and relatives can apply for a private law order or residence order, for example. There are more children in care linked to other children in care than we’ve identified.’

The team has now applied for funding for another two years to undertake a large mixed-method study, and it also carried out a pilot study of qualitative interviews with 25 birth mothers, sponsored by one local authority with a high recurrence rate. It
has also started in-depth research into a randomly selected sample to look at points of engagement with services and opportunities for prevention.

The initial findings, however, were picked up by several national newspapers, most of which focused on the extreme examples of women having several children – into double figures, in some cases – removed. ‘One of the things the media’s slightly misrepresented is that there’s a difference between cases of multiple recurrences – one after another after another – and mums who might have a baby, then another one and stop and grow up a bit and come back and keep a child,’ Broadhurst says.

‘There’s a lot of variation behind the big figure, which is quite important in terms of prognosis for change. There are some mums who require some kind of adult protection response – they’re highly vulnerable, with serious mental health problems and learning difficulties, probably in sexually exploitative relationships with no control over their lives, and then there are other mums who are desperately trying to get themselves out and have the wherewithal to do that.’

Around 25 per cent of all children in care proceedings are linked to recurrent cases, the team found, with the average interval between the start of the first and second set ofproceedings 93 weeks, suggesting that women were often ‘pregnant again during proceedings or shortly after’. With mothers who had more than two applications, however, the intervals were even shorter, indicating that ‘the highest risk parents had the least time to change’. It’s essential to address this, say the authors, to give vulnerable mothers the chance to ‘exit this cycle’.

What’s also striking is the age of the mothers. Half of those involved in a cycle of repeat proceedings were 24 or under at the time of the first care application, with 19 per cent aged between 14 and 19. Nearly 60 per cent of recurrent care applications related to infants under 12 months, and 42 per cent of all applications were made within a month of birth.

How much of a role did drink and drugs play in the cases they studied? ‘Major, major,’ says Broadhurst. ‘What we’re seeing with the interviews we’ve done with women is early adolescent drug and alcohol use, usually as a coping mechanism in response to childhood sexual and physical assault and trauma and abandonment – early onset drug and alcohol use from the age of around 12, 13, 14. That tends to then result in adolescence being really quite troubled – homelessness, rough sleeping, maybe sex working, unstable care histories – in a high percentage of cases.’

babyAs the women don’t have time to turn their lives around, or even to properly engage with services, access to treatment is ‘a really key issue,’ she says. ‘There are differences across the country and some very good practice, but one of the problems in some areas is that when mothers are referred to the local authority, the local authority won’t respond early in the pregnancy – it waits until they deem the foetus to be viable and the baby likely to be born. They leave the intervention really late in the pregnancy – say 30, 32 weeks – so essentially the baby’s born before any work’s been done with the mother. So the default position then is removal, issuing care proceedings at birth, or in better cases mother and baby placement in foster care or
residential placement.’

It’s vital to work with drug and alcohol-using mothers early in pregnancy, as this can be a ‘window for change’, she stresses, a ‘time when women think “right, I’ve really got to get my life in order”. Because a lot of local authorities don’t do that there is no window for change, and we’re seeing women generally in these cases with short interval pregnancies.’

This means that another issue that drug and alcohol services should be thinking about is access to
contraception, she points out. ‘That’s a long-standing finding, actually, in relation to mums with problems of drug addiction – that women will not prioritise their reproductive healthcare needs. They’re thinking about “how can I survive and manage my drug habit?” They either think they can’t get pregnant, or it’s secondary, so drug and alcohol workers need to help them
space their pregnancies and access contraception, make it more of a priority. If women do space their pregnancies they’ve got much more chance of keeping their next child.’

Is there anything else that treatment services could be doing to reach out to this population? ‘Obviously, an outreach community-based or homevisiting, proactive approach would be good, because from what we know of these mums they sometimes struggle to leave the house, particularly if they’ve had a child removed. They’ll take to their beds and they can’t function in society at all – they’re desperately suicidal, bereft. They’re not out accessing anything.’

What’s also needed is longer-term support, she says, citing the example of the US-based PCap (parent-child assistance) program, a recoveryfocused service that offers support for three years and tries to keep mother and baby together. ‘The view is that if you can do that in as many cases as you can, that mum won’t have another baby,’ she says. ‘It’s an incentive not to get pregnant again in the short term.’

One issue, of course, is that in the UK funding for many wraparound services and family support is being cut. ‘Vulnerable parents are really up against it in terms of getting help, and people are less sympathetic towards them – there’s been a punitive shift,’ she states. ‘A lot the basic infrastructure for family life is being so cut back – housing, community services, everything. But it’s not a cheap option to put people in care, and the outcomes are not guaranteed.’

Is there anything else that the family courts themselves could be doing? ‘A lot of these mothers are very young – 24 or under, or 14-19 in the case of 19 per cent of them – and I just think a lot of them will find the court a completely alien place. I also think the quality of legal help they get is very variable. The problem-solving approach to court is much better. The FDAC [Family Drug and Alcohol Court] model guarantees – or goes as far as it can to ensure – a coordinated approach to treatment at the start of proceedings, whereas what generally happens is that recommendations can come part-way through or late.’

What’s more, new timescales of a 26-week deadline for care proceedings introduced under the Children and Families Act 2014 could make things worse, she says. ‘It will be really hard for these parents to turn their lives around in six months, particularly if they don’t get help from the outset of legal proceedings, and with the standard court model that’s not guaranteed. They can be referred for help, go on a waiting list – they’re queuing.’

It amounts to ‘a breach of social justice’, she believes. ‘The treatment recommendations that are made at the final hearing will often be something like 18 months psychotherapy, because the mother has borderline personality disorder, and no one wants to pay for that. We’ve seen mothers who are paying for the treatment themselves, they do ten weeks psychotherapy and the court says, “I’m sorry, that wasn’t enough.” Often the parents in our sample fell below the thresholds for disability and mental health services, so the court makes recommendations – says “you must do this” – and the parent can’t access that help. That seems very unfair.’

The team now hopes to produce as many rich-detail qualitative findings as possible over the next two years to inform frontline practice, she says, particularly around what could help facilitate change. ‘Obviously we shouldn’t be naïve and think we can fix everyone, because we can’t. But these young parents have got a lot of scope to grow up and change.’

News in Brief

Agonisisng Statistics

Almost 18m people died ‘in unnecessary pain’ in 2012 as a result of inadequate access to painkillers like morphine, says the Worldwide Palliative Care Alliance, with huge discrepancies in provision worldwide. ‘This is a public health emergency and an intolerable situation,’ said senior fellow at the alliance, Dr Stephen Connor. ‘Barriers to adequate pain treatment worldwide include overly-restrictive laws and regulation, over-exaggerated fears of addiction and a lack of understanding of the issues among governments and health professionals. Attitudes need to change.’

Situation Stable

The prevalence of drug use is now stable around the world, according to UNODC’s World drug report 2014. Around 5 per cent of the global population used an illicit drug in 2012, it says, while the number of problem drug users stood at around 27m. However, in recent years ‘only one in six drug users globally has had access to or received drug dependence treatment services each year’, said UNODC executive director Yury Fedotov. Report at www.unodc.org

A Friendly Word

A new report on how treatment services could be improved for the LGBT community has been issued by the charity London Friend. Out of your mind draws on interviews with both service users and commissioners, and includes practical toolkits as well as recommendations. ‘Our research has found very poor representation of LGBT treatment need in local needs assessment, and our clients have told us treatment services don’t always understand the drugs they are using, or how they’re being used,’ said London Friend chief executive Monty Moncrieff. ‘It feels like LGBT issues are literally out of people’s minds when they plan and deliver drug and alcohol services.’ Report at londonfriend.org.uk

Pick a Priority

A new interactive map showing the priorities of health and wellbeing boards across England has been produced by the Local Government Association (LGA). Users can either select a specific area to see a summary of local priorities or choose a theme to find out which areas are focusing on it. The aim is to support the boards and stimulate collaboration, says the LGA. Tool at www.local.gov.uk

Research Cash

Alcohol Research UK has announced its 2014 small grants scheme to support research projects, pilot studies or relevant conferences. More information at: alcoholresearchuk.org/grants/. Application deadline is 16 July.

 

Road to Ruin

Around 28,000 people die annually and 1.34m are injured on Europe’s roads as a result of accidents caused by people driving under the influence of a psychoactive substance – primarily alcohol – according to a report from EMCDDA. ‘As drug consumption patterns change, particular concerns arise,’ said EMCDDA director Wolfgang Götz. ‘These include an ever-expanding range of psychoactive substances and medicinal products as well as context-specific risks such as those posed by young people driving home from nightlife venues after consuming a mix of alcohol and drugs.’ Drug use, impaired driving and traffic accidents at www.emcdda.europa.eu

Stigma Struggle

A series of October events is being planned by Adfam to celebrate its 30th birthday, with a focus on campaigning against ‘the stigma that affects so many families’. A campaign pack is available from the Adfam website, and the organisation is encouraging local groups and services to hold their own awareness-raising events. Resources at www.adfam.org.uk

BMA Ban Call

The sale of cigarettes should be banned to anyone born after the year 2000, the British Medical Association (BMA) has stated, after delegates at its annual conference voted to support the motion. The move would ‘help create the first tobacco-free generation’, it says. ‘The level of harm caused by smoking is unconscionable,’ said research assistant in academic public health, Tim Crocker-Buqué. The policy would ‘not instantly prevent all people from smoking’, he said, but rather ‘de normalise’ it.

Roi Reports

An alcohol ‘return on investment tool’ to inform local decision making has been developed by NICE. The tool helps to model the economic re – turns that can be expected for different interventions, and comes with a range of support materials. Users can mix and match interventions to see which package provides the best value for money. Free download at http://bit.ly/1smrjS8

 

People Power

Westminster Drug Project (WDP) has been awarded the Investors in People Standard, which demonstrates an organisation’s
commitment to staff development. ‘We strive on a daily basis to make sure that each and every one of our employees reaches their full potential,’ said WDP chair Yasmin Batliwala.

Southmead Celebration

Bristol’s Southmead Project is holding its 20- year celebration event on 20 September, featuring presentations, discussions, drama and music. http://southmeadproject.org.uk

PHE: Increase hep C treatment or face liver cancer time bomb

England will see 1,650 annual cases of hepatitis C-related end-stage liver disease and cancer by 2035 if the current low levels of treatment are maintained, according to Public Health England (PHE).

Although around 160,000 people are infected with hepatitis C in England, just 3 per cent access treatment each year. However, the burden of healthcare costs associated with untreated hep C means that increasing this coverage to 100 per cent over the next 10-15 years would only mean a 31 per cent increase in spending, says PHE. The agency is calling for services to be made more easily accessible – including expansion into drug treatment, primary care and prison settings – as well as better monitoring and reporting of treatment outcomes.

‘While there would be a financial cost to rapidly increasing treatment rates, the increase is not as great as you might think because the costs of managing undiagnosed and untreated hepatitis C are so high,’ said PHE hepatitis expert Dr Helen Harris.
‘Currently, we are paying a very high price in terms of lives lost and burden placed on future healthcare resources.’

‘Hepatitis C is a curable disease and to have so few people being offered the chance to rid themselves of the virus is simply not acceptable,’ added Hepatitis C Trust chief executiveCharles Gore. ‘If more people are diagnosed and treated, we could rid
ourselves of this virus within the next 15 years, a unique opportunity. The alternative is ever more people dying entirely preventable deaths.’

Meanwhile, new figures from the Office for National Statistics (ONS) show that the incidence of liver cancer rose by 70 per cent for men and 60 per cent for women between 2003 and 2012, making it the 18th most common cancer in England.
PHE study at www.journal-ofhepatology.eu Cancer registration statistics, England, 2012 at www.ons.gov.uk

West Africa ‘should decriminalise’ low-level drug offences

West Africa should consider decriminalising low-level and non-violent drug offences, according to a report from the West Africa Commission on Drugs. The drug trade in the region is now not only a threat to public health but is undermining institutions and damaging development efforts, says Not just in transit: drugs, the state and society in West Africa.

Although the region has been experiencing a period of optimism, with growing economies, increased democracy and fewer civil wars, this is at risk from the ‘destructive new threat’ of the drug trade, the commission states. ‘With local collusion, international drug cartels are undermining our countries and communities and devastating lives.’

The area is no longer simply a transit zone for drugs bound for Europe, it says, but a ‘significant zone of consumption and production’ in its own right. At an estimated $1.25bn, the scale of the cocaine trade alone ‘dwarfs the combined state budgets’ of many countries in the region, it adds, and while the region has a long history of cannabis production, mainly for local
consumption, it is now also becoming a producer and exporter of synthetic drugs.

‘The drugs trade is currently valued at hundreds of millions of dollars in West Africa, a region where the majority of the countries are still among the poorest in the world,’ the document states. ‘The growth in drug trafficking comes as the region is emerging from years of political conflict and, in some countries, prolonged violence.’ The legacy of this instability is state institutions and criminal justice systems that are vulnerable to infiltration and corruption by organised crime, it says.

Drug use needs to be regarded ‘primarily as a public health problem’, argues the report, which is the result of 18 months of collaboration with regional, national and international organisations including the United Nations Office on Drugs and Crime (UNODC), the African Union (AU) and the Economic Community of West African States (ECOWAS). Although traffickers and their accomplices should face the ‘full force of the law’, drug users themselves need help rather than punishment, it argues. ‘We believe that the consumption and possession for personal use of drugs should not be criminalised,’ it states. ‘The law should
not be applied disproportionately to the poor, the uneducated and the vulnerable, while the powerful and well-connected slip through the enforcement net.’

‘Most governments’ reaction to simply criminalise drug use without thinking about prevention or access to
treatment has not just led to overcrowded jails, but also worsened health and social problems,’ said ex UN secretarygeneral
Kofi Annan, who initiated the commission. Full report at www.wacommissionondrugs.org

July 2014

ddnjulyIn this month’s issue of DDN…

‘While we have been encouraged to focus on the “canaries in the mine”, those who are the
first visible casualties of a sick society, fixing them and returning them to productive life, we have been discouraged, interestingly, from looking at the mine itself…’

In July’s issue of DDN Alistair Sinclair, Director of UKRF talks about the British recovery movement and its vital role in looking for ‘the good, the true and the beautiful’ in our deficit-based society. Click on the links below to read more, and don’t forget to join the discussion by commenting, tweeting and liking our Facebook page.

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June 2014

June DDN

In this month’s issue of DDN…

‘We’re saying that different life experiences develop their own specific qualities in an individual, and I think employers, more and more, are having to look in different places to find the qualities they need in an employee.’

In June’s DDN, Nicola Inge of Business in the Community talks to DDN about breaking down barriers to work for people with criminal convictions. Click on the links below to read more, and don’t forget to join the discussion by commenting, tweeting and liking our Facebook page.

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