Following Recovery Month, With You celebrates stories of recovery.
Recovery looks different for everyone. The people who access drug, alcohol and mental health support come from a range of backgrounds, and all have their own unique relationship with these issues, and experience of accessing support.
September is Recovery Month and we’re highlighting some of the stories of the people we support and their experience of recovery.
Sammi: “I can finally say that I’m proud of myself and that I like who I am.”
I can’t pinpoint one specific catalyst for my lifelong battle with drugs and alcohol. However, I did have a difficult childhood, struggled with the death of friends and family, suicide, abuse, mental health issues, and most recently a horrific incident that left me with a physical disability. From a young age, alcohol and drug use were normalised to me. Each time I suffered any kind of trauma, I delved deeper into that world. I thought that was normal because it was to me.
Over the years I ruined relationships, lost jobs, even lost my house. I repeated this cycle over and over. I knew I could survive the worst and for a long time I thought I was enjoying it on some level. I tried therapy lots of times, I tried detoxes, but I just didn’t care. I felt like I had no point or purpose in life.
Then, almost two years ago, I looked around me and realised I was going to lose everything again. Except this time was different. I’d put so much hard work into learning how to walk again — I’d been in therapy for PTSD and for abusive relationships — I was finally learning how to like myself again. So why was I back here?
I decided to pick myself up and sort myself out. I asked for help. I didn’t want to be stuck alone in my house feeling more lonely, desperate and unhappy.
My nurse got in touch with With You for me, and since then I’ve been getting support at meetings and groups. I can finally say that I’m proud of myself and that I like who I am. With You have helped me to maintain my recovery and stay motivated through training opportunities, courses, volunteering and various projects within the charity.
Rob: “It gave me confidence, self-worth and self-belief that I could do it.”
When I was 13, my little sister died. That tragic event really affected me. When I was 16 I moved from Glasgow to England and discovered alcohol. It became an issue really quickly and would stay an issue for the next few decades of my life.
After moving to England, I had kids, got married, and was headhunted for a good job in London. I felt like I’d arrived, but at the same time, I hated it. I’d realise later that it was the alcohol that I hated, how it dictated my life.
Eventually, my alcohol issues led to my marriage ending, and I ended up homeless for a while before moving back to Glasgow. This all culminated in March 2020 when I tried to take my own life. I sat in my flat just thinking about how I couldn’t get away from alcohol. I couldn’t live with it, I couldn’t live without it. I just saw no way out.
I’d got support a couple of different times, but nothing really stuck. I didn’t even really understand what I was suffering from. Eventually, a crisis psychiatrist referred me to With You.
Maggie was my With You support worker, and I credit her with saving my life. I went in feeling broken, but as soon as I met her I felt comfortable. We sat in a room, and I broke down and I cried, for the first time in a long time. Maggie really gave me the confidence to say “I can do this”.
Eventually, I began to volunteer at With You, helping to run online groups during the pandemic. This really empowered me. It gave me confidence, self-worth and self-belief.
It’s been a journey and a half from this little boy losing his sister, to sleeping on the streets for two years, to losing everything, to finding the right support and feeling like I could do this.
Katherine Watkinson, Acting Head of Medicines Optimisation and Pharmacy at Turning Point, discusses how a new government consultation could make naloxone more accessible.
Drug-related deaths have more than doubled since 2012 and recent figures show no sign of this trend slowing down[1]. England and Wales registered 4,561 drug related deaths during 2020 which is the highest on record and a 3.8% increase on the previous year[2]. Since 2012, drug related deaths have risen from 46.6 people per million to 79.5 per million in 2020[3]. Heroin overdose is the leading cause among deaths from drug poisoning[4].
In response to this growing public health crisis, the government have launched an open consultation, testing the waters on potential amendments to the Human Medicines Regulations (2012). These amendments would broaden the types of services which could stock and provide naloxone to individuals without a prescription. We believe this is a positive step towards ensuring naloxone becomes as accessible as possible to those who need it.
So, what is naloxone? Naloxone is a medication used to block the effects of opioids. The medication is effective for the reversal of a heroin overdose in emergency situations and can be used by non-medical responders such as police officers, hostel workers, and friends and family. Naloxone can be administered in two forms: nasally or as an injection.
The effectiveness of naloxone is, in part, attributed to the fact it is universally safe to use. Like all medicines, naloxone can produce common side effects, however these side effects occur infrequently and most importantly, there are no pre-existing conditions which can cause complications when an individual is administered naloxone.
At Turning Point, we believe naloxone should be supplied to as many individuals and stocked in as many locations as possible, not just people who are in structured treatment. It has been repeatedly demonstrated that wherever naloxone has been more accessible it has had a positive effect on reducing drug-related deaths. A systematic review published in 2018 found that:
“On the basis of the most current evidence, there is overwhelming support of take-home naloxone programs associated with decreased mortality among those who abuse opioids. As a result, there is an implication for a practice change that take-home naloxone programs should be more widely implemented throughout communities as a method of decreasing mortality associated with opioid overdoses.”[5]
Here at Turning Point we not only offer, but strongly encourage all opiate users who use our services to accept and carry naloxone and try to work through any reasons given for refusal. Since the pandemic, we have posted naloxone out to clients as well as leaving it with local pharmacies to ensure it continues to remain accessible.
Our belief in expanding and widening the use of naloxone as much as possible is also reflected in our work with various agencies including homelessness services, the HM Prison and Probation service, pharmacies, and our own substance misuse services. In our work alongside these agencies, we only ever find willingness and demand for naloxone, and we believe that these services are very likely to stock naloxone if it were available.
Currently, hostel staff and others that indirectly work with opioids users are unable to supply naloxone directly, which makes it difficult to provide for people that are not engaged in drug treatment services and who are among the groups at greater risk of overdose.
‘Root and branch’ reform is needed for prison mental health support, according to a damning report from the UK Parliament’s Justice Committee. Many prisoners have undiagnosed mental health problems and are unable to access care, says Mental health in prison, with the situation likely to get worse without significant reform.
The government needs to end the practice of seeing prisons as a ‘safety net’ for when mental health provision in the community is inadequate or non-existent, the document states, and calls on the Prison and Probation Service, Ministry of Justice and NHS to implement a system of genuinely integrated care. This would need to improve identification of mental health problems and care provision in prison, as well as supporting proper transition to community-based services on release.
While it’s estimated that up to 70 per cent of the prison population may be suffering from mental health issues, just 10 per cent are receiving any treatment. Poor data collection means that the ‘true scale of the mental health crisis’ in prisons is unknown, the document adds. The NHS should assess the shortfalls in provision and develop plans to make sure support is equivalent to that available outside, while ‘also taking into account the specific needs of those in a prison environment’. It also needs to set out plans to improve recruitment and staff retention in partnership with the Prison and Probation Service, the report says. Better screening of prisoners for mental health issues is also needed, with BAME prisoners particularly poorly served.
‘No one should be in prison simply because mental health support in the community is not available,’ the Justice Committee states. ‘Too many offenders are sent back in prison because community orders with mental health requirements are unavailable in many areas. The government needs to be much more ambitious and ensure that these orders are available in all parts of England and Wales by 2023, not its current target of 50 per cent.’
Sir Robert Neill MP: Calling for an integrated approach to mental health in prisons
‘Mental health in prisons is not treated with the focus it needs,’ said committee chair Sir Robert Neill MP. ‘When there isn’t sufficient data to even give an indication of the scale of the problem it is clear that there needs to be concerted and systemic reform. We do not know how many people are missing out on the help they so desperately need or how effective current mental health support systems are and this needs to change fast.
‘We are calling on the Prison and Probation Service, NHS and Ministry of Justice to work together to develop an integrated approach to mental health in prisons. It must ensure that all prisoners with mental health needs are identified and guided to support services. Care must be seamless, both in accessing different physical and mental health support, and in ensuring a smooth transition to community care when leaving prison. We have a duty of care to those who are in prison and we must do more to live up to it.’
Frances Crook: Focus should be on keeping people out of the criminal justice system
It was ‘almost impossible to imagine the scale of mental distress in prisons across the country,’ said chief executive of the Howard League for Penal Reform, Frances Crook –where ‘tens of thousands of people have been held in overcrowded conditions or solitary confinement ever since the pandemic began and, in many cases, long before. This report draws attention to the many gaps in treatment in an overburdened and under-resourced system, but we must not lose sight of the fact that prisons can create mental distress themselves.
‘People who have been crammed into unfit jails plagued with violence and self-injury can acquire mental health problems, which then become worse and worse. Any drive to improve mental health must begin with a focus on keeping people out of the criminal justice system in the first place. Reducing the prison population is key to saving lives and preventing crime.’
A new set of minimum standards for needle and syringe provision has been launched by Humankind.
The standards support compliance with existing regulation and national guidance, and are designed to ‘ensure full and equitable reach of comprehensive harm reduction services to all who use substances’ and to tackle stigma.
The standards cover issues like accessibility, confidentiality, safety and pathways to other services, and are part of a number of harm reduction initiatives that ‘support Humankind’s commitment to improving interactions with service users and helping to save lives’, the charity states.
Stacey Smith: needle and syringe services play a crucial role
‘I’m proud to say that our services already operate at a high standard, but we want to ensure that our needle and syringe provision are among the best in the sector,’ said Humankind’s director of nursing, Stacey Smith. ‘Sadly since the start of COVID we have seen a decline in the number of people accessing our needle and syringe programmes and we want to change this. These services play a crucial role in reducing drug-related deaths and reinfection rates for hepatitis C, providing the life-saving drug naloxone, and providing a route into treatment services. They also provide our staff and volunteers with the opportunity to connect people with housing, primary health and other specialist services.’
‘I am delighted to see drive to improve the care we offer to some of our most vulnerable members of society’, added professor of hepatology Queen Mary University of London and national clinical chair for the hepatitis C delivery networks, Graham Foster. ‘Preventing avoidable harms by high quality needle exchange is one of the most effective ways of improving health and reducing costs, and this initiative will help in our goals to build back better after the pandemic.’
Scottish police will now be able to issue warnings for possession of class A drugs, said Scotland’s lord advocate, Dorothy Bain QC, in a statement to the Scottish Parliament. Police are already able to issue warnings for class B and C drugs, but she is now is extending the recorded police warning guidelines to include all classes of drugs, meaning that people found in possession will not automatically face prosecution.
Dorothy Bain QC: ‘Each case will be considered on its own facts and circumstances.’
Neither offering or accepting the warnings is mandatory, she stressed, and emphasised that the scheme extends to possession only, with ‘robust prosecutorial action’ continuing for supply offences. Recorded police warnings ‘do not represent decriminalisation of an offence’, she emphasised, adding that prosecutors can also refer people accused of possession offences for diversion to support services outside of the criminal justice sector. She also detailed the success of a pilot scheme launched in Inverness earlier this year, where people are referred to a mentor to provide support ‘at first point of contact with the police’.
Although the Scottish Conservatives labelled the move ‘decriminalisation by stealth’ and ‘a dangerous decision that will benefit drug dealers and make it more difficult for police officers to stop the supply of class A drugs’, it has been welcomed by parts of the Scottish media, with the Daily Record calling it a ‘massive step forward in drugs policy’.
Last year was another record year in Scotland’s ongoing drug deaths crisis (https://www.drinkanddrugsnews.com/another-record-year-for-scottish-drug-deaths/) with provisional figures for 2021 indicating that there is unlikely to be any significant reduction (https://www.drinkanddrugsnews.com/provisional-figures-show-slight-fall-in-scottish-drug-deaths/).
Bain told MSPs that she recognised ‘the extent of the public health emergency we face in Scotland’ and the ability of prosecutors to play their part in addressing the crisis. ‘There is simply no one size fits all. Each case will be considered on its own facts and circumstances. Any alternative to prosecution: warnings, fines or diversion, are offers only. An accused person always has the right to reject such an offer and there will be cases where prosecution is the appropriate response in the public interest. The most appropriate response – the smartest response – in any drugs case, must be tailored to the facts and circumstances of both the alleged offence and the offender. Scotland’s police and prosecutors are using the powers available to them to both uphold the law and help tackle the drug death emergency.’
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We deliver training on a range of themes including:
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Our training attracts professionals from a wide range of backgrounds including: health & social care, mental health, housing & homelessness, criminal justice, education and employment, workplace wellbeing, youth and community.
Doubling the excise duties on alcohol would prevent 5,000 alcohol-related cancer deaths a year in the WHO’s European Region, according to a new study.
The highest number of potentially avoidable alcohol-related cancer cases and deaths are in the Russian Federation, the UK and Germany.
Around 10,700 alcohol-related cancer cases and 4,850 deaths would be prevented, WHO states, with the UK, Germany and Russia the main beneficiaries.
Modelling the impact of increased alcohol taxation on alcohol-attributable cancers in the WHO European Region sets out models for three different scenarios, with current excise duties increased by 20 per cent, 50 per cent or 100 per cent. A doubling of duties could potentially save 1,700 lives from colorectal cancer and 1,000 women’s lives from breast cancer, it says. The highest number of potentially avoidable alcohol-related cancer cases and deaths are in the UK, with 1,800 avoidable cases and 680 avoidable deaths, followed by the Russian Federation with 1,400 cases and 725 deaths, and Germany with 1,250 cases and 525 deaths.
WHO sees increasing alcohol duties as one of its ‘best buy’ policies – measures that ‘cost-effectively’ reduce alcohol use and the associated health burden. ‘In many of the countries of the WHO European Region current levels of taxation remain low, particularly within the European Union,’ said study author and member of WHO’s Advisory Council on Innovation for Noncommunicable Diseases, Dr Jürgen Rehm. ‘That’s why WHO Europe recommends increasing taxes on alcoholic beverages as one of the best measures with potentially high impact.’
‘In 2020, more than 4.8m people in the WHO European Region developed cancer,’ added co-author Dr Carina Ferreira-Borges, acting head of the WHO European Office for the Prevention and Control of Noncommunicable Diseases. ‘The rate of cancer in the region is the highest in the world, and high levels of alcohol consumption contribute to this. Alcohol is linked to seven different types of cancer. The good news is that in Europe, up to 40 per cent of cancers could be prevented, and we have many opportunities to defeat cancer as a life-threatening disease in the near future. Doubling current alcohol excises in the WHO European Region can help us avoid around 6 per cent of new cancer cases and deaths linked to alcohol consumption.’
A new TV and online campaign to encourage people to intervene in drug overdose situations has been launched by the Scottish Drugs Forum (SDF).
The campaign has been running adverts in the press and on radio and now on TV.
The 40- and 60-second adverts, under the banner We Can Prevent Drug Deaths, urge people to learn how to recognise an overdose and to intervene to save lives, as well as to order their own naloxone kits.
Scotland has the highest rate of drug-related deaths in Europe, with 1,339 in 2020 – 90 per cent of which involved opioids – while provisional figures for the first six months of this year indicate that 2021’s rate will be similar. SDF and the Scottish Government launched their overall Stop The Deaths campaign to coincide with International Overdose Awareness Day (DDN, September, page 4), including a dedicated website where people can order naloxone kits.
‘Time is of the essence when someone becomes unresponsive after an overdose and can be crucial in terms of avoiding death or serious brain injury,’ said SDF’s strategic co-ordinator in drug death prevention, Kirsten Horsburgh. ‘We need everyone to be able to recognise an overdose, intervene and call 999.’
‘This is a significant campaign not only in raising the issue of drug related deaths and how they can be prevented, but in terms of the stigma suffered by people who have a drug problem,’ added SDF CEO David Liddell. ‘The public health emergency around drug related deaths in Scotland has continued partly because of that stigma. The investment in this high-profile campaign by government is a clear indicator of a change in public attitudes and the government has shown leadership on this. SDF have been delighted to shape this campaign and to deliver it across Scotland.’
There were 722 suspected drug deaths in Scotland during the first six months of 2021, according to provisional figures from the Scottish Government – nine fewer than during the same period last year.
‘Once again these figures are appalling,’ said drugs policy minister Angela Constance.
Almost 70 per cent of the deaths were of people aged 35-54, and men accounted for 72 per cent of fatalities, compared to 76 per cent in the corresponding period in 2020.
The figures have been released just two months after 2020’s official statistics, which showed a record total of 1,339 deaths – up 5 per cent on the previous year. Scotland’s drug death rate is almost three times higher than it was a decade ago and remains the highest in Europe, while alcohol-specific deaths in the country also rose by almost 20 per cent between 2019 and 2020.
The new provisional figures show deaths that the police suspect involved illicit drugs, rather than the annual National Records of Scotland statistics that use data from death registration records and forensic pathologists. However, the Scottish Government has stated that it will now release provisional figures every quarter following criticism that 2019’s figures were not released until the end of 2020. The next Suspected drug deaths in Scotland report will be published in December, covering deaths from June to September.
‘Once again these figures are appalling,’ said drugs policy minister Angela Constance. ‘We are taking a vast range of actions to tackle this public health emergency, and we recognise the hard work and challenges ahead. More regular reporting of data on drug death trends in Scotland will ensure everyone involved in our national mission remains focussed on the work we must do to get more people into the treatment that is best suited for them as quickly as possible. The £250m we are investing in tackling this public health emergency will make a difference. I am working to ensure it reaches front-line services as quickly as possible and that every single penny will count as we continue to prioritise our efforts to turn this crisis around.’
Suspected drug deaths in Scotland: April to June 2021 at www.gov.scot
Blackpool at sunset. Photo by Mark McNeill on Unsplash.
Our crazy golf course in Blackpool is a symbol of our work — not giving up on people who felt everyone had given up on them, says With You’s Ian Treasure.
If you’ve ever been on a weekend night out in Blackpool and been a bit worse for wear towards the end of the night, you may have come across Blackpool and the Fylde Street Angels. If you ever snapped a stiletto, found your phone battery was flat, or lost your group, you could approach their transit van on Queen Square for help. On different days, the Street Angels also provided pastoral outreach to people who were homeless, with food and essentials, but above all kindness, compassion and understanding. And Tenacity.
When I reflect back on the last three years of Blackpool Fulfilling Lives, ‘tenacity’ is the best way to describe everything we’ve achieved. The Blackpool Fulfilling Lives programme helps people living in Blackpool who have a combination of issues including homelessness, re-offending, problematic substance misuse, and mental ill health. Funded by the National Lottery and ending earlier this year, our aim was to present and evidence more effective ways of delivering vital services to people with multiple disadvantage.
In April 2018 when our team recruited people experiencing disadvantage to do a focus group on what help they needed, I never would have imagined that we would find, rightfully occupy and renovate, a crazy golf course and involve some of the people from that focus group in the running of it. But that is what has happened.
Blackpool is one of the most famous and historic seaside resorts in the UK. It was the first place to have electric street lighting. It’s been a destination for health and wellbeing since the mid-19th Century. The watering hole of the masses was its accolade in the roaring 1920s. Its fin de siècle decadence has been proudly restored by the council over the last 20 years along with the renovation of many of its famous landmarks, and listed buildings, as part of an ongoing programme. Just north of its most visible landmark (the tower) and the oldest (North) pier, is the Princess Parade Crazy Golf Course.
Back in 2018, following the focus group, we went out picking up litter. The 17 people we spoke to on that April lunchtime had said they were willing to do this and Paul Rawson from the Street Angels agreed to co-ordinate. It wasn’t really about picking up litter though, it was about the conversations. Do something alongside people and you find out what matters to them.
Do something to people, for example, grill them via a formal assessment, and you may find out what is the matter with them, but there is automatically an imbalance of power. But while picking up litter as an equal partner, we stumbled upon an area known as ‘the sunken garden’, and when one of the volunteers suggested it would be nice to tidy the area up, we spent an hour doing so. He also suggested it would be nice to renovate it, as it looked like a crazy golf course.
At the end of that hour, we agreed to meet again the following week. We provided some refreshments and a £5 voucher for their time, and I headed back to the office to start what was an incredible journey of enquiries, emails, applications, drawings, business plans and securing funding. I was not alone on this journey. Paul from the Street Angels kept the group out picking up litter and the Blackpool Fulfilling Lives Strategic Board listened in amazement as I proposed that in order to help people who are experiencing disadvantage we should renovate a crazy golf course. These are some of my career-defining moments.
Delphi Medical outlines why it’s important for employers to offer treatment support to employees struggling with addiction.
If you are an HR professional or have any input in the welfare of the people in your business, here are two facts to be aware of:
• A YouGov poll indicates a 30% increase in ‘problem drinking’ in just 12 months
• Alcohol-related deaths are at a 20 year high, whilst drug related deaths are at a 25 year high*…
…and that’s before the full impact of the pandemic is felt.
As a responsible employer who aims to keep good people, what can you do to help an employee who is struggling with an addiction? And why should you do it?
Three reasons to provide addiction treatment for an employee;
It’s a better use of your time and money
Three points here:
• It’s cheaper to get treatment for an employee than it is to lose them, then recruit and train a replacement
• An employee who is underperforming due to an addiction can cost you time and money if unaddressed
• Your time and money is spent more wisely investing in someone you know (and who knows you) rather than having an employment gap for an undefined period of time and then having to invest yet more time to get them up to speed.
It says a lot about you as an employer
Not that you’d shout about individual cases, but knowing the lengths you are prepared to go to help them must be a motivator and an incentive for staff.
Addiction is officially classified as an illness, with the NHS website saying ‘If you need treatment for drug addiction, you’re entitled to NHS care in the same way as anyone else who has a health problem’. So if you offer any other health and wellbeing services to your teams, should you not also offer addiction treatment for those that need it?
It’s the next big thing to impact the world of work
Addiction is increasing and therefore it’s become increasingly likely that someone you employ will need help.
Numerous surveys and reports are showing that the Covid pandemic has seen a large increase in the misuse of drink and drugs. For example, in February 2020 the NSPCC reported a 70% increase in the number of children needing help due to their parent’s addictions and misuse. Similarly, the BBC reported an increase in depression rates directly linked to increased alcohol consumption during lockdowns.
With addiction becoming more and more prevalent, it is a potential health crisis that will have an impact on your business.
Penrose Roots, Social Interest Group’s garden-based project, has been awarded £413,004 from the National Lottery Community Fund.
The award will be disbursed over a three-year period and will help Roots to improve their service offering. Their plans include:
• Hiring two more Roots to Recovery members employed as staff on the programme
• Recruiting 20 volunteers
• Five Roots to Recovery members moving on to run the project’s Community Gardens
• Growing 600kg of produce each year with 70% donated to local food banks and community kitchens
• Clients feeling less isolated, thus improving their wellbeing and sense of belonging
• Reduction of reoffending in Roots to Recovery members with offending histories
• Improved health and wellbeing amongst members.
When informed of the award, Samantha Smith, Roots’ service manager, said: “Myself and the Roots team of staff, members and volunteers are over the moon with this excellent news. We have all put so much into the project and the sense of accomplishment and relief we feel is amazing. There has been blood, sweat and tears over the last three years to get this funding and now it is finally here we can watch our project grow.
“Seven years ago, when I started Roots on a Thursday afternoon at a small site in Luton, I always thought we could make this a bigger, better project and here we are. Thanks to the team, who are just the most amazing people I think I will ever meet, offering support to myself, each other, and our members through the good and the bad times. We deserve this and I really could not be prouder to be part of such an outstanding charity.”
The award will also allow Roots to purchase a much-needed new van that will assist them in taking more members and volunteers to gain new skills. It will also enable them to continue to grow the fantastic work they do across the community-based recovery services.
It’s time to properly address the huge unmet treatment needs of BAME communities, says Sohan Sahota.
BAC-IN is a Nottingham based, specialist drug and alcohol recovery support service for individuals, families and young adults from diverse ethnic communities – an award winning, grassroots community service inspired and founded by people in recovery and built on a foundation of knowledge gained by those with first-hand experience of addiction and multiple disadvantage.
Our approach is holistic and culturally sensitive, enabling individuals to access support with addiction recovery, mental health and additional wellbeing services. We offer a range of activities, including one-to-one and group support, counselling, aftercare, leadership mentoring, personal development workshops and specialist training to help people achieve sustainable recovery, make responsible life changes and build healthy relationships. The essence of lived experience, addiction recovery and cultural expertise is at the heart of BAC-IN’s guiding philosophy, organisational principles and service delivery.
We are passionate and motivated to improve outcomes for BAME communities – we’ve witnessed and understand the inequity that this community of people experience with addiction, complex trauma and the cultural repercussions for their families. This reality drove the development of BAC-IN in early 2000 as a response to a gap in mainstream drug treatment services for BAME communities.
Under-representation
Our partner organisation New Hope Rehabilitation (NHR) provides abstinence-based supported living accommodation in the Nottingham and Derby area. NHR are a small local BAME-led service founded by professionals with extensive experience of working in substance misuse, criminal justice and adult and children’s services, most of whom also have lived experience of recovery from substance misuse. The philosophy of NHR is rooted in the desire to make a lasting difference in the lives of the people who come for help and support.
As a multicultural society, we must address the growing under-representation, unmet need and increasing health inequalities in treatment for BAME communities, including women, families, young people and veterans. Despite mainstream services being available for those in addiction, uptake is low amongst BAME people due to their perceptions of such services as clinical and uncaring, as well as a perceived cultural distance between worker and client.
BAME communities are not resistant to treatment, nor are they naïve about treatment services. The realities are closely linked to cultural barriers to access, lack of choice and poor experiences of engagement in available treatment. The impact of cultural shame, discrimination and past experience of racism, exacerbated by mistrust of services and language barriers, prevent many from coming forward for help.
Disconnection
Mainstream and addiction charity services are doing excellent work providing generic support, advice and clinical treatment that benefit many from all backgrounds. There is however a disconnect between the experience of BAME communities accessing help and the perceptions of how well service providers are catering for all communities – these misperceptions have left many who are seeking help unsupported, resulting in further complex issues leading to severe health consequences and fatalities. Local and national commissioning arrangements often underestimate the level of need among BAME communities, which often results in stark under-representation in treatment as highlighted in the annual NDTMS reports and elsewhere.
A greater investment is required to improve access and develop culturally appropriate treatment and recovery services. Knowledge of lived realties, intersectionality and cultural issues is vital in supporting BAME people effectively – cultural context is critical in understanding who people are in terms of their world view, attitudes, beliefs, cultural backgrounds, ethnicity, faith, family dynamics, religious practices and their history. The role of cultural empathy, lived experience and ability to connect are at the heart of building trust and developing equality within the therapeutic relationship.
Core elements
The purpose of appreciating the culture of an individual in recovery is to better understand who people are intrinsically and how to help them. In order to do this, it’s not enough just to understand their dietary needs, religious holidays or what faith they belong to. The most important element of a person’s culture is their psychology – what are their core beliefs? What is their faith? What is their attitude to family? What is their experience of stigma, racism, oppression and prejudice? What are their communication styles? What are their concepts of disease, health, addiction and recovery? How do all of these things impact their relationships, their identity and their reasons for developing substance problems and their need for recovery and wellbeing?
Without these core elements of deep cultural understanding and the ability to foster a genuine sense of connection and belonging, approaches to addiction and recovery for BAME communities will remain stuck under a low ceiling of effectiveness and continued poor psycho-cultural engagement by treatment providers. Cultural competence training can help to some degree to improve interpersonal communication but cannot replace culturally appropriate community-led support.
Integration
We need services that are fit for purpose and that have the capacity to reach and engage people who need help. The value of integrated services running alongside BAME specialist community services must now be a priority – they can both draw on each other’s assets and produce an overall stronger integrated system to benefit the community as a whole. They can share knowledge and expertise wherever one is lacking – the right support from the right people and organisations is key in establishing a stable and lasting recovery.
Equal access to treatment and recovery is the way forward, but to make this happen there must be significant investment in specialist community and lived experience led service providers to address gaps, inequalities and unmet need for under-represented groups. Give people a choice of service providers, treatment options and embrace approaches that work, be it psychosocial, culturally specific, faith-based or spiritually informed models to transformative recovery and wellbeing.
When there’s so much competing for our attention, it’s easy for some things to feel unattainable. But threading diversity through our services is not an add-on. As Sohan Sahota explains (p6) many BAME people perceive services as clinical and uncaring and have had poor experiences of engagement. Add language barriers and cultural differences to discrimination and it’s not hard to see why some people feel reluctant to engage.
In Recovery Month this is surely something we need to examine very closely when we are celebrating the huge benefits of connection and a sense of belonging. Let’s make sure recovery is truly inclusive.
The feeling of being an outsider is compounded for people who find themselves homeless, says Wendy Nee (p10), who describes the massive recovery opportunity we can offer simply through shelter, safety and kindness. The value of this vital sense of belonging also came across strongly when we asked, ‘What keeps you on track with your recovery?’ (p12), which also shows the benefits of peer support.
While Phoenix share stigma-busting recovery projects that are enhancing the community (p20), WDP and Shannon Trust show how peer-led reading support can transform lives: recovery in action.
The Probation Service is failing people with drug issues, says chief inspector of probation Justin Russell.
I’ve been inspecting probation services across England and Wales for the past two years. Although I’m not new to the criminal justice sector, I’m still struck by the scale of drug use and drug-related offending among people on probation – and the impact of drugs on so many lives.
The organisation that I head up – Her Majesty’s Inspectorate of Probation – has taken a closer look at how probation services work with individuals who use illegal substances. There were pockets of good practice but, overall, the current system is not working well and this inspection has found the service provided to be poor (see news, page 5).
Drugs are a driver of half of all acquisitive crime, and drug-related offending costs the public purse an estimated £9bn a year. Drug-related deaths are at record levels. Yet the criminal justice system lacks the focus and funding to tackle this problem. National leadership and direction is much needed, and government departments and local health and justice services need to work more closely together. The Probation Service manages nearly 156,000 people in the community – but it doesn’t record how many of these people are dependent on class A drugs, are in treatment or might benefit from a referral to a specialist drugs agency.
Judges told us that probation court teams weren’t making enough recommendations for a treatment order. Without this basic data, how can the Probation Service understand the extent of the issue and communicate those requirements to local public health colleagues who are commissioning these services for the wider community?
Withered on the vine
Over 40 per cent of the thousands of probation cases we assessed in our local inspections are recorded as having some sort of substance misuse issue. If representative of the caseload as a whole that suggests that more than 75,000 people on probation will have one too. Yet fewer than 4,500 drug rehabilitation requirements were issued by the courts in 2020 – 75 per cent less than in 2008 – and only half of these were completed. Criminal justice programmes and structures that were in place to identify and refer individuals for treatment have withered on the vine.
Practitioners need to build a rapport with the people they supervise
We spoke to a sample of people on probation with substance misuse issues. Some reported positive encounters with probation practitioners who provided support and direction. One individual told us their practitioner ‘doesn’t tell me what to do, she just guides me down the right path, but I always have a say in what services I think will be best for me’. Others reported feeling ‘done to’ rather than engaged in their own supervision.
Two-thirds of the probation practitioners that we interviewed for this inspection told us they needed more training on the impact of drugs. They also wanted to know how best to support individuals with trauma and recovery. Time can be an issue too. For several years, the inspectorate has reported on the unacceptable workloads faced by many probation practitioners – some have in excess of 70 cases.
Knowledge, skills, time
Probation practitioners need the knowledge, skills and time to do their work properly: to keep on top of drugs trends and treatments; to assess the vulnerability of people who take drugs as well as the risk they could pose to others; to make calls to the police or children’s services to share intelligence. Regular drug testing is also needed to provide independent evidence of progress for the courts and probation staff (and to provide an incentive for people on probation to stay off drugs too). Of the sample of 60 cases involving problematic drug users that we inspected, only ten had received any sort of drug testing – even where this was required by the courts.
Practitioners need to build a rapport with the people they supervise to understand how and why they offended, and what support they need to move towards a crime-free life. Additional training will give practitioners the tools and confidence to do this work effectively.
Support continuity
One of our biggest concerns was the severe drop-off in drugs treatment as people left prison and returned to the community. Two-thirds of prison leavers in the inspected areas were in treatment in custody but did not continue to receive help on release. This is unacceptable – people need continuity of support at this critical juncture in their lives.
We have made a series of recommendations to improve the quality of work with people on probation who use drugs. This includes a call for a national strategy to provide leadership and improved data-gathering and publication – so we can see what effect probation services are having on this cohort. We have also recommended greater use of drugs testing to ensure people get the support they need and improved continuity of support for prison leavers.
Probation services underwent major reforms at the end of June and probation services are now delivered by a single, public-sector organisation. I hope senior leaders will take the opportunity to review and strengthen work with drug users to ensure it is of a consistently high standard.
Funding priority
Finally, none of these improvements will be possible without adequate funding. Probation services received a welcome boost in the last Spending Review but that funding was only for a year and will do little to reverse many years of under-investment. Dame Carol Black has recently called for additional ring-fenced funding for treatment – which I fully support. People on probation should be a priority group for longer-term investment which would reduce crime, save lives and more than pay for itself in reduced costs to the public purse.
This inspection was led by HM Inspectorate of Probation with support from the Care Quality Commission and Health Inspectorate Wales.
Visit the inspectorate’s website to read the full report, and follow on Twitter (@HMIProbation) for more details of the organisation’s work.
It’s no wonder, when you think about it, that so many people who are street homeless suffer from poor mental health, poor physical health and an addiction to illicit substances.
Not helped by the typical British summer that we have experienced this year, they are constantly trying to keep warm and dry, living in constant fear of being moved on or being abused by passers-by, fearful of their only possessions being stolen, and constantly being judged.
The first lockdown last year led to local authorities seeking places for the street homeless to stay, keeping them safe from the effects of COVID-19. The government released £105m to support rough sleepers into interim housing and a further £16m to support those in this accommodation to access help for substance misuse issues. The fact that it took a global pandemic for anybody to appreciate the physical and mental health risks associated with being homeless raises certain questions for me. I would suggest that the risks arising from prolonged poor mental health caused by a lack of secure accommodation are far greater than catching coronavirus, and have been affecting this group for far longer.
London and the surrounding areas account for over a quarter of all rough sleeping in England. Before the pandemic hit, figures showed that a disproportionate number of these rough sleepers in London were from Central and Eastern European countries, accounting for almost 30 per cent. This number could have been significantly higher if those of unknown nationality were included, but through fear of being sent home this information is not always disclosed. In trying to tackle homelessness in London and the South East, there needs to be a specific focus on this community – but this presents a unique set of challenges.
Following a dream
As part of the government’s COVID-19 housing initiative, which must be welcomed despite a delayed start, I was introduced to four Eastern European men referred by the local authority. These men had lived in the woods for the last six years. They worked when they could, for cash-in-hand jobs paying below the minimum wage, and drank alcohol every night to help them sleep in the cold conditions – largely keeping themselves hidden and unnoticed. They were in poor physical health, the eldest being seventy-one with long-term heart failure.
These men were reasonably well-educated and had come to Britain separately to improve their life chances. Somehow, they all found each other through the large community of Eastern Europeans in similar situations. They would congregate in parks and drink cheap, strong Polish lager until they slept where they fell. The larger group gradually drifted away from the remaining four – they either went home, moved to the next town, or in some cases, fell ill and died.
They followed the dream of coming to Britain, but it did not turn out how they expected. They had all suffered varying degrees of childhood trauma, abuse, relationship and family breakdown and poverty. Some experienced xenophobic attitudes in both their workplaces and communities, leading to yet more of the anxiety and depression they were trying to escape. Each one began to use more and more alcohol to ease their mental ill-health. The more they used, the more they needed to reach the numbness they required.
Untrusting Of support
By the time they were housed by Druglink Choices, they were in a very poor way, and it took several meetings to persuade them to settle inside. They were used to the woods and comfortable with what they knew, despite the conditions. They were untrusting of support workers and nervous around anyone in a position of authority. They were especially uneasy about being sent back to their country of origin as they did not have settled status here in the UK – obviously, this also meant that they had been unable to access benefits, which made money scarce and they sometimes had to beg for money for food and alcohol.
‘The language barrier was an initial problem but the use of Google Translate (which isn’t always accurate), led to much hilarity on a few occasions.’
They were insistent they remained together, so they were housed in a four-bedroomed private rented property and given a floating support worker. From week one, despite the language barrier, the change in them was rapid and palpable. The language barrier was an initial problem, but as time moved on, it appeared that one of the group knew more English than he’d previously disclosed and he acted as the go-between for the group. They had daily house meetings which largely consisted of hand gestures, drawings, and the use of Google Translate (which isn’t always accurate, leading to much hilarity on a few occasions).
They kept the house spotless, did their chores, made their beds every day and with the help of the local food bank, started to look after themselves physically. Three of them stopped using alcohol completely and the fourth cut down considerably. As lockdown restrictions eased we were in a race against the clock to support them in gaining settled status to claim benefit and have recourse to public funds. We were concerned that if they couldn’t get access to housing benefit they would have had to return to the woods if the local authority withdrew financial support, and I didn’t think the eldest man would survive that.
I am happy to say that the group are still in a Druglink Choices house going from strength to strength, with three of them learning English online with the use of a donated laptop and tablet. They are humbled by the support they have received from the community, their support workers and the local church. The more help they accepted the more they understood that people cared. This in itself improved their feeling of self-worth, leading to improved mental health outcomes. They still have a long way to go in terms of getting to the root cause of their mental health issues but they have opportunities and the chance to build self-confidence and eventually, hopefully, gain independence.
A sense of Belonging
According to Maslow’s hierarchy of needs, feeling loved and like you belong in society comes two layers up the pyramid from the basic level of a human’s physiological need for food and shelter – and just one above the need for safety. If we do not reach out to help those who are forced to rough sleep, they will eternally remain at the basic two levels of the hierarchy of needs, never reaching a sense of belonging and thus never addressing the mental health issues they are experiencing as they never get beyond pure survival. As a society, we seem to be talking about mental health more openly and are more accepting of it – one of the few positives to arise from the global pandemic.
I have seen these men at the depths of depression and their nascent recovery when given shelter, safety and kindness. A connection with this community and a target to lower rough sleeping amongst them could minimise the numbers of street homeless in London and the South East – which would go a long way to help reduce homelessness in England. Helping this group gain basic needs will put us a position to break down their mental health barriers, support that these vulnerable people desperately need.
Wendy Nee is director of care and support services at Druglink.
The past 18 months have been a challenge with regard to maintaining and developing my recovery. The basic ingredients haven’t changed – I remind myself every morning that I can’t drink or use safely under all conditions, and use prayer and meditation.
Regular communication with others who are on a similar journey, electronically and face-to-face, has been supportive.
Developing my relationship with nature has also been a significant factor in my recovery. Early morning walks by a lake, observing the swans, coots, ducks and squirrels going about their daily business without trying to impose their will on each other has helped me immensely.
I have a cherry tree outside my home and I became intimately aware of the processes of change this tree underwent over the lockdown. From bare in winter, buds appearing and magnificent blossom in spring, vibrant green foliage which becomes brighter after the recent heavy rainfall and soon back to basics.
Going on treasure hunts with my grandchildren, digging a hole when their metal detector beeped and witnessing their awe and excitement, followed by their disappointment as we unearthed an old soft-drink can. ‘At least we know your detector works,’ I would say.
Acknowledging my disappointment when I received yet another rejection from a job application. Grateful for the feedback requested and the opportunity to incorporate this knowledge in my next application.
Doing voluntary work online and via the telephone kept me in touch with reality. As a colleague reminded me recently, if I want to have a miserable day, I only have to focus on I, self, me.
Ronald Bell
‘Supporting others motivates me’
Stuart Kelly, DHI Bristol Peer Support
I have been with DHI since 2017, where I support others in my role as a peer mentor. I came to DHI after completing rehab and moving to Bristol from Plymouth – I wanted to start again in a brand new city. Bristol has lots to offer with culture, music, history and diversity, and people are encouraged to be who they want to be. I love living here.
At the beginning of the lockdown it felt like a novelty to me and I didn’t feel daunted by the situation. After a while, it began to get to me. There were things to do, but it wasn’t easy to find the motivation to do them. Then DHI provided us with everything we needed to work from home. I felt focused again and was able to support people who needed help – even more so in this time of uncertainty. I was able to provide a lifeline to people, which gave me purpose and motivation again.
I haven’t had a drink for five years, and my resilience comes from my motivation to keep living the life I am.
‘Be honest with yourself’
At Forward Trust we know that no one person is the same. Friendly, non-judgemental support, no matter what you have gone through is essential to recovery and sustaining positive change.
Darren Lacey, drug and alcohol recovery worker at The Forward Trust
On 6 August, I was 900 days sober. When I decided I needed to stop drinking, I had in my head that if I could do 100 days without a drink, I could do recovery in the long term. In those first 100 days I moved house, had a family wedding and faced everyday challenges in my life and in my journey to recovery.
Support is key to recovery. I received support from The Forward Trust’s Dover Day Programme, a 13-week day rehab. The support worked for me. I learned new skills and built safe and sober friendships that I still maintain. A support network helps you through the good and the bad, and builds your resilience. Often people forget that the ‘good’ events in life can be just as challenging as the bad times when you are trying to maintain your sobriety.
I now work for Forward Trust as a drug and alcohol recovery worker, helping others find recovery. I, and many of my colleagues, have personal experience of drug and alcohol issues. We understand what people are going through. My advice is the same to everyone: try everything and keep trying. Push yourself to try new things. Get to a meeting, online or face-to-face. It can be tough, but find support you can be open and honest with. Be honest with yourself and most of all keep on keeping on. With support from likeminded people, life is good – no, life is amazing!
‘We discovered recovery in so many situations’
As a mom and daughter, four generations living under one roof, the past 18 months have taught us many life lessons, allowing us to create amazing connections and opportunities, which appeared even though we were going through difficult times. We now apply all these lessons in order to contribute to our family recovery, our amazing recovery coaching community and provide hope to others.
Naetha Uren and Calliese Conner, mother, daughter, family in recovery and founders of Recovery Coach Academy
We truly discovered the gifts of recovery in so many moments, conversations, and situations that before we only thought were difficult times. In those virtual rooms we met an eclectic mix of extremely remarkable and diverse people as we sought guidance to build the recovery community we knew we desperately needed in the UK.
We not only received knowledge and mentorship, we made life-long friends. Although we were already on a recovery coaching journey, the team at the Connecticut Community for Addiction Recovery (CCAR) believed in us, empowered us, supported us to make a bigger impact, and believed in our ability to do it.
We have created Recovery Coach Academy, become the first CCAR authorised recovery coach trainers, and the first recovery coach professionals in the UK. Calliese is now the youngest member on the board of trustees for FAVOR UK.
‘An app on my phone helps me stay focused’
On occasions, my ongoing recovery/sobriety feels simple and life becomes easy. Other times it’s a daily battle to fight off the debating society and negative committee in my head.
Robin Whitefield
I endeavour to take everything one step at a time. Being grateful for every morning I wake up clear-headed and without a hangover, not piecing together the night or day before and being apprehensive to check my bank balance and look at social media or my phone, for fear of shame/guilt/remorse. How times have changed and being free of those apprehensions is most welcome.
I have an ‘I Am Sober’ app on my phone in order to track progress of my ongoing recovery and sobriety that details such things as money saved and time spent in active alcoholism. It helps me stay focused when things get tough, as they often do.
Comprehending how much time and effort has gone into my recovery, and how much that means to me, is a real motivating factor.
I attend the meetings on a daily basis (Zoom in lockdown and physical now lockdown restrictions have been eased) and I draw great strength from listening to other people – what they were like, what happened and what they’re like now. Meetings are a great distraction to help me get out of my own head, help other people, and the opportunity to share what’s on your mind.
‘Wellbeing is at the core’
Focus on recovery can often be distilled down to the ‘five ways to wellbeing’ and as an individual in long-term recovery, nurturing, practising and feeding these core beliefs are key.
Stuart Green, manager of Aspire drug and alcohol service, Doncaster
It is so important in my personal recovery, to both its maintenance and leading a fulfilling and meaningful life free of dependency (not only on substances). When looking wider there is no magic wand to wellbeing – it’s down to these principles being practised and modelled by health citizenship and communities in society and easily replicated across all walks of life.
Unfortunately the pandemic has driven the gaps around inequality wider and distorted some people’s abilities to practise these principles for others – even severed them for some – demonstrating that nurture has a bigger part than nature. People who are already unwell are presenting at services’ front doors with increasing levels of mental health issues and distress. If there was ever a stark reminder of where addiction can take you, the last 18 months are it.
‘Everyone becomes part of my recovery’
I volunteer with Recovery Cymru and the local health board and have been in my own recovery for five years this coming October.
Meirion Evans, volunteer with Recovery Cymru
The most important part of my recovery is meeting new people and being able to share my recovery journey with all the ups and downs but with the message of hope at its heart; meeting people who just want someone to listen to them – not to be judged or stigmatised, just listened to.
I know what effect it can have through my own journey and the amazing generous people who have helped, and still give me that help, making me realise there is a life after addiction. Just to be part of that process of giving hope back to just one of the people I meet is enough for me. Everyone I meet becomes part of my recovery.❤
WDP and Shannon Trust’s groundbreaking pilot scheme to make one-to-one peer-led reading support sessions available to WDP clients is a lifeline for those struggling with literacy, says Scott Haines.
Read the full article in DDN Magazine
Being able to read is something that many of us take for granted. We have likely been doing it from an early age and it’s a skill that we use every day. Just this morning, within an hour of waking up, I’d read the news, checked my emails, scanned through my social media and reviewed some paperwork I needed to sign. Shortly afterwards I plotted a public transport route to visit a WDP drug and alcohol service in Greenwich, where today I will be delivering training to staff and volunteers.
During the training, a comment from one member of the group really got me thinking – ‘It’s difficult to even visualise what it would be like to not be able to read. I can only imagine how horrible that must feel.’ What would life be like if you couldn’t read? How difficult might you find it to complete many of the routine tasks you undertake each day? How would it affect your ability to communicate with others or get access to important information? What type of jobs would you be able to do? How would it make you feel about yourself? Reading is fundamental to so many aspects of our day-to-day lives, and yet struggling with reading is a reality for far too many people.
Shannon Trust is a literacy charity that currently operates in every prison in England, Wales and Northern Ireland. We train prisoners who can read to become mentors and teach those who can’t using a phonics-based programme called Turning Pages (DDN, July/August, page 4), that we designed specifically for working with adults. Over the past 20 years we have helped thousands of people to improve their reading, achieving some fantastic outcomes in the process.
WDP and Shannon Trust are also working in close partnership to set up a new literacy project in WDP’s Subwize young people service (Barking and Dagenham). This innovative project will run for one year initially and is funded by the London Borough of Barking and Dagenham via PHE grant funding. A dedicated worker will be based at Subwize and will support the borough’s adult service as well, coordinating the delivery of reading support, volunteer reading coaches, materials and resources.
Current stats suggest that around 50 per cent of the UK prison population has a reading level below that of the average 11-year-old. A significant proportion of this number struggle to read anything at all. These numbers are alarming, and we are determined to do what we can to help reduce them through our work inside and outside of prison.
We know that there are lots of reasons why people end up struggling with reading. For some, they had a troubled and disrupted childhood. For others, they didn’t go to school or were excluded. In other cases, people may have undiagnosed problems such as dyslexia or visual impairments, which made the task of reading difficult. It could also be a combination of such factors.
When someone struggles with reading, we know that the impact on their lives can be significant. As well as not being able to do many things, learners regularly tell us about how this has severely damaged their confidence or has been detrimental to their relationships with family. It’s also common to hear about the frustration and resignation that comes with not being able to access opportunities which may help them to move forward positively in their lives, such as employment.
Our data shows that those who take part in one-to-one sessions report improvement in their confidence and self-esteem, and 90 per cent of our learners also go on to access further education and training opportunities.
Despite this issue being fairly common within the prison system, we find that many people are still reluctant to disclose that they struggle with reading (often because of embarrassment and concerns about how others will respond). And even when things are out in the open, it’s also not always the case that people want or will accept support when it’s offered. This is particularly true if the support involves a classroom, where experiences for many in the past may not have been overwhelmingly positive.
However, we find a peer-based approach can be effective. It appeals to those who might be resistant to accessing support, with many preferring to engage if it’s on a one-to-one basis, working with someone that they can trust and where sessions can take place in a safe and confidential space.
Working in prisons remains vital to us, but we also know there exists a significant need for people to access this type of support on the outside. According to the National Literacy Trust around 7.1m people in England – 16.4 per cent of the population – struggle with poor literacy (below Level 1). At Shannon Trust we regularly get approached by community-based services looking for help to support clients or advice to develop their own programmes. Therefore, we are really keen to expand our work beyond prison walls. We think everyone should be offered the chance to access support to improve their reading if and when they need it, no matter where they are. This is why we think our new partnership with WDP is such an exciting and important one.
We are currently setting up peer-based reading programmes in several WDP services, in areas such as Islington and Merton, which we will pilot over the next 18 months. These will be delivered by WDP staff and volunteers like those I met today in Greenwich, who will offer one-to-one support sessions to clients in-house. We will also provide training/guidance to wider staff teams to help them better identify and support clients who may benefit from taking part. We will work collaboratively to share learning, track outcomes and plan ongoing development, the aim being to have a community model which is effective in responding to need and which can be replicated across more services.
Before joining Shannon Trust I’d spent 14 years working in drug and alcohol services. I remembered working with a few clients who I knew struggled with reading and who I’d tried to refer to local classroom-based programmes. Some point blank refused to go. Others said they would attend but did not.
Scott Haines is community pilot manager for Shannon Trust
I wonder whether I might have worked with some who struggled with reading but didn’t wish to disclose it? Perhaps I never offered them the chance. If so, might things have been different if I’d had a better understanding of the issue and had been able to offer them access to a peer-based support programme within the service? Would they have been more likely to engage with it? Could this have improved their outcomes? I believe the answer to each of these questions would be yes, and which is why I have no doubt that our pilot will be a great success.
Chatbots are non-human agents, programmed using artificial intelligence (AI) to talk to a person as if a real-life conversation is taking place. It’s common to visit a website and be greeted with an invitation to chat about its commodities – whether suggesting products, offering technical support, or assessing customer satisfaction, chatbots have established their place in assuming a role traditionally undertaken by humans.
Healthcare is no exception. Here chatbots have been used to educate, diagnose, and support a technically savvy and demographically diverse population. The use of chatbots in addiction services has yet to be appreciated however, with research showing little traction in this area in the last five years. This is contrary to the upward trend seen in other areas of healthcare, for example with anxiety, depression, and obesity. This gap is perhaps most surprising given the target population and model of interaction offered – interaction that’s free of judgement and prejudice and that can reach people reticent to openly discuss their problems. This gap presents an untapped opportunity, a blank canvas for developing chatbots to serve those needing support with drug and alcohol addiction, including those in recovery.
Point of need
It is here we introduce Foxbot, a recovery friend. Foxbot was born from the idea to personify the online delivery of recovery interventions – interventions that combine recovery knowledge with positive psychology, and concepts from positive computing, to use technology to improve wellbeing. The basic design requirements for Foxbot were to be friendly and easy to form a connection with, to allow users to direct their own experience based on what they’re facing and how they’re feeling, and to provide a fresh, accessible, and engaging way of supporting people in recovery.
Foxbot’s purpose is to help people at their point of need by supporting them with some of the common difficulties encountered in recovery. Foxbot achieves this by offering suggestions, and quick and easy interventions, that can be used and re-used to bolster recovery. Unlike more conventional chatbots that form part of a larger online strategy to promote or sell products and services, Foxbot’s intentions are entirely altruistic. Foxbot’s goal is to connect with and understand what people in recovery are commonly challenged with and respond with an intervention that can help them in the present moment.
Get to know Foxbot by launching the chat on www.positivelysober.org/
Feeling supported through connection and understanding is highly valued in recovery, so these characteristics were considered rudimentary to Foxbot’s design, and embedded through the content of his knowledge base and the relaxed style of communication he’s programmed to use. It was decided that if Foxbot was to be a genuine and successful recovery friend, he should exhibit his own character strengths – social intelligence, self-regulation, gratitude, humour, and creativity. Social intelligence for fluent social function and mature judgement; self-regulation for limitless patience and satisfaction with friendly relationships; gratitude to express positive emotions and optimistic prosocial behaviour; humour to promote positive mood and endurance, and creativity for his novel delivery of recovery interventions. These signature strengths were programmed into Foxbot’s communication patterns to enable him to support people who wish to talk about things like having cravings, being in a bad mood, needing a reality check on what it means to be in addiction, having been triggered, or looking for a recovery boost.
Common experience
The interventions delivered by Foxbot take common experiences from recovery and amalgamate them with positive psychology theory to offset and enhance the user’s current frame of mind. For example, if someone tells Foxbot they’re having a craving, he does two things – firstly, he suggests a mindful practise for letting the craving pass, one that uses positive imagery to represent the craving as a process that has an end. Secondly, he involves the user in an activity that will refocus them. In this case, an online matching game, where they do not need to feel self-conscious about participating, one that gives them feedback, and is rewarding. This intervention equips the user with a strategy to deal with cravings, where they are encouraged to participate in an activity that distracts them after visualising the craving as a process that comes to an end.
Another common experience for people in recovery is having unhelpful thoughts – that they don’t really have a problem with alcohol or drugs, and that everything will be okay this time. Here Foxbot helps by offering a reality check in the form of an adage that can challenge the unhelpful inner voice with a relatable example of something that’s apparent with the hindsight of recovery. For example, ‘you can’t drink away alcoholism’ or ‘do you recall sobering up when you patted your pockets and couldn’t find your phone’.
If you tell Foxbot you are in a bad mood, he will attempt to raise a positive emotion using humour. Whilst his sense of humour may have been influenced by his design team, the jokes have been tested on a wider audience before they made the cut.
Recovery boost
If a user is not experiencing a particular challenge but would still like to do something positive for their recovery, Foxbot offers the option of receiving a recovery boost. Research has shown that life appreciation and gratitude play a fundamental role in sustained and successful recovery. Foxbot capitalises on this by offering recovery boosters, powerful reminders of the things that are easy to take for granted or lose sight of in recovery, for example, ‘see you later hangover’, ‘welcome back energy’, ‘adios shaking hands’ and ‘goodbye bloodshot eyes’. This is to remind users of the positive outcomes they’ve acquired thanks to living in recovery, outcomes that can only be preserved by sustaining that recovery.
By providing an unlimited willingness to engage in conversation, Foxbot frequently relays the message that talking is important to recovery. His conversational style includes phrases such as ‘It’s good to talk’, ‘talking to you brightens my day’, and ‘don’t struggle in silence’. Foxbot also gauges how useful an intervention is proving to be through the acquisition of real-time feedback, where, if necessary, an extended version of the intervention is presented to the user. For example, if a user has asked for a recovery boost, Foxbot will check-in during the intervention to ask if they feel they have had a boost, offering feedback options of ‘yes, boosted’ or ‘no, power me up’. If ‘no’ is selected, another set of recovery boosters are presented to the user.
To keep the conversation fresh, and avoid anticipated chat, Foxbot has a continually developing knowledge base. The AI component of his programming assigns different conversational experiences to the user to avoid ‘hackneyed dialogue.’ As an example, when a user opts to ‘chat again’, a randomised response is given, such as, ‘talking opens your mind to new ideas’ or ‘it’s always a good time to talk to me about recovery’. This ensures the user experience is unpredictably different with each encounter.
Foxbot can be considered as being in his formative years – he is undergoing significant developmental change, which includes a growing knowledge base and repertoire of recovery suggestions. In addition, Foxbot can also remember his past conversations, so as he matures historic chats will be analysed to better inform how he should evolve. For example, if a disproportionate number of users engage in a specific intervention, this area will be prioritised with greater investment made to enrich the support available. Foxbot will also become wiser by gathering feedback on his own strengths, including his performance as a recovery friend. When he reaches this level of maturity, he – like his recovery friends – will be learning how to better use and develop his own strengths.
To get to know Foxbot and find out what else he can do, visit positivelysober.org where you can also look at the work being done to create a positive approach to recovery.
Lisa Ogilvie is a PhD student, Julie Prescott is reader in psychology, and Jerome Carson is professor of psychology, all at the University of Bolton
This piece is written by Bethany Nicholson at King’s College London, who is leading on a study to learn more about the different ways of thinking behind resilience and find new ways to support carer wellbeing.
More and more people are providing unpaid care for family, friends and neighbours. We think carers provide an invaluable resource, and deserve more recognition and support. More research is needed to understand carers’ experiences, and identify more ways to provide support.
We know that carers show resilience, as they live with long-term stress and adapt to challenging circumstances. We also know that providing this care can negatively affect carers’ own physical and mental wellbeing.
We are interested in learning more about the different mental processes driving this resilience. If we find a mental process is associated with resilience, we will have a better understanding of how resilience works. Future interventions may be able to target these mental processes to help increase resilience. If we find that carers with more resilience have greater wellbeing, this type of intervention may also improve wellbeing.
We hope to involve a wide variety of carers in the study. There is little to no research describing the resilience of carers of people affected by drugs, alcohol and gambling. Researchers have suggested carers of people with substance misuse problems may be a hidden or overlooked group of family carers, who can feel excluded from general carers’ support.
Research has also indicated that carers of people with comorbid substance use and mental health problems report more anxiety and worry than carers of those who do not use substances. Altogether, this makes it feel particularly important to include carers of people affected by drugs, alcohol and gambling.
Recovery Street Film Festival was established eight years ago to give people with lived experience of recovering from drug, alcohol and gambling issues the opportunity to share their story with the public.
Throughout this time, their honest stories of recovery, hope and transformation have been seen by well over one million people, helping us towards our aim of reducing the societal stigma surrounding recovery.
The theme for RSFF 2022 is “who am I?” with entrants exploring how their identity and place in the world has shaped their recovery, or the recovery of those in their life.
We received an exceptional number of highly creative and diverse submissions to the film competition this year. As a result, we have expanded the number of films shortlisted from ten in previous years to fifteen.
Join us for a screening of the full 15-film shortlist on 30 September at the Everyman in Chelsea, with special guest speakers and an award ceremony to crown the top three filmmakers of RSFF 2022!
A huge range of activities has been organised for this year’s International Overdose Awareness Day, which aims to help end overdose, challenge stigma, and remember those lost and those left behind.
Nine regional recovery arts organisations across seven cities – including small performance adventures, Outside Edge Theatre Co, Fallen Angels and more – have joined forces to create a short film featuring more than 60 people in recovery paying tribute to those lost to overdose. The project, which is being broadcast via social media, is a ‘powerful demonstration of what happens when people come together creatively to make art that expresses grief, anger and hope’, says small performance adventures’ Kate Lodge. ‘Through this work we gather to remember, respect, reduce stigma and raise awareness through a powerful collective expression’.
With the UK’s drug-related death rate at its highest-ever level, the day also aims to get the message across that overdose death is something that’s preventable through education and action. PHE recently issued an urgent warning about a spate of overdoses in London and the south.
‘This year’s International Overdose Awareness Day follows more alarming reports that drug-related deaths across the country have reached another record high,’ said With You’s executive director for services in Scotland, Andrew Horne. ‘Each death is a tragedy, causing pain and suffering to families and communities for years to come. To mark International Overdose Awareness Day, all around the UK, With You staff are going out into communities to raise awareness of how we can prevent these tragedies and remembering those lives that have been lost by lighting our services in purple, planting memorial trees and holding community walks.
Visit www.overdoseday.com to find an event near you, download resources or post a tribute
Katherine Jenkins, head of centre for addiction treatment, sets out why the Forward Trust supports the Lords Public Services Committee’s recommendations to address child vulnerability and how better is possible for children, young people and families across the UK.
In 2021-22, the Forward Trust will support 30,000 people to break the cycles of addiction and crime, to bring about and sustain positive change in their lives. We believe that rethinking how family services are designed and commissioned is an urgent priority. Addressing the impact that addiction, offending and related issues can have on children and young people is a rapidly developing priority for the Forward Trust and wider sector.
The lack of a joined-up national strategy on vulnerable children and their families is undermining the effectiveness of policies to tackle child vulnerability. Better outcomes are possible with the right support. An integrated, multidisciplinary approach will be crucial to creating positive change. This should unify a diverse range of services and professionals who can work closely together to support children and their families at critical points. Early intervention must be prioritised to enhance the chances of successful and long-lasting positive outcomes for those in need.
In supporting this inquiry, we are pleased to have facilitated the involvement of two young people who attended our Moving and Parents and Children Together (M-PACT) Programme to share their experiences:
“If I did not do M-PACT, I would not be how I am right now, to be honest. I would have bottled up all those emotions. I just would not be what I am today. M-PACT really made me happy. M-PACT also really helped me with knowing that I was not alone, because there were loads of other kids there who were going through the same thing as me.” – Leah
“M-PACT really helped me, because my mum, my gran and I had loads of bonding time. Maybe I would say ‘go to M-PACT’. You get along and you have more time together.” – Elsa
Leah and Elsa bravely shared their experiences of living with parental addiction directly to members of the select committee, who commented that their testimonies “gave them a completely different understanding of what life is like for children in these situations, how they can easily be missed by statutory services, and how important the voluntary sector is in supporting families to recover”.
Syncora, part of The Calico Group, has announced the appointment of Sarah Swanson as their managing director.
New Syncora MD Sarah Swanson
Sarah brings with her vast experience in the social impact sector, and has spent years in senior positions within organisations that deliver tangible results and positive change for individuals and their families, such as Nugent, the social care charity, and Save the Children.
Sarah said: ‘I am motivated by making a difference to people’s lives and improving life chances for all. By working collaboratively with Syncora’s specialist services, we have the potential to create lasting change in the lives of people in the North West.
‘Our purpose, values and vision will remain at the forefront of current and future development, ensuring joined up services create a more person-centred approach.’
Syncora’s collaborative services deliver social impact that make a real difference to people’s lives. These services include drug and alcohol addiction treatment and recovery, domestic abuse relief, homelessness support, residential and dementia care, and skills training and education.
More than 20 per cent of gambling premises are found in the most deprived areas of the country, compared to 2 per cent in the least deprived, according to a survey by the University of Bristol and the Standard Life Foundation.
The highest number of betting shops per capita are found in Glasgow, Liverpool, Middlesbrough and parts of London.
Despite the increased popularity of online gambling, almost half of the country’s gambling yield – around £5bn – was still coming from physical venues immediately before the first COVID lockdown, says The geography of gambling premises in Britain.
The highest number of betting shops per capita are found in Glasgow, Liverpool, Middlesbrough and parts of London, the document states, with the most deprived areas also home to around 30 per cent each of amusement arcades and bingo venues – compared to 10 per cent of food shops. There is little that local authority licensing teams can do to prevent ‘clustering’ of gambling premises, it adds, with ten per cent of schools having a gambling venue less than five minutes’ walk away. Half of all gambling treatment facilities are also within 250 metres of the nearest gambling premises, it states.
While the gambling industry offered ‘much needed employment’ in deprived areas, it took ‘much more than it gives’, said senior research associate at the University of Bristol, Jamie Evans, ‘leaving a legacy of greater hardship and increased social problems’.
‘Problem gambling is a public health issue, causing serious harm to people’s finances, livelihoods and relationships,’ added Standard Life Foundation chief executive Mubin Haq. ‘Today’s report highlights that those living in poorer areas are more likely to be living next to gambling premises. Those with the least resources are being targeted more, with twice as many gambling venues on their doorstep as supermarkets. If we are to truly level up, the new gambling reforms currently being considered must take into account the geography of gambling venues and give local authorities more control over licensing.’
Meanwhile, a new survey by YouGov has found that 70 per cent of people support a ban on TV alcohol advertising before 9pm while 72 per cent think alcohol adverts should only be shown in cinemas with certificate-18 films. ‘We are constantly bombarded with alcohol advertising both online and in the real world – and so are our children,’ said Alcohol Health Alliance chair Professor Sir Ian Gilmore. ‘The government has taken a great step forward for public health by stopping junk food advertising online and introducing other limits to its promotion. If alcohol is not included in those plans, we risk alcohol advertising filling the void that is left behind. The public want to see more done to limit young people’s exposure to alcohol advertising. The government must now introduce comprehensive marketing restrictions in both real world and digital spaces to ensure that children are protected from alcohol advertising and its harm.’
Too few people on probation are receiving help for drugs issues and the service is ‘responding poorly to drugs misuse and addiction cases’, according to a damning report from HM Inspectorate of Probation and the Care Quality Commission.
Chief Inspector of Probation, Justin Russell
Six out of ten magistrates surveyed by the inspectorate said they were ‘not confident’ that people were getting the treatment they needed, while the report also found that key information was either missing or not captured properly – and was also not being used to commission services. Many probation services were unable to supply even basic information such as how many people who use drugs were part of their caseload or were in treatment, while just one in six people were being tested for drug use.
Probation services in England and Wales supervise almost 160,000 people, of whom 75,000 have a drugs problem. However, fewer than 3,000 were referred for treatment in 2019-20, says the document, with referral programmes having ‘withered on the vine’ through diminished funding. Heavy workloads were also an issue, it says, with some probation officers managing caseloads of more than 70 people, meaning they did not have time to fully examine a person’s history or identify ‘factors that could help support them into recovery’.
‘Poor’ follow-up arrangements in the community also meant that two thirds of people leaving prison in the inspected areas had not continued to receive treatment on release, with the situation ‘considerably worse’ in England than Wales. Among the document’s recommendations are an increase in the number of drug rehabilitation court orders, improvements to the quality of supervision, and more funding.
‘The current system is not working well and the findings of this inspection were very disappointing,’ said chief inspector of probation, Justin Russell. ‘Justice and health organisations must work more closely together, for example to ensure continuity of support for prison leavers. Earlier this year, the government provided additional funding to improve drugs treatment. While the announcement was welcome, the money is for just one year – we need sustained commitment to fund drug treatment and recovery for people on probation. People on probation should be an urgent priority for any future increase in investment, which would cut crime, save lives and more than pay for itself in the long run.’
The report’s findings were ‘stark’, added Collective Voice director Oliver Standing. ‘It is estimated almost half of those supervised in the community by the probation service have a drug problem. The fact that only slightly more than two per cent were referred into specialist support in 2019-20 surely represents a systems failure. Although community services have experienced a decade of profound disinvestment, Dame Carol Black’s recent review has set out a compelling vision of a refreshed and renewed system and made the case for major investment. This important thematic review will help to shape that brighter future.’
Justin Russell writes about the report’s findings and what needs to happen next in the September issue of DDN.
A joint thematic inspection of community-based drug treatment and recovery work with people on probation at www.justiceinspectorates.gov.uk
Public Health England (PHE) has urged people who use drugs to be ‘extra cautious’ following a spate of overdoses in a number of areas.
Early signs indicate that the overdoses have been caused by heroin mixed with synthetic opioids.
There have now been at least 46 poisonings, 16 of them fatal, in areas including London, the South East, South West and East of England, PHE states.
While early signs indicate that the overdoses have been caused by ‘heroin mixed with a potent and dangerous synthetic opioid’, more work is needed to confirm links between the cases, it says. However, people who use heroin have been urged to exercise extreme caution about ‘what they are using and how much they take’.
PHE has alerted local drug services and is also asking that they ‘reach out to drug users outside of the drug treatment system’. The agency is working with the National Crime Agency (NCA) and National Police Chiefs Council (NPCC) to investigate the incidents and prevent further deaths. So far there was ‘nothing to suggest that there is a direct link between any of the areas affected’, said the NPCC.
However, Release says that it is receiving reports of ‘bad batches’ of heroin causing sudden deaths in London, Portsmouth and elsewhere, with some tested batches found to contain isotonitazenea powerful synthetic opioid. The charity is urging people to be extra cautious about new suppliers and to make sure they have more naloxone with them than usual. It had also received earlier anecdotal information about possible crack cocaine contamination, it said.
‘We are urging drug users to be extra careful following reports of a sharp rise in the number of overdoses potentially connected to heroin, tragically with some deaths,’ said PHE’s director of drugs, alcohol, tobacco and justice, Rosanna O’ Connor. ‘We are urgently investigating with the police and local partners. We strongly advise anyone using drugs not to use alone and to test a small amount first. We strongly advise all drug users to get support from local drug services, as being in treatment greatly reduces the risks of harm and overdose.’
Every year since 1993 the Government has published statistics for deaths relating to drug poisonings in England and Wales and the recently published report for 2020 shows that 4651 such deaths were recorded with the highest rates occurring in the North of England.
Tom Woodcock is the Director of Treatment and Recovery at The Calico Group
The report shows the overall increase in deaths since reporting began, the higher rate of male deaths, the clear links with drug misuse, and the high level of opiate use compared with other substances. Amongst the deaths there will be deliberate as well as accidental overdoses, young healthy people ‘experimenting’ as well as old timers with long histories of drug misuse and multiple health issues.
The report obviously provides aggregated information and doesn’t give insight into the individual lives lost but many people working in drug treatment, homelessness, health, and criminal justice agencies can put a face and a name to the people who have died.
Some of these deaths will be people soon after leaving prison custody with little tolerance for street drugs, some will be regular users who bought from a batch of high purity drugs, whilst others will have simply overloaded their bodies with a cocktail of different drugs. It might be reasonable to assume that whilst some of the deaths seem shockingly random others were a lot more predictable.
Cards created by residents of SIG Equinox’s Brighton Women’s Service
SIG Equinox’s Brighton Women’s Service recently participated in the ‘I Am More Than’ art exhibition at Brighton Fringe Festival, aimed at challenging the labels often attached to women experiencing homelessness.
The art pieces were completed by residents of the Equinox women’s supported accommodation in Hove. There were also cards completed by the women as well as members of the public. The exhibition’s main goal was to challenge the wider community (professionals included) about their own held beliefs around these women and to raise awareness that these beliefs and labels can be limiting in the women’s recovery.
It is hoped that the project also helped women experiencing homelessness to explore their identity and experience themselves in a different, more positive way. It put forward the idea that they are not defined by the labels they are given or the experiences that they have had or are having. Its focus was on revealing to the community, as well as the women themselves, that they are incredible, whole, valuable members of our community that have many strengths and attributes which we recognise and celebrate.
The number of alcohol-specific deaths in Scotland rose by 17 per cent between 2019 and 2020, according to new figures from National Records of Scotland (NRS).
The rate for alcohol-specific deaths is far higher in the most deprived areas with men accounting for more than two-thirds of the deaths
Deaths increased from 1,020 to 1,190, the largest number recorded since 2008, following a decline in the previous year.
As with Scotland’s drug-related deaths the rate for alcohol-specific deaths is far higher in the most deprived areas – at more than four times the rate for the least deprived. Men accounted for more than two-thirds of the deaths, with most alcohol-specific deaths among people in their 50s and 60s.
‘NRS figures released today show a marked increase in the number of deaths due to alcohol, reversing the fall seen in 2019,’ said the agency’s director of statistical services, Pete Whitehouse. ‘Monthly analysis shows that alcohol-specific deaths were higher than average in ten months of 2020. From August to November deaths were similar to or substantially higher than the highest numbers seen during these months over the last five years.’
‘It is devastating to hear that the number of deaths linked to alcohol harm has increased in Scotland,’ said chair of the Alcohol Health Alliance, Professor Sir Ian Gilmore. ‘This follows a similar pattern to elsewhere in the UK during the COVID-19 pandemic and demonstrates the urgent need to act on this parallel health crisis. We cannot afford to continue ignoring the damage that alcohol is inflicting on communities around the UK. Though the Scottish Government has led the way with innovative alcohol harm prevention policies – like minimum unit pricing – there is still more to do to tackle alcohol harm including ensuring access to alcohol treatment for all who need it. This must be backed up by urgent action from the UK government in the form of effective alcohol taxes and alcohol advertising restrictions on TV and online to protect children. Lives depend on it.’
Only ten local authorities have been able to increase their spending on drug and alcohol treatment services in real terms since 2016, according to analysis by the Labour Party for the House of Commons Library.
All other councils experienced a ‘real-term’ budget cut, says Labour, with four – Medway, Staffordshire, Tyneside and Wiltshire – seeing real-term cuts of more than 40 per cent.
Jonathan Ashworth: weakened state of treatment services is unacceptable
Overall, local authority treatment services have seen real-term cuts equivalent to 15 per cent since 2016-17, it adds – from £762.37m to £689.76m – with dwindling public health budgets necessitating ‘incredibly difficult decisions’ about services. It was ‘unacceptable’ that treatment services had been left ‘so weakened’, said shadow health secretary Jonathan Ashworth. ‘We need a new settlement for public health services, a clear target to reduce inequalities, and action to minimise harm and help prevent so many dying from addiction.’
‘With deaths linked to alcohol and other drugs at an all-time high, urgent action must be taken to save lives,’ added Alcohol Health Alliance chair Professor Sir Ian Gilmore. ‘Treatment is essential to help those with alcohol dependence towards recovery but has long been underfunded and inaccessible to many. In England, only one in five dependent drinkers are in treatment and continual cuts to services denies help to some of the most vulnerable people in our society.
Professor Sir Ian Gilmore: urgent action must be taken
‘We look forward to working with the government on the forthcoming addiction strategy to ensure that the epidemic of alcohol harm gets the attention it deserves and that adequate resources are allocated to preventing and treating it.’
Meanwhile, the Home Office has awarded £11.3m to 25 police and crime commissioners (PCC) to fund domestic abuse intervention programmes, with specific programmes including ‘targeted support to address substance misuse, mental health and unemployment’.
Addiction is not a choice or a lifestyle any more than a mental health condition is, says Karen Biggs, chief executive of Phoenix Futures.
If anyone were to disregard the underlying causes of a mental health condition they would be rightly challenged in the strongest terms. But when it comes to addiction, it seems acceptable to judge and shame, and when it comes to addiction to drugs it is a common narrative.
Phoenix has for many years adopted a strategic commitment to speak out against stigma. What that means is we see it as our day job. Not someone else’s issue, not mission drift, not playing with politics but embedded in our day to day work to support people and families affected by addiction.
We know how stigma impacts the media portrayal of addiction and we see politicians, decision makers and sadly healthcare professionals all perpetuating stigma. We see their personal belief system affecting their decision making. It can be direct or indirect, conscious, or unconscious, but always works to ‘other’ people in addiction and their families and denies them the rights afford by the law. Let’s be clear; it denies them the healthcare and support afforded to them by law.
We have the right to free healthcare in the UK. But people in addiction don’t get the help they need. Only 40% of people who need treatment in Scotland get it. It’s people in our poorest communities that are most often denied this legal right. That isn’t people choosing not to engage, or not looking for help. Look on any social media site and you will see story after story of desperate people trying to get help and not finding it, or not finding what they want, or not getting it quickly enough.
In Scotland and England, we have seen an injection of cash to increase access to treatment and improve the quality and availability of treatment. In Scotland the funding was considerable but hasn’t been spent quickly and wisely enough. In England the money awarded to date is a fraction of what is needed to make a real difference.
At the start of the Covid pandemic, some of the most gut-wrenching images we saw across the world were of doctors and nurses desperately trying to save the lives of people with this new infection they didn’t understand. In the face of so many patients they were heroically trying everything they could, applying their expertise and experience, experimenting, showing determination and resilience to find a treatment. In 2020, someone under 65 in Scotland was more likely to die of a drugs than Covid.
During the pandemic we have listened to the people who had Covid – their experience of the condition and sadly the relatives of the people lost to the infection. Learning from the lived experience of others is a crucial ingredient to many health care interventions. People with mental health conditions or cancer all play a crucial role in defining their own care plans. And those in recovery from those conditions advocate and support others.
Release has responded to the latest drug-related deaths figures announced by the Office for National Statistics (ONS).
The data released by the ONS shows 4,561 drug poisoning (i.e. ‘overdose’) deaths registered in 2020 in England and Wales, of which two thirds were related to ‘drug misuse’. The rate of death relating to drug misuse in England and Wales in 2020 was 52.3 deaths per million people. 2020 is now the year with the highest number of registered drug poisoning deaths since records began, with the rates of drug-related poisonings now 60.9% higher than they were 10 years ago in 2010.
Release’s policy lead, Dr. Laura Garius, said:
“With drug poisoning deaths increasing once again in England and Wales, it is time to acknowledge the role that current drug policy, and government inaction are playing in these deaths. We will no doubt see these rates continue to rise if we do not adopt policy reform and invest in overdose prevention sites and harm reduction and treatment, and review the law to end criminal sanctions for possession offences.”
It continues to be deaths related to opiates that are driving the figures, with a total of 2,263 drug poisoning deaths registered in 2020 involving opiates (such as heroin and morphine). This is 4.8% higher than in 2019 (2,160 deaths) and 48.2% higher than in 2010 (1,527 deaths). There has also been a five-fold increase in cocaine-related deaths since 2010 – with 777 drug poisoning deaths registered in 2020 involving cocaine, compared with 144 such deaths registered in 2010.
There are also increasing numbers of deaths involving benzodiazepines (with 476 deaths registered in 2020 compared to 399 in 2019 – an increase of 19.3%), and gabapentinoids, including a 41% increase in deaths involving pregabalin (244 deaths in 2019 to 344 deaths in 2020), and a 32.6% increase in deaths involving gabapentin (89 deaths in 2019 to 118 deaths in 2020). These drugs are often taken alongside heroin/morphine to enhance the effect, but may increase the risk of overdose.
There continues to be a distinct North/South divide in rates of drug misuse deaths. The North East in particular has a significantly higher rate of deaths relating to drug misuse than all other English regions, with 104.6 deaths per million people, the highest rate of drug misuse of any English region for the past eight consecutive years.
In 2020, Wales recorded its lowest rate of drug misuse deaths since 2014, however the ONS report includes that death registration delays in Wales could have impacted the latest figures.
“The public health crisis that we are all experiencing as a result of COVID-19 has exposed how structural inequalities have contributed to high deaths rates due to the virus; we have seen the same thing in drug-related deaths for the last decade. It is no surprise that in areas of deprivation, where austerity has destroyed social safety nets, we are witnessing the highest levels of drug-related deaths linked to drug dependency. Investment in these communities, adequate housing, restoring benefits to a decent level, along with drug policy and harm reduction initiatives can save lives.”
The Government’s own advisory body – the Advisory Council on the Misuse of Drugs – gave advice five years ago on how to prevent more of these deaths. Despite ample evidence, it is tragic and hugely irresponsible that this expert advice has been largely ignored by central government.
After 50 years of failure, the Misuse of Drugs Act must be repealed; drug deaths are not inevitable. This public health crisis will not abate unless we scale up harm reduction initiatives and pursue policies based on science and evidence rather than ideology and moralism.
The Department of Health and Social Care has launched a consultation on proposals to make naloxone ‘more widely available in the community’.
Poster from the national naloxone and overdose awareness campaign
The eight-week consultation is in response to the ever-increasing rate of drug-related deaths and the second part of Dame Carol Black’s Independent review of drugs, the government states.
Under the new proposals the list of people who would be eligible to carry and administer naloxone includes nurses, midwives, paramedics, police and prison officers, pharmacists, probation officers, homelessness outreach and day staff, and temporary and supported accommodation staff. The amended legislation would apply throughout the UK, and anyone replying to the consultation will also be able to suggest other services that should be added to the list.
‘To prevent people dying from drug abuse we need to make sure the right treatment and medicines are available, which is why we’re launching this consultation on naloxone today,’ said health secretary Sajid Javid. ‘This government is committed to tackling drug misuse and saving lives, including through our new Joint Combating Drugs Unit and an ambitious new strategy.’
Open consultation: Expanding access to naloxone here until 28 September
SIG Penrose has collaborated with Reed in Partnership to support men and women through their activity hubs.
The HMPPS CFO Activity Hubs provide safe and supportive spaces for men and women on licence or serving a community sentence, to access important services.
SIG Penrose is a lead partner with the responsibility for providing support to complex males and females. This includes individual advice and guidance, peer engagement and development of personal plans to move forward into education, employment or training.
The activity hubs contribute to the development of personal skills and purpose needed to desist from offending and integrate into communities.
Change Grow Live has issued the following statement following the release of the Office of National Statistics’ report on deaths related to drug poisoning in England and Wales: 2020 registrations.
The report identifies that there were 4,561 drug-related deaths in England and Wales in 2020, representing a 3.8% increase on the previous year’s figures.
Mark Moody, Change Grow Live’s chief executive, is calling for change:
“Such an increase in the number of drug-related deaths demonstrates the need for us to take action now. Too many people have died, and each death is a tragedy for families and a loss for our communities.
Drug-related deaths are preventable, not inevitable, and now is the time for change. The recommendations made to Government in the Dame Carol Black Review offer a once-in-a-generation opportunity to change things for the better, but only if they are implemented in their entirety.
For things to improve, we must directly challenge the stigma faced by people who use drugs. This starts by recognising that drug dependency is a chronic health condition which must be integrated alongside NHS services, criminal justice pathways, and housing support.
No single organisation has the solution to drug-related deaths, and a national Drug Strategy must be led by the voices of the people who are most affected. We hope to work together with Government and other partners to share our expertise, insights, and evidence.
By working together, we have a much greater chance of preventing harm, saving lives, and changing society for the better.”
World AIDS Day takes place on 1 December each year. It’s an opportunity for people worldwide to unite in the fight against HIV, to show support for people living with HIV, and to commemorate those who have died from an AIDS-related illness. Founded in 1988, World AIDS Day was the first ever global health day.
The World Health Organisation recognises World Mental Health Day on 10 October every year. This year’s theme set by the World Federation for Mental Health is ‘mental health for all’.
England and Wales have yet again recorded their highest ever number of drug-related deaths, according to the latest figures from the Office for National Statistics (ONS).
There were 4,561 deaths related to drug poisoning registered in 2020, a 3.6 per cent increase on 2019’s figure of 4,393 (DDN, November 2020, page 4). Last week also saw Scotland once again record its highest ever figure at 1,339.
Two thirds of the poisoning deaths were related to drug misuse, with the highest rate in the 45-49 age range. As in previous years, the North East had the highest rate of deaths, and men accounted for more than two thirds of overall deaths. While just under half of fatalities involved an opiate, the number of deaths involving cocaine was up by almost 10 per cent to 777 – more than five times the figure from a decade ago. The rate of drug poisoning deaths in England and Wales has now increased every year since 2012.
Deaths involving benzodiazepines were up by more than 19 per cent to 476, while deaths involving pregabalin rose by more than 40 per cent to 344 and gabapentin by 32 per cent to 118. The vast majority of deaths mentioning these substances, however, involved other drugs – primarily opiates. While Wales recorded its lowest rate of drug misuse deaths since 2014, ONS states that death registration delays as a result of COVID-19 ‘could be affecting’ the latest figures.
‘Drug-related deaths have been on an upward trend for the past decade,’ says ONS. ‘The reasons behind this are complex and differ by drug type. The overall trend is driven primarily by deaths involving opiates, but also by an increase in deaths involving other substances like cocaine. Across Europe, rates of deaths involving heroin or morphine have been increasing, while the number of new heroin and morphine users has fallen. This indicates higher rates of death among existing long-term drug users.’ Recent trends in taking drugs like gabapentinoids or benzodiazepines alongside heroin or morphine may also increase the risk of overdose, it adds.
‘Such an increase in the number of drug-related deaths demonstrates the need for us to take action now,’ said Change Grow Live chief executive Mark Moody. ‘Drug-related deaths are preventable, not inevitable, and now is the time for change. The recommendations made to government in the Dame Carol Black review offer a once-in-a-generation opportunity to change things for the better, but only if they are implemented in their entirety.’ No single organisation had the solution, and any national drug strategy ‘must be led by the voices of the people who are most affected’, he stated.
The figures were ‘tragic and concerning’, added With You’s executive director of services, Jon Murray. ‘For many people drug use is a reaction to their environment so it’s no surprise that drug-related deaths are highest in the most deprived areas of the country. Too many people who need treatment aren’t accessing it, and too many people are unaware of the potential harms of their drug use. These figures are unacceptable but we are hopeful that change is possible. We are calling on the government to respond to today’s statistics by bringing serious political commitment to this issue and ensuring the appropriate financial investment is made in the upcoming Comprehensive Spending Review to action the recommendations of Dame Carol Black’s review.’
More reactions from the sector
Many of those deaths could have been prevented if more people were able to readily access treatment. More people would come into treatment if a wider range of treatment options were available across England. The announcements of additional funding in England this year have been welcome. However they have been too little too late for the people whose deaths have been recorded in this report. We still see more people dying in the north of England than in the south. The stigmatising explanations for the rate of death being in the older age group doesn’t excuse that people in long term addiction aren’t being able to access the long term help they need to reduce risk.
No longer can the government claim they don’t know what to do to address the continued increase in deaths. The Dame Carol Black review has set out clearly and in excruciating detail what is needed for a whole system change to drug treatment. This is not a time to pick and choose from her 32 recommendations. This is a time to listen to the experts, take the advice asked for, and invest in treatment. Only then will we ensure vital healthcare for people who use drugs is available ( in line with clinical guidance) to everyone in the country, regardless of where they live or how much money they have. To do anything else is to deny the heartbreak of the thousands of families who have experienced a loss due to a treatable condition.
Karen Biggs, chief executive, Phoenix Futures
We are now experiencing a crisis that will only continue to escalate without significant intervention from the state. With an issue as complex as addiction, so dependent on social environment, the reasons behind the crisis are multitude. Substance misuse treatment has a strong evidence base for reducing mortality, so there can be little doubt that a huge reduction in funding for treatment is likely to have played a role, as well as the lack of clear government action on such a cross-cutting issue.
Thankfully, there are some encouraging signs the government has heard the calls of our field and is prepared to listen. Dame Carol Black’s independent review has revealed the inadequacy of the state’s response to drugs, which cost the UK almost £20bn each year. Substance misuse treatment budgets have represented less than just four per cent of those costs, despite each £1 spent creating £3.50 in social returns. Dame Carol has therefore recommended investment of almost £1.8bn into treatment over the next five years, which will create £6.5bn in benefit and – most importantly – prevent over 3,000 people from dying from opiate overdose.
The government’s initial response has endorsed Dame Carol’s ‘whole-system approach’ by announcing a new Joint Combatting Drugs Unit, local and national outcomes frameworks and commissioning quality standards. As a field we must be ready to do whatever it takes to support the change we all want to see. All eyes are now on the political decision-making shaping the Spending Review, which must unlock the resource to stem the tide. Without it, there is little hope on the horizon of the crisis abating.
Peter Keeling, campaigns officer, Collective Voice
The public health crisis that we are all experiencing as a result of COVID-19 has exposed how structural inequalities have contributed to high deaths rates due the virus, we have seen the same thing in drug related deaths for the last decade. It is no surprise that in areas of deprivation, where austerity has destroyed social safety nets, we are witnessing the highest levels of drug related deaths linked to drug dependency. Investment in these communities, adequate housing, restoring benefits to a decent level, along with drug policy and harm reduction initiatives can save lives.
Niamh Eastwood, executive director, Release
Deaths related to drug poisoning in England and Wales: 2020 registrations at www.ons.gov.uk
It was very common for someone receiving support for drug and/or alcohol problems to also experience mental health difficulties – yet this wasn’t always reflected in the way services operated, said chief executive Julie Bass as she launched Turning Point’s new Substance use mental health (SUMH) resource pack.
There was a ‘fragmented system’ in this country that could change following Dame Carol Black’s review, she said. ‘In the meantime, we all need to go the extra mile and I hope this resource pack helps.’
Turning Point’s chair, Stephen Parker, recalled using the charity’s dual diagnosis toolkit back in 2005, ‘an exciting time when we felt like we could change the world’. Then austerity hit in 2008 bringing cuts, and fragmentation started to happen. Services were overrun and all we could do was what we were commissioned to do. ‘But it’s exciting to be working in the field at the moment,’ he said, with new opportunities to work with people with complex needs.
Developing the toolkit involved ‘bringing pathways together and looking at what’s working’ including with partnerships and other agencies, explained Jan Larkin, consultant clinical psychologist and head of psychology at Turning Point. The aim was to provide the most effective treatment for often the most vulnerable people in health and social care, and to ‘make sure people don’t fall through the gaps’. This didn’t mean ‘a tick-box exercise on trauma-informed care’ but involved ‘weaving psychological models into care’.
Julie Bass: We need to change a fragmented system
In ‘trying to get away from a siloed approach’, Turning Point were keen to expand their all-round training through the resource pack, which encouraged ‘keeping a wider focus than the individual’, embraced diversity, and involved supporting family members and the community. Peer mentors also had an important role in this support network, helping to deliver interventions as well as showing recovery in action.
The charity hoped that commissioners and providers of mental health and alcohol and drug services would embrace their joint responsibility to work together on shared solutions. The resource pack gave the opportunity to share learning to improve care pathways and provide quality support, and included case studies to show how good practice could be replicated in different areas.
The SUMH resource pack is available to download here
Turning Point is a leading social enterprise, providing health and social care services in over 300 locations across England.bIt works with people who need support with their drug and alcohol use, mental health, offending behaviour, unemployment issues and people with a learning disability.
DAN 24/7 is a free and bilingual telephone helpline providing a single point of contact for anyone in Wales wanting further information and / or help relating to drugs and / or alcohol.
Drugs & Me is a social enterprise that provides services centered around drug harm reduction, as part of an upcoming network of mental health tools brought to you by the Mental Health Education Foundation.
Adfam is the only national charity tackling the effects of alcohol, drug use or gambling on family members and friends. It aims to improve life for thousands of people by:
empowering families and friends to get the support they need
building the confidence, capacity and capability of frontline practitioners to provide effective services
influencing decision-makers to understand the needs of thousands of people coping with a family member or friend’s drink, drug or gambling problem.
With the recent lockdowns and social restrictions exacerbating loneliness and social isolation amongst vulnerable groups, Turning Point has made radical changes to how it is staying connected with clients.
Evidence from 148 studies on the relationship between social relationships and mortality risk concludes strong social connection gives us a 50% chance of living longer. Other headlines from an ever-growing evidence-base include: loneliness increases the risk of premature mortality by 26%; has a detrimental impact on the genes that regulate immune function and contribute to early cognitive decline and dementia, heart disease and stroke.
The Covid-19 pandemic has exacerbated the problem of loneliness/social isolation identified in the original Marmot Report over a decade ago. In the follow-up Building Back Fairer – The Covid-19 Marmot Review, lockdown and social restrictions were identified as disproportionately impacting those already socially isolated, while also affecting groups not previously considered to be at high risk, particularly young people with low educational and income levels and students.
The clients we support across Turning Point – in substance misuse, mental health and learning disabilities – are among the most vulnerable to social isolation and loneliness. Feeling stigmatised or discriminated against, losing social/employment/family networks all contribute to low self-esteem, poor mental and physical wellbeing and substance abuse.
However, although often mentioned in the same breath, social isolation and loneliness are not the same thing, and this informs how we support our clients.
People can be surrounded by other people yet still feel lonely because relationships with others are not what we’d like them to be. Social isolation is a lack of social connection, a lack of others. One can lead to the other or occur at the same time.
The difference has been brought into sharper focus during the pandemic and the wholesale shift to maintaining or building connections remotely online. It has demanded swift and radical changes to how we have kept connected with our clients and kept them connected with others.
In London, our DAWs substance misuse service transformed its Get Connected programme to Stay Connected. This included equipping clients with mobile phones, tablets and laptops, and providing instructions and telephone coaching on how to set up and access groups and ETE support from the service as well as local and international mutual aid group meetings.
Families Anonymous is a world-wide fellowship of family members and friends affected by another’s abuse of mind-altering substances, or related behavioural problems. FA has groups, spread throughout the country, which meet regularly.
DrugFAM provides a lifeline of safe and caring support to families, friends and partners affected by someone else’s drug, alcohol or gambling problems.
Drug Science is a leading independent scientific body on drugs in the UK. It works to provide clear, evidence-based information on drug harms and effects, without political or commercial interference.
Alcohol Change UK is a national organisation campaigning for effective alcohol policy which addresses issues that lead to alcohol problems – like poverty, mental health issues, homelessness – and promotes better access to high-quality support for those who need it, without shame or stigma.
Once again Scotland recorded record levels of drug related deaths
Karen Biggs, chief executive, and Lyndsey Wilson-Hague, head of operations at Phoenix Futures, discuss the latest drug-related death figures released by the National Records of Scotland.
The statistics we have seen today are shocking and deeply saddening. At Phoenix, we know how painful it is to lose a loved one or family member as a result of drugs; a brother, sister, son, daughter, mother, father, partner, friend. The stigma people who use drugs experience, often extends to their families and has an impact on how families are able to grieve and mourn their loved one. Our thoughts are with everyone who has experienced loss this year and those affected by the deaths being announced today.
Many of those deaths could have been prevented if more people were able to readily access treatment. More people would come into treatment if a wider range of treatment options were available across Scotland.
The announcement in early 2021 from the First Minister was very welcome – more funding for a wider range of treatment options including residential treatment and ongoing support so the progress that people make in treatment can be sustained in their local communities and their recovery long-lasting.
Unfortunately, not all residential providers have yet seen the impact of this additional funding. From our experiences this year of working closely with people from across a range of local authorities in Scotland, some are still finding it extremely challenging to access residential treatment, navigate local pathways and get the treatment and support they seek and need.
81% of people who come to our residential rehabilitation service in Glasgow complete their programme and/or move on to further aftercare support. By engaging with the programme, they are able to develop a range of life-changing skills that support sustained recovery. Sadly, this treatment option is still not available to all people across Scotland. Despite it having a clear evidence base, being cited in UK clinical guidance and funding been made available.
Phoenix Futures Scotland are committed to working with families, people who use drugs, lived experience groups, statutory services, charities and the Scottish Government to create better choices for people to access the treatment that works for them, and at the right time for them. So people can get well and families can avoid the heartbreak of losing a loved one.
Our thoughts are with all 1,339 people who sadly lost their lives, their families and loved ones at this time
Scotland has once again recorded its highest ever level of drug-related deaths, according to the latest figures from National Records of Scotland.
The people behind the statistics are highlighted by the ‘You Keep Talking, We Keep Dying’ vigils. Read more about the campaign here
There were 1,339 deaths recorded in 2020, a further 5 per cent increase on 2019’s record figure. The rate remains the highest of any European country, and three and a half times greater than that for the UK as a whole.
There were four and a half times as many deaths last year as in 2020, with the latest figure the highest since records began in 1996. As in previous years men, and people in the most deprived areas, were more likely to die a drug-related death. After adjusting for age, men were 2.7 times more likely to have a drug-related death, says National Records of Scotland, with people in the most deprived parts of the country 18 times more likely to suffer a drug death than those in the least deprived. The Greater Glasgow and Clyde health board area saw the highest rate, followed by the Ayrshire and Arran and Tayside areas.
Around two thirds of the deaths were among people aged between 35 and 54, with the average age increasing from 32 to 43 over the last two decades.
‘Sadly, last year saw the highest number of drug-related deaths in Scotland since reporting began 25 years ago, and 59 more deaths than were registered in 2019,’ said the agency’s head of demographic statistics, Alan Ferrier. ‘At the beginning of the century, the rate of drug-related deaths in Scotland’s most deprived areas was ten times that of our least deprived areas. By 2020 this gap had increased to 18 times as high.’
Scottish Government drugs minister Angela Constance
Suspected drug deaths will be reported quarterly from September onwards to ‘enable better surveillance and response’ and identify emerging trends, the Scottish Government has announced. Drugs minister Angela Constance, who was specifically appointed to lead work on tackling the crisis (DDN, February, page 5) said the figures were ‘heart-breaking’.
‘I want to offer my sincere condolences to everyone who has lost a loved one through drug use,’ she said. ‘We are working hard to get more people into the treatment that works for them as quickly as possible. Without treatment, there is little hope of recovery so we are funding as many community and third sector initiatives as we can so that individuals have the widest possible choice and can opt for the support which suits them and their family.
“Of the £250m announced over the next five years (DDN, February, page 4) £100m will go on improving the provision of residential rehabilitation and I will update Parliament on progress in this area after the summer recess. As I have said before, I am determined that every penny of this additional funding will make a difference to all those affected by drug use in Scotland.’
Scottish Drugs Forum CEO David Liddell
The figures confirmed that Scotland’s ‘national public health emergency continues’ and were ‘a national disgrace’, said Scottish Drugs Forum CEO David Liddell. ‘The trauma will be felt through generations and for years. These deaths represent a scar on the nation’s conscience and serve as a reminder of our collective failure to support vulnerable people and their families in the moments when they most needed support. The evidence for what should be done is clear and unequivocal. What works, and what needs to be improved for people in Scotland, is treatment and support.’
Treatment services would not ‘transform themselves’, he added. ‘Change will require investment, leadership and higher expectations from the Scottish public, people who may use treatment services, their families and communities. Only 35-40 per cent of the 58,000 people with a drug problem in Scotland are in treatment. In the rest of the UK that figure is nearly double Scotland’s rate. Why is that? It may be painful to admit but for many people in desperate need, treatment, in too many parts of Scotland, is neither accessible nor acceptable.’
Release is the national centre of expertise on drugs and drugs law. The organisation, founded in 1967, is an independent and registered charity.
Through our services the team provides free non-judgmental, specialist advice and information to the public and professionals on issues related to drug use and to drug laws.
DrugWise Daily is a news service for the drug and alcohol sector which aims to give wide coverage not just to news, but to the variety of views and opinions about all aspects of the subject that are of interest to the sector.